Quality of care for people with dementia and professional caregivers' perspectives regarding palliative care in Japanese community care settings

International Journal of Geriatric Psychiatry

Volumn 32, Issue 12, 2017, Pages 1342-1351

  Nakanishi, Miharu ^a   Hirooka, Kayo ^a   Morimoto, Yuko ^a   Nishida, Atsushi ^a  

^a TOKYO METROPOLITAN INSTITUTE OF MEDICAL SCIENCE   (Japan)

Author keywords

community care; dementia; palliative care

Indexed keywords

AGED; ARTICLE; CAREGIVER BURDEN; COMMUNITY CARE; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; FEMALE; HUMAN; INFORMED CONSENT; JAPANESE (PEOPLE); LONG TERM CARE; MALE; PALLIATIVE THERAPY; PATIENT CARE; PRACTICE GUIDELINE; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY; RETROSPECTIVE STUDY; SCORING SYSTEM; VALIDITY; ADULT; ALZHEIMER DISEASE; ATTITUDE TO HEALTH; DEMENTIA; EXERCISE; HEALTH CARE QUALITY; HEALTH PERSONNEL ATTITUDE; JAPAN; MIDDLE AGED; PSYCHOLOGY; STANDARDS; VERY ELDERLY;

NEUROLEPTIC AGENT;

ADULT; AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; ANTIPSYCHOTIC AGENTS; ATTITUDE OF HEALTH PERSONNEL; CROSS-SECTIONAL STUDIES; DEMENTIA; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; JAPAN; MALE; MIDDLE AGED; PALLIATIVE CARE; QUALITY OF HEALTH CARE; QUALITY OF LIFE; RESTRAINT, PHYSICAL; SURVEYS AND QUESTIONNAIRES;

EID: 85006073784     PISSN: 08856230     EISSN: 10991166     Source Type: Journal    
DOI: 10.1002/gps.4620     Document Type: Article

References (39)

1. Alzheimer's Disease International. 2015. World Alzheimer Report 2015: the global impact of dementia. An analysis of prevalence, incidence, cost and trends. London, Alzheimer's Disease International. August 2015.
2. Arai H, Nakamura Y, Taguchi M, et al. 2016. Mortality risk in current and new antipsychotic AD users: Large scale Japanese study. Alzheimers Dement. DOI:10.1016/j.jalz.2016.03.006.
3. Barnes TRE, Banerjee S, Collins N, et al. 2012. Antipsychotics in dementia: prevalence and quality of antipsychotic drug prescribing in UK mental health services. Br J Psychiatry 201(3): 221–226.
4. Beerens HC, Sutcliffe C, Renom-Guiteras A, et al. 2014. Quality of life and quality of care for people with dementia receiving long term institutional care or professional home care: the European RightTimePlaceCare Study. J Am Med Dir Assoc 15(1): 54–61.
5. Gaugler JE, Yu F, Krichbaum K, Wyman JF. 2009. Predictors of nursing home admission for persons with dementia. Med Care 47(2): 191–198.
6. Hoe J, Hancock G, Livingston G, Orrell M. 2006. Quality of life of people with dementia in residential care homes. Br J Psychiatry 188(5): 460–464.
7. Konetzka RT, Brauner DJ, Shega J, Werner RM. 2014. The effects of public reporting on physical restraints and antipsychotic use in nursing home residents with severe cognitive impairment. J Am Geriatr Soc 62(3): 454–461.
8. Kok JS, Berg IJ, Scherder EJA. 2013. Special care units and traditional care in dementia: relationship with behaviour, cognition, functional status and quality of life—a review. Dement Geriatr Cogn Disord Extra 3(1): 360–375.
9. Koponen M, Tolppanen AM, Taipale H, et al. 2015. Incidence of antipsychotic use in relation to diagnosis of Alzheimer's disease among community-dwelling persons. Br J Psychiatry 207(5): 444–449.
10. Long CO. 2009. Palliative care for advanced dementia. J Gerontol Nurs 35(11): 19–24.
11. Long CO, Sowell EJ, Hess RK, Alonzo TR. 2012. Development of the questionnaire on palliative care for advanced dementia (qPAD). Am J Alzheimers Dis Other Demen 27(7): 537–543.
12. Lyketsos CG, Lopez O, Jones B, et al. 2002. Prevalence of neuropsychiatric symptoms in dementia and mild cognitive impairment: results from the Cardiovascular Health Study. JAMA 288(12): 1475–1783.
13. Maust DT, Kim HM, Seyfried LS, et al. 2015. Antipsychotics, other psychotropics, and the risk of death in patients with dementia: number needed to harm. JAMA Psychiatry 72(5): 438–445.
14. Minemawari Y, Kato T, Aso K. 2000. Cognitive function and basic activity of daily living of elderly disabled inpatients. Jpn J Geriatr 37(3): 225–232.
15. Ministry of Health, Labour, and Welfare. 2001. A manual for no use of physical restraint. March 2001. Available at: www.dochoju.jp/soudan/pdf/zerohenotebiki.pdf (accessed July 4, 2016)
16. Ministry of Health, Labour, and Welfare. 2011. Mission team on establishment of new community mental health system, second round: dementia and psychiatry, summary report. Available at: http://www.mhlw.go.jp/stf/shingi/2r9852000001xah3-att/2r9852000001xal3.pdf (accessed February 22, 2016)
17. Ministry of Health, Labour, and Welfare. 2013. Guidelines for personal physicians on the use of psychotropic substances for the treatment of BPSD. Available at: http://www.mhlw.go.jp/stf/houdou/2r98520000036k0c-att/2r98520000036k1t.pdf (accessed December 15, 2015)
18. Ministry of Health, Labour, and Welfare. 2015. A comprehensive strategy for the promotion of dementia measures—towards a community friendly to the elderly with dementia, etc—(a New Orange Plan). Available at: http://www.mhlw.go.jp/file/04-Houdouhappyou-12304500-Roukenkyoku-Ninchishougyakutaiboushitaisakusuishinshitsu/02_1.pdf (accessed October 23, 2015)
19. Morris JN, Belleville-Taylor P, Berg K, Bernabei R, Björkgren M, Carpenter I, DuPasquiter JN, Finne-Soveri H, Fries BE, Frijters D, Gilgen R, Gray L, Hawes C, Henrard JC, Hirdes JP, Ikegami N, Ljunggren G, Mor V, Nurphy K, Nonemaker S, Philips CD, Steel K, Zimmerman D. 2011. interRAI assessment system. Home care (HC), long-term care facilities (LTCF), assisted living (AL). Igakusyoin: Tokyo.
20. Morris JN, Fries BE, Mehr DR, et al. 1994. MDS Cognitive Performance Scale. J Gerontol 49(4): M174–M182.
21. Morris JN, Fries BE, Morris SA. 1999. Scaling ADLs within the MDS. J Gerontol A Biol Sci Med Sci 54(11): M546–M553.
22. Nakanishi M, Hoshishiba Y, Iwama N, et al. 2009. Impact of the elder abuse prevention and caregiver support law on system development among municipal governments in Japan. Health Policy 90(2–3): 254–261.
23. Nakanishi M, Nakashima T. 2014. Features of the Japanese national dementia strategy in comparison with international dementia policies: how should a national dementia policy interact with the public health and social care systems? Alzheimers Dement 10(4): 468–476.
24. Nakanishi M, Nakashima T, Shindo Y, et al. 2015a. An evaluation of palliative care contents in national dementia strategies in reference to the European Association for Palliative Care white paper. Int Psychogeriatir 27(9): 1551–1561.
25. Nakanishi M, Miyamoto Y, Long CO, Arcand M. 2015b. A Japanese booklet about palliative care for advanced dementia in nursing homes. Int J Palliat Nurs 21(8): 385–391.
26. Nakanishi M, Miyamoyo Y. 2016. Palliative care for advanced dementia in Japan: knowledge and attitudes. Br J Nurs 25(3): 146–155.
27. Pellfolk TJE, Gustafson Y, Bucht G, Karlsson S. 2010. Effects of a restraint minimization program on staff knowledge, attitudes, and practice: a cluster randomized trial. J Am Geriatr Soc 58(1): 62–69.
28. Perrar KM, Schmidt H, Eisenmann Y, Cremer B, Voltz R. 2015. Needs of people with severe dementia at the end-of-life: a systematic review. J Alzheimers Dis 43(2): 397–413.
29. Rabins PV, Kasper JD, Kleinman L, Black B, Patrick DL. 1999. Concepts and methods in the development of the ADRQL: an instrument for assessing health-related quality of life in persons with Alzheimer's disease. J Ment Health Aging 5(1): 33–48.
30. Savva GM, Zaccai J, Matthews FE, et al. 2009. Prevalence, correlates and course of behavioural and psychological symptoms of dementia in the population. Br J Psychiatry 194(3): 212–219.
31. Taipale H, Koponen M, Tanskanen A, et al. 2014. High prevalence of psychotropic drug use among persons with and without Alzheimer's disease in Finnish nationwide cohort. Eur Neuropsychopahrmacol 24(11): 1729–1737.
32. Testad I, Aasland AM, Aarsland D. 2005. The effect of staff training on the use of restraint in dementia: a single-blind randomised controlled trial. Int J Geriatr Psychiatry 20(6): 587–590.
33. van der Steen JT. 2010. Dying with dementia: what we know after more than a decade of research. J Alzheimers Dis 22(1): 37–55.
34. van der Steen JT, Radbruch L, Hertogh CM, et al. 2014. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med 28(3): 197–209.
35. Verbeek H, Zwakhalen SMG, van Rossum E, et al. 2010. Dementia care redesigned: effects of small-scale living facilities on residents, their family caregivers, and staff. J Am Med Dir Assoc 11(9): 662–670.
36. Verbeek H, Zwakhalen SMG, van Rossum E, et al. 2014. Effects of small-scale, home-like facilities in dementia care on residents' behaviour, and use of physical restraints and psychotropic drugs: a quasi-experimental study. Int Psychogeriatr 26(4): 657–668.
37. Yaffe K, Fox P, Newcomer R, et al. 2002. Patient and caregiver characteristics and nursing home placement in patients with dementia. JAMA 287(16): 2090–2097.
38. Yamamoto-Mitani N, Abe T, Okita Y, et al. 2004. The impact of subject/respondent characteristics on a proxy-rated quality of life instrument for the Japanese elderly with dementia. Qual Life Res 13(4): 845–855.
39. Yamauchi K, Ikegami N. 1999. Method of identifying and staging dementia under long-term care insurance—interrater reliability and validity of Cognitive Performance Scale (CPS). Jpn J Geriatr Psychiatry 10(8): 943–952.