-
1
-
-
85054977337
-
It DependsWhose Data Are Being Shared: Consideration forGenomic Data Sharing Policies
-
Jill O. Robinson et al., It DependsWhose Data Are Being Shared: Consideration forGenomic Data Sharing Policies, J. L. & BIOSCI. 1, 8 (2015)
-
(2015)
J. L. & BIOSCI
, pp. 1-8
-
-
Robinson, J.O.1
-
2
-
-
77955662068
-
Genomic Research and Wide Data Sharing: Views of Prospective Participants
-
Susan Brown Trinidad et al., Genomic Research and Wide Data Sharing: Views of Prospective Participants, 12 GENET. MED. 486, 489 (2010)
-
(2010)
GENET. MED
, vol.12
, pp. 486-489
-
-
Trinidad, S.B.1
-
3
-
-
80755139422
-
To Share or Not Share: A Randomized Trial of Consent for Data Sharing in Genome Research
-
Amy McGuire et al., To Share or Not Share: A Randomized Trial of Consent for Data Sharing in Genome Research,13 GENET. MED. 948 (2011)
-
(2011)
GENET. MED
, vol.13
, pp. 948
-
-
McGuire, A.1
-
4
-
-
84921382128
-
Dynamic Consent: A Patient Interface for Twenty-first Century Research Networks
-
Jane Kaye et al., Dynamic Consent: A Patient Interface for Twenty-first Century Research Networks, 23 EURO. J. HUM. GENET. 141 (2015)
-
(2015)
EURO. J. HUM. GENET
, vol.23
, pp. 141
-
-
Kaye, J.1
-
5
-
-
0032011521
-
Conceptualizing Vulnerable Populations Health-Related Research
-
Jacquelyn H. Flaskerud & Betty J. Winslow, Conceptualizing Vulnerable Populations Health-Related Research, 47 NURS. RES. 69 (1998)
-
(1998)
NURS. RES
, vol.47
, pp. 69
-
-
Flaskerud, J.H.1
Winslow, B.J.2
-
6
-
-
84975788577
-
TheGrowth andGaps ofGenetic Data SharingPolicies in the United States
-
Jalayne J. Arias et al.,TheGrowth andGaps ofGenetic Data SharingPolicies in the United States, 2 J. L. & BIOSCI. 56 (2015)
-
(2015)
J. L. & BIOSCI
, vol.2
, pp. 56
-
-
Arias, J.J.1
-
7
-
-
84898004104
-
Genetic Data-Sharing: What Will be Our Legacy?
-
Shawneequa Callier, et al., Genetic Data-Sharing: What Will be Our Legacy? 5 FRONT. GENET. Art. 34 (2014)
-
(2014)
FRONT. GENET. Art
, vol.5
, pp. 34
-
-
Callier, S.1
-
8
-
-
84887315163
-
Redressing Past Wrongs: Changing the Common Rule to Increase Minority Voices in Research
-
William C. Rencher & Leslie E Wolf, Redressing Past Wrongs: Changing the Common Rule to Increase Minority Voices in Research, 103 AM. J. PUB. HEALTH 2136 (2013)
-
(2013)
AM. J. PUB. HEALTH
, vol.103
, pp. 2136
-
-
Rencher, W.C.1
Wolf, L.E.2
-
9
-
-
84906544185
-
Exploring Pathways to Trust: A Tribal Perspective on Data Sharing
-
Rosalina James et al., Exploring Pathways to Trust: A Tribal Perspective on Data Sharing, 16 GENET. MED. 820 (2014)
-
(2014)
GENET. MED
, vol.16
, pp. 820
-
-
James, R.1
-
10
-
-
73449138816
-
Broad Consent in Biobanking: Reflections on Seemingly Insurmountable Dilemmas
-
Timothy Caulfield & Jane Kaye, Broad Consent in Biobanking: Reflections on Seemingly Insurmountable Dilemmas, 10MED. LAW INT'L 85 (2009)
-
(2009)
MED. LAW INT'L
, vol.10
, pp. 85
-
-
Caulfield, T.1
Kaye, J.2
-
11
-
-
85054963137
-
-
Consent Form, (accessed Sept. 14, 2015)
-
Oxford Biobank, Consent Form, http://www.oxfordbiobank.org.uk/wp-content/uploads/2013/11/OBBconsent-form-Version-1.1-25-9-2013.pdf (accessed Sept. 14, 2015)
-
-
-
-
12
-
-
85054961273
-
Introduction and Procedures for Accessing Data from Whole Genome Sequencing of ADNI Subjects
-
(accessed Sept. 14, 2015)
-
Alzheimer's Disease Neuroimaging Initiative, Introduction and Procedures for Accessing Data from Whole Genome Sequencing of ADNI Subjects, http://adni.loni.usc.edu/wp-content/uploads/2010/09/ADNI WGS Notice 20130917.pdf (accessed Sept. 14, 2015)
-
-
-
-
13
-
-
85054987288
-
-
(accessed Sept. 10, 2015)
-
Apple ResearchKit, GitHub, ResearchKit Framework Best Practices, https://github.com/ResearchKit/ ResearchKit/wiki/best-practices (accessed Sept. 10, 2015)
-
ResearchKit Framework Best Practices
-
-
-
15
-
-
85055003560
-
-
(accessed Sept. 14, 2015)
-
Patient Centered Outcome Research Institute (PCORI), http://www.pcori.org/ (accessed Sept. 14, 2015)
-
-
-
-
16
-
-
85054971865
-
-
(accessed Sept. 14, 2015)
-
FDA statement: http://www.fda.gov/downloads/RegulatoryInformation/Guidances/UCM125651.pdf (accessed Sept. 14, 2015)
-
-
-
-
17
-
-
84907432328
-
Codifying Collegiality: Recent Developments in Data Sharing Policy in the Life Sciences
-
Pham-Kanter, Genevieve, Darren E. Zinner, & Eric G. Campbell. 2014. Codifying Collegiality: Recent Developments in Data Sharing Policy in the Life Sciences. PLOSONE 9(9):e108451. doi:10.1371/journal.pone.0108451
-
(2014)
PLOSONE
, vol.9
, Issue.9
-
-
Pham-Kanter, G.1
Zinner, D.E.2
Campbell, E.G.3
|