Navigating ethics in the digital age: Introducing connected and open research ethics (CORE), a tool for researchers and institutional review boards

Journal of Medical Internet Research

Volumn 19, Issue 2, 2017, Pages

  Torous, John ^a   Nebeker, Camille ^b,c,d  

^a HARVARD MEDICAL SCHOOL   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

^d SCRIPPS TRANSLATIONAL SCIENCE INSTITUTE   (United States)

Author keywords

Ethics; MHealth; Mobile technologies; Research; Telemedicine

Indexed keywords

CONVERSATION; HUMAN; HUMAN EXPERIMENT; INSTITUTIONAL REVIEW; PARTICIPATORY RESEARCH; RESEARCH ETHICS; SCIENTIST; TELEMEDICINE; ETHICS; ORGANIZATION AND MANAGEMENT; PROCEDURES; PROFESSIONAL STANDARD; UNITED STATES;

ETHICS COMMITTEES, RESEARCH; ETHICS, RESEARCH; HUMANS; TELEMEDICINE; UNITED STATES;

EID: 85014850546     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.6793     Document Type: Review

References (11)

1. Bloss C, Nebeker C, Bietz M, Bae D, Bigby B, Devereaux M, et al. Reimagining human research protections for 21st century science. J Med Internet Res 2016 Dec 22;18(12):e329 [FREE Full text] [doi: 10.2196/jmir.6634] [Medline: 28007687]
2. Torous J, Keshavan M, Gutheil T. Promise and perils of digital psychiatry. Asian J Psychiatr 2014 Aug;10:120-122. [doi: 10.1016/j.ajp.2014.06.006] [Medline: 25042968]
3. Huckvale K, Prieto JT, Tilney M, Benghozi P, Car J. Unaddressed privacy risks in accredited health and wellness apps: A cross-sectional systematic assessment. BMC Med 2015;13:214 [FREE Full text] [doi: 10.1186/s12916-015-0444-y] [Medline: 26404673]
4. Nebeker C, Lagare T, Takemoto M, Lewars B, Crist K, Bloss CS, et al. Engaging research participants to inform the ethical conduct of mobile imaging, pervasive sensing, and location tracking research. Transl Behav Med 2016 Dec;6(4):577-586. [doi: 10.1007/s13142-016-0426-4] [Medline: 27688250]
5. Nebeker C, Linares-Orozco R, Crist K. A multi-case study of research using mobile imaging, sensing and tracking technologies to objectively measure behaviorthical issues and insights to guide responsible research practice. J Res Admin 2015;46(1):118-137.
6. Pisani AR, Wyman PA, Mohr DC, Perrino T, Gallo C, Villamar J, et al. Human subjects protection and technology in prevention science: selected opportunities and challenges. Prev Sci 2016 Aug;17(6):765-778 [FREE Full text] [doi: 10.1007/s11121-016-0664-1] [Medline: 27220838]
7. Torous J, Roberts LW. The ethical use of mobile health technology in clinical psychiatry. J Nerv Ment Dis 2017 Jan;205(1):4-8. [doi: 10.1097/NMD.0000000000000596] [Medline: 28005647]
8. Association of Internet Researchers. Chicago, IL: AoIR; 2017. URL: http://aoir.org/[accessed 2017-02-01] [WebCite Cache ID 6nxQJtYK8]
9. Hewson C, Buchanan T, Brown I, Coulson N, Hagger-Johnson G, Joinson A, et al. Ethics guidelines for Internet-mediated research. Leicester, UK: The British Psychological Society; 2013. URL: http://www.bps.org.uk/system/files/Public%20files/inf206-guidelines-for-internet-mediated-research.pdf [accessed 2016-12-26] [WebCite Cache ID 6n3hyX1p7]
10. National Institute for Health Research. INVOLVE. Southampton, UK: INVOLVE; 2015. URL: http://www.invo.org.uk/[accessed 2017-02-06] [WebCite Cache ID 6o4p1YTI7]
11. CORE Platform. Lafayette, CA: The Regents of the University of California; 2016. URL: https://thecore-platform.ucsd.edu/[accessed 2017-02-01] [WebCite Cache ID 6nxRw1vdm]