Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health

Aging and Mental Health

Volumn 21, Issue 1, 2017, Pages 49-57

  Janssen, Eveline P C J ^a,b   de Vugt, Marjolein ^a   Köhler, Sebastian ^a   Wolfs, Claire ^a   Kerpershoek, Liselot ^a   Handels, Ron L H ^a   Orrell, Martin ^c   Woods, Bob ^d   Jelley, Hannah ^d   Stephan, Astrid ^e   Bieber, Anja ^e   Meyer, Gabriele ^e   Engedal, Knut ^f   Selbaek, Geir ^f   Wimo, Anders ^g   Irving, Kate ^h   Hopper, Louise ^h   Maria Marques, M M ⁱ   Gonçalves Pereira, Manuel ⁱ   Portolani, Elisa ^j   Zanetti, Orazio ^j   Verhey, Frans R ^a   more..

^a MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

^b Mondriaan ^*  (Netherlands)

^c UNIVERSITY OF NOTTINGHAM   (United Kingdom)

^d BANGOR UNIVERSITY   (United Kingdom)

^e Institute for Health and Nursing Science   (Germany)

^f VESTFOLD HOSPITAL TRUST   (Norway)

^g KAROLINSKA INSTITUTE   (Sweden)

^h DUBLIN CITY UNIVERSITY   (Ireland)

ⁱ NOVA MEDICAL SCHOOL   (Portugal)

^j IRCCS ISTITUTO CENTRO SAN GIOVANNI DI DIO FATEBENEFRATELLI   (Italy)

more..

Author keywords

caregivers; Dementia; quality of life; social health; well being

Indexed keywords

AGE; AGED; CAREGIVER; CLASSIFICATION; CLINICAL TRIAL; CROSS-SECTIONAL STUDY; DEMENTIA; DEPRESSION; EUROPE; FEMALE; HUMAN; MALE; MIDDLE AGED; MULTICENTER STUDY; PHYSIOLOGICAL STRESS; PSYCHOLOGICAL RATING SCALE; PSYCHOLOGY; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; SOCIAL SUPPORT; STATISTICS AND NUMERICAL DATA; TIME FACTOR; VERY ELDERLY;

AGE FACTORS; AGED; AGED, 80 AND OVER; CAREGIVERS; CROSS-SECTIONAL STUDIES; DEMENTIA; DEPRESSION; EUROPE; FEMALE; HUMANS; MALE; MIDDLE AGED; PSYCHIATRIC STATUS RATING SCALES; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; SOCIAL SUPPORT; STRESS, PHYSIOLOGICAL; TIME FACTORS;

EID: 84996598263     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607863.2016.1255716     Document Type: Article

References (47)

1. Aadil Jan Shah, O.W., & Latoo, L., (2010). Psychological distress in carers of people with mental disorders. Biritish Journal of Medical Practitioners, 3(3), a327.
2. Aalten, P., van Valen, E., Clare, L., Kenny, G., & Verhey, F., (2005). Awareness in dementia:A review of clinical correlates. Aging & Mental Health, 9(5), 414–422. doi:10.1080/13607860500143075
3. Ahmadi, S.E., Montazeri, A., Mozafari, R., Azari, A., Nateghi, M.R., & Ashrafi, M., (2014). Health-related quality of life and primi-gravid:A comparative study of natural conception and conception by assisted reproduction technologies (ARTs). International Journal of Fertility & Sterility, 8(2), 167–174. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/25083182
4. Antonovsky, A., (1993). The structure and properties of the sense of coherence scale. Social Science & Medicine, 36(6), 725–733. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/8480217
5. Bakk, Z., Tekle, F.B., & Vermunt, J.K., (2013). Estimating the association between latent class membership and external variables using bias-adjusted three-step approaches. Sociological Methodology, 43(1), 272–311.
6. Bednarek, A., Mojs, E., Krawczyk-Wasielewska, A., Glodowska, K., Samborski, W., Lisinski, P., … Millan-Calenti, J.C., (2016). Correlation between depression and burden observed in informal caregivers of people suffering from dementia with time spent on caregiving and dementia severity. European Review for Medical Pharmacological Science, 20(1), 59–63. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/26813454
7. Benzo, R.P., Abascal-Bolado, B., & Dulohery, M.M., (2016). Self-management and quality of life in chronic obstructive pulmonary disease (COPD):The mediating effects of positive affect. Patient Education Counseling, 99(4), 617–623. doi:10.1016/j.pec.2015.10.031
8. Bergvall, N., Brinck, P., Eek, D., Gustavsson, A., Wimo, A., Winblad, B., & Jonsson, L., (2011). Relative importance of patient disease indicators on informal care and caregiver burden in Alzheimer's disease. International Psychogeriatric, 23(1), 73–85. doi:10.1017/S1041610210000785
9. Bjelland, I., Dahl, A.A., Haug, T.T., & Neckelmann, D., (2002). The validity of the hospital anxiety and depression scale:An updated literature review. Journal of Psychosomatic Research, 52(2), 69–77. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/11832252
10. Brouwer, W.B., van Exel, N.J., van Gorp, B., & Redekop, W.K., (2006). The CarerQol instrument:A new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Quality of Life Research, 15(6), 1005–1021. doi:10.1007/s11136-005-5994-6
11. Chen, H.F., Tsai, Y.F., Hsi, M.S., & Chen, J.C., (2016). Factors affecting quality of life in adults with epilepsy in Taiwan:A cross-sectional, correlational study. Epilepsy & Behavior, 58, 26–32. doi:10.1016/j.yebeh.2016.02.019
12. Chiao, C.Y., Wu, H.S., & Hsiao, C.Y., (2015). Caregiver burden for informal caregivers of patients with dementia:A systematic review. International Nursing Review, 62(3), 340–350. doi:10.1111/inr.12194
13. Craig, A.R., Franklin, J.A., & Andrews, G., (1984). A scale to measure locus of control of behaviour. British Journal of Medical Psychology, 57 (2), 173–180. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/6743598
14. Cummings, J.L., (1997). The Neuropsychiatric Inventory:Assessing psychopathology in dementia patients. Neurology, 48(5 Suppl. 6), S10–16. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/9153155
15. de Vugt, M.E., Stevens, F., Aalten, P., Lousberg, R., Jaspers, N., Winkens, I., … Verhey, F.R., (2004). Do caregiver management strategies influence patient behaviour in dementia? International Journal of Geriatric Psychiatry, 19(1), 85–92. doi:10.1002/gps.1044
16. Etters, L., Goodall, D., & Harrison, B.E., (2008). Caregiver burden among dementia patient caregivers:A review of the literature. Journal of the American Academy of Nurse Practitioners, 20(8), 423–428. doi:10.1111/j.1745-7599.2008.00342.x
17. Folstein, M.F., Folstein, S.E., & McHugh, P.R., (1975). ‘Mini-mental state’:A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189–198. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/1202204
18. Gallagher, D., Ni Mhaolain, A., Crosby, L., Ryan, D., Lacey, L., Coen, R.F., … Lawlor, B.A., (2011). Determinants of the desire to institutionalize in Alzheimer's caregivers. American Journal of Alzheimers Disease and Other Dementias, 26(3), 205–211. doi:10.1177/1533317511400307
19. Gaugler, J.E., Kane, R.L., Kane, R.A., Clay, T., & Newcomer, R.C., (2005). The effects of duration of caregiving on institutionalization. The Gerontologist, 45(1), 78–89. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/15695419
20. Greene, J.G., Smith, R., Gardiner, M., & Timbury, G.C., (1982). Measuring behavioural disturbance of elderly demented patients in the community and its effects on relatives:A factor analytic study. Age and Ageing, 11(2), 121–126. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/7102472
21. Guitar, B., (2005). Stuttering:An integrated approach to its nature and treatment. Philadelphia, PA:Lippincott Williams & Wilkins.
22. Hinrichsen, G.A., & Niederehe, G., (1994). Dementia management strategies and adjustment of family members of older patients. The Gerontologist, 34(1), 95–102. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/8150316
23. Holmefur, M., Sundberg, K., Wettergren, L., & Langius-Eklof, A., (2015). Measurement properties of the 13-item sense of coherence scale using Rasch analysis. Quality of Life Research, 24(6), 1455–1463. doi:10.1007/s11136-014-0866-6
24. Huber, M., Knottnerus, J.A., Green, L., van der Horst, H., Jadad, A.R., Kromhout, D., … Smid, H., (2011). How should we define health? BMJ (Clinical Research Ed.), 343, d4163. doi:10.1136/bmj.d4163
25. Hughes, C.P., Berg, L., Danziger, W.L., Coben, L.A., & Martin, R.L., (1982). A new clinical scale for the staging of dementia. British Journal of psychiatry, 140, 566–572. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/7104545
26. Huis In Het Veld, J.G., Verkaik, R., Mistiaen, P., van Meijel, B., & Francke, A.L., (2015). The effectiveness of interventions in supporting self-management of informal caregivers of people with dementia; a systematic meta review. BMC Geriatrics, 15, 147. doi:10.1186/s12877-015-0145-6
27. Koyama, A., Matsushita, M., Hashimoto, M., Fujise, N., Ishikawa, T., Tanaka, H., … Ikeda, M., (2016). Mental health among younger and older caregivers of dementia patients. Psychogeriatrics. doi:10.1111/psyg.12200
28. Kraijo, H., Brouwer, W., de Leeuw, R., Schrijvers, G., & van Exel, J., (2014). The perseverance time of informal carers of dementia patients:Validation of a new measure to initiate transition of care at home to nursing home care. Journal of Alzheimers Disease, 40(3), 631–642. doi:10.3233/JAD-132420
29. Marques, M.J., Gonçalves-Pereira, M., (2014). Living with dementia:A review of the influence of sense of coherence. European Psychiatry, 29 (Suppl. 1). doi:10.1016/S0924-9338(14)78518-9.
30. Moniz Cook, E.D., Swift, K., & James, I., (2012). Functional analysis-based interventions for challenging behaviour in dementia. Cochrane Database of Systematic Reviews (2). doi:10.1002/14651858.CD006929.pub2.
31. Muthen, B., & Asparouhov, T., (2012). Bayesian structural equation modeling:A more flexible representation of substantive theory. Psychological Methods, 17(3), 313–335. doi:10.1037/a0026802
32. Muthen, B., & Asparouhov, T., (2015). Growth mixture modeling with non-normal distributions. Statistics in Medicine, 34(6), 1041–1058. doi:10.1002/sim.6388
33. Nylund, K.L., Asparouhov, T., & Muthén, B.O., (2007). Deciding on the number of classes in latent class analysis and growth mixture modeling:A Monte Carlo simulation study. Structural Equation Modeling, 14(4), 535–569.
34. Olazaran, J., Reisberg, B., Clare L., Cruz, I., Peña-Casanova J, del Ser, T, … Muñiz, R. (2010). Nonpharmacological therapies in Alzheimer's disease:A systematic review of efficacy. Dementia Geriatric Cognitive Disorders, 30(2), 161–178.
35. Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M., (1990). Caregiving and the stress process:An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/2276631
36. Richters, A., Olde Rikkert, M.G., van Exel, N.J., Melis, R.J., & van der Marck, M.A., (2016). Perseverance time of informal caregivers for institutionalized elderly:Construct validity and test–retest reliability of a single-question instrument. Journal of the American Medical Directors Association, 17(8), 761–762. doi:10.1016/j.jamda.2016.05.001
37. Schwarz, G., (1978). Estimating the dimension of a model. Annals Statistics, 6(2), 461–464.
38. Sousa, M.F., Santos, R.L., Turro-Garriga, O., Dias, R., Dourado, M.C., & Conde-Sala, J.L., (2016). Factors associated with caregiver burden:Comparative study between Brazilian and Spanish caregivers of patients with Alzheimer's disease (AD). International Psychogeriatrics, 28(8), 1–12. doi:10.1017/S1041610216000508
39. Srivastava, G., Tripathi, R.K., Tiwari, S.C., Singh, B., & Tripathi, S.M., (2016). Caregiver burden and quality of life of key caregivers of patients with dementia. Indian Journal of Psychological Medicine, 38(2), 133–136. doi:10.4103/0253-7176.178779
40. Sugiyama, T., Steers, W.N., Wenger, N.S., Duru, O.K., & Mangione, C.M., (2015). Effect of a community-based diabetes self-management empowerment program on mental health-related quality of life:A causal mediation analysis from a randomized controlled trial. BMC Health Services Research [Electronic Resource], 15, 115. doi:10.1186/s12913-015-0779-2
41. Torti, F.M., Jr., Gwyther, L.P., Reed, S.D., Friedman, J.Y., & Schulman, K.A., (2004). A multinational review of recent trends and reports in dementia caregiver burden. Alzheimer Disease and Associated disorders, 18(2), 99–109. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/15249854
42. Ulstein, I., Wyller, T.B., & Engedal, K., (2007). High score on the relative stress scale, a marker of possible psychiatric disorder in family carers of patients with dementia. International Journal of Geriatric psychiatry, 22(3), 195–202. doi:10.1002/gps.1660
43. Vandepitte, S., Van Den Noortgate, N., Putman, K., Verhaeghe, S., Faes, K., & Annemans, L., (2016). Effectiveness of supporting informal caregivers of people with dementia:A systematic review of randomized and non-randomized controlled trials. Journal of Alzheimers Disease, 52(3), 929–965. doi:10.3233/JAD-151011
44. Vernooij-Dassen, M., & Jeon, Y.H., (2016). Social health and dementia:The power of human capabilities. International Psychogeriatrics, 28(5), 701–703. doi:10.1017/S1041610216000260
45. World Health Organization. (1948). WHO definition of health. Retrieved from http://www.who.int/about/definition/en/print.html
46. Zarit, S.H., Reever, K.E., & Bach-Peterson, J., (1980). Relatives of the impaired elderly:Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/7203086
47. Zigmond, A.S., & Snaith, R.P., (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361–370. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/6880820