Computer and telephone delivered interventions to support caregivers of people with dementia: A systematic review of research output and quality

BMC Geriatrics

Volumn 17, Issue 1, 2017, Pages

  Waller, Amy ^a,b,c   Dilworth, Sophie ^a,b,c   Mansfield, Elise ^a,b,c   Sanson Fisher, Rob ^a,b,c  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b HUNTER MEDICAL RESEARCH INSTITUTE   (Australia)

^c UNIVERSITY OF NEWCASTLE   (Australia)

Author keywords

Caregiver; Dementia; eHealth; Internet; Technology; Telephone

Indexed keywords

CAREGIVER; COUNSELING; DEMENTIA; HUMAN; INTERNET; NURSING; PSYCHOLOGY; SOCIAL SUPPORT; TELEPHONE;

CAREGIVERS; COUNSELING; DEMENTIA; HUMANS; INTERNET; SOCIAL SUPPORT; TELEPHONE;

EID: 85034270336     PISSN: None     EISSN: 14712318     Source Type: Journal    
DOI: 10.1186/s12877-017-0654-6     Document Type: Article

References (65)

1. Alzheimer's Australia: Caring for someone with dementia: the economic, social and health impacts of careing and evidence-based support for carers in.; 2015.
2. Arbaje AI, Kansagara DL, Salanitro AH, Englander HL, Kripalani S, Jencks SF, Lindquist LA. Regardless of age: incorporating principles from geriatric medicine to improve care transitions for patients with complex needs. J Gen Intern Med. 2014;29(6):932-9.
3. McConaghy R, Caltabiano ML. Caring for a person with dementia: exploring relationships between perceived burden, depression, coping and well-being. Nursing & Health Sciences. 2005;7(2):81-91.
4. Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci. 2009;11(2):217-28.
5. Alzheimer's Association. 2013 Alzheimer's disease facts and figures. Alzheimers Dement. 2013;9(2):208-45.
6. Laver K, Cumming RG, Dyer SM, Agar MR, Anstey KJ, Beattie E, Brodaty H, Broe T, Clemson L, Crotty M, et al. Clinical practice guidelines for dementia in Australia. Med J Aust. 2016;204(5):191-3.
7. Brodaty H, Cumming A. Dementia services in Australia. International Journal of Geriatric Psychiatry. 2010;25(9):887-995.
8. Greenway-Crombie A, Snow P, Disler P, Davis S, Pond D. Influence of rurality on diagnosing dementia in Australian general practice. Australian journal of primary health. 2012;18(3):178-84.
9. McBride CM, Rimer BK. Using the telephone to improve health behavior and health service delivery. Patient Educ Couns. 1999;37(1):3-18.
10. Perrin A, Duggan M. American's internet access 2000-2015. Pew Research Centre. June 2015.
11. Office of National Statistics. Internet Use in the UK. Published: 19 May 2017. Accessed: June 2017. https://www.gov.uk/government/statistics/internet-users-in-the-uk-2017.
12. Australian Bureau of Statistics. Household use of Information Technology, Australia 2014-15. Published: 18 Feb 2016. Accessed April 2017. http://www.abs.gov.au/ausstats/abs@nsf/mf/8146.0.
13. Fox S, Brenner J. Family caregivers online. Washington, DC: Pew Internet & American Life Project; 2012.
14. Huis In Het Veld JG, Verkaik R, Mistiaen P, van Meijel B, Francke AL. The effectiveness of interventions in supporting self-management of informal caregivers of people with dementia; a systematic meta review. BMC Geriatr. 2015;15:147.
15. Slev VN, Mistiaen P, Pasman HR, Verdonck-de Leeuw IM, van Uden-Kraan CF, Francke AL. Effects of eHealth for patients and informal caregivers confronted with cancer: a meta-review. Int J Med Inform. 2016;87:54-67.
16. Chi N-C, Demiris G. A systematic review of telehealth tools and interventions to support family caregivers. J Telemed Telecare. 2015;21(1):37-44.
17. Zheng Y, Head BA, Schapmire TJ. A systematic review of Telehealth in palliative care: caregiver outcomes. Telemedicine journal and e-health: the official journal of the American Telemedicine Association. 2016;22(4):288-94.
18. Boots L, de Vugt M, van Knippenberg R, Kempen G, Verhey F. A systematic review of internet-based supportive interventions for caregivers of patients with dementia. International journal of geriatric psychiatry. 2014;29(4):331-44.
19. Lins S, Hayder-Beichel D, Rucker G, Motschall E, Antes G, Meyer G, Langer G. Efficacy and experiences of telephone counselling for informal carers of people with dementia. Cochrane Database Syst Rev. 2014;9:CD009126.
20. Grimshaw JM, Eccles MP, Lavis JN, Hill SJ, Squires JE. Knowledge translation of research findings. Implementation science: IS. 2012;7:50.
21. Group CEPaOoCR. Suggested risk of bias for EPOC reviews. In. Oslo: Norwegian Knolwedge Centre for Health Services; 2015.
22. Lai CKY, Wong LF, Liu K-H, Lui W, Chan MF, Yap LSY. Online and onsite training for family caregivers of people with dementia: results from a pilot study. International Journal of Geriatric Psychiatry. 2013;28(1):107-8.
23. Beauchamp N, Irvine AB, Seeley J, Johnson B. Worksite-based internet multimedia program for family caregivers of persons with dementia. Gerontologist. 2005;45(6):793-801.
24. van der Roest HG, Meiland FJ, Jonker C, Droes RM. User evaluation of the DEMentia-specific digital interactive social chart (DEM-DISC). A pilot study among informal carers on its impact, user friendliness and, usefulness. Aging Ment Health. 2010;14(4):461-70.
25. Van Mierlo LD, Meiland FJ, Van de Ven PM, Van Hout HP, Droes RM. Evaluation of DEM-DISC, customized e-advice on health and social support services for informal carers and case managers of people with dementia; a cluster randomized trial. Int Psychogeriatr. 2015;27(8):1365-78.
26. Torkamani M, McDonald L, Saez Aguayo I, Kanios C, Katsanou MN, Madeley L, Limousin PD, Lees AJ, Haritou M, Jahanshahi M, et al. A randomized controlled pilot study to evaluate a technology platform for the assisted living of people with dementia and their carers. J Alzheimers Dis. 2014;41(2):515-23.
27. Brennan PF, Moore SM, Smyth KA. The effects of a special computer network on caregivers of persons with Alzheimer's disease. Nurs Res. 1995;44(3):166-72.
28. Blom MM, Zarit SH, Groot Zwaaftink RB, Cuijpers P, Pot AM. Effectiveness of an internet intervention for family caregivers of people with dementia: results of a randomized controlled trial. PLoS One. 2015;10(2):e0116622. [Electronic Resource]
29. Pagan-Ortiz ME, Cortes DE, Rudloff N, Weitzman P, Levkoff S. Use of an online community to provide support to caregivers of people with dementia. J Gerontol Soc Work. 2014;57(6-7):694-709.
30. Cristancho-Lacroix V, Wrobel J, Cantegreil-Kallen I, Dub T, Rouquette A, Rigaud AS. A web-based psychoeducational program for informal caregivers of patients with Alzheimer's disease: a pilot randomized controlled trial. J Med Internet Res. 2015;17(5):e117.
31. Nunez-Naveira L, Alonso-Bua B, de Labra C, Gregersen R, Maibom K, Mojs E, Krawczyk-Wasielewska A, Millan-Calenti JC. UnderstAID, an ICT platform to help informal caregivers of people with dementia: a pilot randomized controlled study. Biomed Res Int. 2016;2016:5726465.
32. Tremont G, Davis JD, Bishop DS, Fortinsky RH. Telephone-delivered psychosocial intervention reduces burden in dementia caregivers. Dementia (14713012). 2008;7(4):503-20. 518p
33. Winter L, Gitlin LN. Evaluation of a telephone-based support group intervention for female caregivers of community-dwelling individuals with dementia. American Journal of Alzheimer's Disease and other Dementias. 2006;21(6):391-7.
34. Wray LO, Shulan MD, Toseland RW, Freeman KE, Vasquez BE, Gao J. The effect of telephone support groups on costs of care for veterans with dementia. Gerontologist. 2010;50(5):623-31.
35. Davis JD, Tremont G, Bishop DS, Fortinsky RH. A telephone-delivered psychosocial intervention improves dementia caregiver adjustment following nursing home placement. International Journal of Geriatric Psychiatry. 2011;26(4):380-7.
36. Au A. Developing volunteer-assisted behavioral activation teleprograms to meet the needs of Chinese dementia caregivers. Clinical Gerontologist: The Journal of Aging and Mental Health. 2015;38(3):190-202.
37. Au A, Wong MK, Leung LM, Leung P, Wong A. Telephone-assisted pleasant-event scheduling to enhance well-being of caregivers of people with dementia: a randomised controlled trial. Hong Kong Medical Journal. 2014;20(3 Suppl 3):30-3.
38. van Mierlo LD, Meiland FJ, Droes RM. Dementelcoach: effect of telephone coaching on carers of community-dwelling people with dementia. Int Psychogeriatr. 2012;24(2):212-22.
39. Martindale-Adams J, Nichols LO, Burns R, Graney MJ, Zuber J. A trial of dementia caregiver telephone support. Can J Nurs Res. 2013;45(4):30-48.
40. Goodman CC, Pynoos J. A model telephone information and support program for caregivers of Alzheimer's patients. The Gerontologist. 1990;30:399-404.
41. Glueckauf RL, Sharma D, Davis WS, Byrd V, Stine C, Jeffers SB, Massey AJ, Wesley LM, McIntyre V, Martin C. Telephone-based cognitive-behavioral intervention for distressed rural dementia caregivers: initial findings. Clin Gerontol. 2007;31(1):21-41.
42. Wilz G, Schinkothe D, Soellner R. Goal attainment and treatment compliance in a cognitive-behavioral telephone intervention for family caregivers of persons with dementia. GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry. 2011;24(3):115-25.
43. Wilz G, Soellner R. Evaluation of a short-term telephone-based cognitive behavioral intervention for dementia family caregivers. Clinical Gerontologist: The Journal of Aging and Mental Health. 2016;39(1):25-47.
44. Chang BL, Nitta S, Carter PA, Markham YK. Perceived helpfulness of telephone calls - providing support for caregivers of family members with dementia. J Gerontol Nurs. 2004;30(9):14-21.
45. Connell CM, Janevic MR. Effects of a telephone-based exercise intervention for dementia caregiving wives: a randomized controlled trial. J Appl Gerontol. 2009;28(2):171-94. 124p
46. Tremont G, Davis JD, Papandonatos GD, Ott BR, Fortinsky RH, Gozalo P, Yue MS, Bryant K, Grover C, Bishop DS. Psychosocial telephone intervention for dementia caregivers: a randomized, controlled trial. Alzheimer's and Dementia. 2015;11(5):541-8.
47. Marziali E, Donahue P. Caring for others: internet video-conferencing group intervention for family caregivers of older adults with neurodegenerative disease. Gerontologist. 2006;46(3):398-403.
48. Marziali E, Garcia LJ. Dementia caregivers' responses to 2 internet-based intervention programs. Am J Alzheimers Dis Other Demen. 2011;26(1):36-43.
49. Eisdorfer C, Czaja SJ, Loewenstein DA, Rubert MP, Arguelles S, Mitrani VB, Szapocznik J. The effect of a family therapy and technology-based intervention on caregiver depression. Gerontologist. 2003;43(4):521-31.
50. Finkel S, Czaja SJ, Schulz R, Martinovich Z, Harris C, Pezzuto D. E-care: a telecommunications technology intervention for family caregivers of dementia patients. Am J Geriatr Psychiatr. 2007;15(5):443-8.
51. Mahoney DF, Tarlow BJ, Jones RN. Effects of an automated telephone support system on caregiver burden and anxiety: findings from the REACH for TLC intervention study. Gerontologist. 2003;43(4):556-67.
52. Mahoney DM, Tarlow B, Jones RN, Tennstedt S, Kasten L. Factors affecting the use of a telephone-based intervention for caregivers of people with Alzheimer's disease. Journal of Telemedicine & Telecare. 2001;7(3):139-48.
53. Czaja SJ, Loewenstein D, Schulz R, Nair SN, Perdomo D. A videophone psychosocial intervention for dementia caregivers. Am J Geriatr Psychiatr. 2013;21(11):1071-81.
54. Steffen AM, Gant JR. A telehealth behavioral coaching intervention for neurocognitive disorder family carers. International Journal of Geriatric Psychiatry. 2016;31(2):195-203.
55. Hicken BL, Daniel C, Luptak M, Grant M, Kilian S, Rupper RW. Supporting caregivers of rural veterans electronically (SCORE). J Rural Health. 2016;20:20.
56. Gallagher-Thompson D, Wang PC, Liu W, Cheung V, Peng R, China D, Thompson LW. Effectiveness of a psychoeducational skill training DVD program to reduce stress in Chinese American dementia caregivers: results of a preliminary study. Aging Ment Health. 2010;14(3):263-73.
57. Chang BL. Cognitive-behavioral intervention for homebound caregivers of persons with dementia. Nurs Res. 1999;48(3):173-82. 110p
58. Chou WY, Liu B, Post S, Hesse B. Health-related internet use among cancer survivors: data from the health information National Trends Survey, 2003-2008. Journal of cancer survivorship: research and practice. 2011;5(3):263-70.
59. ABS: Household use of information technology, Australia 2012-2013. In.; 2014.
60. National Aged Care Alliance. Assessment and the Aged Care Service. Position Paper. Released: Jan 2014. http://www.naca.asn.au/Publications/Assessment%20%26%20The%20Aged%20Care%20Service%20System%20Paper.pdf.
61. Coumarelos C, Macourt D, People J, McDonald HM, Wei Z, Iriana R, Ramsey S. Access to justice and legal needs. In., vol. 7. Law and Justice Foundation of NSW: Sydney; 2012.
62. Cotten SR, Anderson WA, McCullough BM. Impact of internet use on loneliness and contact with others among older adults: cross-sectional analysis. J Med Internet Res. 2013;15(2):e39.
63. Kreuter MW, Chheda SG, Bull FC. How does physician advice influence patient behavior?: evidence for a priming effect. Arch Fam Med. 2000;9(5):426.
64. Vervloet M, Linn AJ, van Weert JCM, de Bakker DH, Bouvy ML, van Dijk L. The effectiveness of interventions using electronic reminders to improve adherence to chronic medication: a systematic review of the literature. J Am Med Inform Assoc. 2012;19(5):696-704.
65. Fry JP, Neff RA. Periodic prompts and reminders in health promotion and health behavior interventions: systematic review. J Med Internet Res. 2009;11(2):e16.