A systematic review of Internet-based supportive interventions for caregivers of patients with dementia

International Journal of Geriatric Psychiatry

Volumn 29, Issue 4, 2014, Pages 331-344

  Boots, L M M ^a   De Vugt, M E ^a   Van Knippenberg, R J M ^a   Kempen, G I J M ^a   Verhey, F R J ^a  

^a MAASTRICHT UNIVERSITY   (Netherlands)

Author keywords

caregivers; dementia; Internet; psychosocial interventions; review literature

Indexed keywords

ANXIETY; CAREGIVER; CAREGIVER BURDEN; CAREGIVER SUPPORT; CLINICAL EFFECTIVENESS; DEMENTIA; DEPRESSION; EVIDENCE BASED MEDICINE; HUMAN; INTERNET; PSYCHOSOCIAL CARE; QUALITY OF LIFE; REVIEW; SYSTEMATIC REVIEW; TREATMENT OUTCOME;

CAREGIVERS; DEMENTIA; INTERNET; PSYCHOSOCIAL INTERVENTIONS; REVIEW LITERATURE;

CAREGIVERS; COUNSELING; DEMENTIA; HUMANS; INTERNET; PATIENT EDUCATION AS TOPIC; SOCIAL SUPPORT;

EID: 84895818284     PISSN: 08856230     EISSN: 10991166     Source Type: Journal    
DOI: 10.1002/gps.4016     Document Type: Review

References (48)

1. Alzheimer Disease International. 2010. World Alzheimer Report. ADI: London.
2. Andersson G, Cuijpers P,. 2009. Internet-based and other computerized psychological treatments for adult depression: a meta-analysis. Cogn Behav Ther 38: 196-205.
3. Beauchamp N, Irvine AB, Seeley J, et al,. 2005. Worksite-based Internet multimedia program for family caregivers of persons with dementia. Gerontologist 45: 793-801.
4. Blom M, Bosmans JE, Cuijpers P, et al,. 2013. Effectiveness and cost-effectiveness of an Internet intervention for family caregivers of people with dementia: design of a randomized controlled trial. BMC Psychiatry 13: 17.
5. Brennan PF, Moore SM, Smyth KA,. 1995. The effects of a special computer network on caregivers of persons with Alzheimer's disease. Nurs Res 44: 166-172.
6. Brodaty H, Donkin M,. 2009. Family caregivers of people with dementia. Dialogues Clin Neurosci 11: 217-228.
7. Chiu T, Marziali E, Colantonio A, et al,. 2009. Internet-based caregiver support for Chinese Canadians taking care of a family member with Alzheimer disease and related dementia. Can J Aging 28: 323-336.
8. Coulehan MB,. 2011. Impact of a web-based educational and peer-support intervention for dementia caregivers. Aging in America Conference-American Society on Aging.
9. Dew MA, Goycoolea JM, Harris RC, et al,. 2004. An Internet-based intervention to improve psychosocial outcomes in heart transplant recipients and family caregivers: development and evaluation. J Heart Lung Transplant 23: 745-758.
10. Donaldson C, Burns A,. 1999. Burden of Alzheimer's disease: helping the patient and caregiver. J Geriatr Psychiatry Neurol 12: 21-28.
11. Ducharme F, Dube V, Levesque L, et al,. 2011. An online stress management training program as a supportive nursing intervention for family caregivers of an elderly person. Can Nurs Inform J 6: 13-44.
12. Forducey PG, Glueckauf RL, Bergquist TF, et al,. 2012. Telehealth for persons with severe functional disabilities and their caregivers: facilitating self-care management in the home setting. Psychol Serv 9: 144-162.
13. Gitlin LN, Belle SH, Burgio LD, et al,. 2003. Effect of multicomponent interventions on caregiver burden and depression: the REACH multisite initiative at 6-month follow-up. Psychol Aging 18: 361-374.
14. Glueckauf RL, Loomis JS,. 2003. Alzheimer's caregiver support online: lessons learned, initial findings and future directions. Neurorehabilitation 18: 135-146.
15. Glueckauf RL, Ketterson TU, Loomis JS, et al,. 2004. Online support and education for dementia caregivers: overview, utilization, and initial program evaluation. Telemed J E Health 10: 223-232.
16. Hayden LJ, Glynn SM, Hahn TJ, et al,. 2012. The use of Internet technology for psychoeducation and support with dementia caregivers. Psychol Serv 9: 215-218.
17. Kelly K,. 2004. Link2care: Internet-based information and support for caregivers. Generations 27: 87-88.
18. Lai CKY, Wong LF, Liu KH, et al,. 2013. Online and onsite training for family caregivers of people with dementia: results from a pilot study. Int J Geriatr Psychiatry 28: 107-108.
19. Lewis BA, Williams DM, Neighbors CJ, et al,. 2010a. Cost analysis of Internet vs. print interventions for physical activity promotion. Psychol Sport Exerc 11: 246-249.
20. Lewis ML, Hobday JV, Hepburn KW,. 2010b. Internet-based program for dementia caregivers. Am J Alzheimers Dis Other Demen 25: 674-679.
21. Livingston G, Johnston K, Katona C, et al,. 2005. Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia. Am J Psychiatry 162: 1996-2021.
22. Macdonald A, Cooper B,. 2007. Long-term care and dementia services: an impending crisis. Age Ageing 36: 16-22.
23. Martin-Carrasco M, Martin MF, Valero CP, et al,. 2009. Effectiveness of a psychoeducational intervention program in the reduction of caregiver burden in Alzheimer's disease patients' caregivers. Int J Geriatr Psychiatry 24: 489-499.
24. Marziali E, Garcia LJ,. 2011. Dementia caregivers' responses to 2 internet-based intervention programs. Am J Alzheimers Dis Other Demen 26: 36-43.
25. McHugh JE, Wherton JP, Prendergast DK, et al,. 2012. Teleconferencing as a source of social support for older spousal caregivers: initial explorations and recommendations for future research. Am J Alzheimers Dis Other Demen 27: 381-387.
26. van Mierlo LD, Meiland FJ, Droes RM,. 2012a. Dementelcoach: effect of telephone coaching on carers of community-dwelling people with dementia. Int Psychogeriatr 24: 212-222.
27. OCEBM Levels of Evidence Working Group. 2011. The Oxford 2011 levels of evidence. Oxford Centre for Evidence-Based Medicine. http://www.Cebm.Net/index. Aspx?O=5653/ [accessed 30 March 2012].
28. Olazaran J, Reisberg B, Clare L, et al,. 2010. Nonpharmacological therapies in Alzheimer's disease: a systematic review of efficacy. Dement Geriatr Cogn Disord 30: 161-178.
29. Petrowsky H, Demartines N, Rousson V, et al,. 2004. Evidence-based value of prophylactic drainage in gastrointestinal surgery: a systematic review and meta-analyses. Ann Surg 240: 1074-1084; discussion 1084-1085.
30. Robinson L, Brittain K, Lindsay S, et al,. 2009. Keeping in touch everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence. Int Psychogeriatr 21: 494-502.
31. van der Roest HG, Meiland FJM, Jonker C, et al,. 2010. User evaluation of the dementia-specific digital interactive social chart (DEM-DISC). A pilot study among informal carers on its impact, user friendliness and, usefulness. Aging Ment Health 14: 461-470.
32. Sander AM, Clark AN, Atchison TB, et al,. 2009. A web-based videoconferencing approach to training caregivers in rural areas to compensate for problems related to traumatic brain injury. J Head Trauma Rehabil 24: 248-261.
33. Selwood A, Johnston K, Katona C, et al,. 2007. Systematic review of the effect of psychological interventions on family caregivers of people with dementia. J Affect Disord 101: 75-89.
34. Serafini JD, Damianakis T, Marziali E,. 2007. Clinical practice standards and ethical issues applied to a virtual group intervention for spousal caregivers of people with Alzheimer's. Soc Work Health Care 44: 225-243.
35. The Cochrane Collaboration. 2011. Cochrane Handbook for Systematic Reviews of Interventions, Higgins JPT, Green S, (eds.). http://www.cochrane- handbook.org/ [accessed 2 March 2012].
36. Thompson CA, Spilsbury K, Hall J, et al,. 2007. Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatr 7: 18.
37. Topo P,. 2009. Technology studies to meet the needs of people with dementia and their caregivers a literature review. J Appl Gerontol 28: 5-37.
38. Torp S, Hanson E, Hauge S, et al,. 2008. A pilot study of how information and communication technology may contribute to health promotion among elderly spousal carers in Norway. Health Soc Care Community 16: 75-85.
39. van Tulder MW, Assendelft WJ, Koes BW, et al,. 1997. Method guidelines for systematic reviews in the Cochrane collaboration back review group for spinal disorders. Spine (Phila Pa 1976) 22: 2323-2330.
40. van Tulder MW, Cherkin DC, Berman B, et al,. 1999. The effectiveness of acupuncture in the management of acute and chronic low back pain. A systematic review within the framework of the Cochrane Collaboration Back Review Group. Spine (Phila Pa 1976) 24: 1113-1123.
41. Van Mierlo LD, Meiland FJ, Van der Roest HG, et al,. 2012b. Personalised caregiver support: effectiveness of psychosocial interventions in subgroups of caregivers of people with dementia. Int J Geriatr Psychiatry 27: 1-14.
42. Visser K, Katchamart W, Loza E, et al,. 2009. Multinational evidence-based recommendations for the use of methotrexate in rheumatic disorders with a focus on rheumatoid arthritis: integrating systematic literature research and expert opinion of a broad international panel of rheumatologists in the 3e initiative. Ann Rheum Dis 68: 1086-1093.
43. Vitaliano PP, Zhang J, Scanlan JM,. 2003. Is caregiving hazardous to one's physical health? A meta-analysis. Psychol Bull 129: 946-972.
44. de Vugt ME, Stevens F, Aalten P, et al,. 2004. Do caregiver management strategies influence patient behaviour in dementia? Int J Geriatr Psychiatry 19: 85-92.
45. Wilz G, Schinkothe D, Soellner R,. 2011. Goal attainment and treatment compliance in a cognitive-behavioral telephone intervention for family caregivers of persons with dementia. GeroPsych 24: 115-125.
46. Wimo A, Jonsson L, Gustavsson A, et al,. 2011. The economic impact of dementia in Europe in 2008-cost estimates from the Eurocode project. Int J Geriatr Psychiatry 26: 825-832.
47. Zickuhr K, Madden M, (eds.) 2012. Older Adults and Internet Use. Pew Internet & American Life Project. http://www.pewinternet.org/Reports/2012/ Older-adults-and-internet-use.aspx [accessed 20 January 2013].
48. Zijlstra GA, van Haastregt JC, van Rossum E, et al,. 2007. Interventions to reduce fear of falling in community-living older people: a systematic review. J Am Geriatr Soc 55: 603-615.