Engaging research participants to inform the ethical conduct of mobile imaging, pervasive sensing, and location tracking research

Translational Behavioral Medicine

Volumn 6, Issue 4, 2016, Pages 577-586

  Nebeker, Camille ^a,b   Lagare, Tiffany ^b   Takemoto, Michelle ^a,b   Lewars, Brittany ^b   Crist, Katie ^b   Bloss, Cinnamon S ^a,b,c   Kerr, Jacqueline ^a,b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Geo location; GIS; GPS; Informed consent; Institutional review board; IRB; Location tracking; mHealth; Mobile health; Pervasive sensing; Privacy; Research ethics; SenseCam; Wearable camera

Indexed keywords

ADULT; AFRICAN AMERICAN; AMERICAN INDIAN; ARTICLE; ASIAN; BEHAVIORAL MEDICINE; CONFIDENTIALITY; FEMALE; HISPANIC; HUMAN; IMAGING; INFORMATION PROCESSING; INFORMED CONSENT; MAJOR CLINICAL STUDY; MALE; MEDICAL ETHICS; MEDICAL RESEARCH; PATIENT AUTONOMY; PRIORITY JOURNAL; RISK ASSESSMENT; SOCIAL MEDIA; AGED; BEHAVIORAL RESEARCH; ETHICS; MIDDLE AGED; MOBILE PHONE; PRIVACY; PROFESSIONAL STANDARD; RESEARCH; UTILIZATION; VIDEORECORDING;

ADULT; AGED; BEHAVIORAL RESEARCH; CELL PHONES; CONFIDENTIALITY; ETHICS COMMITTEES, RESEARCH; FEMALE; HUMANS; INFORMED CONSENT; MALE; MIDDLE AGED; PRIVACY; RESEARCH; RISK ASSESSMENT; SOCIAL MEDIA; VIDEOTAPE RECORDING;

EID: 84995814213     PISSN: 18696716     EISSN: 16139860     Source Type: Journal    
DOI: 10.1007/s13142-016-0426-4     Document Type: Article

References (14)

1. Kumar S, Nilsen WJ, Abernethy A, et al. Mobile health technology evaluation: the mHealth evidence workshop. Am J Prev Med. 2013; 45(2): 228-236. doi:10.1016/j.amepre.2013.03.017.
2. Jankowska M, Schipperjin J, Kerr J. A framework for using GPS data in physical activity and sedentary behavior studies. Exerc Sport Sci Rev. 2015; 43(1): 48-56.
3. Zenk S, Schulz A, Odoms-Young A, et al. Feasibility of using Global Positioning Systems (GPS) with diverse urban adults. J Phys Act Health. 2012; 9: 290-296.
4. Kerr J, Marshall SJ, Godbole S, et al. Using the SenseCam to improve classifications of sedentary behavior in free-living settings. Am J Prev Med. 2013; 44(3): 290-296. doi:10.1016/j.amepre.2012.11.004.
5. Doherty AR, Kelly P, Kerr J, et al. Use of wearable cameras to assess population physical activity behaviours: an observational study. Lancet. 2012; 380: S35. doi:10.1016/S0140-6736(13)60391-8.
6. Doherty AR, Kelly P, Kerr J, et al. Using wearable cameras to categorise type and context of accelerometer-identified episodes of physical activity. Int J Behav Nutr Phys Act. 2013; 10: 22. doi:10.1186/1479-5868-10-22.
7. Oliver M, Doherty AR, Kelly P, et al. Utility of passive photography to objectively audit built environment features of active transport journeys: an observational study. Int J Health Geogr. 2013; 12: 20. doi:10.1186/1476-072X-12-20.
8. Hodges S, Williams L, Berry E, et al. SenseCam: a retrospective memory aid. In: Ubicomp 2006, LNCS 4206. 2006; 177–93. doi:10.1007/11853565.
9. Nebeker C, Linares-Orozco R, Crist K. A multi-case study of research using mobile imaging, sensing and tracking technologies to objectively measure behavior. J Res Adm. 2015; 46(1): 118-137.
10. US Department of Health and Human Services. Protection of human subjects. 45 CFR 46. 1964.
11. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. The Belmont Report: ethical principles and guidelines for the protection of human subjects of research. 1978. Available at: http://ohsr.od.nih.gov/guidelines/belmont.html.
12. Kelly P, Marshall S, Badland H, Kerr J. An ethical framework for automated, wearable cameras in health behavior research. Am J Prev Med. 2013; 1–6. Available at: http://www.sciencedirect.com/science/article/pii/S0749379712008628.
13. Anderson EE, Dubois JM. IRB decision-making with imperfect knowledge: a framework for evidence-based research ethics review. J Law, Med Ethics. 2012; 40(4): 951-969. doi:10.1111/j.1748-720X.2012.00724.x.
14. Christie G, Patrick K, Schmuland D. Consultation for collective action on personalized health technology: eliminating the ethical, legal and social barriers for individual and societal benefit. J Health Commun. 20:867–868.