Digital clinical communication for families and caregivers of children or young people with short-or long-Term conditions: Rapid review

Journal of Medical Internet Research

Volumn 20, Issue 1, 2018, Pages

  Armoiry, Xavier ^a   Sturt, Jackie ^b   Phelps, Emma Elizabeth ^a   Walker, Clare Louise ^a   Court, Rachel ^a   Taggart, Frances ^a   Sutcliffe, Paul ^a   Griffiths, Frances ^a,c   Atherton, Helen ^a  

^a UNIVERSITY OF WARWICK   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF THE WITWATERSRAND   (South Africa)

Author keywords

Caregivers; Child Health; Children; Digital Clinical Communication; Family; Professional Family Relations; Young Adult

Indexed keywords

ARTICLE; CAREGIVER; CHILD; CHILD HEALTH; CLINICAL OUTCOME; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; E-MAIL; ENGLISH (LANGUAGE); FAMILY RELATION; FEASIBILITY STUDY; FEMALE; HEALTH CARE MANAGEMENT; HUMAN; HUMAN EXPERIMENT; INTERVIEW; MALE; NURSE; OUTCOME ASSESSMENT; PHYSICIAN; RANDOMIZED CONTROLLED TRIAL (TOPIC); SATISFACTION; STUDY DESIGN; SYSTEMATIC REVIEW; VIDEOCONFERENCING; YOUNG ADULT; ADOLESCENT; ADULT; FAMILY; INTERPERSONAL COMMUNICATION; QUALITATIVE RESEARCH; STANDARDS;

ADOLESCENT; ADULT; CAREGIVERS; CHILD; COMMUNICATION; CROSS-SECTIONAL STUDIES; FAMILY; FEMALE; HUMANS; MALE; QUALITATIVE RESEARCH; YOUNG ADULT;

EID: 85041028614     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.7999     Document Type: Article

References (54)

1. Griffiths F, Bryce C, Cave J, Dritsaki M, Fraser J, Hamilton K, et al. Timely digital patient-clinician communication in specialist clinical services for young people: A mixed-methods study (The LYNC Study). J Med Internet Res 2017 Apr 10;19(4):e102 [doi: 10.2196/jmir.7154]
2. Ye J, Rust G, Fry-Johnson Y, Strothers H. E-mail in patient-provider communication: A systematic review. Patient Educ Couns 2010 Aug;80(2):266-273 [doi: 10.1016/j.pec.2009.09.038]
3. Atherton H, Sawmynaden P, Sheikh A, Majeed A, Car J. Email for clinical communication between patients/caregivers and healthcare professionals. Cochrane Database Syst Rev 2012;11:CD007978. [doi: 10.1002/14651858.CD007978.pub2]
4. Newhouse N, Lupiáñez-Villanueva F, Codagnone C, Atherton H. Patient use of email for health care communication purposes across 14 European countries: An analysis of users according to demographic and health-related factors. J Med Internet Res 2015;17(3):e58 [doi: 10.2196/jmir.3700]
5. Martin S, Sutcliffe P, Griffiths F, Sturt J, Powell J, Adams A, et al. Effectiveness and impact of networked communication interventions in young people with mental health conditions: A systematic review. Patient Educ Couns 2011 Nov;85(2):e108-e119. [doi: 10.1016/j.pec.2010.11.014]
6. Health and Social Care Information Centre. National Diabetes Audit 2010-2011. Report 1: Care Processes and Treatment Targets. Leeds, UK: Health and Social Care Information Centre; 2012. URL: https://digital.nhs.uk/media/20306/National-Diabetes-Audit-2010-2011-Report1-Care-processes-And-Treatment-Targets-V4/Any/nati-diab-Audi-10-11-care-proc-rep-V4 [accessed 2017-12-21] [WebCite Cache ID 6vsgPnVrK]
7. Singh SP. Transition of care from child to adult mental health services: The great divide. Curr Opin Psychiatry 2009 Jul;22(4):386-390. [doi: 10.1097/YCO.0b013e32832c9221]
8. Heery E, Sheehan AM, While AE, Coyne I. Experiences and outcomes of transition from pediatric to adult health care services for young people with congenital heart disease: A systematic review. Congenit Heart Dis 2015;10(5):413-427. [doi: 10.1111/chd.12251]
9. Sutcliffe P, Martin S, Sturt J, Powell J, Griffiths F, Adams A, et al. Systematic review of communication technologies to promote access and engagement of young people with diabetes into healthcare. BMC Endocr Disord 2011;11:1 [doi: 10.1186/1472-6823-11-1]
10. Bergmo TS, Wangberg SC, Schopf TR, Solvoll T. Web-based consultations for parents of children with atopic dermatitis: results of a randomized controlled trial. Acta Paediatr 2009 Feb;98(2):316-320. [doi: 10.1111/j.1651-2227.2008.01033.x]
11. Bradford N, Young J, Armfield NR, Bensink ME, Pedersen L, Herbert A, et al. A pilot study of the effectiveness of home teleconsultations in paediatric palliative care. J Telemed Telecare 2012 Dec;18(8):438-442. [doi: 10.1258/jtt.2012.gth103]
12. Tricco AC, Antony J, Zarin W, Strifler L, Ghassemi M, Ivory J, et al. A scoping review of rapid review methods. BMC Med 2015 Sep 16;13:224 [doi: 10.1186/s12916-015-0465-6]
13. Tsertsvadze A, Chen Y, Moher D, Sutcliffe P, McCarthy N. How to conduct systematic reviews more expeditiously? Syst Rev 2015 Nov 12;4:160 [doi: 10.1186/s13643-015-0147-7]
14. Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-Analyses: The PRISMA statement. J Clin Epidemiol 2009 Oct;62(10):1006-1012. [doi: 10.1016/j.jclinepi.2009.06.005]
15. Cochrane Consumers and Communication. Outcomes of interest to the Cochrane Consumers & Communication Group. 2012 Jan. URL: http://cccrg.cochrane.org/sites/cccrg.cochrane.org/files/public/uploads/Outcomes.pdf [accessed 2017-05-09] [WebCite Cache ID 6qKUMHRpv]
16. CASP UK. Critical Appraisal Skills Programme (CASP): making sense of evidence. Oxford, UK: CASP UK; 2013. URL: http://www.casp-uk.net/[accessed 2017-05-09] [WebCite Cache ID 6qKLsfYHc]
17. US Department of Health and Human Services, National Institutes of Health. Study quality assessment tools. 2016 Dec 01. URL: https://www.nhlbi.nih.gov/health-pro/guidelines/in-develop/cardiovascular-risk-reduction/tools [accessed 2017-05-09] [WebCite Cache ID 6qKT4z1qO]
18. Chi N, Demiris G. A systematic review of telehealth tools and interventions to support family caregivers. J Telemed Telecare 2015 Jan;21(1):37-44 [doi: 10.1177/1357633X14562734]
19. Grover M, Naumann U, Mohammad-Dar L, Glennon D, Ringwood S, Eisler I, et al. A randomized controlled trial of an Internet-based cognitive-behavioural skills package for carers of people with anorexia nervosa. Psychol Med 2011 Dec;41(12):2581-2591. [doi: 10.1017/S0033291711000766]
20. Gund A, Sjöqvist BA, Wigert H, Hentz E, Lindecrantz K, Bry K. A randomized controlled study about the use of eHealth in the home health care of premature infants. BMC Med Inform Decis Mak 2013 Feb 09;13:22 [doi: 10.1186/1472-6947-13-22]
21. Hanberger L, Ludvigsson J, Nordfeldt S. Use of a web 2.0 portal to improve education and communication in young patients with families: randomized controlled trial. J Med Internet Res 2013;15(8):e175 [doi: 10.2196/jmir.2425]
22. Looman WS, Antolick M, Cady RG, Lunos SA, Garwick AE, Finkelstein SM. Effects of a telehealth care coordination intervention on perceptions of health care by caregivers of children with medical complexity: A randomized controlled trial. J Pediatr Health Care 2015;29(4):352-363 [doi: 10.1016/j.pedhc.2015.01.007]
23. Petranovich CL, Wade SL, Taylor HG, Cassedy A, Stancin T, Kirkwood MW, et al. Long-Term caregiver mental health outcomes following a predominately online intervention for adolescents with complicated mild to severe traumatic brain injury. J Pediatr Psychol 2015 Aug;40(7):680-688 [doi: 10.1093/jpepsy/jsv001]
24. Scharer K, Colon E, Moneyham L, Hussey J, Tavakoli A, Shugart M. A comparison of two types of social support for mothers of mentally ill children. J Child Adolesc Psychiatr Nurs 2009 May;22(2):86-98 [doi: 10.1111/j.1744-6171.2009.00177.x]
25. van Os-Medendorp H, Koffijberg H, Eland-de Kok PCM, van der Zalm A, de Bruin-Weller MS, Pasmans SGMA, et al. E-health in caring for patients with atopic dermatitis: A randomized controlled cost-effectiveness study of internet-guided monitoring and online self-management training. Br J Dermatol 2012 May;166(5):1060-1068. [doi: 10.1111/j.1365-2133.2012.10829.x]
26. Wade SL, Karver CL, Taylor HG, Cassedy A, Stancin T, Kirkwood MW, et al. Counselor-Assisted problem solving improves caregiver efficacy following adolescent brain injury. Rehabil Psychol 2014 Feb;59(1):1-9 [doi: 10.1037/a0034911]
27. Wade SL, Walz NC, Carey J, McMullen KM, Cass J, Mark E, et al. A randomized trial of teen online problem solving: efficacy in improving caregiver outcomes after brain injury. Health Psychol 2012 Nov;31(6):767-776. [doi: 10.1037/a0028440]
28. Becker T. Effectiveness of Parent Call-In Versus E-Counseling Services in Treating Pediatric Behavior Problems Uncovered in a Primary Care Medical Encounter [doctoral thesis]. Newberg, OR: George Fox University; 2012. URL: http://digitalcommons.georgefox.edu/cgi/viewcontent.cgi?article=1100&context=psyd
29. Binford HRB, Le Grange D, Moessner M, Bauer S. Internet-based chat support groups for parents in family-based treatment for adolescent eating disorders: A pilot study. Eur Eat Disord Rev 2013 May;21(3):215-223. [doi: 10.1002/erv.2196]
30. Epstein EG, Sherman J, Blackman A, Sinkin RA. Testing the feasibility of Skype and FaceTime updates with parents in the neonatal intensive care unit. Am J Crit Care 2015 Jul;24(4):290-296 [doi: 10.4037/ajcc2015828]
31. Gulmans J, Vollenbroek-Hutten M, van Gemert-Pijnen L, van Harten W. A web-based communication system for integrated care in cerebral palsy: experienced contribution to parent-professional communication. Int J Integr Care 2012;12:e9
32. Haney T, Tufts KA. A pilot study using electronic communication in home healthcare: implications on parental well-being and satisfaction caring for medically fragile children. Home Healthc Nurse 2012 Apr;30(4):216-224. [doi: 10.1097/NHH.0b013e31824c28f2]
33. Vismara LA, McCormick C, Young GS, Nadhan A, Monlux K. Preliminary findings of a telehealth approach to parent training in autism. J Autism Dev Disord 2013 Dec;43(12):2953-2969. [doi: 10.1007/s10803-013-1841-8]
34. Vismara LA, Young GS, Rogers SJ. Telehealth for expanding the reach of early autism training to parents. Autism Res Treat 2012;2012:121878 [doi: 10.1155/2012/121878]
35. Wade SL, Oberjohn K, Burkhardt A, Greenberg I. Feasibility and preliminary efficacy of a web-based parenting skills program for young children with traumatic brain injury. J Head Trauma Rehabil 2009;24(4):239-247. [doi: 10.1097/HTR.0b013e3181ad6680]
36. Bradford NK, Armfield NR, Young J, Smith AC. Paediatric palliative care by video consultation at home: A cost minimisation analysis. BMC Health Serv Res 2014 Jul 28;14:328 [doi: 10.1186/1472-6963-14-328]
37. Braverman J, Samsonov DV. A study of online consultations for paediatric renal patients in Russia. J Telemed Telecare 2011;17(2):99-104. [doi: 10.1258/jtt.2010.100410]
38. Byczkowski TL, Munafo JK, Britto MT. Family perceptions of the usability and value of chronic disease web-based patient portals. Health Informatics J 2014 Jun;20(2):151-162. [doi: 10.1177/1460458213489054]
39. de Graaf M, Totte J, Breugem C, van Os-Medendorp H, Pasmans S. Evaluation of the compliance, acceptance, and usability of a web-based eHealth intervention for parents of children with infantile hemangiomas: usability study. JMIR Res Protoc 2013 Dec 17;2(2):e54 [doi: 10.2196/resprot.2897]
40. Hanlon-Dearman A, Edwards C, Schwab D, Millar MC, Longstaffe S. "Giving voice": evaluation of an integrated telehealth community care model by parents/guardians of children diagnosed with fetal alcohol spectrum disorder in Manitoba. Telemed J E Health 2014 May;20(5):478-484. [doi: 10.1089/tmj.2013.0161]
41. Hopper B, Buckman M, Edwards M. Evaluation of satisfaction of parents with the use of videoconferencing for a pediatric genetic consultation. Twin Res Hum Genet 2011 Aug;14(4):343-346. [doi: 10.1375/twin.14.4.343]
42. Lee J, Du YE, Coki O, Flynn JT, Starren J, Chiang MF. Parental perceptions toward digital imaging and telemedicine for retinopathy of prematurity management. Graefes Arch Clin Exp Ophthalmol 2010 Jan;248(1):141-147. [doi: 10.1007/s00417-009-1191-6]
43. Mulgrew KW, Shaikh U, Nettiksimmons J. Comparison of parent satisfaction with care for childhood obesity delivered face-To-face and by telemedicine. Telemed J E Health 2011 Jun;17(5):383-387. [doi: 10.1089/tmj.2010.0153]
44. Nordfeldt S, Hanberger L, Berterö C. Patient and parent views on a Web 2.0 diabetes portal-The management tool, the generator, and the gatekeeper: qualitative study. J Med Internet Res 2010;12(2):e17 [doi: 10.2196/jmir.1267]
45. Wade SL, Walz NC, Carey JC, Williams KM. Brief report: description of feasibility and satisfaction findings from an innovative online family problem-solving intervention for adolescents following traumatic brain injury. J Pediatr Psychol 2009 Jun;34(5):517-522 [doi: 10.1093/jpepsy/jsn081]
46. Barlott T, Adams K, Díaz FR, Molina MM. Using SMS as a tool to reduce exclusions experienced by caregivers of people with disabilities in a resource-limited Colombian community. Disabil Rehabil Assist Technol 2015 Jul;10(4):347-354. [doi: 10.3109/17483107.2014.974223]
47. Britto MT, Hesse EA, Kamdar OJ, Munafo JK. Parents' perceptions of a patient portal for managing their child's chronic illness. J Pediatr 2013 Jul;163(1):280-1.e1. [doi: 10.1016/j.jpeds.2013.02.041]
48. Royal College of Nursing. Adolescent transition care: RCN guidance for nursing staff 2013. 2016 Dec 01. URL: https://www2.rcn.org.uk/-data/assets/pdf-file/0011/78617/004510.pdf [accessed 2017-05-09] [WebCite Cache ID 6qKVRxj4m]
49. CareQualityCommission. From the pond into the sea: Children's transition to adult health services. 2014. URL: https://www.cqc.org.uk/sites/default/files/CQC-Transition%20Report.pdf [accessed 2017-12-21] [WebCite Cache ID 6vsG5HKqU]
50. National Institute for Health and Care Excellence. Transition from children's to adults' services-draft guideline. 2015. URL: https://www.nice.org.uk/guidance/ng43/documents/transition-from-childrens-To-Adults-services-full-guideline2 [accessed 2017-12-21] [WebCite Cache ID 6vsG5cm5f]
51. Ganann R, Ciliska D, Thomas H. Expediting systematic reviews: methods and implications of rapid reviews. Implement Sci 2010 Jul 19;5:56 [doi: 10.1186/1748-5908-5-56]
52. Grover M, Williams C, Eisler I, Fairbairn P, McCloskey C, Smith G, et al. An off-line pilot evaluation of a web-based systemic cognitive-behavioral intervention for carers of people with anorexia nervosa. Int J Eat Disord 2011 Dec;44(8):708-715. [doi: 10.1002/eat.20871]
53. Sawyer SM, Afifi RA, Bearinger LH, Blakemore S, Dick B, Ezeh AC, et al. Adolescence: A foundation for future health. Lancet 2012 Apr 28;379(9826):1630-1640. [doi: 10.1016/S0140-6736(12)60072-5]
54. Ambresin A, Bennett K, Patton GC, Sanci LA, Sawyer SM. Assessment of youth-friendly health care: A systematic review of indicators drawn from young people's perspectives. J Adolesc Health 2013 Jun;52(6):670-681. [doi: 10.1016/j.jadohealth.2012.12.014]