-
1
-
-
84862269475
-
Health-related quality of life in sickle cell disease: past, present, and future
-
Panepinto JA, Bonner M. Health-related quality of life in sickle cell disease: past, present, and future. Pediatr Blood Cancer. 2012;59:377-385.
-
(2012)
Pediatr Blood Cancer
, vol.59
, pp. 377-385
-
-
Panepinto, J.A.1
Bonner, M.2
-
3
-
-
77949458310
-
Health status and healthcare use in a national sample of children with sickle cell disease
-
Boulet SL, Yanni EA, Creary MS, et al. Health status and healthcare use in a national sample of children with sickle cell disease. Am J Prev Med. 2010;38(4 Suppl):S528-S535.
-
(2010)
Am J Prev Med
, vol.38
, Issue.4
, pp. S528-S535
-
-
Boulet, S.L.1
Yanni, E.A.2
Creary, M.S.3
-
4
-
-
79951906131
-
Hydroxyurea adherence and associated outcomes among Medicaid enrollees with sickle cell disease
-
Candrilli SD, O'Brien SH, Ware RE, et al. Hydroxyurea adherence and associated outcomes among Medicaid enrollees with sickle cell disease. Am J Hematol. 2011;86:273-277.
-
(2011)
Am J Hematol
, vol.86
, pp. 273-277
-
-
Candrilli, S.D.1
O'Brien, S.H.2
Ware, R.E.3
-
5
-
-
79955497632
-
Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea
-
Thornburg CD, Calatroni A, Panepinto JA. Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea. J Pediatr Hematol Oncol. 2011;33:251-254.
-
(2011)
J Pediatr Hematol Oncol
, vol.33
, pp. 251-254
-
-
Thornburg, C.D.1
Calatroni, A.2
Panepinto, J.A.3
-
6
-
-
84885158071
-
Hydroxyurea is associated with lower costs of care of young children with sickle cell anemia
-
Wang WC, Oyeku SO, Luo Z, et al. Hydroxyurea is associated with lower costs of care of young children with sickle cell anemia. Pediatrics. 2013;132:677-683.
-
(2013)
Pediatrics
, vol.132
, pp. 677-683
-
-
Wang, W.C.1
Oyeku, S.O.2
Luo, Z.3
-
7
-
-
79955909191
-
Hydroxycarbamide in very young children with sickle-cell anaemia: a multicentre, randomised, controlled trial (BABY HUG)
-
Wang WC, Ware RE, Miller ST, et al. Hydroxycarbamide in very young children with sickle-cell anaemia: a multicentre, randomised, controlled trial (BABY HUG). Lancet. 2011;377:1663-1672.
-
(2011)
Lancet
, vol.377
, pp. 1663-1672
-
-
Wang, W.C.1
Ware, R.E.2
Miller, S.T.3
-
8
-
-
0029025475
-
Effect of hydroxyurea on the frequency of painful crises in sickle cell anemia. Investigators of the Multicenter Study of Hydroxyurea in Sickle Cell Anemia
-
Charache S, Terrin ML, Moore RD, et al. Effect of hydroxyurea on the frequency of painful crises in sickle cell anemia. Investigators of the Multicenter Study of Hydroxyurea in Sickle Cell Anemia. N Engl J Med. 1995;332:1317-1322.
-
(1995)
N Engl J Med
, vol.332
, pp. 1317-1322
-
-
Charache, S.1
Terrin, M.L.2
Moore, R.D.3
-
9
-
-
84966552380
-
Systematic and meta-analytic review: medication adherence among pediatric patients with sickle cell disease
-
Loiselle K, Lee JL, Szulczewski L, et al. Systematic and meta-analytic review: medication adherence among pediatric patients with sickle cell disease. J Pediatr Psychol. 2016;41:406-418.
-
(2016)
J Pediatr Psychol
, vol.41
, pp. 406-418
-
-
Loiselle, K.1
Lee, J.L.2
Szulczewski, L.3
-
10
-
-
76749158307
-
Adherence to hydroxyurea therapy in children with sickle cell anemia
-
Thornburg CD, Calatroni A, Telen M, et al. Adherence to hydroxyurea therapy in children with sickle cell anemia. J Pediatr. 2010;156:415-419.
-
(2010)
J Pediatr
, vol.156
, pp. 415-419
-
-
Thornburg, C.D.1
Calatroni, A.2
Telen, M.3
-
11
-
-
84961214041
-
Technology access and smartphone app preferences for medication adherence in adolescents and young adults with sickle cell disease
-
Badawy SM, Thompson AA, Liem RI. Technology access and smartphone app preferences for medication adherence in adolescents and young adults with sickle cell disease. Pediatr Blood Cancer. 2016;63:848-852.
-
(2016)
Pediatr Blood Cancer
, vol.63
, pp. 848-852
-
-
Badawy, S.M.1
Thompson, A.A.2
Liem, R.I.3
-
12
-
-
84913590685
-
Medication adherence among pediatric patients with sickle cell disease: a systematic review
-
Walsh KE, Cutrona SL, Kavanagh PL, et al. Medication adherence among pediatric patients with sickle cell disease: a systematic review. Pediatrics. 2014;134:1175-1183.
-
(2014)
Pediatrics
, vol.134
, pp. 1175-1183
-
-
Walsh, K.E.1
Cutrona, S.L.2
Kavanagh, P.L.3
-
13
-
-
85006237829
-
Health-related quality of life and adherence to hydroxyurea in adolescents and young adults with sickle cell disease
-
Badawy SM, Thompson AA, Lai JS, et al. Health-related quality of life and adherence to hydroxyurea in adolescents and young adults with sickle cell disease. Pediatr Blood Cancer. 2016; doi: 10.1002/pbc.26369.
-
(2016)
Pediatr Blood Cancer
-
-
Badawy, S.M.1
Thompson, A.A.2
Lai, J.S.3
-
14
-
-
78650376704
-
Examining the characteristics and beliefs of hydroxyurea users and nonusers among adults with sickle cell disease
-
Haywood C Jr, Beach MC, Bediako S, et al. Examining the characteristics and beliefs of hydroxyurea users and nonusers among adults with sickle cell disease. Am J Hematol. 2011;86:85-87.
-
(2011)
Am J Hematol
, vol.86
, pp. 85-87
-
-
Haywood, C.1
Beach, M.C.2
Bediako, S.3
-
15
-
-
80051815757
-
Monitoring toxicity, impact, and adherence of hydroxyurea in children with sickle cell disease
-
Brandow AM, Panepinto JA. Monitoring toxicity, impact, and adherence of hydroxyurea in children with sickle cell disease. Am J Hematol. 2011;86:804-806.
-
(2011)
Am J Hematol
, vol.86
, pp. 804-806
-
-
Brandow, A.M.1
Panepinto, J.A.2
-
16
-
-
0036341845
-
Drug compliance in adolescents: assessing and managing modifiable risk factors
-
Staples B, Bravender T. Drug compliance in adolescents: assessing and managing modifiable risk factors. Paediatr Drugs. 2002;4:503-513.
-
(2002)
Paediatr Drugs
, vol.4
, pp. 503-513
-
-
Staples, B.1
Bravender, T.2
-
17
-
-
26044461693
-
Problem of nonadherence in chronically ill adolescents: strategies for assessment and intervention
-
Smith BA, Shuchman M. Problem of nonadherence in chronically ill adolescents: strategies for assessment and intervention. Curr Opin Pediatr. 2005;17:613-618.
-
(2005)
Curr Opin Pediatr
, vol.17
, pp. 613-618
-
-
Smith, B.A.1
Shuchman, M.2
-
18
-
-
0034022874
-
Compliance in adolescents with chronic diseases: a review
-
KyngAs HA, Kroll T, Duffy ME. Compliance in adolescents with chronic diseases: a review. J Adolesc Health. 2000;26:379-388.
-
(2000)
J Adolesc Health
, vol.26
, pp. 379-388
-
-
KyngAs, H.A.1
Kroll, T.2
Duffy, M.E.3
-
19
-
-
0033066356
-
The Brief Medication Questionnaire: a tool for screening patient adherence and barriers to adherence
-
Svarstad BL, Chewning BA, Sleath BL, et al. The Brief Medication Questionnaire: a tool for screening patient adherence and barriers to adherence. Patient Educ Couns. 1999;37:113-124.
-
(1999)
Patient Educ Couns
, vol.37
, pp. 113-124
-
-
Svarstad, B.L.1
Chewning, B.A.2
Sleath, B.L.3
-
20
-
-
49349115364
-
Predictive validity of a medication adherence measure in an outpatient setting
-
Morisky DE, Ang A, Krousel-Wood M, et al. Predictive validity of a medication adherence measure in an outpatient setting. J Clin Hypertens (Greenwich). 2008;10:348-354.
-
(2008)
J Clin Hypertens (Greenwich)
, vol.10
, pp. 348-354
-
-
Morisky, D.E.1
Ang, A.2
Krousel-Wood, M.3
-
21
-
-
0037169259
-
Responses to a 1 month self-report on adherence to antiretroviral therapy are consistent with electronic data and virological treatment outcome
-
Walsh JC, Mandalia S, Gazzard BG. Responses to a 1 month self-report on adherence to antiretroviral therapy are consistent with electronic data and virological treatment outcome. AIDS. 2002;16:269-277.
-
(2002)
AIDS
, vol.16
, pp. 269-277
-
-
Walsh, J.C.1
Mandalia, S.2
Gazzard, B.G.3
-
22
-
-
84897433361
-
Psychometric properties of the PROMIS (R) pediatric scales: precision, stability, and comparison of different scoring and administration options
-
Varni JW, Magnus B, Stucky BD, et al. Psychometric properties of the PROMIS (R) pediatric scales: precision, stability, and comparison of different scoring and administration options. Qual Life Res. 2014;23:1233-1243.
-
(2014)
Qual Life Res
, vol.23
, pp. 1233-1243
-
-
Varni, J.W.1
Magnus, B.2
Stucky, B.D.3
-
23
-
-
84938974062
-
PROMIS((R)) pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions
-
DeWalt DA, Gross HE, Gipson DS, et al. PROMIS((R)) pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions. Qual Life Res. 2015;24:2195-2208.
-
(2015)
Qual Life Res
, vol.24
, pp. 2195-2208
-
-
DeWalt, D.A.1
Gross, H.E.2
Gipson, D.S.3
-
24
-
-
77956946593
-
The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008
-
Cella D, Riley W, Stone A, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. J Clin Epidemiol. 2010;63:1179-1194.
-
(2010)
J Clin Epidemiol
, vol.63
, pp. 1179-1194
-
-
Cella, D.1
Riley, W.2
Stone, A.3
-
25
-
-
84975763759
-
Initial evaluation of the pediatric PROMIS(R) health domains in children and adolescents with sickle cell disease
-
Dampier C, Barry V, Gross HE, et al. Initial evaluation of the pediatric PROMIS(R) health domains in children and adolescents with sickle cell disease. Pediatr Blood Cancer. 2016;63:1031-1037.
-
(2016)
Pediatr Blood Cancer
, vol.63
, pp. 1031-1037
-
-
Dampier, C.1
Barry, V.2
Gross, H.E.3
-
26
-
-
84982152434
-
Responsiveness of PROMIS pediatric measures to hospitalizations for sickle pain and subsequent recovery
-
Dampier C, Jaeger B, Gross HE, et al. Responsiveness of PROMIS pediatric measures to hospitalizations for sickle pain and subsequent recovery. Pediatr Blood Cancer. 2016;63:1038-1045.
-
(2016)
Pediatr Blood Cancer
, vol.63
, pp. 1038-1045
-
-
Dampier, C.1
Jaeger, B.2
Gross, H.E.3
-
27
-
-
77956393568
-
Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey
-
Irwin DE, Stucky BD, Thissen D, et al. Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey. Qual Life Res. 2010;19:585-594.
-
(2010)
Qual Life Res
, vol.19
, pp. 585-594
-
-
Irwin, D.E.1
Stucky, B.D.2
Thissen, D.3
-
30
-
-
0142017677
-
-
Geneva, World Health Organization, (Accessed June 3, 2016)
-
Sabate E. Adherence to Long-term Therapies: Evidence for Action. Geneva: World Health Organization; 2003. Available at: http://apps.who.int/iris/bitstream/10665/42682/1/9241545992.pdf (Accessed June 3, 2016).
-
(2003)
Adherence to Long-term Therapies: Evidence for Action
-
-
Sabate, E.1
-
31
-
-
79953292342
-
Minimally important differences were estimated for six Patient-Reported Outcomes Measurement Information System-Cancer scales in advanced-stage cancer patients
-
Yost KJ, Eton DT, Garcia SF, et al. Minimally important differences were estimated for six Patient-Reported Outcomes Measurement Information System-Cancer scales in advanced-stage cancer patients. J Clin Epidemiol. 2011;64:507-516.
-
(2011)
J Clin Epidemiol
, vol.64
, pp. 507-516
-
-
Yost, K.J.1
Eton, D.T.2
Garcia, S.F.3
-
32
-
-
84953839600
-
Estimating minimally important difference (MID) in PROMIS pediatric measures using the scale-judgment method
-
Thissen D, Liu Y, Magnus B, et al. Estimating minimally important difference (MID) in PROMIS pediatric measures using the scale-judgment method. Qual Life Res. 2016;25:13-23.
-
(2016)
Qual Life Res
, vol.25
, pp. 13-23
-
-
Thissen, D.1
Liu, Y.2
Magnus, B.3
-
33
-
-
77949482609
-
Population estimates of sickle cell disease in the US
-
Hassell KL. Population estimates of sickle cell disease in the US. Am J Prev Med. 2010;38(4 Suppl.):S512-S521.
-
(2010)
Am J Prev Med
, vol.38
, Issue.4
, pp. S512-S521
-
-
Hassell, K.L.1
-
34
-
-
84868624911
-
Transition and sickle cell disease
-
DeBaun MR, Telfair J. Transition and sickle cell disease. Pediatrics. 2012;130:926-935.
-
(2012)
Pediatrics
, vol.130
, pp. 926-935
-
-
DeBaun, M.R.1
Telfair, J.2
-
35
-
-
84939790474
-
Hydroxyurea therapy for children with sickle cell disease: describing how caregivers make this decision
-
Creary S, Zickmund S, Ross D, et al. Hydroxyurea therapy for children with sickle cell disease: describing how caregivers make this decision. BMC Res Notes. 2015;8:372.
-
(2015)
BMC Res Notes
, vol.8
, pp. 372
-
-
Creary, S.1
Zickmund, S.2
Ross, D.3
-
36
-
-
84936814439
-
Self-report measures of medication adherence behavior: recommendations on optimal use
-
Stirratt MJ, Dunbar-Jacob J, Crane HM, et al. Self-report measures of medication adherence behavior: recommendations on optimal use. Transl Behav Med. 2015;5:470-482.
-
(2015)
Transl Behav Med
, vol.5
, pp. 470-482
-
-
Stirratt, M.J.1
Dunbar-Jacob, J.2
Crane, H.M.3
-
37
-
-
0036096085
-
Predictors of fetal hemoglobin response in children with sickle cell anemia receiving hydroxyurea therapy
-
Ware RE, Eggleston B, Redding-Lallinger R, et al. Predictors of fetal hemoglobin response in children with sickle cell anemia receiving hydroxyurea therapy. Blood. 2002;99:10-14.
-
(2002)
Blood
, vol.99
, pp. 10-14
-
-
Ware, R.E.1
Eggleston, B.2
Redding-Lallinger, R.3
-
38
-
-
77955905049
-
How I use hydroxyurea to treat young patients with sickle cell anemia
-
Ware RE. How I use hydroxyurea to treat young patients with sickle cell anemia. Blood. 2010;115:5300-5311.
-
(2010)
Blood
, vol.115
, pp. 5300-5311
-
-
Ware, R.E.1
|