메뉴 건너뛰기




Volumn 376, Issue 19, 2017, Pages 1849-1858

Use of the national heart, lung, and blood institute data repository

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CLINICAL DATA REPOSITORY; CONTROLLED STUDY; DATA ANALYSIS; DATA BASE; HUMAN; INFORMATION RETRIEVAL; OBSERVATIONAL STUDY; PRIORITY JOURNAL; PUBLICATION; TISSUE BANK; BIBLIOMETRICS; CLINICAL TRIAL (TOPIC); INFORMATION DISSEMINATION; INFORMATION PROCESSING; KAPLAN MEIER METHOD; NATIONAL HEALTH ORGANIZATION; STATISTICS AND NUMERICAL DATA; UNITED STATES; UTILIZATION;

EID: 85019411687     PISSN: 00284793     EISSN: 15334406     Source Type: Journal    
DOI: 10.1056/NEJMsa1603542     Document Type: Article
Times cited : (57)

References (19)
  • 1
    • 84879999670 scopus 로고    scopus 로고
    • Sharing individual level data from observational studies and clinical trials: A perspective from NHLBI
    • Coady SA, Wagner E. Sharing individual level data from observational studies and clinical trials: A perspective from NHLBI. Trials 2013; 14: 201.
    • (2013) Trials , vol.14 , pp. 201
    • Coady, S.A.1    Wagner, E.2
  • 2
    • 84939480083 scopus 로고    scopus 로고
    • Providing contemporary access to historical biospecimen collections: Development of the NHLBI Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC)
    • Giffen CA, Carroll LE, Adams JT, Brennan SP, Coady SA, Wagner EL. Providing contemporary access to historical biospecimen collections: development of the NHLBI Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC). Biopreserv Biobank 2015; 13: 271-9.
    • (2015) Biopreserv Biobank , vol.13 , pp. 271-279
    • Giffen, C.A.1    Carroll, L.E.2    Adams, J.T.3    Brennan, S.P.4    Coady, S.A.5    Wagner, E.L.6
  • 4
    • 84977142902 scopus 로고    scopus 로고
    • A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States
    • Garrison NA, Sathe NA, Antommaria AH, et al. A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States. Genet Med 2016; 18: 663-71.
    • (2016) Genet Med , vol.18 , pp. 663-671
    • Garrison, N.A.1    Sathe, N.A.2    Antommaria, A.H.3
  • 5
    • 84943339182 scopus 로고    scopus 로고
    • Changes in data sharing and data reuse practices and perceptions among scientists worldwide
    • Tenopir C, Dalton ED, Allard S, et al. Changes in data sharing and data reuse practices and perceptions among scientists worldwide. PLoS One 2015; 10(8): e0134826.
    • (2015) PLoS One , vol.10 , Issue.8 , pp. e0134826
    • Tenopir, C.1    Dalton, E.D.2    Allard, S.3
  • 6
    • 84939127428 scopus 로고    scopus 로고
    • Biomedical data sharing and reuse: Attitudes and practices of clinical and scientific research staff
    • Federer LM, Lu YL, Joubert DJ, Welsh J, Brandys B. Biomedical data sharing and reuse: attitudes and practices of clinical and scientific research staff. PLoS One 2015; 10(6): e0129506.
    • (2015) PLoS One , vol.10 , Issue.6 , pp. e0129506
    • Federer, L.M.1    Lu, Y.L.2    Joubert, D.J.3    Welsh, J.4    Brandys, B.5
  • 7
    • 84907616472 scopus 로고    scopus 로고
    • Predictors of clinical trial data sharing: Exploratory analysis of a cross-sectional survey
    • Rathi VK, Strait KM, Gross CP, et al. Predictors of clinical trial data sharing: exploratory analysis of a cross-sectional survey. Trials 2014; 15: 384.
    • (2014) Trials , vol.15 , pp. 384
    • Rathi, V.K.1    Strait, K.M.2    Gross, C.P.3
  • 8
    • 84964314971 scopus 로고    scopus 로고
    • Sharing my health data: A survey of data sharing preferences of healthy individuals
    • Bell EA, Ohno-Machado L, Grando MA. Sharing my health data: A survey of data sharing preferences of healthy individuals. AMIA Annu Symp Proc 2014; 2014: 1699-708.
    • (2014) AMIA Annu Symp Proc , vol.2014 , pp. 1699-1708
    • Bell, E.A.1    Ohno-Machado, L.2    Grando, M.A.3
  • 9
    • 84947766029 scopus 로고    scopus 로고
    • Perceived benefits, harms, and views about how to share data responsibly: A qualitative study of experiences with and attitudes toward data sharing among research staff and community representatives in Thailand
    • Cheah PY, Tangseefa D, Somsaman A, et al. Perceived benefits, harms, and views about how to share data responsibly: A qualitative study of experiences with and attitudes toward data sharing among research staff and community representatives in Thailand. J Empir Res Hum Res Ethics 2015; 10: 278-89.
    • (2015) J Empir Res Hum Res Ethics , vol.10 , pp. 278-289
    • Cheah, P.Y.1    Tangseefa, D.2    Somsaman, A.3
  • 10
    • 84939496447 scopus 로고    scopus 로고
    • Data sharing for public health research: A qualitative study of industry and academia
    • Saunders PA, Wilhelm EE, Lee S, Merkhofer E, Shoulson I. Data sharing for public health research: A qualitative study of industry and academia. Commun Med 2014; 11: 179-87.
    • (2014) Commun Med , vol.11 , pp. 179-187
    • Saunders, P.A.1    Wilhelm, E.E.2    Lee, S.3    Merkhofer, E.4    Shoulson, I.5
  • 11
    • 84988723099 scopus 로고    scopus 로고
    • A systematic review of barriers to data sharing in public health
    • van Panhuis WG, Paul P, Emerson C, et al. A systematic review of barriers to data sharing in public health. BMC Public Health 2014; 14: 1144.
    • (2014) BMC Public Health , vol.14 , pp. 1144
    • Van Panhuis, W.G.1    Paul, P.2    Emerson, C.3
  • 13
    • 84955481124 scopus 로고    scopus 로고
    • Sharing clinical trial data- A proposal from the International Committee of Medical Journal Editors
    • Taichman DB, Backus J, Baethge C, et al. Sharing clinical trial data- a proposal from the International Committee of Medical Journal Editors. N Engl J Med 2016; 374: 384-6.
    • (2016) N Engl J Med , vol.374 , pp. 384-386
    • Taichman, D.B.1    Backus, J.2    Baethge, C.3
  • 14
    • 84961335712 scopus 로고    scopus 로고
    • Sharing individual participant data (IPD) within the context of the Trial Reporting System (TRS)
    • Zarin DA, Tse T. Sharing individual participant data (IPD) within the context of the Trial Reporting System (TRS). PLoS Med 2016; 13(1): e1001946.
    • (2016) PLoS Med , vol.13 , Issue.1 , pp. e1001946
    • Zarin, D.A.1    Tse, T.2
  • 15
    • 85019443388 scopus 로고    scopus 로고
    • Data sharing through an NIH central database repository: A cross-sectional survey of BioLINCC users
    • Ross JS, Ritchie JD, Finn E, et al. Data sharing through an NIH central database repository: A cross-sectional survey of BioLINCC users. BMJ Open 2016; 6(9): e012769.
    • (2016) BMJ Open , vol.6 , Issue.9 , pp. e012769
    • Ross, J.S.1    Ritchie, J.D.2    Finn, E.3
  • 16
    • 83655203025 scopus 로고    scopus 로고
    • DbGaP data access requests: A call for greater transparency
    • Walker L, Starks H, West KM, Fullerton SM. dbGaP data access requests: A call for greater transparency. Sci Transl Med 2011; 3: 113cm34.
    • (2011) Sci Transl Med , vol.3 , pp. 113cm34
    • Walker, L.1    Starks, H.2    West, K.M.3    Fullerton, S.M.4
  • 18
    • 84915821852 scopus 로고    scopus 로고
    • Data sharing, year 1- access to data from industry-sponsored clinical trials
    • Strom BL, Buyse M, Hughes J, Knoppers BM. Data sharing, year 1- access to data from industry-sponsored clinical trials. N Engl J Med 2014; 371: 2052-4.
    • (2014) N Engl J Med , vol.371 , pp. 2052-2054
    • Strom, B.L.1    Buyse, M.2    Hughes, J.3    Knoppers, B.M.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.