The Nature of Family Engagement in Interventions for Children With Chronic Conditions

Western Journal of Nursing Research

Volumn 39, Issue 5, 2017, Pages 690-723

  Knafl, Kathleen A ^a   Havill, Nancy L ^a   Leeman, Jennifer ^a   Fleming, Louise ^a   Crandell, Jamie L ^a   Sandelowski, Margarete ^a  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

child; chronic condition; family; intervention

Indexed keywords

CAPACITY BUILDING; CHILD; CONTENT ANALYSIS; FAMILY FUNCTIONING; FAMILY STUDY; HUMAN; CHILD PARENT RELATION; CHILD WELFARE; CHRONIC DISEASE; FAMILY; FAMILY THERAPY; PARENT; PSYCHOLOGY;

CHILD; CHILD WELFARE; CHRONIC DISEASE; FAMILY; FAMILY THERAPY; HUMANS; PARENTING; PARENTS;

EID: 85018981192     PISSN: 01939459     EISSN: 15528456     Source Type: Journal    
DOI: 10.1177/0193945916664700     Document Type: Article

References (120)

1. Aldridge M. D., (2008). How do families adjust to having a child with chronic kidney failure? A systematic review. Nephrology Nursing Journal, 35, 157-162.
2. Ambrosino J. M., Fennie K., Whittemore R., Jaser S., Dowd M. F., Grey M., (2008). Short-term effects of coping skills training in school-age children with type 1 diabetes. Pediatric Diabetes, 9(3, Pt. 2), 74-82. doi:10.1111/j.1399-5448.2007.00356.x
3. Applegate H., Webb P. M., Elkin T. D., Neul S. K. T., Drabman R. S., Moll G. W., Jr.. Megason G., (2003). Improving parent participation at pediatric diabetes and sickle cell appointments using a brief intervention. Children’s Health Care, 32, 125-136. doi:10.1207/S15326888CHC3202_4
4. Armour T., Norris S., Jack L., Zhang X., Fisher L., (2005). The effectiveness of family interventions in people with diabetes mellitus: A systematic review. Diabetic Medicine, 22, 1295-1305. doi:10.1111/j.1464-5491.2005.01618.x
5. Askins M. A., Sahler O. J., Sherman S. A., Fairclough D. L., Butler R. W., Katz E. R... Phipps S., (2009). Report from a multi-institutional randomized clinical trial examining computer-assisted problem-solving skills training for English- and Spanish-speaking mothers of children with newly diagnosed cancer. Journal of Pediatric Psychology, 34, 551-563. doi:10.1093/jpepsy/jsn124
6. Barakat L. P., Schwartz L. A., Salamon K. S., Radcliffe J., (2010). A family-based randomized controlled trial of pain intervention for adolescents with sickle cell disease. Journal of Pediatric Hematology/Oncology, 32, 540-547. doi:10.1097/MPH.0b013e3181e793f9
7. Barlow J., Ellard D., (2006). The psychosocial wellbeing of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child: Care Health and Development, 32, 19-31.
8. Bethell C., Newacheck P., Fine A., Strickland B., Antonelli R., Wilhelm C... Wells N., (2014). Optimizing health care systems for children with special health care needs using the life course perspective. Maternal and Child Health Journal, 18, 467-477. doi:10.1007/s10995-013-1371-1
9. Bonner S., Zimmerman B. J., Evans D., Irigoyen M., Resnick D., Mellins R. B., (2002). An individualized intervention to improve asthma management among urban Latino and African-American families. Journal of Asthma, 39, 167-179. doi:10.1081/JAS-120002198
10. Borrelli B., Novak S. P., McQuaid E. L., Hammond S. K., Becker B., (2010). Motivating Latino caregivers of children with asthma to quit smoking: A randomized trial. Journal of Consulting and Clinical Psychology, 78, 34-43. doi:10.1037/a0016932
11. Burke S., Harrison M., Kauffman E., Wong C., (2001). Effects of stress-point intervention with families of repeatedly hospitalized children. Journal of Family Nursing, 7, 128-158. doi:10.1177/107484070100700202
12. Butz A. M., Kub J., Donithan M., James N. T., Thompson R. E., Bellin M... Bollinger M. E., (2010). Influence of caregiver and provider communication on symptom days and medication use for inner-city children with asthma. Journal of Asthma, 47, 478-485. doi:10.3109/02770901003692793
13. Butz A. M., Pham L., Lewis L., Lewis C., Hill K., Walker J., Wilkenstein M., (2005). Rural children with asthma: Impact of a parent and child asthma education program. Journal of Asthma, 42, 813-821. doi:10.1080/02770900500369850
14. Butz A. M., Syron L., Johnson B., Spaulding J., Walker M., Bollinger M. E., (2005). Home-based asthma self-management education for inner city children. Public Health Nursing, 22, 189-199. doi:10.1111/j.0737-1209.2005.220302.x
15. Butz A. M., Tsoukleris M. G., Donithan M., Hsu V. D., Zuckerman I., Mudd K. E... Bollinger M. E., (2006). Effectiveness of nebulizer use-targeted asthma education on underserved children with asthma. Archives of Pediatrics & Adolescent Medicine, 160, 622-628.
16. Cabizuca M., Marques-Portella C., Mendlowicz M., Coutinho E., Figueira I., (2009). Posttraumatic stress disorder in parents of children with chronic illnesses: A meta-analysis. Health Psychology, 28, 379-388. doi:10.1037/a0014512
17. Cakan N., Ellis D. A., Templin T., Frey M., Naar-King S., (2007). The effects of weight status on treatment outcomes in a randomized clinical trial of multisystemic therapy for adolescents with type 1 diabetes and chronically poor metabolic control. Pediatric Diabetes, 8, 206-213. doi:10.1111/j.1399-5448.2007.00273.x
18. Canino G., Vila D., Normand S. L., Acosta-Perez E., Ramirez R., Garcia P., Rand C., (2008). Reducing asthma health disparities in poor Puerto Rican children: The effectiveness of a culturally tailored family intervention. The Journal of Allergy and Clinical Immunology, 121, 665-670. doi:10.1016/j.jaci.2007.10.022
19. Cano-Garcinuno A., Diaz-Vazquez C., Carvajal-Uruena I., Praena-Crespo M., Gatti-Vinoly A., Garcia-Guerra I., (2007). Group education on asthma for children and caregivers: A randomized, controlled trial addressing effects on morbidity and quality of life. Journal of Investigational Allergology and Clinical Immunology, 17, 216-226. doi:10.1016/j.jaci.2007.10.022
20. Carr D., Springer K., (2010). Advances in families and health research in the 21st century. Journal of Marriage and Family, 72, 743-762. doi:10.1111/j.1741-3737.2010.00728.x
21. Champaloux S., Young D., (2015). Childhood chronic health conditions and educational attainment: A social ecological approach. Journal of Adolescent Health, 56, 98-105. doi:10.1016/j.jadohealth.2014.07.016
22. Chen S. H., Huang J. L., Yeh K. W., Tsai Y. F., (2013). Interactive support interventions for caregivers of asthmatic children. The Journal of Asthma, 50, 649-657. doi:10.3109/02770903.2013.794236
23. Chernoff R. G., Ireys H. T., DeVet K. A., Kim Y. J., (2002). A randomized, controlled trial of a community-based support program for families of children with chronic illness: Pediatric outcomes. Archives of Pediatrics & Adolescent Medicine, 156, 533-539. doi:10.1001/archpedi.156.6.533
24. Chesla K., (2010). Do family interventions improve health? Journal of Family Nursing, 16, 355-377. doi:10.1177/1074840710383145
25. Chiang L.-C., Ma W.-F., Huang J.-L., Tseng L.-F., Hsueh K.-C., (2009). Effect of relaxation-breathing training on anxiety and asthma signs/symptoms of children with moderate-to-severe asthma: A randomized controlled trial. International Journal of Nursing Studies, 46, 1061-1070. doi:10.1016/j.ijnurstu.2009.01.013
26. Christakis D. A., Garrison M. M., Lozano P., Meischke H., Zhou C., Zimmerman F. J., (2012). Improving parental adherence with asthma treatment guidelines: A randomized controlled trial of an interactive website. Academic Pediatrics, 12, 302-311. doi:10.1016/j.acap.2012.03.006
27. Clark N. M., Brown R., Joseph C. L. M., Anderson E. W., Liu M., Valerio M. A., (2004). Effects of a comprehensive school-based asthma program on symptoms, parent management, grades, and absenteeism. Chest, 125, 1674-1679. doi:10.1378/chest.125.5.1674
28. Cloutier P. F., Manion I. G., Walker J. G., Johnson S. M., (2002). Emotionally focused interventions for couples with chronically ill children: A 2-year follow-up. Journal of Marital and Family Therapy, 28, 391-398. doi:10.1111/j.1752-0606.2002.tb00364.x
29. Coffey J., (2006). Parenting a child with a chronic illness: A meta-synthesis. Pediatric Nursing, 32, 51-59.
30. Colland V., van Essen-Zandvliet L., Lans C., Denteneer A., Westers P., Brackel H., (2004). Poor adherence to self-medication instructions in children with asthma and their parents. Patient Education and Counseling, 55, 416-421. doi:10.1016/j.pec.2003.04.010
31. Colquhoun H., Levac D., O’Brien K., Straus S., Tricco A., Perrier L... Moher D., (2014). Scoping reviews: Time for clarity in definition, methods, and reporting. Journal of Clinical Epidemiology, 67, 1291-1294. doi:10.1016/j.jclinepi
32. Craig P., Dieppe P., Macintyre S., Michie S., Nazareth I., Petticrew M., (2008). Developing and evaluating complex interventions: The new Medical Research Council guidance. British Medical Journal, 337, a1655. doi:10.1136/bmj.a1655
33. Dahlquist L. M., Pendley J. S., (2005). When distraction fails: Parental anxiety and children’s responses to distraction during cancer procedures. Journal of Pediatric Psychology, 30, 623-628. doi:10.1093/jpepsy/jsi048
34. Davidson K., Goldstein M., Kaufmann P., Knatterus G., Orlean C., Spring B... Whitlock E., (2003). Evidence-based behavioral medicine: What is it and how do we achieve it? Annals of Behavioral Medicine, 26, 161-171. doi:10.1207/S15324796ABM2603_01
35. de Wit M., Delemarre-van de Waal H. A., Bokma J. A., Haasnoot K., Houdijk M. C., Gemke R. J., Snoek F. J. (2008). Monitoring and discussing health-related quality of life in adolescents with type 1 diabetes improve psychosocial well-being: A randomized controlled trial. Diabetes Care, 31, 1521-1526. doi:10.2337/dc08-0394
36. de Wit M., Delemarre-van de Waal H. A., Bokma J. A., Haasnoot K., Houdijk M. C., Gemke R. J., Snoek F. J. (2010). Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: Benefits do not sustain in routine practice. Pediatric Diabetes, 11, 175-181. doi:10.1111/j.1399-5448.2009.00543.x
37. Downs J. A., Roberts C. M., Blackmore A. M., Le Souef P. N., Jenkins S. C., (2006). Benefits of an education programme on the self-management of aerosol and airway clearance treatments for children with cystic fibrosis. Chronic Respiratory Disease, 3, 19-27. doi:10.1191/1479972306cd100oa
38. Drotar D., (2005). Commentary: Involving families in psychological interventions in pediatric psychology: Critical needs and dilemmas. Journal of Pediatric Psychology, 30, 689-693. doi:10.1093/jpepsy/jsi056
39. Duncan C. L., Hogan M. B., Tien K. J., Graves M. M., Chorney J. M., Zettler M. D... Portnoy J., (2013). Efficacy of a parent-youth teamwork intervention to promote adherence in pediatric asthma. Journal of Pediatric Psychology, 38, 617-628. doi:10.1093/jpepsy/jss123
40. Ellis D. A., Frey M. A., Naar-King S., Templin T., Cunningham P. B., Cakan N., (2005). The effects of multisystemic therapy on diabetes stress among adolescents with chronically poorly controlled type 1 diabetes: Findings from a randomized, controlled trial. Pediatrics, 116, e826-e832. doi:10.1542/peds.2005-0638
41. Ellis D. A., Naar-King S., Frey M., Templin T., Rowland M., Cakan N., (2005). Multisystemic treatment of poorly controlled type 1 diabetes: Effects on medical resource utilization. Journal of Pediatric Psychology, 30, 656-666.
42. Ellis D. A., Templin T., Naar-King S., Frey M. A., Cunningham P. B., Podolski C. L., Cakan N., (2007). Multisystemic therapy for adolescents with poorly controlled type I diabetes: Stability of treatment effects in a randomized controlled trial. Journal of Consulting and Clinical Psychology, 75, 168-174. doi:10.1037/0022-006X.75.1.168
43. Ellis D. A., Yopp J., Templin T., Naar-King S., Frey M. A., Cunningham P. B... Niec L. N., (2007). Family mediators and moderators of treatment outcomes among youths with poorly controlled type 1 diabetes: Results from a randomized controlled trial. Journal of Pediatric Psychology, 32, 194-205. doi:10.1093/jpepsy/jsj116
44. Evans D., Clark N. M., Levison M. J., Levin B., Mellins R. B., (2001). Can children teach their parents about asthma? Health Education & Behavior, 28, 500-511. doi:10.1177/109019810102800409
45. Fedele D. A., Hullmann S. E., Chaffin M., Kenner C., Fisher M. J., Kirk K... Mullins L. L., (2013). Impact of a parent-based interdisciplinary intervention for mothers on adjustment in children newly diagnosed with cancer. Journal of Pediatric Psychology, 38, 531-540. doi:10.1093/jpepsy/jst010
46. Fisher L., Weihs K., (2000). Can addressing family relationships improve outcomes in chronic disease? The Journal of Family Practice, 49, 561-566.
47. Flores G., Bridon C., Torres S., Perez R., Walter T., Brotanek J... Tomany-Korman S., (2009). Improving asthma outcomes in minority children: A randomized, controlled trial of parent mentors. Pediatrics, 124, 1522-1532. doi:10.1542/peds.2009-0230
48. Forsander G. A., Sundelin J., Persson B., (2000). Influence of the initial management regimen and family social situation on glycemic control and medical care in children with type I diabetes mellitus. Acta Paediatrica, 89, 1462-1468. doi:10.1111/j.1651-2227.2000.tb02777.x
49. Garbutt J. M., Banister C., Highstein G., Sterkel R., Epstein J., Bruns J... Bloomberg G. R., (2010). Telephone coaching for parents of children with asthma: Impact and lessons learned. Archives of Pediatrics & Adolescent Medicine, 164, 625-630. doi:10.1001/archpediatrics.2010.91
50. Genc R., Conk Z., (2008). Impact of effective nursing interventions to the fatigue syndrome in children who receive chemotherapy. Cancer Nursing, 31, 312-317. doi:10.1097/01.NCC.0000305740.18711.c6
51. Grasso M. C., Button B. M., Allison D. J., Sawyer S. M., (2000). Benefits of music therapy as an adjunct to chest physiotherapy in infants and toddlers with cystic fibrosis. Pediatric Pulmonology, 29, 371-381.
52. Grey M., Jaser S. S., Whittemore R., Jeon S., Lindemann E., (2011). Coping skills training for parents of children with type 1 diabetes: 12-month outcomes. Nursing Research, 60, 173-181. doi:10.1097/NNR.0b013e3182159c8f
53. Grey M., Whittemore R., Jaser S., Ambrosino J., Lindemann E., Liberti L... Dziura J., (2009). Effects of coping skills training in school-age children with type 1 diabetes. Research in Nursing & Health, 32, 405-418. doi:10.1002/nur.20336
54. Gustafson D., Wise M., Bhattacharya A., Pulvermacher A., Shanovich K., Phillips B... Kim J. S., (2012). The effects of combining web-based eHealth with telephone nurse case management for pediatric asthma control: A randomized controlled trial. Journal of Medical Internet Research, 14(4), e101. doi:10.2196/jmir.1964
55. Harris M. A., Greco P., Wysocki T., White N. H., (2001). Family therapy with adolescents with diabetes: A litmus test for clinically meaningful change. Families, Systems & Health, 19, 159-168. doi:10.1037/h0089445
56. Havill N., Leeman J., Shaw-Kokot J., Knafl K., Crandell J., Sandelowski M., (2014). Managing large-volume literature searches in research synthesis studies. Nursing Outlook, 62, 112-118. doi:10.1016/j.outlook.2013.11.002
57. Hederos C. A., Janson S., Hedlin G., (2005). Group discussions with parents have long-term positive effects on the management of asthma with good cost-benefit. Acta Paediatrica, 94, 602-608. doi:10.1080/08035250410023322
58. Hederos C. A., Janson S., Hedlin G., (2007). A gender perspective on parents’ answers to a questionnaire on children’s asthma. Respiratory Medicine, 101, 554-560. doi:10.1016/j.rmed.2006.06.018
59. Hederos C. A., Janson S., Hedlin G., (2009). Six-year follow-up of an intervention to improve the management of preschool children with asthma. Acta Paediatrica, 98, 1939-1944. doi:10.1111/j.1651-2227.2009.01477.x
60. Herzer M., Godiwala N., Hommel K., Drsicoll K., Mitchel M., Crosby L... Modi A., (2010). Family functioning in the context of pediatric chronic conditions. Journal of Developmental & Behavioral Pediatrics, 31, 26-34. doi:10.1097/DBP.0b013e3181c7226b
61. Holmbeck G., Greenley R., Coakley R., Greco J., Hagstrom J., (2006). Family functioning in children and adolescents with spina bifida: An evidence-based review of research and interventions. Developmental & Behavioral Pediatrics, 27, 249-277. doi:10.1097/00004703-200606000-00012
62. Horner S. D., Brown A., (2014). Evaluating the effect of an asthma self-management intervention for rural families. Journal of Asthma, 51, 168-177. doi:10.3109/02770903.2013.855785
63. Hsieh H., Shannon S., (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15, 1277-1288. doi:10.1177/1049732305276687
64. Hung C. C., Chen Y. C., Mao H. C., Chiang B. L., (2002). Effects of systematic nursing instruction of mothers on using medication and on health status of asthmatic children. The Journal of Nursing Research, 10, 22-32. doi:10.1097/01.JNR.0000347580.70210.9d
65. Hussain-Rizvi A., Kunkov S., Crain E. F., (2009). Does parental involvement in pediatric emergency department asthma treatment affect home management? Journal of Asthma, 46, 792-795.
66. Ireys H. T., Chernoff R., DeVet K. A., Kim Y., (2001). Maternal outcomes of a randomized controlled trial of a community-based support program for families of children with chronic illnesses. Archives of Pediatrics & Adolescent Medicine, 155, 771-777.
67. Janicke D. M., Mitchell M. J., Quittner A. L., Piazza-Waggoner C., Stark L. J., (2008). The impact of behavioral intervention on family interactions at mealtime in pediatric cystic fibrosis. Children’s Health Care, 37, 49-66. doi:10.1080/02739610701766891
68. Jerram H., Raeburn J., Stewart A., (2005). The Strong Parents-Strong Children Programme: Parental support in serious and chronic child illness. The New Zealand Medical Journal, 118(1224), U1700.
69. Kashikar-Zuck S., Swain N. F., Jones B. A., Graham T. B., (2005). Efficacy of cognitive-behavioral intervention for juvenile primary fibromyalgia syndrome. The Journal of Rheumatology, 32, 1594-1602.
70. Kazak A. E., Alderfer M. A., Streisand R., Simms S., Rourke M. T., Barakat L. P... Cnaan A., (2004). Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: A randomized clinical trial. Journal of family Psychology, 18, 493-504. doi:10.1037/0893-3200.18.3.493
71. Khan M. S. R., O’Meara M., Stevermuer T. L., Henry R. L., (2004). Randomized controlled trial of asthma education after discharge from an emergency department. Journal of Paediatrics and Child Health, 40, 674-677. doi:10.1111/j.1440-1754.2004.00490.x
72. Klinnert M. D., Liu A. H., Pearson M. R., Ellison M. C., Budhiraja N., Robinson J. L., (2005). Short-term impact of a randomized multifaceted intervention for wheezing infants in low-income families. Archives of Pediatrics & Adolescent Medicine, 159, 75-82. doi:10.1001/archpedi.159.1.75
73. Knafl K., Leeman J., Havill N., Crandell J., Sandelowski M., (2015). Delimiting family in syntheses of research on childhood chronic conditions and family life. Family Process, 54, 173-184. doi:10.1111/famp.12101
74. Krieger J., Takaro T. K., Song L., Beaudet N., Edwards K., (2009). A randomized controlled trial of asthma self-management support comparing clinic-based nurses and in-home community health workers: The Seattle-king county healthy homes II project. Archives of Pediatrics & Adolescent Medicine, 163, 141-149. doi:10.1001/archpediatrics.2008.532
75. Krishna S., Francisco B. D., Andrew Balas E., Konig P., Graff G. R., Madsen R. W., (2003). Internet-enabled interactive multimedia asthma education program: A randomized trial. Pediatrics, 111, 503-510. doi:10.1542/peds.111.3.503
76. Laffel L. M., Vangsness L., Connell A., Goebel-Fabbri A., Butler D., Anderson B. J., (2003). Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. The Journal of Pediatrics, 142, 409-416. doi:10.1067/mpd.2003.138
77. Law E. F., Fisher E., Fales J., Noel M., Eccleston C., (2014). Systematic review and meta-analysis of parent and family-based interventions for children and adolescents with chronic medical conditions. Journal of Pediatric Psychology, 39, 866-886. doi:10.1093/jpepsy/jsu032
78. Lewandowski A., Palermo T., Stinson J., Handley S., Chambers C., (2010). Systematic review of family functioning in families of children and adolescents with chronic pain. Journal of Pain, 11, 1027-1038. doi:10.1016/j.jpain.2010.04.005
79. Mandhane P. J., McGhan S. L., Sharpe H. M., Wong E., Hessel P. A., Befus A. D., Majaesic C., (2010). A child’s asthma quality of life rating does not significantly influence management of their asthma. Pediatric Pulmonology, 45, 141-148. doi:10.1002/ppul.21157
80. Martire L., Lustig A., Schulz R., Miller G., Helgeson V., (2004). Is it beneficial to involve a family member? A meta-analysis of psychoeducational interventions for chronic illness. Health Psychology, 23, 599-611. doi:10.1037/0278-6133.23.6.599
81. McBroom L., Enriquez M., (2009). Review of family-centered interventions to enhance the health outcomes of children with type 1 diabetes. Diabetes Educator, 35, 428-438. doi:10.1177/0145721709332814
82. McCusker C. G., Doherty N. N., Molloy B., Rooney N., Mulholland C., Sands A... Casey F., (2012). A randomized controlled trial of interventions to promote adjustment in children with congenital heart disease entering school and their families. Journal of Pediatric Psychology, 37, 1089-1103. doi:10.1093/jpepsy/jss092
83. McPherson M., Arango P., Fox H., Lauver C., McManus M., Newacheck P... Strikland B., (1998). A new definition of children with special health care needs. Pediatrics, 102, 137-140. doi:10.1542/peds.102.1.137
84. Meyler E., Guerin S., Kiernan G., Breatnach F., (2010). Review of family-based psychosocial interventions for childhood cancer. Journal of Pediatric Psychology, 35, 1116-1132. doi:10.1093/jppsy/jsq032
85. Murphy H. R., Wadham C., Hassler-Hurst J., Rayman G., Skinner T. C., & Families and Adolescents Communication and Teamwork Study (FACTS) Group. (2012). Randomized trial of a diabetes self-management education and family teamwork intervention in adolescents with Type 1 diabetes. Diabetic Medicine, 29, e249-e254. doi:10.1111/j.1464-5491.2012.03683.x
86. Naar-King S., Ellis D. A., Idalski A., Frey M. A., Cunningham P., (2007). Multisystemic therapy decreases parental overestimation of adolescent responsibility for type 1 diabetes management in urban youth. Families, Systems, & Health, 25, 178-189. doi:10.1037/1091-7527.25.2.178
87. Nelson K. A., Highstein G. R., Garbutt J., Trinkaus K., Fisher E. B., Smith S. R., Strunk R. C., (2011). A randomized controlled trial of parental asthma coaching to improve outcomes among urban minority children. Archives of Pediatrics & Adolescent Medicine, 165, 520-526. doi:10.1001/archpediatrics.2011.57
88. Ng S. M., Li A. M., Lou V. W. Q., Tso I. F., Wan P. Y. P., Chan D. F. Y., (2008). Incorporating family therapy into asthma group intervention: A randomized waitlist-controlled trial. Family Process, 47, 115-130. doi:10.1111/j.1545-5300.2008.00242.x
89. Opipari-Arrigan L., Powers S. W., Quittner A. L., Stark L. J., (2010). Mealtime problems predict outcome in clinical trial to improve nutrition in children with CF. Pediatric Pulmonology, 45, 78-82. doi:10.1002/ppul.21147
90. Pai A., Greenley R., Lewandowski A., Drotar D., Youngstrom E., Peterson C., (2007). A meta-analytic review of the influence of pediatric cancer on parent and family functioning. Journal of Family Psychology, 21, 407-415. doi:10.1037/0893-3200.21.3.407
91. Pinquart M., Shen Y., (2010). Depressive symptoms in children and adolescents with chronic physical illness: An updated meta-analysis. Journal of Pediatric Psychology, 36, 375-384. doi:10.1093/jpepsy/jsq104
92. Pinquart M., Shen Y., (2011). Behavior problems in children and adolescents with chronic physical illness: A meta-analysis. Journal of Pediatric Psychology, 36, 1003-1016. doi:10.1093/jpepsy/jsr042
93. Pinquart M., Teubert D., (2011). Academic, physical, and social functioning of children and adolescents with physical illness: A meta-analysis. Journal of Pediatric Psychology, 37, 376-389. doi:10.1093/jpepsy/jsr106
94. Sahler O. J., Fairclough D. L., Phipps S., Mulhern R. K., Dolgin M. J., Noll R. B... Butler R. W., (2005). Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: Report of a multisite randomized trial. Journal of Consulting and Clinical Psychology, 73, 272-283. doi:10.1037/0022-006x.73.2.272
95. Sahler O. J., Varni J. W., Fairclough D. L., Butler R. W., Noll R. B., Dolgin M. J... Mulhern R. K., (2002). Problem-solving skills training for mothers of children with newly diagnosed cancer: A randomized trial. Journal of Developmental & Behavioral Pediatrics, 23, 77-86. doi:10.1097/00004703-200204000-00003
96. Sandelowski M., Leeman J., Knafl K., Crandell J. L., (2013). Text-in-context: A method for extracting findings in mixed-methods mixed research synthesis studies. Journal of Advanced Nursing, 69, 1428-1437. doi:10.1111/jan.12000
97. Scholten L., Willemen A. M., Last B. F., Maurice-Stam H., van Dijk E. M., Ensink E... Grootenhuis M. A., (2013). Efficacy of psychosocial group intervention for children with chronic illness and their parents. Pediatrics, 131, e1196-e1203. doi:10.1542/peds.2012-2222
98. Seid M., Varni J. W., Gidwani P., Gelhard L. R., Slymen D. J., (2010). Problem-solving skills training for vulnerable families of children with persistent asthma: Report of a randomized trial on health-related quality of life outcomes. Journal of Pediatric Psychology, 35, 1133-1143. doi:10.1093/jpepsy/jsp133
99. Slifer K. J., DeMore M., Vona-Messersmith N., Pulbrook-Vetter V., Beck M., Dalhquist L... Johnson E., (2009). Comparison of two brief parent-training interventions for child distress during parent-administered needle procedures. Children’s Health Care, 38, 23-48. doi:10.1080/02739610802615831
100. Stapleton D. R., Gurrin L. C., Zubrick S. R., Silburn S. R., Sherriff J. L., Sly P. D., (2001). The effect of “Go and Grow with CF” on nutrition and pancreatic enzyme knowledge of children with cystic fibrosis. Australian Journal of Nutrition and Dietetics, 58, 164-168.
101. Stark L. J., Opipari L. C., Spieth L. E., Jelalian E., Quittner A. L., Higgins L... Duggan C., (2003). Contribution of behavior therapy to dietary treatment in cystic fibrosis: A randomized controlled study with 2-year follow-up. Behavior Therapy, 34, 237-258. doi:10.1016/S0005-7894(03)80015-1
102. Sullivan-Bolyai S., Bova C., Leung K., Trudeau A., Lee M., Gruppuso P., (2010). Social support to empower parents (STEP): An intervention for parents of young children newly diagnosed with type 1 diabetes. The Diabetes Educator, 36, 88-97. doi:10.1177/0145721709352384
103. Svavarsdottir E. K., Tryggvadottir G. B., Sigurdardottir A. O., (2012). Knowledge translation in family nursing: Does a short-term therapeutic conversation intervention benefit families of children and adolescents in a hospital setting? Findings from the Landspitali University Hospital Family Nursing Implementation Project. Journal of Family Nursing, 18, 303-327. doi:10.1177/1074840712449202
104. Szczepanski R., Jaeschke R., Spindler T., Ihorst G., Forster J., (2010). Preschoolers’ and parents’ asthma education trial (P2AET)—A randomized controlled study. European Journal of Pediatrics, 169, 1051-1060. doi:10.1007/s00431-010-1173-z
105. Teach S. J., Crain E. F., Quint D. M., Hylan M. L., Joseph J. G., (2006). Improved asthma outcomes in a high-morbidity pediatric population: Results of an emergency department-based randomized clinical trial. Archives of Pediatrics & Adolescent Medicine, 160, 535-541.
106. Tiberg I., Katarina S. C., Carlsson A., Hallstrom I., (2012). Children diagnosed with type 1 diabetes: A randomized controlled trial comparing hospital versus home-based care. Acta Paediatrica, 101, 1069-1073. doi:10.1111/j.1651-2227.2012.02775.x
107. Toscos T. R., Ponder S. W., Anderson B. J., Davidson M. B., Lee M. L., Montemayor-Gonzalez E... McMahon K. L., (2012). Integrating an automated diabetes management system into the family management of children with type 1 diabetes: Results from a 12-month randomized controlled technology trial. Diabetes Care, 35, 498-502. doi:10.2337/dc11-1597
108. U.S. Department of Health and Human Services, Health Resources and Services Administration, & Maternal and Child Health Bureau. (2013). The National Survey of Children With Special Health Care Needs Chartbook 2009-2010. Rockville, MD: Author.
109. Walders N., Keresmar C., Schluchter M., Redline S., Kirchner H. L., Drotar D., (2006). An interdisciplinary intervention for undertreated pediatric asthma. Chest, 129, 292-299. doi:10.1378/chest.129.2.292
110. Watson W. T. A., Gillespie C., Thomas N., Filuk S. E., McColm J., Piwniuk M. P., Becker A. B., (2009). Small-group, interactive education and the effect on asthma control by children and their families. Canadian Medical Association Journal, 181, 257-263. doi:10.1503/cmaj.080947
111. Wilson S. R., Farber H. J., Knowles S. B., Lavori P. W., (2011). A randomized trial of parental behavioral counseling and cotinine feedback for lowering environmental tobacco smoke exposure in children with asthma results of the LET’s manage asthma trial. Chest, 139, 581-590. doi:10.1378/chest.10-0772
112. Wilson S. R., Yamada E. G., Sudhakar R., Roberto L., Mannino D., Mejia C., Huss N., (2001). A controlled trial of an environmental tobacco smoke reduction intervention in low-income children with asthma. Chest, 120, 1709-1722. doi:10.1378/chest.120.5.1709
113. Wood B., (2005). Commentary: Is it time for family-based interventions in pediatric psychology? Journal of Pediatric Psychology, 30, 694-697. doi:10.1093/jpepsy/jsi057
114. Wysocki T., Greco P., Harris M. A., Bubb J., White N. H., (2001). Behavior therapy for families of adolescents with diabetes: Maintenance of treatment effects. Diabetes Care, 24, 441-446. doi:10.2337/diacare.24.3.441
115. Wysocki T., Harris M. A., Buckloh L. M., Mertlich D., Lochrie A. S., Mauras N., White N. H., (2007). Randomized trial of behavioral family systems therapy for diabetes: Maintenance of effects on diabetes outcomes in adolescents. Diabetes Care, 30, 555-560. doi:10.2337/dc06-1613
116. Wysocki T., Harris M. A., Buckloh L. M., Mertlich D., Lochrie A. S., Taylor A... White N. H., (2006). Effects of behavioral family systems therapy for diabetes on adolescents’ family relationships, treatment adherence, and metabolic control. Journal of Pediatric Psychology, 31, 928-938. doi:10.1093/jpepsy/jsj098
117. Wysocki T., Harris M. A., Buckloh L. M., Mertlich D., Lochrie A. S., Taylor A... White N. H., (2008). Randomized, controlled trial of Behavioral Family Systems Therapy for Diabetes: Maintenance and generalization of effects on parent-adolescent communication. Behavior Therapy, 39, 33-46. doi:10.1016/j.beth.2007.04.001
118. Wysocki T., Harris M. A., Greco P., Bubb J., Danda C. E., Harvey L. M... White N. H., (2000). Randomized, controlled trial of behavior therapy for families of adolescents with insulin-dependent diabetes mellitus. Journal of Pediatric Psychology, 25, 23-33. doi:10.1093/jpepsy/25.1.23
119. Yoos H. L., Kitzman H., McMullen A., Henderson C., Sidora K., (2002). Symptom monitoring in childhood asthma: A randomized clinical trial comparing peak expiratory flow rate with symptom monitoring. Annals of Allergy, Asthma & Immunology, 88, 283-291. doi:10.1016/S1081-1206(10)62010-8
120. Zivkovic Z., Radic S., Cerovic S., Vukasinovic Z., (2008). Asthma school program in children and their parents. World Journal of Pediatrics, 4, 267-273. doi:10.1007/s12519-008-0049-z