From margins to centre: a review of the history of palliative care in cancer

Lancet Oncology

Volumn 8, Issue 5, 2007, Pages 430-438

  Clark, David ^a  

^a LANCASTER UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

OPIATE;

ADVANCED CANCER; ANALGESIA; ANTICIPATORY GRIEF; ANXIETY; CANCER PAIN; DEPRESSION; DRUG USE; DYING; EUTHANASIA; FINANCIAL MANAGEMENT; HEALTH CARE ACCESS; HEALTH CARE AVAILABILITY; HEALTH CARE DELIVERY; HEALTH CARE MANPOWER; HEALTH CARE NEED; HEALTH CARE POLICY; HEALTH CARE QUALITY; HELP SEEKING BEHAVIOR; HISTORY OF MEDICINE; HOSPICE CARE; HUMAN; INTERNATIONAL COOPERATION; LEGAL ASPECT; MALIGNANT NEOPLASTIC DISEASE; MEDICAL EDUCATION; MEDICAL SPECIALIST; NATIONAL HEALTH SERVICE; NON PROFIT ORGANIZATION; NURSING CARE; NURSING PRACTICE; PALLIATIVE THERAPY; PATIENT ATTITUDE; PATIENT EDUCATION; PRIORITY JOURNAL; PSYCHOTHERAPY; PUBLICATION; REVIEW; SOCIAL CARE; SPIRITUAL CARE; TREATMENT FAILURE; UNITED KINGDOM; UNITED STATES; WORK EXPERIENCE;

HISTORY, 20TH CENTURY; HISTORY, 21ST CENTURY; HOSPICES; HUMANS; NEOPLASMS; PALLIATIVE CARE;

EID: 34247269809     PISSN: 14702045     EISSN: None     Source Type: Journal    
DOI: 10.1016/S1470-2045(07)70138-9     Document Type: Review

References (91)

1. Saunders C. The management of patients in the terminal stage. In: Raven R. (Ed). Cancer vol 6 (1960), Butterworth and Company, London 403-417
2. Humphreys C. "Waiting for the last summons": the establishment of the first hospices in England 1878-1914. Mortality 6 (2001) 146-166
3. Clark D. Cradled to the grave? Pre-conditions for the hospice movement in the UK, 1948-67. Mortality 4 (1999) 225-247
4. Clark D., Small N., Wright M., Winslow M., and Hughes N. A bit of heaven for the few? An oral history of the hospice movement in the United Kingdom (2005), Observatory Publications, Lancaster
5. Clark D., and Seymour J. Reflections on palliative care: sociological and policy perspectives (1999), Open University Press, Buckingham
6. Clark D. History, gender and culture in the rise of palliative care. In: Payne S., Seymour J., and Ingleton I. (Eds). Palliative care nursing. Principles and evidence for practice (2004), Open University Press, Maidenhead 39-54
7. Clark D. Originating a movement: Cicely Saunders and the development of St Christopher's Hospice, 1957-67. Mortality 3 (1998) 43-63
8. Burke K. Health tsars. Professor Mike Richards. Br Med J 328 (2004) 12
9. Expert Advisory Group on Cancer. A policy framework for commissioning cancer services: a report by the expert advisory group on cancer to the Chief Medical Officers of England and Wales (1995), Department of Health and Welsh Office, London
10. The NHS Cancer plan: a plan for investment, a plan for reform (2000), Department of Health, London
11. Department of Health. End of life care. http://www.dh.gov.uk/PolicyAndGuidance/OrganisationPolicy/EndOfLifeCare/fs/en (accessed March 28, 2007).
12. International Observatory on End of Life Care. Historical analysis. http://www.eolc-observatory.net/history/index.htm (accessed March 28, 2007).
13. Bailey M. A survey of the social needs of patients with incurable lung cancer. The Almoner 11 (1959) 379-397
14. Paterson R., and Aitken-Swan J. Public opinion on cancer; a survey among women in the Manchester area. Lancet 23 (1954) 857-861
15. Aitken-Swan J., and Paterson R. The cancer patient: delay in seeking advice. Br Med J 1 (1955) 623-627
16. Abrams R., Jameson G., Poehlman M., and Snyder S. Terminal care in cancer. A study of two hundred patients attending Boston clinics. N Engl J Med 232 (1945) 719-724
17. Abrams R. Social casework with cancer patients. Soc Casework 52 (1951) 425-431
18. Brauer P. Should the patient be told the truth?. Nurs Outlook 8 (1960) 328-333
19. Bard M. The psychologic impact of cancer. Il Med J 118 (1960) 155-159
20. Lindemann E. Symptomatology and management of acute grief. 1944. Am J Psychiatry 151 (1994) 155-160
21. Aldrich C. The dying patient's grief. JAMA 184 (1963) 329-331
22. Parkes C. Recent bereavement as a cause of mental illness. Br J Psychiatry 110 (1964) 198-204
23. Wilkes E. Cancer outside hospital. Lancet 18 (1964) 1379-1381
24. Wilkes E. Terminal cancer at home. Lancet 1 (1965) 799-801
25. Hinton J. Problems in the care of the dying. J Chronic Dis 17 (1964) 201-205
26. Glaser B., and Strauss A. Awareness of Dying (1965), Aldine, Chicago, IL
27. Cartwright A., Hockey L., and Anderson J. Life Before Death (1973), Routledge, London
28. Cicely Saunders to Dr A N Exton Smith. In: Clark D. (Ed). Cicely Saunders. Founder of the hospice movement, selected letters 1959-1999 (2001), Oxford University Press, Oxford 38
29. Saunders C. Drug treatment of patients in the terminal stages of cancer. Cur Med Drugs 1 (1960) 16-28
30. Saunders C. The care of the terminal stages of cancer. Ann R Coll Surg 41 suppl (1967) 162-169
31. Clark D. 'Total pain', disciplinary power and the body in the work of Cicely Saunders 1958-67. Soc Sci Med 49 (1999) 727-736
32. Saunders C. The symptomatic treatment of incurable malignant disease. Prescriber's Journal 4 (1964) 68-73
33. Saunders C. (Member of Church of England Board of Social Responsibility Working Party) On Dying Well: An Anglican contribution to the debate on euthanasia (1975), Church Information Office, London
34. Kubler Ross E. On Death and Dying (1969), Tavistock, London
35. Grob G. The deadly truth. A history of disease in America (2002), Harvard University Press, Cambridge, MA
36. National Council for Palliative Care. The distinctive characteristics of cancer (2006), The National Council for Palliative Care, London
37. Clark D. The rise and demise of the "Brompton Cocktail". In: Meldrum M. (Ed). Opioids and pain relief: a historical perspective. Progress in pain research and management vol 25 (2003), IASP Press, Seattle, WA 85-98
38. Twycross R. 'The Brompton Cocktail'. In: Bonica J., and Ventafridda V. (Eds). Advances in pain research and therapy vol 2 (1979), Raven Press, New York
39. Parkes C. Home or hospital? Terminal care as seen by surviving spouses. J R Coll Gen Pract 28 (1978) 29-30
40. Parkes C., and Parkes J. 'Hospice' versus 'hospital' care - re-evaluation after 10 years as seen by surviving spouses. Postgrad Med J 60 (1984) 120-124
41. Herxheimer A., Begent R., MacLean D., Phillips L., Southcott B., and Walton I. The short life of a terminal care support team: experience at Charing Cross Hospital. Br Med J 290 (1985) 1877-1879
42. Clark D., and Seymour J. Reflections on Palliative Care (1999), Open University Press, Buckingham, UK
43. Higginson I., Finlay I., Goodwin D., et al. Do Hospital-based palliative teams improve care for patients or families at the end of life?. J Pain Symptom Manage 23 (2002) 96-106
44. We are Macmillan. Cancer Support. http://www.macmillan.org.uk/Home.aspx (accessed March 28, 2007).
45. Marie Curie Cancer Care. http://www.mariecurie.org.uk/ (accessed March 28, 2007).
46. National Council for Palliative Care. Minimum data sets project update (2005), National Council for Palliative Care, London
47. Clark D. The development of palliative medicine in the UK and Ireland. In: Bruera E., Higginson I., Ripamonti C., and von Gunten C. (Eds). Textbook of palliative medicine (2006), Hodder Arnold, London 3-9
48. Cicely Saunders to Derek Doyle, 15 October 1985. In: Clark D. (Ed). Cicely Saunders. Founder of the hospice movement. Selected letters 1959-1999 (2002), Oxford University Press, Oxford 262
49. Doyle D. Palliative medicine: the first 18 years of a new sub-specialty of General Medicine. J R Coll Physicians Edinb 35 (2005) 199-205
50. O'Brien T., and Clark D. A national plan for palliative care - the Irish experience. In: Ling J., and O'Siorain L. (Eds). Palliative Care in Ireland (2005), Open University Press, Maidenhead 3-18
51. Seymour J., Clark D., and Winslow M. Pain and palliative care: the emergence of new specialties. J Pain Symptom Manage 29 (2005) 2-13
52. Seymour J., and Clark D. The modern history of morphine use in cancer pain. EJPC 12 (2005) 152-155
53. Bonica J., and Ventafridda V. International symposium on pain of advanced cancer (1979), Raven Press, New York
54. Reynolds L., and Tansey E. Innovations in pain management. Welcome witnesses to twentieth century medicine vol 21 (2004), The Wellcome Trust Centre for the History of Medicine, London
55. Meldrum M. The ladder and the clock: cancer pain and public policy at the end of the twentieth century. J Pain Symptom Manage 29 (2005) 41-54
56. Stjernsward J., and Joranson D. Opioid availability and cancer pain-an unnecessary tragedy. Support Care Cancer 3 (1995) 157-158
57. Higginson I. Palliative care: a review of past changes and future trends. J Public Health Med 15 (1993) 3-8
58. Clark D. History, gender and culture in the rise of palliative care. In: Payne S., Seymour J., and Ingleton I. (Eds). Palliative care nursing. Principles and evidence for practice (2004), Open University Press, Maidenhead 39-54
59. Stjernsward J., and Clark D. Palliative care - a global perspective. In: Hanks G., Doyle D., Calman C., and Cherny N. (Eds). Oxford textbook of palliative medicine. 3rd edn. (2003), Oxford University Press, Oxford
60. Field M., and Cassel C. Approaching death. Improving care at the end of life (1997), National Academy Press, Washington, USA
61. Foley K., Gelband H., and Improving palliative care for cancer. Summary and recommendations from the National Cancer Policy Board, Institute of Medicine, and National Research Council (2001), National Academy Press, Washington, USA
62. Grady P. Introduction: papers from the National Institutes of Health State-of-the Science Conference on Improving End-of-Life Care. J Palliat Med 8 suppl 1 (2005) 1-3
63. Mount B. The Royal Victoria Hospital Palliative Care Service: a Canadian experience. In: Saunders C., and Kastenbaum R. (Eds). Hospice care on the international scene (1997), Springer, New York, USA
64. Carstairs S., and Chochinov H. Politics, palliation and Canadian progress in end-of-life care. J Palliat Med 4 (2001) 396-469
65. De Lima L. Advances in palliative care in Latin America and the Caribbean: ongoing projects of the Pan American Health Association (PAHO). J Palliat Med 4 (2001) 228-231
66. Stjernswärd J., Bruera E., Joranson D., et al. Opioid availability in Latin America: The Declaration of Florianopolis. J Pain Symptom Manage 10 (1995) 233-236
67. Chung Y. Palliative care in Korea: a nursing point of view. Progress in Palliative Care 8 (1999) 12-16
68. Maruyama T. Hospice care and culture (1999), Ashgate, Aldershot
69. Hunt R., Fazekas B., Luke C., Priest K., and Roder D. The coverage of cancer patients by designated palliative services: a population-based study, South Australia, 1999. Palliat Med 16 (2002) 403-409
70. Wang X., Yu S., Gu W., and Xu G. China: status of pain and palliative care. J Pain Symptom Manage 24 (2002) 177-179
71. The International Observatory on End of Life Care. A collaboration for global development. India. http://www.eolc-observatory.net/global_analysis/india.htm (accessed 10th April, 2007).
72. Shabeer C., and Kumar S. Palliative care in the developing world: a social experiment in India. EJPC 13 (2005) 76-79
73. Morris K. Cancer? In Africa?. Lancet Oncology 4 (2003) 5
74. Wright M., and Clark D. Hospice and palliative care development in Africa. A review of developments and challenges (2006), Oxford University Press, Oxford
75. Harding R., Stewart K., Marconi K., O'Neill J., and Higginson I. Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities. BMC Public Health 3 (2003) 33
76. Sepulveda C., Habiyambere V., Amandua J., et al. Quality care at the end of life in Africa. Br Med J 327 (2003) 209-213
77. Harding R., and Higginson I. Palliative care in sub-Saharan Africa. Lancet 365 (2005) 1971-1977
78. Clark D., and Wright M. Transitions in end of life care. Hospice and related developments in Eastern Europe and Central Asia (2003), Open University Press, Buckingham
79. In: ten Have H., and Clark D. (Eds). The ethics of palliative care: European perspectives (2002), Open University Press, Buckingham
80. Barcelona Declaration on Palliative Care. EJPC 3 (1995) 15
81. Poznan Declaration. EJPC 6 (1998) 61-65
82. Cherny N., Catane R., and Kosmidis P. ESMO takes a stand on supportive and palliative care. Ann Oncol 14 (2003) 1335-1337
83. EURAG project. http://www.eurag-europe.org/palliativ-en.htm (accessed March 28, 2007).
84. In: Davies E., and Higginson I. (Eds). Better palliative care for older people (2004), World Health Organisation, Copenhagen
85. In: Davies E., and Higginson I. (Eds). Palliative care: the solid facts (2004), World Health Organisation, Copenhagen
86. Clark D., and Centeno C. Palliative care in Europe: an emerging approach to comparative analysis. Clin Med 6 (2006) 197-201
87. Mapping levels of palliative care development: a global view. http://www.eolc-observatory.net/information/presentations/flash/mwright_250107.swf (accessed March 28, 2007).
88. In: Sloan F., and Gelband H. (Eds). Cancer control opportunities in low- and middle-income countries (2007), The National Academies Press, Washington, USA
89. World Health Organisation. Cancer pain relief and palliative care. WHO Technical Report Series 804 (1990), World Health Organisation, Geneva
90. Sepúlveda C., Marlin A., Yoshida T., and Ullrich A. Palliative care: the World Health Organization's global perspective. J Pain Symptom Manage 24 (2002) 91-96
91. NICE. Support and palliative care. http://www.nice.org.uk/guidance/csgsp (accessed March 28, 2007).