Use of proxies to measure health and functional status in epidemiologic studies of community-dwelling women aged 65 years and older

American Journal of Epidemiology

Volumn 143, Issue 3, 1996, Pages 283-292

  Magaziner, Jay ^a   Bassett, Susan Spear ^b   Hebel, J Richard ^a   Gruber Baldini, Ann ^a  

^a UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE   (United States)

^b JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

activities of daily living; aged; bias; chronic disease; epidemiologic methods; interviews

Indexed keywords

AGED; AGING; ARTICLE; CHRONIC DISEASE; DAILY LIFE ACTIVITY; FEMALE; FUNCTIONAL ASSESSMENT; HEALTH STATUS; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; SELF REPORT; UNITED STATES;

EID: 0030049926     PISSN: 00029262     EISSN: None     Source Type: Journal    
DOI: 10.1093/oxfordjournals.aje.a008740     Document Type: Article

References (47)

1. Fini JE, Kovar MG. The supplement on aging to the 1984 National Health Interview Study. Washington, DC: US Government Printing Office, 1987. (Vital and Health Statistics, ser. 1. no. 21. DHHS publication no. (PHS) 87-1323).
2. Burnham A, Leaf PJ, Skinner EA, et al. Proxy interviews. In: Eaton W, Kessler L, eds. Epidemiologic field methods in psychiatry: the NIMH epidemiologic catchment area program. New York, NY: Academic Press, 1985:117-39.
3. Cornoni-Huntley J, Brock DB, Ostifield AM, et al. Established populations for epidemiologic studies of the elderly. Washington, DC: National Institute on Aging, 1986. (Resource data book: NIH publication no. 86-2443).
4. Herrmann N. Retrospective information from questionnaires. I. Comparability of primary respondents and their next-of-kin. Am J Epidemiol 1985;121:937-47.
5. Heyman A, Wilkinson WE, Stafford JA, et al. Alzheimer's disease: a study of epidemiological aspects. Ann Neurol 1984; 15:335-41.
6. Humble CG, Samet JM, Skipper BE. Comparison of self- and surrogate-reported dietary information. Am J Epidemiol 1984; 119:86-98.
7. Lerchen ML, Samet JM. An assessment of the validity of questionnaire responses provided by a surviving spouse. Am J Epidemiol 1986;123:481-9.
8. Marshall J, Priore R, Haughey B, et al. Spouse-subject interviews and the reliability of diet studies. Am J Epidemiol 1984;112:675-83.
9. Kolonel LN, Hirohata T, Nomura AMY. Adequacy of survey data collected from substitute respondents. Am J Epidemiol 1977;106:476-84.
10. Pickle LW, Brown LM, Blot WJ. Information available from surrogate respondents in case-control interview studies. Am J Epidemiol 1983;118:99-108.
11. Enterline PE, Capt KG. A validation of information provided by household respondents in health survey. Am J Public Health 1959;49:205-12.
12. Greenberg ER, Rosner B, Hennekens C, et al. An investigation of bias in a study of nuclear shipyard workers. Am J Epidemiol 1985;121:301-8.
13. Walker AM, Velema JP, Robins JM. Analysis of case-control data derived in part from proxy respondents. Am J Epidemiol 1988;127:905-14.
14. Rocca WA, Fratiglioni L, Bracco L, et al. The use of surrogate respondents to obtain questionnaire data in case-control studies of neurologic diseases. J Chron Dis 1986;39:907-12.
15. Davanipour Z, Alter M, Sobel E, et al. A case-control study of Creutzfeldt-Jakob disease: dietary risk factors. Am J Epidemiol 1985;122:443-51.
16. Graham P, Jackson R. Primary versus proxy respondents: comparability of questionnaire data on alcohol consumption. Am J Epidemiol 1993;138:443-52.
17. Hatch MC, Misra D, Kabat GC, et al. Proxy respondents in reproductive research: a comparison of self- and partner-reported data. Am J Epidemiol 1991;133:826-31.
18. Maclean M, Glenn H. Methodological issues in social surveys. Atlantic Highlands, NJ: Humanities Press, 1979.
19. Rubenstein LZ, Schairer C, Weiland GD, et al. Systematic biases in functional status assessment of elderly adults: effects of different data sources. J Gerontol 1984;39:689-91.
20. Clipp EC, Elder GH. Elderly confidants in geriatric assessment. Compr Gerontol B 1987;1:35-40.
21. Epstein AM, Hall JA, Tognetti J, et al. Using proxies to evaluate quality of life. Med Care 1989;27:S91-8.
22. Weinberger M, Samsa GP, Schmader K, et al. Comparing proxy and patients' perceptions of patients' functional status: results from an outpatient geriatric clinic. J Am Geriatr Soc 1992;40:585-8.
23. Magaziner J, Hebel JR, Warren JW. The use of proxy responses for aged patients in long-term care settings. Compr Gerontol B 1987;1:118-21.
24. Bassett SS, Magaziner J, Hebel JR. Reliability of proxy response on mental health indices for aged, community-dwelling women. Psychol Aging 1990;5:127-32.
25. Linton KLP, Klein BEK, Klein R. The validity of self-reported and surrogate-reported cataract and age-related macular degeneration in the Beaver Dam Eye Study. Am J Epidemiol 1991;134:1438-46.
26. Kiyak HA, Ten L, Borson S. Physical and functional health assessment in normal aging and in Alzheimer's disease: self-reports vs family reports. Gerontologist 1994;34:324-30.
27. Clarridge BR, Massagli MP. The use of female spouse proxies in common symptom reporting. Med Care 1989;27:352-66.
28. Rothman ML, Hedrick SC, Bulcroft KA, et al. The validity of proxy-generated scores as measures of patient health status. Med Care 1991;29:115-24.
29. Magaziner J, Simonsick E, Kashner TM, et al. Patient-proxy response comparability on measures of patient health and functional status. J Clin Epidemiol 1988;41:1065-74.
30. Rogers WL. The relative validities of self and proxy reports. Paper presented at the 41st Annual Scientific Meeting of the Gerontological Society of America, San Francisco, California, November 20, 1988.
31. Eaton WW, Kessler LJ, eds. Epidemiologic field methods in psychiatry: the NIMH epidemiologic catchment area program. Orlando, FL: Academic Press, 1985.
32. Cornoni-Huntley J, Ostifield AM, Taylor JO, et al. Established populations for epidemiologic studies of the elderly: study design and methodology. Aging Clin Exp Res 1993;5:27-37.
33. Sprangers MAG, Aaronson NK. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol 1992;45:743-60.
34. Magaziner J, Cadigan DA, Hebel JR, et al. Health and living arrangements among older women: Does living alone increase the risk of illness? J Gerontol Med Sci 1988;43:M127-33.
35. Duke University Center for the Study of Aging and Human Development. Multidimensional functional assessment: the OARS methodology. Durham, NC: Duke University, 1978.
36. Belloc NB, Breslow L, Hochstim JR. Measurement of physical health in a general population survey. Am J Epidemiol 1971;93:328-36.
37. Kane RA, Kane RL. Assessing the elderly: a practical guide to measurement. Lexington, MA: Rand Corporation, 1981.
38. Folstein MF, Folstein SE, McHugh PR. Mini-Mental State - a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975;12:189-98.
39. Radloff LS. The CES-D scale: a self report depression scale for research in the general population. Appl Psychol Meas 1977;1:385-401.
40. Landis JR, Koch GG. Agreement measures for categorical data. Biometrics 1977;33:159-74.
41. McNemar Q. Note on the sampling error of the difference between correlated proportions or percentages. Psychometrika 1947;12:153-7.
42. Fleiss JL, Cohen J, Everitt BS. Large sample errors of kappa and weighted kappa. Psychol Bull 1969;72:323-7.
43. Donner A, Wells G. A comparison of confidence interval methods for the intraclass correlation coefficient. Biometrics 1986;42:401-12.
44. Magaziner J. The use of proxy respondents in health studies of the aged. In: Wallace RB, Woolson RF, eds. The epidemiologic study of the elderly. New York, NY: Oxford University Press, 1992:120-9.
45. Rogers WL, Herzog AR. The consequences of accepting proxy respondents on total survey error for elderly populations. Paper presented at the Fifth Conference on Health Survey Research Methods, Keystone, Colorado, May 1989.
46. Zimmerman SI, Magaziner J. Methodologic issues in measuring the functional status of cognitively impaired nursing home residents: the use of proxies and performance-based measures. Alzheimer Dis Assoc Disord 1994;8:S281-90.
47. Nelson LM, Longstreth WR, Koepsell TD, et al. Proxy respondents in epidemiologic research. Epidemiol Rev 1990;12: 71-86.