Improving the Measurement of Late-Life Disability in Population Surveys: Beyond ADLs and IADLs

Improving the Measurement of Late-Life Disability in Population Surveys: Beyond ADLs and IADLs

Volumn , Issue , 2009, Pages 1-165

  Wunderlich, Gooloo S ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

EID: 85018193825     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.17226/12740     Document Type: Book

References (81)

1. Banks, J., Breeze, E., Lessor, C., and Nazroo, J. (2006).(Eds.) Retirement, Health and Relationships of the Older Population in England: The 2004 English Longitudinal Study of Ageing (Wave 2). London, England: Institute for Fiscal Stidies. Available: http://www.ifs. org.UK/elsa/report_wave2.php [accessed May 2009].
2. Barberger-Gateau, P., Fabrigoule, C., Rouch, I., Letenneur, L., and Dartigues, J.F. (1999). Neuropsychological correlates of self-reported performance in instrumental activities of daily living and prediction of dementia. Journal of Gerontology: Pycholological Sciences 54B(5):P293-P303.
3. Bassett, S.S., Magaziner, J., and Hebel, J.R. (1990). Reliability of proxy responses on mental health indices for aged community-dwelling women. Psychology of Aging 5(1): 127-132.
4. Brown, M., Dijkers, M., Gordon, W.A., Ashman, T., and Chartz, H. (2004). Participation objective, participation subjective: A measure of participation combining outsider and insider perspectives. Journal of Head Trauma Rehabilitation 19:459-481.
5. Brunner, E., Shipley, M., Spencer, V., Kivimaki, M., Chandola, T., Gimeno, D., Singh-Manoux, A., Guralnik, J., and Marmot, M. (2009). Social inequality in walking speed in early old age in the Whitehall II Study. Journal of Gerontology: Medical Sciences 64A(10): M1082-M1089.
6. Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., Ader, D., Fries, J., Bruce, B., and Rose, M. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH roadmap cooperative group during its first two years. Medical Care 45(5 Suppl 1):S3-S11.
7. Center for Data Collection and Research (CentERdata). (2003). Data from the LISS Panel. Available: http://www.centerdata.nl/en/TopMenu/Databank/LISS_panel_data/ [accessed April 2009].
8. Cherry Engineering Support Services, Inc. (2003). Federal Statutory Definitions of Disability. Prepared for the Interagency Committee on Disability Research. McLean, VA: Cherry Engineering Support Services, Inc. Available: http://www.icdr.us/documents/definitions. htm [accessed May 2009].
9. Cocchiarella, L., and Andersson, G. (2001). (Eds.). Guides to the Evaluation of Permanent Impairment (5th ed.). Chicago, IL: American Medical Association.
10. Cook, K.F., O'Malley, K.J., and Roddey, T.S. (2005). Dynamic assessment of health outcomes: Time to let the CAT out of the bag? Health Services Research 40(5 Pt 2):1694-1711.
11. Cornoni-Huntley, J.C., Foley, D.J., and Guralnik, J.M. (1991). Co-morbidity analysis: A strategy for understanding mortality, disability and use of health care facilities of older people. International Journal of Epidemiology 20:S8-S17.
12. Coster, W.J., Haley, S.M., Ludlow, L.H., Andres, P.L., and Ni, P.S. (2004). Development of an applied cognition scale to measure rehabilitation outcomes. Archives of Physical Medicine and Rehabilitation 85(12):2030-2035.
13. Couper, M., Kapteyn, A., Schonlau, M., and Winter, J. (2007). Noncoverage and nonresponse in an Internet survey. Social Science Research 36(1):131-148.
14. Crimmins, E.M., Saito, Y., and Reynolds, S. (1997). Further evidence on recent trends in the prevalence and incidence of disability among older Americans from two sources: The LSOA and the NHIS. Journal of Gerontology: Social Sciences 52B(2):S59-S71.
15. De Ayala, R.J. (1993). Methods, plainly speaking: An introduction to polytomous item response theory models. Measurement and Evaluation in Counseling and Development 25:172-189.
16. Di Carlo, A., Baldereschi, M., Amaducci, L., Maggi, S., Grigoletto, F., Scarlato, G., and Inzitari, D. (2000). Cognitive impairment without dementia in older people: Prevalence, vascular risk factors, impact on disability: The Italian Longitudinal Study on Aging. Journal of the American Geriatrics Society 48(7):775-782.
17. Donovan, N.J., Kendall, D.L., Heaton, S.C., Kwon, S., Velozo, C.A., and Duncan, P.W. (2008). Conceptualizing functional cognition in stroke. Neurorehabilitation and Neural Repair 22(2):122-135.
18. Ferrucci, L., Guralnik, J.M., Simonsick, E., Salive, M.E., Corti, C., and Langlois, J. (1996). Progressive versus catastrophic disability: A longitudinal view of the disablement process. Journal of Gerontology: Medical Sciences 51A(3):M123-M130.
19. Freedman, V. (2006). Late-life disability trends: An overview of current evidence. In Institute of Medicine, Workshop on Disability in America: A New Look. M. Field, A.M. Jette, and L. Martin (Eds.). Committee on Disability in America. Washington, DC: The National Academies Press.
20. Freedman, V.A., Martin, L.G., and Schoeni, R.F. (2002). Recent trends in disability and functioning among older adults in the United States: A systematic review. Journal of the American Medical Association 288:3137-3146.
21. Freedman, V.A., Crimmins, E., Schoeni, R.F., Spillman, B.C., Aykan, H., Kramarow, E., Land, K., Lubitz, J., Manton, K., Martin, L.G., Shinberg, D., and Waidmann, T. (2004). Resolving inconsistencies in trends in old-age disability: Report from a technical working group. Demography 41(3):417-441.
22. Freedman, V.A., Waidmann, T., and Spillman, B. (2005). Opportunities to Improve Survey Measures of Late-Life Disability: Part II-Workshop Summary. Report submitted to the Assistant Secretary for Planning and Evaluation, U.S. Department of Health and Human Services, Washington, DC.
23. Fried, L.P., and Herdman, S.J. (1992). Geriatric assessment: Multifactorial problems. Physical Therapy Practice 1:88-93.
24. Fried, L.P., Borhani, N.O., Enright, P., Furberg, C.D., Gardin, J.M., Kronmal, R.A., Kuller, L.H., Manolio, T.A., Mittelmark, M.B., Newman, A., O'Leary, D.H., Psaty, B., Rautaharju, P., Tracy, R.P., and Weiler, P.G. (1991a). The Cardiovascular Health Study: Design and rationale. Annals of Epidemiology 1:263-276.
25. Fried, L.P., Herdman, S.J., Kuhn, K., Rubin, G., and Turano, K. (1991b). Preclinical disability: Hypotheses about the bottom of the iceberg. Journal of Aging and Health 3:285-300.
26. Fried, L.P., Bandeen-Roche, K., Chaves, P.H., and Johnson, B.A. (2000). Preclinical mobility disability predicts incident mobility disability in older women. Journal of Gerontology: Medical Sciences 55A(1):M43-M52.
27. Gill, T.M., and Gahbauer, E. (2008). Evaluating disability over discrete periods of time. Journal of Gerontology: Medical Sciences 63A(6):M588-M594.
28. Gill, T.M., Robinson, J.T., and Tinetti, M.E. (1998). Difficulty and dependence: Two components of the disability continuum among community-living older persons. Annals of Internal Medicine 128:96-101.
29. Gill, T.M., Hardy, S., and Williams, C. (2002). Underestimation of disability in communityliving older persons. Journal of the American Geriatrics Society 50:1492-1497.
30. Gill, T.M., Vanness, P., and Gahbauer, E. (in press). Factors associated with accurate recall of prior disability in older persons. Journal of the American Geriatrics Society. Early view available: http://www3.interscience.wiley.com/cgi-bin/fulltext/122592466/PDFSTART [accessed September 2009].
31. Hambleton, R. (2005). Applications of item response rheory to improve health outcomes assessment: Developing item banks, linking instruments, and computer adaptive testing. In J. Lipscomb, C. Gotay, and C. Snyder (Eds.), Outcomes Assessment in Cancer (pp. 445-464). Cambridge, England: Cambridge University Press.
32. Harris, T., Kovar, M.G., Suzman, R., Kleinman, J.C., and Feldman, J.J. (1989). Longitudinal study of physical ability in the oldest-old. American Journal of Public Health 79(6):698-702.
33. He, W., Sengupta, M., Velcoff, V.A., and Debarros, K.A. (2005). 65 + in the United States: 2005. (U.S. Census Bureau, Current Population Reports, P23-209.) Washington, DC: U.S. Department of Commerce.
34. Iburg, K., Salomon, J., Tandon, A., and Murray, C. (2001). Cross-Population Comparability of Self-Reported and Physician-Assisted Mobility Levels: Evidence from the Third National Health and Nutrition Examination Survey. (Global Programme on Evidence for Health Policy Discussion Paper No. 14.) Geneva, Switzerland: World Health Organization.
35. Iezzoni, L., and Freedman, V. (2008). Turning the disability tide: The importance of definitions. Journal of the American Medical Association 299:332-334.
36. Institute of Medicine. (1991). Disability in America: Toward a National Agenda for Prevention. A.M. Pope and A.R.Tarlov (Eds.). Washington, DC: National Academy Press.
37. Institute of Medicine. (1997). Enabling America: Assessing the Role of Rehabilitation Science and Engineering. E.N. Brandt, Jr., and A.M. Pope (Eds.). Washington, DC: National Academy Press.
38. Institute of Medicine. (2007). The Future of Disability in America. M.J. Field and A.M. Jette (Eds.). Washington, DC: The National Academies Press.
39. Ishizaki, T., Yoshida, H., Suzuki, T., Wantanabe, S., Niino, N., Ihara, K., Kim, H., Fujiwara, Y., Shinkai, S., and Imanaka, Y. (2006). Effects of cognitive function on functional decline among community-dwelling nondisabled older Japanese. Archives of Gerontology and Geriatrics 42(1):47-58.
40. Jette, A.M., and Badley, E. (2002). Conceptual issues in the measurement of work disability. In Institute of Medicine and National Research Council, The Dynamics of Disability: Measuring and Monitoring Disability for Social Security Programs (pp. 53-64). G.S. Wunderlich, D.P. Rice, and N.L. Amado (Eds.). Committee to Review the Social Security Administration's Disability Decision Process Research. Washington, DC: National Academy Press.
41. Kahneman, D., Krueger, A.B., Schkade, D., Schwarz, N., and Stone, A.A. (2004). A survey method for characterizing daily life experience: The Day Reconstruction Method (DRM). Science 306(5702):1776-1780.
42. Kapteyn, A., Smith, J.P., and van Soest, A. (2007). Vignettes and self-reports of work disability in the United States and the Netherlands. American Economic Review 97(1):461-473.
43. Katz, S., and Akpom, C. (1976). A measure of primary sociobiological function. International Journal of Health Services 6:493-508.
44. King, G., Murray, C.J.L., Salomon, J.A., and Tandon, A. (2004). Enhancing the validity of cross-cultural comparability of measurement in survey research. American Political Science Review 98(1):91-207.
45. Krueger, A., and Stone, A. (2008). Assessment of pain: A community-based diary survey in the USA. Lancet (371):1519-1525.
46. Kumamoto, T., Sannomiya, K., Ueyama, H., Aoki, K., Nakashima, T., Nakamura, R., and Tsuda, T. (2000). Neurological abnormalities in cognitively impaired but not demented elderly. Acta Neurologica Scandinavia 102(5):292-298.
47. Lakdawalla, D.N., Bhattacharya, J., and Goldman, D. (2004). Are the young becoming disabled? Health Affairs 23(1):168-176.
48. Lan, T-Y., Melzer, D., Tom, B., and Guralnik, J. (2002). Performance tests and disability: Developing an objective index of mobility-related limitation in older populations. Journal of Gerontology, Medical Sciences 57A(5): M294-M301.
49. Lawton, M.P., and Brody, E. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist 9:179-186.
50. Magaziner, J., Bassett, S.S., and Gruber-Baldini, A. (1996). Use of proxies to measure health and functional status in epidemiologic studies of community-dwelling women aged 65 years and older. American Journal of Epidemiology 143(3):283-292.
51. Manton, K.G., and Gu, X. (2001). Changes in the prevalence of chronic disability in the United States black and nonblack population above age 65 from 1982 to 1999. Proceedings of the National Academy of Sciences 98(11):6354-6359.
52. Manton, K.G., Corder, L., and Stallard, E. (1997). Chronic disability trends in elderly United States populations: 1982-1994. Proceedings of the National Academy of Sciences 94: 2593-2598.
53. Melzer, D., Lan, T-Y., Tom, B., Deeg, D., and Guralnik, J. (2004). Variation in thresholds for reporting mobility disability between national population subgroups and studies. Journal of Gerontology: Medical Sciences 59A(12):M1295-M1303.
54. Miller, D.K., Wolinsky, F.D., Malmstrom, T.K., Andresen, E.M., and Miller, J.P. (2005). Inner city, middle-aged African Americans have excess frank and subclinical disability. Journal of Gerontology: Medical Sciences 60(2):M207-M212.
55. Nagi, S. (1965). Some conceptual issues in disability and rehabilitation. In M. Sussman (Ed.), Sociology and Rehabilitation (pp. 100-113). Washington, DC: American Sociological Association.
56. Nagi. S. (1976). An epidemiology of disability among adults in the United States. Milbank Memorial Fund Quarterly 54:439-467.
57. Nagi, S. (1991). Disability concepts revisited: Implications for prevention. In Institute of Medicine, Disability in America: Toward a National Agenda for Prevention (pp. 309-327). A.M. Pope and A.R. Tarlov (Eds.). Washington, DC: National Academy Press.
58. National Center for Health Statistics. (2009). Health, United States, 2008. Chartbook with Special Feature on the Health of Young Adults. Hyattsville, MD: National Center for Health Statistics.
59. National Institute on Aging and National Bureau of Economic Research. (2001). Disability Decline: What We Know and What We'd Like to Know. Workshop Summary. Available: http://www.nia.nih.gov/ResearchInformation/ExtramuralPrograms/BehavioralAndSocial- Research/ConferencesAndWorkshops.htm [accessed February 2009].
60. Purser, J.L., Fillenbaum, G.G., Pieper, C.F., and Wallace, R.B. (2005). Mild cognitive impairment and 10-year trajectories of disability in the Iowa Established Populations for Epidemiologic Studies of the Elderly cohort. Journal of the American Geriatrics Society 53(11):1966-1972.
61. Raji, M.A., Kuo, Y.F., Snih, S.A., Markides, K.S., Peek, M.K., and Ottenbacher, K.J. (2005). Cognitive status, muscle strength, and subsequent disability in older Mexican Americans. Journal of the American Geriatrics Society 53(9):1462-1468.
62. Reuben, D.B., Laliberte, L., Hiris, J., and Mor, V. (1990). A hierarchical exercise scale to measure function at the advanced activities of daily living level. Journal of the American Geriatrics Society 38:855-861.
63. Rosow, I., and Breslau, N. (1966). A Guttman health scale for the aged. Journal of Gerontology 21:556-559.
64. Schoeni, R.F., Freedman, V.F., and Wallace, R. (2001). Persistent, consistent, widespread, and robust?. Another look at recent trends in old age disability. Journal of Gerentology: Social Sciences 56B(4):S206-S218.
65. Schupf, N., Tang, M-X., Albert, S.M., Costa, R., Andrews, H., Lee, J.H., and Mayeux, R. (2005). Decline in cognitive and functional skills increases mortality risk in nondemented elderly. Neurology 65(8):1218-1226.
66. Shumway-Cook, A., Ciol, M.A., Yorkston, K.M., Hoffman, J.M., and Chan, L. (2005). Mobility limitations in the Medicare population: Prevalence and sociodemographic and clinical correlates. Journal of the American Geriatrics Society 53(7):1217-1221.
67. Social Security Administration. (2003). Disability Evaluation under Social Security. (SSA Publication No. 64-039.) Washington, DC: Social Security Administration, Office of Disability Programs.
68. Soldo, B.J., Mitchell, O.S., Tfaily, R., and Mccabe, J.F. (2006). Cross-Cohort Differences in Health on the Verge of Retirement. (NBER working paper no. 12762.) Cambridge, MA: National Bureau of Economic Research. Available: http://www.nber.org/papers/w12762 [accessed September 2009].
69. Steen, G., Sonn, U., Hanson, A.B., and Steen, B. (2001). Cognitive function and functional ability: A cross-sectional and longitudinal study at ages 85 and 95 in a nondemented population. Aging (Milano) 13(2):68-77.
70. U.S. Department of Health and Human Services. (1989). Measuring the Activities of Daily Living Among the Elderly: A Guide to National Surveys. Report prepared by J.M. Weiner and R.J.M. Hanley, Brookings Institute, for the Federal Interagency Forum on Aging-Related Statistics.
71. Verbrugge, L., and Jette, A.M. (1994). The disablement process. Social Science and Medicine 38(1):1-14.
72. Waidmann, T., and Freedman, V. (2007). The Daily Activities of the Community-Dwelling Elderly: Evidence from the American Time-Use Survey. Report to the U.S. Department of Health and Human Services, Washington, DC. Available: http://aspe.hhs.gov/daltcp/ reports/2006/cdelderly.pdf [accessed May 2009].
73. Waidmann, T., and Liu, K. (2000). Disability trends among the elderly and implications for the future. Journal of Gerentology: Social Sciences 55B:S298-S307.
74. Ware, J.E., Jr., Bjorner, J.B., and Kosinski, M. (2000). Practical implications of item response theory and computerized adaptive testing: A brief summary of ongoing studies of widely used headache impact scales. Medical Care 38(9 Suppl):1173.
75. Weiss, C.O., Hoenig, H.M., and Fried, L. (2007). Compensatory strategies used by older adults facing mobility disability. Archives of Physical Medicine and Rehabilitation 88(9): 1217-1220.
76. Whiteneck, G.G., Charlfue, S.W., Gerhart, K.A., Overholser, J.D., and Richardson, G.N. (1992). Quantifying handicap: A new measure of long-term rehabilitation outcomes. Archives of Physical Medicine and Rehabilitation 73:519-526.
77. Wiener, J.M., Hanley, J.R., Clark, R., and Van Nostrand, J. (1990). Measuring the activities of daily living: Comparisons across national surveys. Journal of Gerontology: Social Sciences 45(6):S229-S237.
78. Wolinsky, F.D., Miller, D.K., Andresen, E.M., Malmstrom, T.K., Miller, J.P., and Miller, T.R. (2007). Effect of subclinical status in functional limitation and disability on adverse health outcomes 3 years later. Journal of Gerontology: Medical Science 62(1):101-106.
79. World Health Organization. (2001). International Classification of Functioning, Disability and Health. Geneva, Switzerland: World Health Organization.
80. World Health Organization. (2002). Towards a Common Language for Functioning, Disability, and Health: International Classification of Functioning, Disability and Health. Geneva, Switzerland: World Health Organization.
81. Wu, X.G., Tang, Z., Fang, X.H., Liu, H.J., Diao, L.J., and Xiang, M.J. (2004). Evaluation of predictive effect of some health-related indices on deaths among ageing residents through 8-years' follow-up study in Beijing. Zhonghua Liu Xing Bing Xue Za Zhi 25(4):325-328.