A window into living with an undiagnosed disease: Illness narratives from the Undiagnosed Diseases Network

Orphanet Journal of Rare Diseases

Volumn 12, Issue 1, 2017, Pages

  Spillmann, Rebecca C ^a   McConkie Rosell, Allyn ^a   Pena, Loren ^a   Jiang, Yong Hui ^a   Schoch, Kelly ^a   Walley, Nicole ^a   Sanders, Camilla ^a   Sullivan, Jennifer ^a   Hooper, Stephen R ^b   Shashi, Vandana ^a  

^a DUKE UNIVERSITY MEDICAL CENTER   (United States)

^b UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

Author keywords

Narrative typology; Patient narratives; Undiagnosed; Undiagnosed diseases network

Indexed keywords

ADULT; ARTICLE; CHILD; CHILD HEALTH CARE; CHILD PARENT RELATION; DISEASE COURSE; DISEASE SEVERITY; DISEASES; FEAR; FEMALE; FRUSTRATION; HEALTH CARE ACCESS; HEALTH IMPACT ASSESSMENT; HUMAN; ILLNESS NARRATIVE; LIFESTYLE; MALE; MEDICAL INFORMATION; NARRATIVE; UNDIAGNOSED DISEASE; PATHOLOGY; QUALITATIVE RESEARCH; RARE DISEASE;

FEMALE; HUMANS; MALE; QUALITATIVE RESEARCH; RARE DISEASES;

EID: 85018496436     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/s13023-017-0623-3     Document Type: Article

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