-
5
-
-
70249128870
-
-
Nijmegen: Radboud University, Centre for Society and Genomics
-
Bovenberg, J., T. Meulenkamp, E. Smets, and S. Gevers. 2009. Always expect the unexpected: legal and social aspects of reporting Biobank research results to individual research participants. Nijmegen: Radboud University, Centre for Society and Genomics.
-
(2009)
Always Expect the Unexpected: Legal and Social Aspects of Reporting Biobank Research Results to Individual Research Participants
-
-
Bovenberg, J.1
Meulenkamp, T.2
Smets, E.3
Gevers, S.4
-
6
-
-
36849075201
-
The ancillary care responsibilities of researchers: Reasonable but not great expectations
-
Brownsword, Roger. 2007. The ancillary care responsibilities of researchers: reasonable but not great expectations. Journal of Law, Medicine and Ethics 35: 679.
-
(2007)
Journal of Law, Medicine and Ethics
, vol.35
, pp. 679
-
-
Brownsword, R.1
-
7
-
-
84900619712
-
Property in human tissue: Triangulating the issue
-
ed. M. Steinman, P. Sykora, and U. Wiesing, Aldershot: Ashgate
-
Brownsword, Roger. 2009. Property in human tissue: triangulating the issue. In Altruism reconsidered: exploring new approaches to property in human tissue, ed. M. Steinman, P. Sykora, and U. Wiesing, 93. Aldershot: Ashgate.
-
(2009)
Altruism Reconsidered: Exploring New Approaches to Property in Human Tissue
, vol.93
-
-
Brownsword, R.1
-
8
-
-
85025829745
-
New genetic tests, new research findings: Do patients and participants have a right to know—and do they have a right not to know? Law
-
Brownsword, Roger. 2016. New genetic tests, new research findings: do patients and participants have a right to know—and do they have a right not to know? Law, Innovation and Technology 8: 247.
-
(2016)
Innovation and Technology
, vol.8
, pp. 247
-
-
Brownsword, R.1
-
9
-
-
85026804764
-
The development of non-invasive prenatal testing: Some legal and ethical questions
-
Brownsword, Roger, and Jeff Wale. 2016. The development of non-invasive prenatal testing: some legal and ethical questions. Jahrbuch für Recht und Ethik 24: 31.
-
(2016)
Jahrbuch für Recht Und Ethik
, vol.24
, pp. 31
-
-
Brownsword, R.1
Wale, J.2
-
12
-
-
84987858832
-
Non-disclosure of genetic risks: The case for developing legal wrongs
-
Chico, Victoria. 2016. Non-disclosure of genetic risks: The case for developing legal wrongs. Medical Law International 16 (1–2): 3.
-
(2016)
Medical Law International
, vol.16
, Issue.1-2
, pp. 3
-
-
Chico, V.1
-
14
-
-
84918587012
-
For your interest? The ethical acceptability of using noninvasive prenatal testing to test purely for information
-
Deans, Z., A.J. Clarke, and A.J. Newson. 2015. For your interest? The ethical acceptability of using noninvasive prenatal testing to test purely for information. Bioethics 29: 19.
-
(2015)
Bioethics
, vol.29
, pp. 19
-
-
Deans, Z.1
Clarke, A.J.2
Newson, A.J.3
-
15
-
-
85026802411
-
Taking rights seriously. London: Duckworth
-
2015. Feedback of Health Related Findings: Foreground Principles and Background Perspectives (London)
-
Dworkin, Ronald. 1978. Taking rights seriously. London: Duckworth. Ethics and Governance Council of UK Biobank. 2015. Feedback of Health Related Findings: Foreground Principles and Background Perspectives (London).
-
(1978)
Ethics and Governance Council of UK Biobank
-
-
Dworkin, R.1
-
16
-
-
85006271562
-
Negligence, genetics and families: A duty to disclose actionable risks
-
Fay, Michael. 2016. Negligence, genetics and families: a duty to disclose actionable risks. Medical Law International 16 (3–4): 115.
-
(2016)
Medical Law International
, vol.16
, Issue.3-4
, pp. 115
-
-
Fay, M.1
-
20
-
-
78049437826
-
How privacy killed Katz: A tale of cognitive freedom and the property of personhood as fourth amendment norm
-
Halliburton, C.M. 2009. How privacy killed Katz: a tale of cognitive freedom and the property of personhood as fourth amendment norm. Akron Law Review 42: 803.
-
(2009)
Akron Law Review
, vol.42
, pp. 803
-
-
Halliburton, C.M.1
-
21
-
-
22644439806
-
Does the UK biobank have a legal obligation to feedback individual findings to participants?
-
Johnston, C., and J. Kaye. 2004. Does the UK biobank have a legal obligation to feedback individual findings to participants? Medical Law Review 12: 239.
-
(2004)
Medical Law Review
, vol.12
, pp. 239
-
-
Johnston, C.1
Kaye, J.2
-
22
-
-
85026797908
-
FDAWill Allow 23andMe to sell genetic tests for disease risk to consumers
-
(April 6, 2017)
-
Kolata, Gina. 2017. ‘FDAWill Allow 23andMe to sell genetic tests for disease risk to consumers’ The New York Times (April 6, 2017).
-
(2017)
The New York Times
-
-
Kolata, G.1
-
24
-
-
79951802866
-
Managing access to biobanks: How can we reconcile individual privacy and public interests in genetic research?
-
Laurie, Graeme, et al. 2010. Managing access to biobanks: how can we reconcile individual privacy and public interests in genetic research? Medical Law International 10: 315; 330–331.
-
(2010)
Medical Law International
, vol.10
, Issue.315
, pp. 330-331
-
-
Laurie, G.1
-
25
-
-
50249124462
-
-
New York: Basic Books, Chapter 15
-
Lessig, Lawrence. 2006. Code Version 2.0. New York: Basic Books, Chapter 15.
-
(2006)
Code Version 2.0
-
-
Lessig, L.1
-
27
-
-
84958672559
-
Montgomery on informed consent: An inexpert decision?
-
Montgomery, Jonathan, and Elsa Montgomery. 2016. Montgomery on informed consent: an inexpert decision? Journal of Medical Ethics 42: 89.
-
(2016)
Journal of Medical Ethics
, vol.42
, pp. 89
-
-
Montgomery, J.1
Montgomery, E.2
-
28
-
-
85015664393
-
Toward an ethically sensitive implementation of noninvasive prenatal screening in the global context
-
at 42
-
Mozersky, Jessica, Vardit Ravitsky, Rayna Rapp, Marsha Michie, Subhashini Chandrasekharan, and Megan Allyse. 2017. Toward an ethically sensitive implementation of noninvasive prenatal screening in the global context. Hastings Center Report 47 (2): 41, at 42.
-
(2017)
Hastings Center Report
, vol.47
, Issue.2
, pp. 41
-
-
Mozersky, J.1
Ravitsky, V.2
Rapp, R.3
Michie, M.4
Chandrasekharan, S.5
Allyse, M.6
-
30
-
-
85026825807
-
-
London: Nuffield Council on Bioethics
-
Nuffield Council on Bioethics. 2017. Non-invasive prenatal testing: ethical issues. London: Nuffield Council on Bioethics.
-
(2017)
Non-Invasive Prenatal Testing: Ethical Issues
-
-
-
31
-
-
85026809402
-
Prenatal blood test detects cancer in mothers-to-be
-
(last accessed 25 Sept 2016)
-
Oswald, K. 2015. ‘Prenatal blood test detects cancer in mothers-to-be’, Bionews 739 at http://www.bionews.org.uk/page_503998.asp. (last accessed 25 Sept 2016).
-
(2015)
Bionews
, vol.739
-
-
Oswald, K.1
-
33
-
-
85026847276
-
The conceptual foundation of the right to know one’s genetic origins
-
(June 5, 2017), (last accessed 11 June 2017)
-
Ravitsky, Vardit, Guichon, Juliet, Lemoine, Marie-Eve, and Giroux, Michelle. 2017. ‘The conceptual foundation of the right to know one’s genetic origins’ BioNews 903 (June 5, 2017) (available at http://www.bionews.org.uk/page.asp?obj_id=847313&PPID=847245&sid=580) (last accessed 11 June 2017).
-
(2017)
Bionews
, vol.903
-
-
Ravitsky, V.1
Guichon, J.2
Lemoine, M.-E.3
Giroux, M.4
-
36
-
-
84983341276
-
Don't forget the legal framework: The public provision of non-invasive prenatal testing in England & Wales
-
Wale, Jeff. 2015. Don't forget the legal framework: the public provision of non-invasive prenatal testing in England & Wales. Medical Law International 15 (4): 203.
-
(2015)
Medical Law International
, vol.15
, Issue.4
, pp. 203
-
-
Wale, J.1
-
39
-
-
84859566974
-
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
-
Wolf, Susan M., et al. 2012. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genetics in Medicine 14: 361.
-
(2012)
Genetics in Medicine
, vol.14
, pp. 361
-
-
Wolf, S.M.1
|