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Volumn 2, Issue 3, 2016, Pages 747-753

Trust, vulnerable populations, and genetic data sharing

Author keywords

Data sharing; Genetic; Genomic; Policy; Research; Scientific norms

Indexed keywords


EID: 85032983118     PISSN: None     EISSN: 20539711     Source Type: Journal    
DOI: 10.1093/jlb/lsv044     Document Type: Article
Times cited : (7)

References (17)
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  • 2
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    • Genomic Research and Wide Data Sharing: Views of Prospective Participants
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  • 3
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    • To Share or Not Share: A Randomized Trial of Consent for Data Sharing in Genome Research
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    • McGuire, A.1
  • 4
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    • Dynamic Consent: A Patient Interface for Twenty-first Century Research Networks
    • Jane Kaye et al., Dynamic Consent: A Patient Interface for Twenty-first Century Research Networks, 23 EURO. J. HUM. GENET. 141 (2015)
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    • Kaye, J.1
  • 5
    • 0032011521 scopus 로고    scopus 로고
    • Conceptualizing Vulnerable Populations Health-Related Research
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  • 6
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    • TheGrowth andGaps ofGenetic Data SharingPolicies in the United States
    • Jalayne J. Arias et al.,TheGrowth andGaps ofGenetic Data SharingPolicies in the United States, 2 J. L. & BIOSCI. 56 (2015)
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    • Arias, J.J.1
  • 7
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    • Genetic Data-Sharing: What Will be Our Legacy?
    • Shawneequa Callier, et al., Genetic Data-Sharing: What Will be Our Legacy? 5 FRONT. GENET. Art. 34 (2014)
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    • Callier, S.1
  • 8
    • 84887315163 scopus 로고    scopus 로고
    • Redressing Past Wrongs: Changing the Common Rule to Increase Minority Voices in Research
    • William C. Rencher & Leslie E Wolf, Redressing Past Wrongs: Changing the Common Rule to Increase Minority Voices in Research, 103 AM. J. PUB. HEALTH 2136 (2013)
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    • Rencher, W.C.1    Wolf, L.E.2
  • 9
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    • Exploring Pathways to Trust: A Tribal Perspective on Data Sharing
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  • 10
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    • Broad Consent in Biobanking: Reflections on Seemingly Insurmountable Dilemmas
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    • Caulfield, T.1    Kaye, J.2
  • 11
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    • Consent Form, (accessed Sept. 14, 2015)
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    • Introduction and Procedures for Accessing Data from Whole Genome Sequencing of ADNI Subjects
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    • Alzheimer's Disease Neuroimaging Initiative, Introduction and Procedures for Accessing Data from Whole Genome Sequencing of ADNI Subjects, http://adni.loni.usc.edu/wp-content/uploads/2010/09/ADNI WGS Notice 20130917.pdf (accessed Sept. 14, 2015)
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  • 17
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    • Codifying Collegiality: Recent Developments in Data Sharing Policy in the Life Sciences
    • Pham-Kanter, Genevieve, Darren E. Zinner, & Eric G. Campbell. 2014. Codifying Collegiality: Recent Developments in Data Sharing Policy in the Life Sciences. PLOSONE 9(9):e108451. doi:10.1371/journal.pone.0108451
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* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.