New genetic tests, new research findings: Do patients and participants have a right to know – and do they have a right not to know?

Law, Innovation and Technology

Volumn 8, Issue 2, 2016, Pages 247-267

  Brownsword, Roger ^a,b  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b BOURNEMOUTH UNIVERSITY   (United Kingdom)

Author keywords

Biobanks; Feedback of incidental findings; Genetic tests; Montgomery v Lanarkshire; Non invasive prenatal tests; The right not to know; The right to know

Indexed keywords

EID: 85025829745     PISSN: 17579961     EISSN: 1757997X     Source Type: Journal    
DOI: 10.1080/17579961.2016.1250376     Document Type: Article

References (2)

1. Compare R Brownsword, ‘Big Biobanks: Three Major Governance Challenges and Some Mini-Constitutional Solutions’ in D Stretch and M Mertz (eds), Ethics in Clinical and Translational Research – From Theory to Practice, from Practice to Theory (Springer, 2016) 175–196.
2. Compare SM Wolf and others, ‘Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets’ (2012) 14 Genetics in Medicine 361.