Moving Toward an Understanding of Disability in Older U.S. Stroke Survivors

Journal of Aging and Health

Volumn 30, Issue 1, 2018, Pages 75-104

  Brenner, Allison B ^a   Burke, James F ^a   Skolarus, Lesli E ^a  

^a UNIVERSITY OF MICHIGAN   (United States)

Author keywords

disability; neighborhood; socioeconomic status; stroke survivors; structural equation modeling

Indexed keywords

AGED; CEREBROVASCULAR ACCIDENT; DEMOGRAPHY; DISABILITY; DISABLED PERSON; FEMALE; HUMAN; INDEPENDENT LIVING; MALE; NEEDS ASSESSMENT; PSYCHOLOGY; REHABILITATION; RESIDENTIAL HOME; SOCIOECONOMICS; STATISTICS AND NUMERICAL DATA; SURVIVOR;

AGED; DISABILITY EVALUATION; DISABLED PERSONS; FEMALE; HUMANS; INDEPENDENT LIVING; MALE; NEEDS ASSESSMENT; PHYSICAL FUNCTIONAL PERFORMANCE; RESIDENCE CHARACTERISTICS; RESIDENTIAL FACILITIES; SOCIOECONOMIC FACTORS; STROKE; SURVIVORS;

EID: 85036586213     PISSN: 08982643     EISSN: 15526887     Source Type: Journal    
DOI: 10.1177/0898264316666125     Document Type: Article

References (82)

1. Anderson J. C., Gerbing D. W., (1988). Structural equation modeling in practice: A review and recommended two-step approach. Psychological Bulletin, 103, 411-423.
2. Balfour J. L., Kaplan G. A., (2002). Neighborhood environment and loss of physical function in older adults: Evidence from the Alameda county Study. American Journal of Epidemiology, 155, 507-515.
3. Bettger J. P., Zhao X., Bushnell C., Zimmer L., Pan W., Williams L. S., Peterson E. D., (2014). The association between socioeconomic status and disability after stroke: Findings from the Adherence eValuation After Ischemic stroke Longitudinal (AVAIL) registry. BMC Public Health, 14(1), Article 281.
4. Botticello A. L., Rohrbach T., Cobbold N., (2014). Disability and the built environment: An investigation of community and neighborhood land uses and participation for physically impaired adults. Annals of Epidemiology, 24, 545-550.
5. Bruce M. L., Seeman T. E., Merrill S. S., Blazer D. G., (1994). The impact of depressive symptomatology on physical disability: MacArthur Studies of Successful Aging. American Journal of Public Health, 84, 1796-1799.
6. Burke J. F., Freedman V. A., Lisabeth L. D., Brown D. L., Haggins A., Skolarus L. E., (2014). Racial differences in disability after stroke: Results from a nationwide study. Neurology, 83, 390-397.
7. Cameron J. I., Tsoi C., Marsella A., (2008). Optimizing stroke systems of care by enhancing transitions across care environments. Stroke, 39, 2637-2643.
8. Chen R., Crichton S., McKevitt C., Rudd A. G., Sheldenkar A., Wolfe C. D. A., (2015). Association between socioeconomic deprivation and functional impairment after stroke: The South London stroke register. Stroke, 46, 800-805.
9. Clarke P., Ailshire J. A., Lantz P., (2009). Urban built environments and trajectories of mobility disability: Findings from a national sample of community-dwelling American adults (1986-2001). Social Science & Medicine, 69, 964-970.
10. Clarke P., George L. K., (2005). The role of the built environment in the disablement process. American Journal of Public Health, 95, 1933-1939.
11. Cook C., Stickley L., Ramey K., Knotts V. J., (2005). Variables associated with occupational and physical therapy stroke rehabilitation utilization and outcomes. Journal of Allied Health, 34, 3-10.
12. Coppin A. K., Ferrucci L., Lauretani F., Phillips C., Chang M., Bandinelli S., Guralnik J. M., (2006). Low socioeconomic status and disability in old age: Evidence from the InChianti Study for the mediating role of physiological impairments. The Journals of Gerontology, Series A: Biological Sciences & Medical Sciences, 61, 86-91.
13. de Leon C. F. M., Cagney K. A., Bienias J. L., Barnes L. L., Skarupski K. A., Scherr P. A., Evans D. A. (2009). Neighborhood social cohesion and disorder in relation to walking in community-dwelling older adults: A multilevel analysis. Journal of Aging and Health, 21, 155-171.
14. de Leon C. F. M., Glass T. A., Berkman L. F. (2003). Social engagement and disability in a community population of older adults the new haven EPESE. American Journal of Epidemiology, 157, 633-642.
15. de Leon C. F. M., Seeman T. E., Baker D. I., Richardson E. D., Tinetti M. E. (1996). Self-efficacy, physical decline, and change in functioning in community-living elders: A prospective study. The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 51(4), S183-S190.
16. Desrosiers J., Noreau L., Rochette A., Bourbonnais D., Bravo G., Bourget A., (2006). Predictors of long-term participation after stroke. Disability and Rehabilitation, 28, 221-230.
17. Desrosiers J., Noreau L., Rochette A., Bravo G., Boutin C., (2002). Predictors of handicap situations following post-stroke rehabilitation. Disability and Rehabilitation, 24, 774-785.
18. Diez Roux A., Merkin S., Arnett D., Chambless L., Massing M., Nieto J... Watson R. (2001). Neighborhood of residence and incidence of coronary heart disease. The New England Journal of Medicine, 345, 99-106.
19. Ellis C., Boan A. D., Turan T. N., Ozark S., Bachman D., Lackland D. T., (2015). Racial differences in poststroke rehabilitation utilization and functional outcomes. Archives of Physical Medicine and Rehabilitation, 96, 84-90.e81.
20. Freedman V. A., (2009). Adopting the ICF language for studying late-life disability: A field of dreams? The Journals of Gerontology, Series A: Biological Sciences & Medical Sciences, 64A, 1172-1174.
21. Freedman V. A., Grafova I. B., Schoeni R. F., Rogowski J., (2008). Neighborhoods and disability in later life. Social Science & Medicine, 66, 2253-2267.
22. Freedman V. A., Kasper J. D., Cornman J. C., Agree E. M., Bandeen-Roche K., Mor V... Wolf D. A., (2011). Validation of new measures of disability and functioning in the National Health and Aging Trends Study. The Journals of Gerontology, Series A: Biological Sciences & Medical Sciences, 66A, 1013-1021.
23. Gitlin L. N., (2003). Conducting research on home environments: Lessons learned and new directions. The Gerontologist, 43, 628-637.
24. Glass T. A., Balfour J. L., (2003). Neighborhoods, aging, and functional limitations. Neighborhoods and Health, 1, 303-334.
25. Grube M. M., Koennecke H.-C., Walter G., Thümmler J., Meisel A., Wellwood I., Heuschmann P. U., (2012). Association between socioeconomic status and functional impairment 3 months after ischemic stroke the Berlin Stroke Register. Stroke, 43, 3325-3330.
26. Guralnik J. M., Simonsick E. M., Ferrucci L., Glynn R. J., Berkman L. F., Blazer D. G... Wallace R. B., (1994). A short physical performance battery assessing lower extremity function: Association with self-reported disability and prediction of mortality and nursing home admission. Journal of Gerontology, 49(2), M85-M94.
27. Hackett M. L., Anderson C. S., (2005). Predictors of depression after stroke: A systematic review of observational studies. Stroke, 36, 2296-2301.
28. Hammel J., Magasi S., Heinemann A., Gray D. B., Stark S., Kisala P... Hahn E. A., (2015). Environmental barriers and supports to everyday participation: A qualitative insider perspective from people with disabilities. Archives of Physical Medicine and Rehabilitation, 96, 578-588.
29. Hartman-Maeir A., Soroker N., Ring H., Avni N., Katz N., (2007). Activities, participation and satisfaction one-year post stroke. Disability and Rehabilitation, 29, 559-566.
30. House J. S., Landis K. R., Umberson D., (1988). Social relationships and health. Science, 241, 540-545.
31. Jöreskog K. G., (1990). New developments in LISREL: Analysis of ordinal variables using polychoric correlations and weighted least squares. Quality & Quantity, 24, 387-404.
32. Jørgensen H. S., (1997). Stroke recurrence: Predictors, severity, and prognosis. The Copenhagen Stroke Study. Neurology, 48, 891-895.
33. Kasper J. D., Freedman V. A., (2015). National Health and Aging Trends Study user guide: Rounds 1, 2, 3 & 4: Final release. Baltimore, MD: Johns Hopkins University School of Public Health.
34. Kasper J. D., Freedman V. A., Niefeld M. R., (2012). Construction of performance-based summary measures of physical capacity in the National Health and Aging Trends Study. Baltimore, MD: Johns Hopkins University School of Public Health.
35. Kempen G. I., van Sonderen E., Ormel J., (1999). The impact of psychological attributes on changes in disability among low-functioning older persons. The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 54(1), P23-P29.
36. Kline R., (2005). Principles and practice of structural equation modeling (2nd ed.). New York, NY: The Guilford Press.
37. Korn E. L., Graubard B. I., (1991). Epidemiologic studies utilizing surveys: Accounting for the sampling design. American Journal of Public Health, 81, 1166-1173.
38. Kroenke K., Spitzer R. L., Williams J. B., Löwe B., (2009). An ultra-brief screening scale for anxiety and depression: The PHQ–4. Psychosomatics, 50, 613-621.
39. Kwakkel G., Wagenaar R. C., Kollen B. J., Lankhorst G. J., (1996). Predicting disability in stroke—A critical review of the literature. Age and Ageing, 25, 479-489.
40. Latham K., (2014). Racial and educational disparities in mobility limitation among older women: What is the role of modifiable risk factors? The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 69, 772-783.
41. LeBrasseur N. K., Sayers S. P., Ouellette M. M., Fielding R. A., (2006). Muscle impairments and behavioral factors mediate functional limitations and disability following stroke. Physical Therapy, 86, 1342-1350.
42. Lee S., Hershberger S., (1990). A simple rule for generating equivalent models in covariance structure modeling. Multivariate Behavioral Research, 25, 313-334.
43. Lenze E. J., Rogers J. C., Martire L. M., Mulsant B. H., Rollman B. L., Dew M. A... Reynolds C. F., III. (2001). The association of late-life depression and anxiety with physical disability: A review of the literature and prospectus for future research. The American Journal of Geriatric Psychiatry, 9, 113-135.
44. Levine D. A., Kiefe C. I., Howard G., Howard V. J., Williams O. D., Allison J. J., (2007). Reduced medication access: A marker for vulnerability in US stroke survivors. Stroke, 38, 1557-1564.
45. Lien W.-C., Guo N.-W., Chang J.-H., Lin Y.-C., Kuan T.-S., (2014). Relationship of perceived environmental barriers and disability in community-dwelling elderly in Taiwan—a population-based study. BMC Geriatrics, 14(1), Article 59.
46. Link B., Phelan J., (1996). Understanding sociodemographic differences in health—The role of fundamental social causes. American Journal of Public Health, 86, 471-473.
47. MacCallum R. C., Browne M. W., Sugawara H. M., (1996). Power analysis and determination of sample size for covariance structure modeling. Psychological Methods, 1, 130-149.
48. Mayo N. E., Wood-Dauphinee S., Côté R., Durcan L., Carlton J., (2002). Activity, participation, and quality of life 6 months poststroke. Archives of Physical Medicine and Rehabilitation, 83, 1035-1042.
49. Miller E. L., Murray L., Richards L., Zorowitz R. D., Bakas T., Clark P., Billinger S. A., (2010). Comprehensive overview of nursing and interdisciplinary rehabilitation care of the stroke patient a scientific statement from the American Heart Association. Stroke, 41, 2402-2448.
50. Minkler M., Fuller-Thomson E., Guralnik J. M., (2006). Gradient of disability across the socioeconomic spectrum in the United States. The New England Journal of Medicine, 355, 695-703.
51. Montaquila J., Freedman V. A., Kasper J. D., (2012). National Health and Aging Trends Study Round 1 Income Imputation. Baltimore, MD: Johns Hopkins University School of Public Health.
52. Newhouse J. P., Garber A. M., (2013). Geographic variation in Medicare services. The New England Journal of Medicine, 368, 1465-1468.
53. Nusselder W. J., Looman C. W., Mackenbach J. P., (2005). Nondisease factors affected trajectories of disability in a prospective study. Journal of Clinical Epidemiology, 58, 484-494.
54. Okura Y., Urban L. H., Mahoney D. W., Jacobsen S. J., Rodeheffer R. J., (2004). Agreement between self-report questionnaires and medical record data was substantial for diabetes, hypertension, myocardial infarction and stroke but not for heart failure. Journal of Clinical Epidemiology, 57, 1096-1103.
55. Ostwald S. K., Davis S., Hersch G., Kelley C., Godwin K. M., (2008). Evidence-based educational guidelines for stroke survivors after discharge home. The Journal of Neuroscience Nursing: Journal of the American Association of Neuroscience Nurses, 40, 173-191.
56. Ottenbacher K. J., Graham J. E., (2007). The state-of-the-science: Access to postacute care rehabilitation services. A review. Archives of Physical Medicine and Rehabilitation, 88, 1513-1521.
57. Outpatient Service Trialists. (1997). Collaborative systematic review of the randomised trials of organised inpatient (stroke unit) care after stroke. British Medical Journal, 314, Article 1151.
58. Outpatient Service Trialists. (2004). Rehabilitation therapy services for stroke patients living at home: Systematic review of randomised trials. The Lancet, 363, 352-356.
59. Patel M. D., Tilling K., Lawrence E., Rudd A. G., Wolfe C. D. A., McKevitt C., (2006). Relationships between long-term stroke disability, handicap and health-related quality of life. Age and Ageing, 35, 273-279.
60. Penninx B. W., Leveille S., Ferrucci L., Van Eijk J., Guralnik J. M., (1999). Exploring the effect of depression on physical disability: Longitudinal evidence from the established populations for epidemiologic studies of the elderly. American Journal of Public Health, 89, 1346-1352.
61. Pruchno R. A., Wilson-Genderson M., Cartwright F. P., (2011). The texture of neighborhoods and disability among older adults. The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 67B, 89-98.
62. Putman K., De Wit L., Schoonacker M., Baert I., Beyens H., Brinkmann N... Louckx F., (2007). Effect of socioeconomic status on functional and motor recovery after stroke: A European multicentre study. Journal of Neurology, Neurosurgery & Psychiatry, 78, 593-599.
63. Ross C. E., Mirowsky J., (2001). Neighborhood disadvantage, disorder and health. Journal of Health and Social Behavior, 42, 258-276.
64. Rosseel Y., (2012). lavaan: An R package for structural equation modeling. Journal of Statistical Software, 48(2), 1-36.
65. Seeman T., Chen X., (2002). Risk and protective factors for physical functioning in older adults with and without chronic conditions: MacArthur Studies of Successful Aging. The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 57(3), S135-S144.
66. Seeman T. E., (1996). Social ties and health: The benefits of social integration. Annals of Epidemiology, 6, 442-451.
67. Seeman T. E., Unger J. B., McAvay G., de Leon C. F. M., (1999). Self-efficacy beliefs and perceived declines in functional ability: MacArthur studies of successful aging. The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 54(4), P214-P222.
68. Skolarus L. E., Burke J. F., Brown D. L., Freedman V. A., (2014). Understanding stroke survivorship: Expanding the concept of poststroke disability. Stroke, 45, 224-230.
69. Skolarus L. E., Burke J. F., Freedman V. A., (2014). The role of accommodations in poststroke disability management. The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 69(Suppl. 1), S26-S34.
70. Stuck A. E., Walthert J. M., Nikolaus T., Büla C. J., Hohmann C., Beck J. C., (1999). Risk factors for functional status decline in community-living elderly people: A systematic literature review. Social Science & Medicine, 48, 445-469.
71. Szanton S. L., Wolff J. L., Leff B., Roberts L., Thorpe R. J., Tanner E. K... Bishai D., (2015). Preliminary data from community aging in place, advancing better living for elders, a patient-directed, team-based intervention to improve physical function and decrease nursing home utilization: The first 100 individuals to complete a Centers for Medicare and Medicaid Services innovation project. Journal of the American Geriatrics Society, 63, 371-374.
72. Taylor S., Repetti R., Seeman T., (1997). Health psychology: What is an unhealthy environment and how does it get under the skin? Annual Review in Psychology, 48, 411-447.
73. van den Bos G. A. M., Smits J. P., Westert G. P., van Straten A. (2002). Socioeconomic variations in the course of stroke: Unequal health outcomes, equal care? Journal of Epidemiology & Community Health, 56, 943-948.
74. Vasunilashorn S., Coppin A. K., Patel K. V., Lauretani F., Ferrucci L., Bandinelli S., Guralnik J. M., (2009). Use of the Short Physical Performance Battery score to predict loss of ability to walk 400 meters: Analysis from the InCHIANTI study. The Journals of Gerontology, Series A: Biological Sciences & Medical Sciences, 64a(2), 223-229.
75. Venna V. R., McCullough L. D., (2011). “Won’t you be my neighbor?” Deciphering the mechanisms of neuroprotection induced by social interaction. Stroke, 42, 3329-3330.
76. Verbrugge L. M., Jette A. M., (1994). The disablement process. Social Science & Medicine, 38, 1-14.
77. Ware J. E., Sherbourne C. D., (1992). The MOS 36-Item Short-Form Health Survey (SF-36): I. Conceptual framework and item selection. Medical Care, 30, 473-483.
78. Whyte E. M., Mulsant B. H., Vanderbilt J., Dodge H. H., Ganguli M., (2004). Depression after stroke: A prospective epidemiological study. Journal of the American Geriatrics Society, 52, 774-778.
79. Willey J. Z., Disla N., Moon Y. P., Paik M. C., Sacco R. L., Boden-Albala B... Wright C. B., (2010). Early depressed mood after stroke predicts long-term disability: The Northern Manhattan Stroke Study (NOMASS). Stroke, 41, 1896-1900.
80. World Health Organization. (2001). ICF: International classification of functioning, disability, and health. Geneva, Switzerland: Author.
81. Yoon S., Gutierrez J., (2016). Behavior correlates of post-stroke disability using data mining and infographics. British Journal of Medicine and Medical Research, 11(5), 1-12.
82. Yu C.-Y., (2002). Evaluating cutoff criteria of model fit indices for latent variable models with binary and continuous outcomes. Los Angeles: University of California.