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Volumn 10, Issue 5, 2015, Pages 413-427

Experiences and Outcomes of Transition from Pediatric to Adult Health Care Services for Young People with Congenital Heart Disease: A Systematic Review

Author keywords

Congenital Heart Disease; Loss to Follow Up; Systematic Review; Transfer; Transition

Indexed keywords

ATTITUDE TO HEALTH; AWARENESS; CONGENITAL HEART DISEASE; FOLLOW UP; HEALTH BEHAVIOR; HEALTH BELIEF; HEALTH CARE DELIVERY; HEALTH SERVICE; HUMAN; LONG TERM CARE; MEDICAL INFORMATION; MEDICAL SERVICE; OUTCOME ASSESSMENT; PATIENT ASSESSMENT; PATIENT CARE; PHYSICIAN ATTITUDE; PRIORITY JOURNAL; PROFESSIONAL COMPETENCE; PROFESSIONAL KNOWLEDGE; QUALITY CONTROL; REVIEW; SYSTEMATIC REVIEW; ADOLESCENT; ADULT; AGE; CARDIOLOGY; CHILD; CHILD HEALTH CARE; HEALTH CARE QUALITY; HEART DEFECTS, CONGENITAL; PATHOPHYSIOLOGY; PATIENT COMPLIANCE; PATIENT EDUCATION; PEDIATRICS; PROCEDURES; TIME FACTOR; TRANSITION TO ADULT CARE; TREATMENT OUTCOME; YOUNG ADULT;

EID: 84940900425     PISSN: 1747079X     EISSN: 17470803     Source Type: Journal    
DOI: 10.1111/chd.12251     Document Type: Review
Times cited : (148)

References (41)
  • 1
    • 80855144819 scopus 로고    scopus 로고
    • Birth prevalence of congenital heart disease worldwide: a systematic review and meta-analysis
    • van der Linde D, Konings EEM, Slager MA, etal. Birth prevalence of congenital heart disease worldwide: a systematic review and meta-analysis. J Am Coll Cardiol. 2011;58:2241-2247.
    • (2011) J Am Coll Cardiol , vol.58 , pp. 2241-2247
    • van der Linde, D.1    Konings, E.E.M.2    Slager, M.A.3
  • 3
    • 56649109699 scopus 로고    scopus 로고
    • ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (writing committee to develop guidelines on the management of adults with congenital heart disease) developed in collaboration with the American Society of Echocardiography, Heart Rhythm Society.
    • International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons
    • Warnes CA, Williams RG, Bashore TM, etal. ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (writing committee to develop guidelines on the management of adults with congenital heart disease) developed in collaboration with the American Society of Echocardiography, Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons. J Am Coll Cardiol. 2008;52:e143-e263.
    • (2008) J Am Coll Cardiol , vol.52 , pp. e143-e263
    • Warnes, C.A.1    Williams, R.G.2    Bashore, T.M.3
  • 4
    • 78649813429 scopus 로고    scopus 로고
    • ESC guidelines for the management of grown-up congenital heart disease (new version 2010): the Task Force on the Management of Grown-up Congenital Heart Disease of the European Society of Cardiology (ESC)
    • Baumgartner H, Bonhoeffer P, De Groot NMS, etal. ESC guidelines for the management of grown-up congenital heart disease (new version 2010): the Task Force on the Management of Grown-up Congenital Heart Disease of the European Society of Cardiology (ESC). Eur Heart J. 2010;31:2915-2957.
    • (2010) Eur Heart J , vol.31 , pp. 2915-2957
    • Baumgartner, H.1    Bonhoeffer, P.2    De Groot, N.M.S.3
  • 5
    • 84899013169 scopus 로고    scopus 로고
    • Recommendations for organization of care for adults with congenital heart disease and for training in the subspecialty of "Grown-up Congenital Heart Disease" in Europe: a position paper of the Working Group on Grown-up Congenital Heart Disease of the European Society of Cardiology
    • Baumgartner H, Budts W, Chessa M, etal. Recommendations for organization of care for adults with congenital heart disease and for training in the subspecialty of "Grown-up Congenital Heart Disease" in Europe: a position paper of the Working Group on Grown-up Congenital Heart Disease of the European Society of Cardiology. Eur Heart J. 2014;35:686-690.
    • (2014) Eur Heart J , vol.35 , pp. 686-690
    • Baumgartner, H.1    Budts, W.2    Chessa, M.3
  • 6
    • 0037843159 scopus 로고    scopus 로고
    • Management of grown up congenital heart disease
    • Deanfield J, Thaulow E, Warnes C, etal. Management of grown up congenital heart disease. Eur Heart J. 2003;24:1035-1084.
    • (2003) Eur Heart J , vol.24 , pp. 1035-1084
    • Deanfield, J.1    Thaulow, E.2    Warnes, C.3
  • 7
    • 24044467841 scopus 로고    scopus 로고
    • Variations in adult congenital heart disease training in adult and pediatric cardiology fellowship programs
    • Gurvitz MZ, Chang R-K, Ramos FJ, Allada V, Child JS, Klitzner TS. Variations in adult congenital heart disease training in adult and pediatric cardiology fellowship programs. J Am Coll Cardiol. 2005;46:893-898.
    • (2005) J Am Coll Cardiol , vol.46 , pp. 893-898
    • Gurvitz, M.Z.1    Chang, R.-K.2    Ramos, F.J.3    Allada, V.4    Child, J.S.5    Klitzner, T.S.6
  • 8
    • 18044402726 scopus 로고    scopus 로고
    • Task Force 2: special health care needs of adults with congenital heart disease
    • Foster E, Graham JTP, Driscoll DJ, etal. Task Force 2: special health care needs of adults with congenital heart disease. J Am Coll Cardiol. 2001;37:1176-1183.
    • (2001) J Am Coll Cardiol , vol.37 , pp. 1176-1183
    • Foster, E.1    Graham, J.T.P.2    Driscoll, D.J.3
  • 9
    • 68249135330 scopus 로고    scopus 로고
    • Developing a transition program from pediatric-to adult-focused cardiology care: practical considerations
    • Saidi A, Kovacs AH. Developing a transition program from pediatric-to adult-focused cardiology care: practical considerations. Congenit Heart Dis. 2009;4:204-215.
    • (2009) Congenit Heart Dis , vol.4 , pp. 204-215
    • Saidi, A.1    Kovacs, A.H.2
  • 10
    • 79954628860 scopus 로고    scopus 로고
    • Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association
    • Sable C, Foster E, Uzark K, etal. Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association. Circulation. 2011;123:1454-1485.
    • (2011) Circulation , vol.123 , pp. 1454-1485
    • Sable, C.1    Foster, E.2    Uzark, K.3
  • 12
    • 50349084061 scopus 로고    scopus 로고
    • Comorbidity, healthcare utilisation and process of care measures in patients with congenital heart disease in the UK: cross-sectional, population-based study with case-control analysis
    • Billett J, Cowie MR, Gatzoulis MA, Vonder Muhll IF, Majeed A. Comorbidity, healthcare utilisation and process of care measures in patients with congenital heart disease in the UK: cross-sectional, population-based study with case-control analysis. Heart. 2008;94:1194-1199.
    • (2008) Heart , vol.94 , pp. 1194-1199
    • Billett, J.1    Cowie, M.R.2    Gatzoulis, M.A.3    Vonder Muhll, I.F.4    Majeed, A.5
  • 13
    • 68449088801 scopus 로고    scopus 로고
    • Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe
    • Hilderson D, Saidi A, Deyk K, etal. Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe. Pediatr Cardiol. 2009;30:786-793.
    • (2009) Pediatr Cardiol , vol.30 , pp. 786-793
    • Hilderson, D.1    Saidi, A.2    Deyk, K.3
  • 14
    • 84877329907 scopus 로고    scopus 로고
    • Transition in diabetes: young people move on-we should too
    • Dovey-Pearce G, Christie D. Transition in diabetes: young people move on-we should too. Paediatr Child Health. 2013;23:174-179.
    • (2013) Paediatr Child Health , vol.23 , pp. 174-179
    • Dovey-Pearce, G.1    Christie, D.2
  • 16
    • 77949535239 scopus 로고    scopus 로고
    • Transition from pediatric to adult health care for adolescents with congenital heart disease: a review of the literature and clinical implications
    • Jalkut MK, Allen PJ. Transition from pediatric to adult health care for adolescents with congenital heart disease: a review of the literature and clinical implications. Pediatr Nurs. 2009;35:381-387.
    • (2009) Pediatr Nurs , vol.35 , pp. 381-387
    • Jalkut, M.K.1    Allen, P.J.2
  • 19
    • 0036897603 scopus 로고    scopus 로고
    • A consensus statement on health care transitions for young adults with special health care needs
    • American Academy of Pediatrics. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110 (6, pt 2):1304-1306.
    • (2002) Pediatrics , vol.110 , Issue.6 , pp. 1304-1306
  • 20
    • 0036720702 scopus 로고    scopus 로고
    • Grown-up congenital heart (GUCH) disease: current needs and provision of service for adolescents and adults with congenital heart disease in the UK
    • Report of the British Cardiac Society Working Party. Grown-up congenital heart (GUCH) disease: current needs and provision of service for adolescents and adults with congenital heart disease in the UK. Heart. 2002;88 (Suppl. 1):i1-i14.
    • (2002) Heart , vol.88 , pp. i1-i14
  • 21
    • 69349089261 scopus 로고    scopus 로고
    • Enhancing the Quality and Transparency of Health Research.
    • Accessed June 6, 2014.
    • EQUATOR. Enhancing the Quality and Transparency of Health Research. 2014; Available at: http://www.equator-network.org/. Accessed June 6, 2014.
    • (2014)
  • 22
    • 47749126232 scopus 로고    scopus 로고
    • Methods for the thematic synthesis of qualitative research in systematic reviews
    • Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8:45.
    • (2008) BMC Med Res Methodol , vol.8 , pp. 45
    • Thomas, J.1    Harden, A.2
  • 23
    • 79957976310 scopus 로고    scopus 로고
    • Transfer of adolescents with congenital heart disease from pediatric cardiology to adult health care: an analysis of transfer destinations
    • Goossens E, Stephani I, Hilderson D, etal. Transfer of adolescents with congenital heart disease from pediatric cardiology to adult health care: an analysis of transfer destinations. J Am Coll Cardiol. 2011;57:2368-2374.
    • (2011) J Am Coll Cardiol , vol.57 , pp. 2368-2374
    • Goossens, E.1    Stephani, I.2    Hilderson, D.3
  • 25
    • 39749167805 scopus 로고    scopus 로고
    • Lapse of care as a predictor for morbidity in adults with congenital heart disease
    • Yeung E, Kay J, Roosevelt GE, Brandon M, Yetman AT. Lapse of care as a predictor for morbidity in adults with congenital heart disease. Int J Cardiol. 2008;125:62-65.
    • (2008) Int J Cardiol , vol.125 , pp. 62-65
    • Yeung, E.1    Kay, J.2    Roosevelt, G.E.3    Brandon, M.4    Yetman, A.T.5
  • 26
    • 1642403234 scopus 로고    scopus 로고
    • Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects
    • Reid GJ, Irvine MJ, McCrindle BW, etal. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics. 2004;113:e197-e205.
    • (2004) Pediatrics , vol.113 , pp. e197-e205
    • Reid, G.J.1    Irvine, M.J.2    McCrindle, B.W.3
  • 27
    • 24944436274 scopus 로고    scopus 로고
    • Aortic coarctation repair-lost and found: the role of local long term specialised care
    • de Bono J, Freeman LJ. Aortic coarctation repair-lost and found: the role of local long term specialised care. Int J Cardiol. 2005;104:176-183.
    • (2005) Int J Cardiol , vol.104 , pp. 176-183
    • de Bono, J.1    Freeman, L.J.2
  • 28
    • 84882818861 scopus 로고    scopus 로고
    • Prevalence and patterns of retention in cardiac care in young adults with congenital heart disease
    • e1.
    • Norris MD, Webb G, Drotar D, etal. Prevalence and patterns of retention in cardiac care in young adults with congenital heart disease. J Pediatr. 2013;163:902-904, e1.
    • (2013) J Pediatr , vol.163 , pp. 902-904
    • Norris, M.D.1    Webb, G.2    Drotar, D.3
  • 29
    • 62549125550 scopus 로고    scopus 로고
    • Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program
    • Moons P, Pinxten S, Dedroog D, etal. Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program. J Adolesc Health. 2009;44:316-322.
    • (2009) J Adolesc Health , vol.44 , pp. 316-322
    • Moons, P.1    Pinxten, S.2    Dedroog, D.3
  • 30
    • 0040027334 scopus 로고    scopus 로고
    • Hospital experiences of young adults with congenital heart disease: divergence in expectations and dissonance in care
    • Kools S, Tong EM, Hughes R, etal. Hospital experiences of young adults with congenital heart disease: divergence in expectations and dissonance in care. Am J Crit Care. 2002;11:115-125.
    • (2002) Am J Crit Care , vol.11 , pp. 115-125
    • Kools, S.1    Tong, E.M.2    Hughes, R.3
  • 31
    • 70349562977 scopus 로고    scopus 로고
    • Transition to adult health care for adolescents and young adults with congenital heart disease: perspectives of the patient, parent and health care provider
    • Clarizia NA, Chahal N, Manlhiot C, Kilburn J, Redington AN, McCrindle BW. Transition to adult health care for adolescents and young adults with congenital heart disease: perspectives of the patient, parent and health care provider. Can J Cardiol. 2009;25:S317-S322.
    • (2009) Can J Cardiol , vol.25 , pp. S317-S322
    • Clarizia, N.A.1    Chahal, N.2    Manlhiot, C.3    Kilburn, J.4    Redington, A.N.5    McCrindle, B.W.6
  • 32
    • 56749179557 scopus 로고    scopus 로고
    • Specialist cardiac services: what do young people want?
    • Wray J, Maynard L. Specialist cardiac services: what do young people want? Cardiol Young. 2008;18:569-574.
    • (2008) Cardiol Young , vol.18 , pp. 569-574
    • Wray, J.1    Maynard, L.2
  • 33
    • 84870495924 scopus 로고    scopus 로고
    • Referral patterns and perceived barriers to adult congenital heart disease care: results of a survey of U.S. pediatric cardiologists
    • Fernandes SM, Khairy P, Fishman L, etal. Referral patterns and perceived barriers to adult congenital heart disease care: results of a survey of U.S. pediatric cardiologists. J Am Coll Cardiol. 2012;60:2411-2418.
    • (2012) J Am Coll Cardiol , vol.60 , pp. 2411-2418
    • Fernandes, S.M.1    Khairy, P.2    Fishman, L.3
  • 34
    • 0036116828 scopus 로고    scopus 로고
    • Transition of care to adult congenital heart centres: what do patients know about their heart condition?
    • Dore A, de Guise P, Mercier LA. Transition of care to adult congenital heart centres: what do patients know about their heart condition? Can J Cardiol. 2002;18:141-146.
    • (2002) Can J Cardiol , vol.18 , pp. 141-146
    • Dore, A.1    de Guise, P.2    Mercier, L.A.3
  • 35
    • 84866756764 scopus 로고    scopus 로고
    • Risk factors for loss to follow-up among children and young adults with congenital heart disease
    • Mackie AS, Rempel GR, Rankin KN, Nicholas D, Magill-Evans J. Risk factors for loss to follow-up among children and young adults with congenital heart disease. Cardiol Young. 2012;22:307-315.
    • (2012) Cardiol Young , vol.22 , pp. 307-315
    • Mackie, A.S.1    Rempel, G.R.2    Rankin, K.N.3    Nicholas, D.4    Magill-Evans, J.5
  • 36
    • 84875217861 scopus 로고    scopus 로고
    • Loss to specialist follow-up in congenital heart disease; out of sight, out of mind
    • Wray J, Frigiola A, Bull C, Adult Congenital Heart disease Research Network (ACoRN). Loss to specialist follow-up in congenital heart disease; out of sight, out of mind. Heart. 2013;99:485-490.
    • (2013) Heart , vol.99 , pp. 485-490
    • Wray, J.1    Frigiola, A.2    Bull, C.3
  • 37
    • 14744286286 scopus 로고    scopus 로고
    • Outcome of operated and unoperated adults with congenital cardiac disease lost to follow-up for more than five years
    • Wacker A, Kaemmerer H, Hollweck R, etal. Outcome of operated and unoperated adults with congenital cardiac disease lost to follow-up for more than five years. Am J Cardiol. 2005;95:776-779.
    • (2005) Am J Cardiol , vol.95 , pp. 776-779
    • Wacker, A.1    Kaemmerer, H.2    Hollweck, R.3
  • 38
    • 36349017089 scopus 로고    scopus 로고
    • Screening of adults with congenital cardiac disease lost for follow-up
    • Iversen K, Vejlstrup NG, Sondergaard L, Nielsen OW. Screening of adults with congenital cardiac disease lost for follow-up. Cardiol Young. 2007;17:601-608.
    • (2007) Cardiol Young , vol.17 , pp. 601-608
    • Iversen, K.1    Vejlstrup, N.G.2    Sondergaard, L.3    Nielsen, O.W.4
  • 39
    • 67650248536 scopus 로고    scopus 로고
    • Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease
    • Knauth Meadows A, Bosco V, Tong E, Fernandes S, Saidi A. Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease. Curr Cardiol Rep. 2009;11:291-297.
    • (2009) Curr Cardiol Rep , vol.11 , pp. 291-297
    • Knauth Meadows, A.1    Bosco, V.2    Tong, E.3    Fernandes, S.4    Saidi, A.5
  • 40
    • 84858275486 scopus 로고    scopus 로고
    • Adult congenital heart disease: past, present, and future
    • Moodie D. Adult congenital heart disease: past, present, and future. Tex Heart Inst J. 2011;38:705-706.
    • (2011) Tex Heart Inst J , vol.38 , pp. 705-706
    • Moodie, D.1
  • 41
    • 84876567776 scopus 로고    scopus 로고
    • The transition from pediatric to adult diabetes care services
    • May/June
    • Hanna KM, Wooward J. The transition from pediatric to adult diabetes care services. Clin Nurse Spec. 2013;May/June:132-145.
    • (2013) Clin Nurse Spec , pp. 132-145
    • Hanna, K.M.1    Wooward, J.2


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