Exploring pathways to trust: A tribal perspective on data sharing

Genetics in Medicine

Volumn 16, Issue 11, 2014, Pages 820-826

  James, Rosalina ^a   Tsosie, Rebecca ^b   Sahota, Puneet ^c   Parker, Myra ^a   Dillard, Denise ^d   Sylvester, Ileen ^d   Lewis, John ^e   Klejka, Joseph ^f   Muzquiz, Leeanna ^g   Olsen, Polly ^h   Whitener, Ron ^h   Burke, Wylie ^a  

^a UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^b ARIZONA STATE UNIVERSITY   (United States)

^c HOSPITAL OF THE UNIVERSITY OF PENNSYLVANIA   (United States)

^d SOUTHCENTRAL FOUNDATION   (United States)

^e Tribal Epidemiology Center   (United States)

^f Yukon Kuskokwim Health Corporation   (United States)

^g Wildlife Habitat Restoration specialist   (United States)

^h UNIVERSITY OF WASHINGTON   (United States)

Author keywords

data sharing; ethics; genetics; indigenous; tribal

Indexed keywords

WARFARIN;

ALASKA NATIVE; AMERICAN; AMERICAN INDIAN; CLINICAL RESEARCH; CONSULTATION; CULTURAL FACTOR; DATA PROCESSING; FREEDOM OF INFORMATION ACT; GENETIC VARIABILITY; GENOTYPE; GOVERNMENT; HEALTH CARE POLICY; HUMAN; HUMAN RIGHTS; INDIGENOUS PEOPLE; INHERITANCE; NATIONAL HEALTH ORGANIZATION; PARTICIPATORY RESEARCH; PATENT; PHARMACOGENETICS; PROTECTION; REVIEW; TRANSLATIONAL RESEARCH; TRUST; COMMUNITY CARE; ETHICS; INFORMATION DISSEMINATION; LEGISLATION AND JURISPRUDENCE; ORGANIZATION AND MANAGEMENT; UNITED STATES; UNIVERSITY;

COMMUNITY NETWORKS; HUMANS; INDIANS, NORTH AMERICAN; INFORMATION DISSEMINATION; NATIONAL INSTITUTES OF HEALTH (U.S.); TRANSLATIONAL MEDICAL RESEARCH; UNITED STATES; UNIVERSITIES;

EID: 84906544185     PISSN: 10983600     EISSN: 15300366     Source Type: Journal    
DOI: 10.1038/gim.2014.47     Document Type: Review

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