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Volumn 31, Issue 2, 2017, Pages 87-96

Reconfiguring social value in health research through the lens of liminality

Author keywords

Bioethics; Health research; Liminality; Social value

Indexed keywords

BIOETHICS; HUMAN; MEDICAL RESEARCH; RELIGION; RESEARCH ETHICS; SOCIAL PSYCHOLOGY;

EID: 85009084581     PISSN: 02699702     EISSN: 14678519     Source Type: Journal    
DOI: 10.1111/bioe.12324     Document Type: Note
Times cited : (19)

References (48)
  • 1
    • 85009136552 scopus 로고    scopus 로고
    • The Nuremberg Code, n.d. Available at, [Accessed 11 Apr 2016]
    • The Nuremberg Code, n.d. Available at: http://www.hhs.gov/ohrp/ archive/nurcode.html [Accessed 11 Apr 2016].
  • 3
    • 80051605726 scopus 로고    scopus 로고
    • A Framework for Risk-Benefit Evaluations in Biomedical Research
    • A. Rid & D. Wendler. A Framework for Risk-Benefit Evaluations in Biomedical Research. Kennedy Inst Ethics J 2011; 21: 141–179.
    • (2011) Kennedy Inst Ethics J , vol.21 , pp. 141-179
    • Rid, A.1    Wendler, D.2
  • 4
    • 85009124527 scopus 로고    scopus 로고
    • Department of Health (UK). Governance arrangements for research ethics committees: A harmonised edition 2011 (updated April 2012) para. 3.2.2. Available at, [Accessed 11Apr 2016]
    • Department of Health (UK). Governance arrangements for research ethics committees: A harmonised edition 2011 (updated April 2012) para. 3.2.2. Available at: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/213753/dh_133993.pdfhttps://www.gov.uk/government/uploads/system/uploads/attachment_data/file/213753/dh_ 133993.pdf [Accessed 11Apr 2016].
  • 5
    • 85009077642 scopus 로고    scopus 로고
    • Ibid: at para. 3.2.3
    • Ibid: at para. 3.2.3.
  • 6
    • 85009124528 scopus 로고    scopus 로고
    • CIOMS. Final Draft CIOMS Guidelines. 2015. Available at, [Accessed 10 Sep 2016]
    • CIOMS. Final Draft CIOMS Guidelines. 2015. Available at: http://www.cioms.ch/final_draft_CIOMS_guidelines-10_september_2015- WITH_WATERMARKS.pdf [Accessed 10 Sep 2016].
  • 7
    • 85009112420 scopus 로고    scopus 로고
    • Habets, van Delden, and Bredenoord, op. cit. note 2
    • Habets, van Delden, and Bredenoord, op. cit. note 2.
  • 8
    • 85009102160 scopus 로고    scopus 로고
    • Ibid
    • Ibid.
  • 9
    • 84929502419 scopus 로고    scopus 로고
    • The Social Value Requirement Reconsidered: The Social Value Requirement Reconsidered
    • A. Wertheimer. The Social Value Requirement Reconsidered: The Social Value Requirement Reconsidered. Bioethics 2015; 29: 301–308.
    • (2015) Bioethics , vol.29 , pp. 301-308
    • Wertheimer, A.1
  • 10
    • 85009088117 scopus 로고    scopus 로고
    • Council for International Organizations of Medical Sciences and World Health Organization (CIOMS). 2002. International Ethical Guidelines for Biomedical Research Involving Human Subjects. Geneva: CIOMS; Sec. 8. Available at, [Accessed 10 Sep 2016]
    • Council for International Organizations of Medical Sciences and World Health Organization (CIOMS). 2002. International Ethical Guidelines for Biomedical Research Involving Human Subjects. Geneva: CIOMS; Sec. 8. Available at: http://www.cioms.ch/publications/guidelines/ guidelines_nov_2002_blurb.htm [Accessed 10 Sep 2016].
  • 11
    • 57349125845 scopus 로고    scopus 로고
    • An Ethical Framework for Biomedical Ethics
    • E.J. Emanuel et.al., eds. Oxford and New York: Oxford University Press
    • E.J. Emanuel, D. Wendler & C. Grady. 2008. An Ethical Framework for Biomedical Ethics. In The Oxford Textbook of Clinical Research Ethics, E.J. Emanuel et.al., eds. Oxford and New York: Oxford University Press: 127.
    • (2008) The Oxford Textbook of Clinical Research Ethics
    • Emanuel, E.J.1    Wendler, D.2    Grady, C.3
  • 12
    • 84937515709 scopus 로고    scopus 로고
    • The Social Value of Knowledge and International Clinical Research
    • D. M. Wenner. The Social Value of Knowledge and International Clinical Research. DevWorld Bioeth 2015; 15:76–84.
    • (2015) Devworld Bioeth , vol.15 , pp. 76-84
    • Wenner, D.M.1
  • 13
    • 85009136549 scopus 로고    scopus 로고
    • Wertheimer, op. cit. note 8
    • Wertheimer, op. cit. note 8, p. 302.
  • 14
    • 85009085285 scopus 로고    scopus 로고
    • op. cit. note 16
    • Emanuel et al. op. cit. note 16, p. 127;
    • Emanuel1
  • 15
    • 84872129305 scopus 로고    scopus 로고
    • A Non- Paternalistic Model of Research Oversight: Assessing the Benefits of Prospective Review
    • A. London. A Non- Paternalistic Model of Research Oversight: Assessing the Benefits of Prospective Review. J Law Med Ethics 2012; 40: 942.
    • (2012) J Law Med Ethics , vol.40
    • London, A.1
  • 16
    • 85009088119 scopus 로고    scopus 로고
    • Wertheimer, op. cit. note 8
    • Wertheimer, op. cit. note 8, p. 302.
  • 17
    • 85009068023 scopus 로고    scopus 로고
    • CIOMS, op. cit. note 5
    • CIOMS, op. cit. note 5.
  • 20
    • 85009077665 scopus 로고    scopus 로고
    • Van Gennep, op. cit. note 16
    • Van Gennep, op. cit. note 16, p. 21.
  • 21
    • 84938279358 scopus 로고    scopus 로고
    • Liminality and The Modern: Living Through the In-Between
    • Farnham: Ashgate; A. Horvath, B. Thomassen& H.Wydra, eds. 2015. Breaking Boundaries: Varieties of Liminality. Oxford/New York: Berghahn Books
    • B. Thomassen. 2014. Liminality and The Modern: Living Through the In-Between. Farnham: Ashgate; A. Horvath, B. Thomassen& H.Wydra, eds. 2015. Breaking Boundaries: Varieties of Liminality. Oxford/New York: Berghahn Books.
    • (2014)
    • Thomassen, B.1
  • 22
    • 84976899745 scopus 로고    scopus 로고
    • Cambridge, MA: Harvard University Press. See also H-J Rheinberger. 1997. Toward a History of Epistemic Things. Synthesizing Proteins in the Test Tube. Stanford, CA: Stanford University Press
    • K. Knorr Cetina. 2009. Epistemic Cultures: How the Sciences Make Knowledge. Cambridge, MA: Harvard University Press. See also H-J Rheinberger. 1997. Toward a History of Epistemic Things. Synthesizing Proteins in the Test Tube. Stanford, CA: Stanford University Press.
    • (2009) Epistemic Cultures: How the Sciences Make Knowledge
    • Knorr Cetina, K.1
  • 23
    • 85009064683 scopus 로고    scopus 로고
    • Emanuel et al., op. cit. note 10
    • Emanuel et al., op. cit. note 10.
  • 24
    • 85009097131 scopus 로고    scopus 로고
    • Emanuel et al., op. cit. note 10
    • Emanuel et al., op. cit. note 10.
  • 26
    • 85009125286 scopus 로고    scopus 로고
    • Rid &Wendler, op. cit. note 2
    • Rid &Wendler, op. cit. note 2.
  • 27
    • 85009064686 scopus 로고    scopus 로고
    • Ibid
    • Ibid.
  • 28
    • 85009069868 scopus 로고    scopus 로고
    • Ibid
    • Ibid.
  • 29
    • 85041656081 scopus 로고    scopus 로고
    • The Ebola Clinical Trials: A precedent for research ethics in disasters
    • P. Calain. The Ebola Clinical Trials: a precedent for research ethics in disasters. J Med Ethics 2016: 0:1–6
    • (2016) J Med Ethics , pp. 1-6
    • Calain, P.1
  • 30
    • 85009064677 scopus 로고    scopus 로고
    • WHO, op. cit. note 22
    • WHO, op. cit. note 22. p. 2
  • 31
    • 85009091493 scopus 로고    scopus 로고
    • Ibid 29 Calain, op. cit. note 27
    • Ibid 29 Calain, op. cit. note 27.
  • 32
    • 85009138577 scopus 로고    scopus 로고
    • WHO, op cit. note 22
    • WHO, op cit. note 22. P. 3
  • 33
    • 84946415448 scopus 로고    scopus 로고
    • Real-time Responsiveness for Ethics Oversight During Disaster Research
    • L. Eckenwiler, J. Pringle, R. Boulanger, and M. Hunt, ‘Real-time Responsiveness for Ethics Oversight During Disaster Research’, 29:9 Bioethics (2015), p. 654.
    • (2015) Bioethics , vol.29 , Issue.9
    • Eckenwiler, L.1    Pringle, J.2    Boulanger, R.3    Hunt, M.4
  • 34
    • 79952493599 scopus 로고    scopus 로고
    • The Value of Transnational Medical Research.”
    • A.H. Kelly & P.W. Geissler. The Value of Transnational Medical Research.” J Cult Econ 2011; 4: 3–10.
    • (2011) J Cult Econ , vol.4 , pp. 3-10
    • Kelly, A.H.1    Geissler, P.W.2
  • 35
    • 85009075687 scopus 로고    scopus 로고
    • Ibid
    • Ibid.
  • 36
    • 85009075684 scopus 로고    scopus 로고
    • CIOMS, op. cit. note 3, Guideline 1
    • CIOMS, op. cit. note 3, Guideline 1.
  • 37
    • 85009092114 scopus 로고    scopus 로고
    • op. cit. note 2
    • M. Habets et al. op. cit. note 2, p. 6.
    • Habets, M.1
  • 38
  • 39
    • 85009154819 scopus 로고    scopus 로고
    • op. cit. note 13
    • A. London, op. cit. note 13, p. 942.
    • London, A.1
  • 40
    • 80053306411 scopus 로고    scopus 로고
    • Reflexive governance in biobanking: On the value of policy led approaches and the need to recognise the limits of law
    • G. Laurie. Reflexive governance in biobanking: on the value of policy led approaches and the need to recognise the limits of law. Hum Genet (2011) 130: 347. doi:10.1007/s00439-011-1066-x.
    • (2011) Hum Genet , vol.130 , pp. 347
    • Laurie, G.1
  • 42
    • 84926144230 scopus 로고    scopus 로고
    • Lessons from the Residual Newborn Screening Dried Blood Sample Litigation
    • M. Huckaby Lewis. Lessons from the Residual Newborn Screening Dried Blood Sample Litigation. J Law Med Ethics 2015; 43: 32–35.
    • (2015) J Law Med Ethics , vol.43 , pp. 32-35
    • Huckaby Lewis, M.1
  • 43
    • 27644442647 scopus 로고    scopus 로고
    • Reassembling the Social: An Introduction to Actor- Network-Theory
    • Oxford and New York: Oxford University Press: 1 (emphasis in original)
    • B. Latour. 2005. Reassembling the Social: An Introduction to Actor- Network-Theory. Oxford and New York: Oxford University Press: 1 (emphasis in original).
    • (2005)
    • Latour, B.1
  • 44
    • 77953607877 scopus 로고    scopus 로고
    • The Tuskegee Syphilis Experiment
    • E.J Emanuel et al., eds. Oxford and NewYork: Oxford University Press
    • J.H. Jones. 2008. The Tuskegee Syphilis Experiment. In The Oxford Textbook of Clinical Research Ethics, E.J Emanuel et al., eds. Oxford and NewYork: Oxford University Press: 90–93.
    • (2008) The Oxford Textbook of Clinical Research Ethics , pp. 90-93
    • Jones, J.H.1
  • 45
    • 1542357575 scopus 로고    scopus 로고
    • What Makes Clinical Research in Developing Countries Ethical? The Benchmarks of Ethical Research
    • E.J. Emanuel, D. Wendler, J. Killen, C. Grady. What Makes Clinical Research in Developing Countries Ethical? The Benchmarks of Ethical Research. J Infect Dis 2004; 189(5): 930–937.
    • (2004) J Infect Dis , vol.189 , Issue.5 , pp. 930-937
    • Emanuel, E.J.1    Wendler, D.2    Killen, J.3    Grady, C.4
  • 46
    • 80054983939 scopus 로고    scopus 로고
    • Research Ethics: Treat Donors as Partners in BiobankResearch
    • K. Saha & J.B. Hurlbut. Research Ethics: Treat Donors as Partners in BiobankResearch. Nature 2011; 478: 312–313.
    • (2011) Nature , vol.478 , pp. 312-313
    • Saha, K.1    Hurlbut, J.B.2
  • 48
    • 85009091459 scopus 로고    scopus 로고
    • This observation is based on one of the author’s (in preparation) sociotechnical history of theUKCystic Fibrosis Gene Therapy Consortium
    • This observation is based on one of the author’s (in preparation) sociotechnical history of theUKCystic Fibrosis Gene Therapy Consortium.


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