“Matching” consent to purpose: The example of the Matchmaker Exchange

Human Mutation

Volumn 38, Issue 10, 2017, Pages 1281-1285

  Dyke, Stephanie O M ^a   Knoppers, Bartha M ^a   Hamosh, Ada ^b   Firth, Helen V ^c   Hurles, Matthew ^c   Brudno, Michael ^d,e   Boycott, Kym M ^f   Philippakis, Anthony A ^g   Rehm, Heidi L ^g,h  

^a MCGILL UNIVERSITY   (Canada)

^b JOHNS HOPKINS UNIVERSITY   (United States)

^c WELLCOME TRUST SANGER INSTITUTE   (United Kingdom)

^d UNIVERSITY OF TORONTO   (Canada)

^e HOSPITAL FOR SICK CHILDREN   (Canada)

^f CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^g BROAD INSTITUTE OF MIT AND HARVARD   (United States)

^h BRIGHAM AND WOMEN S HOSPITAL   (United States)

Author keywords

consent; data access; data sharing; personalized medicine; precision medicine; privacy

Indexed keywords

ARTICLE; CLINICAL RESEARCH; DATA PROCESSING; HEALTH CARE POLICY; HUMAN; INFORMED CONSENT; MATCHMAKER EXCHANGE; PATIENT CARE; PATIENT SELECTION; PRIORITY JOURNAL; GENETIC ASSOCIATION STUDY; GENETIC DATABASE; GENETIC DISORDER; GENETICS; GENOMICS; INFORMATION DISSEMINATION; PERSONNEL; PHYSICIAN; RARE DISEASE; TRANSLATIONAL RESEARCH;

DATABASES, GENETIC; GENETIC ASSOCIATION STUDIES; GENETIC DISEASES, INBORN; GENOMICS; HUMANS; INFORMATION DISSEMINATION; PATIENT SELECTION; PHYSICIANS; RARE DISEASES; RESEARCH PERSONNEL; TRANSLATIONAL MEDICAL RESEARCH;

EID: 85023207141     PISSN: 10597794     EISSN: 10981004     Source Type: Journal    
DOI: 10.1002/humu.23278     Document Type: Article

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