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Volumn 24, Issue 2, 2015, Pages 325-335

“Is it Going to Hurt?”: The Impact of the Diagnostic Odyssey on Children and Their Families

Author keywords

Anticipatory anxiety; Diagnostic odyssey; Distress; Genetic counseling; Medical procedures; Neuromuscular disorder; Uncertainty; Venipuncture

Indexed keywords

ADOLESCENT; ADULT; CHILD; EMOTION; FEMALE; GENETIC COUNSELING; GENETICS; HUMAN; MALE; MENTAL STRESS; MOTHER; NEUROMUSCULAR DISEASES; PERCEPTION; PRESCHOOL CHILD; PSYCHOLOGY; RADIOGRAPHY;

EID: 84925532923     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-014-9773-9     Document Type: Article
Times cited : (109)

References (39)
  • 1
    • 79954623878 scopus 로고    scopus 로고
    • Understanding needle-related distress in children with cystic fibrosis
    • PID: 21489060
    • Ayers, S., Muller, I., Mahoney, L., & Seddon, P. (2011). Understanding needle-related distress in children with cystic fibrosis. British Journal of Health Psychology, 16(Pt 2), 329–343.
    • (2011) British Journal of Health Psychology , vol.16 , pp. 329-343
    • Ayers, S.1    Muller, I.2    Mahoney, L.3    Seddon, P.4
  • 2
    • 84918587789 scopus 로고
    • Q.U.E.S.T.: a process of pain assessment in children (continuing education credit)
    • COI: 1:STN:280:DyaL2s7ksFOquw%3D%3D
    • Baker, C. M., & Wong, D. L. (1987). Q.U.E.S.T.: a process of pain assessment in children (continuing education credit). Orthopaedic nursing / National Association of Orthopaedic Nurses, 6(1), 11–21.
    • (1987) Orthopaedic nursing / National Association of Orthopaedic Nurses , vol.6 , Issue.1 , pp. 11-21
    • Baker, C.M.1    Wong, D.L.2
  • 3
    • 0031024995 scopus 로고    scopus 로고
    • The child-adult medical procedure interaction scale-revised: an assessment of validity
    • COI: 1:STN:280:DyaK2s7ntFyrsg%3D%3D, PID: 9019049
    • Blount, R. L., Cohen, L. L., Frank, N. C., Bachanas, P. J., Smith, A. J., Manimala, M. R., et al. (1997). The child-adult medical procedure interaction scale-revised: an assessment of validity. Journal of Pediatric Psychology, 22(1), 73–88.
    • (1997) Journal of Pediatric Psychology , vol.22 , Issue.1 , pp. 73-88
    • Blount, R.L.1    Cohen, L.L.2    Frank, N.C.3    Bachanas, P.J.4    Smith, A.J.5    Manimala, M.R.6
  • 4
    • 69249230932 scopus 로고    scopus 로고
    • Delayed diagnosis in Duchenne muscular dystrophy: data from the muscular dystrophy surveillance, tracking, and research network (MD STARnet)
    • PID: 19394035
    • Ciafaloni, E., Fox, D. J., Pandya, S., Westfield, C. P., Puzhankara, S., Romitti, P. A., et al. (2009). Delayed diagnosis in Duchenne muscular dystrophy: data from the muscular dystrophy surveillance, tracking, and research network (MD STARnet). The Journal of Pediatrics, 155(3), 380–385.
    • (2009) The Journal of Pediatrics , vol.155 , Issue.3 , pp. 380-385
    • Ciafaloni, E.1    Fox, D.J.2    Pandya, S.3    Westfield, C.P.4    Puzhankara, S.5    Romitti, P.A.6
  • 6
    • 56149119779 scopus 로고    scopus 로고
    • Behavioral approaches to anxiety and pain management for pediatric venous access
    • PID: 18978007
    • Cohen, L. L. (2008). Behavioral approaches to anxiety and pain management for pediatric venous access. Pediatrics, 122(Suppl 3), S134–139.
    • (2008) Pediatrics , vol.122 , pp. 134-139
    • Cohen, L.L.1
  • 7
    • 0034861656 scopus 로고    scopus 로고
    • Children’s expectations and memories of acute distress: short- and long-term efficacy of pain management interventions
    • COI: 1:STN:280:DC%2BD3Mvktl2nsQ%3D%3D, PID: 11490039
    • Cohen, L. L., Blount, R. L., Cohen, R. J., Ball, C. M., McClellan, C. B., & Bernard, R. S. (2001). Children’s expectations and memories of acute distress: short- and long-term efficacy of pain management interventions. Journal of Pediatric Psychology, 26(6), 367–374.
    • (2001) Journal of Pediatric Psychology , vol.26 , Issue.6 , pp. 367-374
    • Cohen, L.L.1    Blount, R.L.2    Cohen, R.J.3    Ball, C.M.4    McClellan, C.B.5    Bernard, R.S.6
  • 8
    • 0021928818 scopus 로고
    • Anticipatory nausea and vomiting in pediatric cancer patients
    • COI: 1:STN:280:DyaL2M7jvFCgsw%3D%3D, PID: 3975125
    • Dolgin, M. J., Katz, E. R., McGinty, K., & Siegel, S. E. (1985). Anticipatory nausea and vomiting in pediatric cancer patients. Pediatrics, 75(3), 547–552.
    • (1985) Pediatrics , vol.75 , Issue.3 , pp. 547-552
    • Dolgin, M.J.1    Katz, E.R.2    McGinty, K.3    Siegel, S.E.4
  • 9
    • 4944260355 scopus 로고    scopus 로고
    • Their story/my story/our story: including the researcher’s experience in interview research
    • Gubrium J, Holstein J, (eds), Sage, Thousand Oaks:
    • Ellis, C., & Berger, L. (2001). Their story/my story/our story: including the researcher’s experience in interview research. In J. Gubrium & J. Holstein (Eds.), Handbook of interview research (pp. 849–875). Thousand Oaks: Sage.
    • (2001) Handbook of interview research , pp. 849-875
    • Ellis, C.1    Berger, L.2
  • 10
    • 0025017445 scopus 로고
    • A prospective survey of reactions to blood tests by children and adolescents
    • COI: 1:STN:280:DyaK3c3ltFersQ%3D%3D, PID: 2339016
    • Fradet, C., McGrath, P. J., Kay, J., Adams, S., & Luke, B. (1990). A prospective survey of reactions to blood tests by children and adolescents. Pain, 40(1), 53–60.
    • (1990) Pain , vol.40 , Issue.1 , pp. 53-60
    • Fradet, C.1    McGrath, P.J.2    Kay, J.3    Adams, S.4    Luke, B.5
  • 12
    • 33646698557 scopus 로고    scopus 로고
    • How many interviews are enough?: an experiment with data saturation and variability
    • Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough?: an experiment with data saturation and variability. Field Methods, 18(1), 59–82.
    • (2006) Field Methods , vol.18 , Issue.1 , pp. 59-82
    • Guest, G.1    Bunce, A.2    Johnson, L.3
  • 13
    • 77951234542 scopus 로고    scopus 로고
    • Evaluating venepuncture practice on a general children’s ward
    • PID: 20373662
    • Hands, C., Round, J., & Thomas, J. (2010). Evaluating venepuncture practice on a general children’s ward. Paediatric Nursing, 22(2), 32–35.
    • (2010) Paediatric Nursing , vol.22 , Issue.2 , pp. 32-35
    • Hands, C.1    Round, J.2    Thomas, J.3
  • 14
    • 0026724142 scopus 로고
    • The occurrence of high levels of acute behavioral distress in children and adolescents undergoing routine venipunctures
    • COI: 1:STN:280:DyaK38zhtVyrsA%3D%3D, PID: 1614786
    • Humphrey, G. B., Boon, C. M., van Linden van den Heuvell, G. F., & van de Wiel, H. B. (1992). The occurrence of high levels of acute behavioral distress in children and adolescents undergoing routine venipunctures. Pediatrics, 90(1 Pt 1), 87–91.
    • (1992) Pediatrics , vol.90 , Issue.1 , pp. 87-91
    • Humphrey, G.B.1    Boon, C.M.2    van Linden van den Heuvell, G.F.3    van de Wiel, H.B.4
  • 15
    • 0022259747 scopus 로고
    • Behavioral management of children’s distress during painful medical procedures
    • COI: 1:STN:280:DyaL28%2FisFamtw%3D%3D, PID: 4051924
    • Jay, S. M., Elliott, C. H., Ozolins, M., Olson, R. A., & Pruitt, S. D. (1985). Behavioral management of children’s distress during painful medical procedures. Behaviour Research and Therapy, 23(5), 513–520.
    • (1985) Behaviour Research and Therapy , vol.23 , Issue.5 , pp. 513-520
    • Jay, S.M.1    Elliott, C.H.2    Ozolins, M.3    Olson, R.A.4    Pruitt, S.D.5
  • 16
    • 0022416566 scopus 로고
    • Uncertainty and its relation to the psychological and social correlates of chronic illness in children
    • COI: 1:STN:280:DyaL2M3ksVOmsg%3D%3D
    • Jessop, D. J., & Stein, R. E. (1985). Uncertainty and its relation to the psychological and social correlates of chronic illness in children. Social Science & Medicine, 20(10), 993–999.
    • (1985) Social Science & Medicine , vol.20 , Issue.10 , pp. 993-999
    • Jessop, D.J.1    Stein, R.E.2
  • 17
    • 51049100826 scopus 로고    scopus 로고
    • Childhood healthcare experience, healthcare attitudes, and optimism as predictors of adolescents’ healthcare behavior
    • PID: 19104968
    • Jones, T., DeMore, M., Cohen, L. L., O’Connell, C., & Jones, D. (2008). Childhood healthcare experience, healthcare attitudes, and optimism as predictors of adolescents’ healthcare behavior. Journal of Clinical Psychology in Medical Settings, 15(3), 234–240.
    • (2008) Journal of Clinical Psychology in Medical Settings , vol.15 , Issue.3 , pp. 234-240
    • Jones, T.1    DeMore, M.2    Cohen, L.L.3    O’Connell, C.4    Jones, D.5
  • 18
    • 0019189243 scopus 로고
    • Behavioral distress in children with cancer undergoing medical procedures: developmental considerations
    • COI: 1:STN:280:DyaL3c3gsV2msQ%3D%3D, PID: 7381095
    • Katz, E. R., Kellerman, J., & Siegel, S. E. (1980). Behavioral distress in children with cancer undergoing medical procedures: developmental considerations. Journal of Consulting and Clinical Psychology, 48(3), 356–365.
    • (1980) Journal of Consulting and Clinical Psychology , vol.48 , Issue.3 , pp. 356-365
    • Katz, E.R.1    Kellerman, J.2    Siegel, S.E.3
  • 19
    • 56149104852 scopus 로고    scopus 로고
    • Clinical implications of unmanaged needle-insertion pain and distress in children
    • PID: 18978006
    • Kennedy, R. M., Luhmann, J., & Zempsky, W. T. (2008). Clinical implications of unmanaged needle-insertion pain and distress in children. Pediatrics, 122(Suppl 3), S130–133.
    • (2008) Pediatrics , vol.122 , pp. 130-133
    • Kennedy, R.M.1    Luhmann, J.2    Zempsky, W.T.3
  • 20
    • 0034185796 scopus 로고    scopus 로고
    • Preparing children for venepuncture. The effect of an integrated intervention on distress before and during venepuncture
    • COI: 1:STN:280:DC%2BD3M%2FisFSrsw%3D%3D
    • Kolk, A. M., van Hoof, R., & Fiedeldij Dop, M. J. (2000). Preparing children for venepuncture. The effect of an integrated intervention on distress before and during venepuncture. Child: Care, Health and Development, 26(3), 251–260.
    • (2000) Child: Care, Health and Development , vol.26 , Issue.3 , pp. 251-260
    • Kolk, A.M.1    van Hoof, R.2    Fiedeldij Dop, M.J.3
  • 21
    • 14044269480 scopus 로고    scopus 로고
    • Psychological benefit of diagnostic certainty for mothers of children with disabilities: lessons from down syndrome
    • COI: 1:STN:280:DC%2BD2M%2FptlagtA%3D%3D, PID: 15666306
    • Lenhard, W., Breitenbach, E., Ebert, H., Schindelhauer-Deutscher, H. J., & Henn, W. (2005). Psychological benefit of diagnostic certainty for mothers of children with disabilities: lessons from down syndrome. American Journal of Medical Genetics Part A, 133A(2), 170–175.
    • (2005) American Journal of Medical Genetics Part A , vol.133A , Issue.2 , pp. 170-175
    • Lenhard, W.1    Breitenbach, E.2    Ebert, H.3    Schindelhauer-Deutscher, H.J.4    Henn, W.5
  • 22
  • 24
    • 43549125225 scopus 로고    scopus 로고
    • Social desirability response bias and self-report of psychological distress in pediatric chronic pain patients
    • PID: 17822848
    • Logan, D. E., Claar, R. L., & Scharff, L. (2008). Social desirability response bias and self-report of psychological distress in pediatric chronic pain patients. Pain, 136(3), 366–372.
    • (2008) Pain , vol.136 , Issue.3 , pp. 366-372
    • Logan, D.E.1    Claar, R.L.2    Scharff, L.3
  • 25
    • 84864121683 scopus 로고    scopus 로고
    • Factors associated with perceived uncertainty among parents of children with undiagnosed medical conditions
    • PID: 22711240
    • Madeo, A. C., O’Brien, K. E., Bernhardt, B. A., & Biesecker, B. B. (2012). Factors associated with perceived uncertainty among parents of children with undiagnosed medical conditions. American Journal of Medical Genetics Part A, 158A(8), 1877–1884.
    • (2012) American Journal of Medical Genetics Part A , vol.158A , Issue.8 , pp. 1877-1884
    • Madeo, A.C.1    O’Brien, K.E.2    Bernhardt, B.A.3    Biesecker, B.B.4
  • 26
    • 70449397325 scopus 로고    scopus 로고
    • Parental perceived value of a diagnosis for intellectual disability (ID): a qualitative comparison of families with and without a diagnosis for their child’s ID
    • PID: 19842198
    • Makela, N. L., Birch, P. H., Friedman, J. M., & Marra, C. A. (2009). Parental perceived value of a diagnosis for intellectual disability (ID): a qualitative comparison of families with and without a diagnosis for their child’s ID. American Journal of Medical Genetics Part A, 149A(11), 2393–2402.
    • (2009) American Journal of Medical Genetics Part A , vol.149A , Issue.11 , pp. 2393-2402
    • Makela, N.L.1    Birch, P.H.2    Friedman, J.M.3    Marra, C.A.4
  • 27
    • 0017518023 scopus 로고
    • Pain relief for the child: problem areas and selected nonpharmacological methods
    • COI: 1:STN:280:DyaE2s3htlyjuw%3D%3D, PID: 17842
    • McCaffery, M. (1977). Pain relief for the child: problem areas and selected nonpharmacological methods. Pediatric Nursing, 3(4), 11–16.
    • (1977) Pediatric Nursing , vol.3 , Issue.4 , pp. 11-16
    • McCaffery, M.1
  • 28
    • 84861175966 scopus 로고    scopus 로고
    • The daily patterns of time use for parents of children with complex needs: a systematic review
    • PID: 22308543
    • McCann, D., Bull, R., & Winzenberg, T. (2012). The daily patterns of time use for parents of children with complex needs: a systematic review. Journal of Child Health Care, 16(1), 26–52.
    • (2012) Journal of Child Health Care , vol.16 , Issue.1 , pp. 26-52
    • McCann, D.1    Bull, R.2    Winzenberg, T.3
  • 30
    • 0019360758 scopus 로고
    • There’s a demon in your belly: children’s understanding of illness
    • COI: 1:STN:280:DyaL3M7pvVKrug%3D%3D, PID: 7232049
    • Perrin, E. C., & Gerrity, P. S. (1981). There’s a demon in your belly: children’s understanding of illness. Pediatrics, 67(6), 841–849.
    • (1981) Pediatrics , vol.67 , Issue.6 , pp. 841-849
    • Perrin, E.C.1    Gerrity, P.S.2
  • 31
    • 0345722748 scopus 로고    scopus 로고
    • Empirically supported treatments in pediatric psychology: procedure-related pain
    • COI: 1:STN:280:DyaK1M3ovFOnsA%3D%3D, PID: 10361392
    • Powers, S. W. (1999). Empirically supported treatments in pediatric psychology: procedure-related pain. Journal of Pediatric Psychology, 24(2), 131–145.
    • (1999) Journal of Pediatric Psychology , vol.24 , Issue.2 , pp. 131-145
    • Powers, S.W.1
  • 32
    • 0035479331 scopus 로고    scopus 로고
    • Parental attitudes toward a diagnosis in children with unidentified multiple congenital anomaly syndromes
    • COI: 1:STN:280:DC%2BD3MritFGqsA%3D%3D, PID: 11568915
    • Rosenthal, E. T., Biesecker, L. G., & Biesecker, B. B. (2001). Parental attitudes toward a diagnosis in children with unidentified multiple congenital anomaly syndromes. American Journal of Medical Genetics, 103(2), 106–114.
    • (2001) American Journal of Medical Genetics , vol.103 , Issue.2 , pp. 106-114
    • Rosenthal, E.T.1    Biesecker, L.G.2    Biesecker, B.B.3
  • 33
    • 0033205525 scopus 로고    scopus 로고
    • Techniques to comfort children during stressful procedures
    • COI: 1:STN:280:DC%2BD3c3mvVyisA%3D%3D, PID: 10808763
    • Stephens, B. K., Barkey, M. E., & Hall, H. R. (1999). Techniques to comfort children during stressful procedures. Accident and Emergency Nursing, 7(4), 226–236.
    • (1999) Accident and Emergency Nursing , vol.7 , Issue.4 , pp. 226-236
    • Stephens, B.K.1    Barkey, M.E.2    Hall, H.R.3
  • 34
    • 0034577254 scopus 로고    scopus 로고
    • Uncertainty in childhood illness: a synthesis of the parent and child literature
    • COI: 1:STN:280:DC%2BD3M3ovFWitQ%3D%3D, PID: 11372189, discussion 321-296
    • Stewart, J. L., & Mishel, M. H. (2000). Uncertainty in childhood illness: a synthesis of the parent and child literature. Scholarly Inquiry for Nursing Practice, 14(4), 299–319. discussion 321-296.
    • (2000) Scholarly Inquiry for Nursing Practice , vol.14 , Issue.4 , pp. 299-319
    • Stewart, J.L.1    Mishel, M.H.2
  • 35
    • 0003621434 scopus 로고    scopus 로고
    • Asking questions with a purpose: University of Wisconsin-Extension Cooperative Extension Service
    • Taylor-Powell, E., and Marshall, M. G. (1996). Questionnaire Design: Asking questions with a purpose: University of Wisconsin-Extension Cooperative Extension Service.
    • (1996) Questionnaire Design
    • Taylor-Powell, E.1    Marshall, M.G.2
  • 37
    • 0031115983 scopus 로고    scopus 로고
    • Interpretive description: a noncategorical qualitative alternative for developing nursing knowledge
    • COI: 1:STN:280:DyaK2s3lsFCjsg%3D%3D
    • Thorne, S., Kirkham, S. R., & MacDonald-Emes, J. (1997). Interpretive description: a noncategorical qualitative alternative for developing nursing knowledge. Research in Nursing & Health, 20(2), 169–177.
    • (1997) Research in Nursing & Health , vol.20 , Issue.2 , pp. 169-177
    • Thorne, S.1    Kirkham, S.R.2    MacDonald-Emes, J.3
  • 39
    • 0031912163 scopus 로고    scopus 로고
    • Consequences of inadequate analgesia during painful procedures in children
    • COI: 1:STN:280:DyaK1c7ltFOnsg%3D%3D
    • Weisman, S. J., Bernstein, B., & Schechter, N. L. (1998). Consequences of inadequate analgesia during painful procedures in children. Archives of Pediatrics & Adolescent Medicine, 152(2), 147–149.
    • (1998) Archives of Pediatrics & Adolescent Medicine , vol.152 , Issue.2 , pp. 147-149
    • Weisman, S.J.1    Bernstein, B.2    Schechter, N.L.3


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