Keeping it credible in cohort multiple randomised controlled trials: The community ageing research 75+ (care 75 +) study model of patient and public involvement and engagement

Research Involvement and Engagement

Volumn 2, Issue 1, 2016, Pages

  Heaven, Anne ^a   Brown, Lesley ^a   Foster, Marilyn ^a   Clegg, Andrew ^a  

^a BRADFORD INSTITUTE FOR HEALTH RESEARCH   (United Kingdom)

Author keywords

CmRCT; Engagement; Involvement; Participation; Public

Indexed keywords

EID: 85032266944     PISSN: None     EISSN: 20567529     Source Type: Journal    
DOI: 10.1186/s40900-016-0044-9     Document Type: Article

References (34)

1. NIHR CLAHRC Yorkshire and Humber. https://sites.google.com/a/nihr.ac.uk/clahrcyh/.
2. Clegg A, et al. Frailty in elderly people. Lancet. 2013;381(9868):752–62.
3. Clegg A, et al. Improving recruitment of older people to clinical trials: use of the cohort multiple randomised controlled trial design. Age and Ageing. 2015:0:1-4.
4. Relton C, et al. Rethinking pragmatic randomised controlled trials: introducing the “cohort multiple randomised controlled trial” design. BMJ. 2010;340:c1066.
5. Council, MR. Maximising the value of UK population cohorts MRC Strategic Review of the Largest UK Population Cohort Studies. 2014; London.
6. Lucas PJ, Allnock D, Jessiman T. How are European birth-cohort studies engaging and consulting with young cohort members? BMC Med Res Methodol. 2013;13:56.
7. Thompson J, et al. Health researchers’ attitudes towards public involvement in health research. Health Expect. 2009;12(2):209–20.
8. Ardron D, Kendall M. Patient and public involvement in health research: what is it, and why is it so important? Int J Palliat Nurs. 2010;16(4):160–2.
9. Boote J, Telford R, Cooper C. Consumer involvement in health research: a review and research agenda. Health Policy. 2002;61(2):213–36.
10. Shippee. Patient and service user engagement in health research: a systematic review and synthesised framework. Health Expectations; 2013 p. 1369–7625.
11. NIHR. In: NIHR, editor. Going the extra mile: improving the nation’s health and wellbeing through public involvement in research. London: Department of Health; 2015.
12. Oliver S, Armes DG, Gyte G. Public involvement in setting a national research agenda. The Patient: Patient-Centered Outcomes Research. 2009;2(3):179–90.
13. Brett J, et al. A systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research. Warwick: University of Warwick; 2010.
14. INVOLVE. Exploring the impact of public involvement on the quality of research: examples. 2013, NIHR.
15. Staley K. A series of case studies illustrating the impact of service user and carer involvement on research 2013, NIHR.
16. Popay J, Collins M, w.t.P.S. Group. The public involvement impact assessment framework guidance. Universities of Lancaster, Liverpool and Exeter.
17. INVOLVE. Public invovlement in research: values and principles framework. 2015.
18. Bagley HJ, et al. A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials “a work in progress. Research Involvement and Engagement. 2016;2:15.
19. RDS, N. Patient and public involvement in health and social care research: a handbook for researchers.
20. Buck D, et al. From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials. BMJ Open. 2014;4(12).
21. INVOLVE. Public involvement in clinical trials: Supplement to the briefing notes for researchers. 2012, NIHR.
22. Johnson R, Kuczawski M, Mason S. Why is it so difficult to recruit patients to research in emergency care? Lessons from the AHEAD study. Emergency Medicine Journal. 2015; 0:1-5.
23. Bonnefoy X, et al. A pan-European housing and health survey: description and evaluation of methods and approaches. Int J Environ Pollut. 2007;30(3–4):363–83.
24. Bosch X, Titus SL. Cultural challenges and international research integrity. Lancet. 2009;373(9664):610–2.
25. Nuttall J, et al. Building an international network for a primary care research program: reflections on challenges and solutions in the set-up and delivery of a prospective observational study of acute cough in 13 European countries. BMC Fam Pract. 2011;12:78.
26. McDonald AM, et al. What influences recruitment to randomised controlled trials? A review of trials funded by two UK funding agencies. Trials. 2006;7(1):9.
27. Bradford Older People’s Partnership. Available from: https://bdp.bradford.gov.uk/about-us/partnership-whos-who/.
28. Meri Yaadain. Available from: http://www.meriyaadain.co.uk/.
29. Nyman SR, Victor CR. Older people’s participation in and engagement with falls prevention interventions in community settings: an augment to the Cochrane systematic review. Age and Ageing. 2012;41(1):16–23.
30. Gamble C, et al. Patient and public involvement in the early stages of clinical trial development: a systematic cohort investigation. BMJ Open. 2014;4(7):e005234.
31. Staley K, et al. ‘The missing links’: understanding how context and mechanism influence the impact of public involvement in research. Health Expect. 2012;17(6):755–64.
32. Yorkshire Health Study. Available from: http://www.yorkshirehealthstudy.org/#!south-yorkshire/c7ca.
33. English Longitudinal Study of Ageing. Available from: http://www.elsa-project.ac.uk/search?search%5Bcategory% 5D=&search%5Bkeywords%5D=public+involvement&search%5Bauthor%5D=&search%5Bsearch%5D=.
34. Canadian Study of Health and Ageing. Available from: http://csha.ca/r_publication_list.asp?action=search&submitted=yes.