A pilot study using electronic communication in home healthcare: Implications on parental well-being and satisfaction caring for medically fragile children

Home Healthcare Nurse

Volumn 30, Issue 4, 2012, Pages 216-224

  Haney, Tina ^a,b   Tufts, Kimberly Adams ^b  

^a ECPI University Medical Careers Institute   (United States)

^b OLD DOMINION UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CHI SQUARE DISTRIBUTION; CHILD; COMPARATIVE STUDY; E-MAIL; FEMALE; HANDICAPPED CHILD; HOME CARE; HUMAN; HUMAN RELATION; INFANT; INTERPERSONAL COMMUNICATION; INTERVENTION STUDY; MALE; MIDDLE AGED; NONPARAMETRIC TEST; ORGANIZATION AND MANAGEMENT; PARENT; PILOT STUDY; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; UNITED STATES; URBAN POPULATION; UTILIZATION REVIEW; VULNERABLE POPULATION;

ADOLESCENT; ADULT; CAREGIVERS; CHI-SQUARE DISTRIBUTION; CHILD; CHILD, PRESCHOOL; COMMUNICATION; DISABLED CHILDREN; ELECTRONIC MAIL; FEMALE; HOME CARE SERVICES; HUMANS; INFANT; INTERVENTION STUDIES; MALE; MIDDLE AGED; PARENTS; PILOT PROJECTS; PROFESSIONAL-FAMILY RELATIONS; STATISTICS, NONPARAMETRIC; UNITED STATES; URBAN POPULATION; VULNERABLE POPULATIONS; YOUNG ADULT;

EID: 84859354713     PISSN: 0884741X     EISSN: 15390713     Source Type: Journal    
DOI: 10.1097/NHH.0b013e31824c28f2     Document Type: Article

References (22)

1. Aitken, M. E., McCarthy, M. L., Slomine, B. S., Ding, R., Durbin, D. R., Jaffe, K. M., ... Mackenzie EJ; CHAT Study Group. (2009). Family burden after traumatic brain injury in children. Pediatrics, 123(1), 199-206. doi: 10.1542/peds.2008-0607
2. Barnett, D., Clements, M., Kaplan-Estrin, M., & Fialka, J. (2003). Building new dreams supporting parents' adaptation to their child with special needs. Infants and Young Children, 16(3), 184-200. (Pubitemid 36782706)
3. Bethell, C. D., Read, D., Blumberg, S. J., & Newacheck PW. (2008). What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys. Maternal and Child Health Journal. 12(1), 1-14. doi: 10.1007/s10995-007-0220-5
4. Carnevale, F., Alexander, E., Davis, M., Rennick, J., & Troini, R. (2006). Daily living with distress and enrichment: The moral experience of families with ventilator-assisted children at home. Pediatrics, 117(1), e48-e60. doi: 10.1542/peds.2005-0789. (Pubitemid 46061088)
5. Hatzmann, J., Heymans, H. S., Ferrer-i-Carbonell, A., van Praag, B. M., Grootenhuis, M. A. (2008). Hidden consequences of success in pediatrics: Parental healthrelated quality of life-results from the care project. Pediatrics, 122(5), e1030-e1038. doi: 10.1542/peds.2008-0582
6. Hatzmann, J., Muarice-Stamm, H., Heymans, H. S., & Grootenhuis, M. A. (2009). A predictive model of health related quality of life of parents of chronically ill children: The importance of care-dependency of their child and their support system. Health and Quality of Life Outcomes, 7(72), 1-9. doi: 10.1186/1477-7525-7-72
7. Heaton, J., Noyes, J., Sloper, P., & Shah, R. (2005). Families' experiences of caring for technologydependent children: A temporal perspective. Health and Social Care in the Community, 13(5), 441-450. (Pubitemid 41137422)
8. Hill, W., Weinert, C., & Cudney. S. (2009). Infulence of a computer intervention on the psychological status of chronically ill rural women. Nursing Research, 55(1), 34-42. (Pubitemid 44492150)
9. Jackson, R., Baird, W., Davis-Reynolds, L., Smith, C., Blackburn, S., & Allsebrook, J. (2007). Qualitative analysis of parents' information needs and psychosocial experiences while supporting children with health care needs. Health Information and Libraries Journal, 25(1), 31-37. doi: 10.1111/j.1471-1842.2007.00736.x
10. Kieckhefer, G. M., Trahnms, C. M., Churchill, S. S., & Simpson, J. N. (2009). Measuring parent-child shared management of chronic illness. Pediatric Nursing, 35(2), 101-127.
11. Kirk, S., Glendinning, C., & Callery, P. (2005). Parent or nurse? The experience of being the parent of a technology-dependent child. Journal of Advanced Nursing, 51(5), 456-464. (Pubitemid 41190762)
12. King, K. A., Pealer, L. N., & Bernard, A. L. (2001). Increasing response rates to mail questionnaire: A review of inducement strategies. American Journal of Health and Education, 32(1), 4-15.
13. MacDonald, H., & Callery, P. (2007). Parenting children requiring complex care: A journey through time. Child: Care, Health, and Development, 34(2), 207-213. (Pubitemid 351228115)
14. Newman, M. A. (1990). Newman's theory of health as praxis. Nursing Science Quarterly, 3(37), 37-41. doi: 10.1177/089431849000300109
15. O'Brien, M. E. (2001). Living in a house of cards: Family experiences with long-term childhood technology dependence. Journal of Pediatric Nursing, 16(1), 13-22. (Pubitemid 33601844)
16. Panepinto, J. A., Hoffmann, R. G., & Pajewski, N. M. (2008). A psychometric evaluation of the PedsQL™ family impact module in parents of children with sickle cell disease. Health and Quality of Life Outcomes, 7(32), 1-11. doi: 10.1186/1477-7525-7-32
17. Records, K., & Rice, M. (2006). Enhancing participant recruitment in studies of sensitive topics. Journal of American Psychiatric Nurse Association, 12(1), 28-36. doi: 10.1177/1078390306288830 (Pubitemid 43951062)
18. Thomas, J. R., & Shaikh, U. (2007). Electronic communication with parents for breastfeeding support. Journal of Human Lactation. 23(3), 275-279. doi: 10.1177/0890334407303903 (Pubitemid 47162462)
19. Tommet, P. A. (2003). Nurse-parent dialogue: Illuminating the evolving pattern of families with children who are medically fragile. Nursing Science Quarterly, 16(3), 239-246. doi:10.1177/0894318403016003015 (Pubitemid 36930576)
20. Varni, J. W., Burnwinkle, T. M., & Seid, M. (2005). The PedsQL™ as a pediatric patient-reported outcome: Reliability and validity of the PedsQL™ measurement model in 25,000 children. Expert Reviews of Pharmacoeconomics Outcomes and Research, 5(6), 705-719. doi: 10.1586\14737167.5.6.705 (Pubitemid 43055864)
21. Varni, J. W., Sherman, S. A., Burnwinkle, T. M., Dickinson, P. E., & Dixon, P. (2004). The PedsQL™ family impact module: Preliminary reliability and validity. Health and Quality of Life Outcomes, 2(55), 1-6. doi: 10.1186/1477-7525-2-55. (Pubitemid 40472028)
22. Wang, K., & Barnard, A. (2002). Technology-dependent children and their families: A review. Journal of Advanced Nursing, 45(1), 36-46.