Transition from hospital to home in parents of preterm infants

Journal of Perinatal and Neonatal Nursing

Volumn 30, Issue 4, 2016, Pages 327-348

  Boykova, Marina ^a  

^a Council of the International Neonatal Nurses ^*  (United States)

Author keywords

Parent; Preterm Infant; Transition To Home

Indexed keywords

CHILD PARENT RELATION; EDUCATION; HOSPITAL DISCHARGE; HUMAN; NEEDS ASSESSMENT; NEWBORN; ORGANIZATION AND MANAGEMENT; PARENT; PATIENT TRANSPORT; PREMATURITY; PSYCHOLOGY; SOCIAL SUPPORT; STANDARDS;

EDUCATION, NONPROFESSIONAL; HUMANS; INFANT, NEWBORN; INFANT, PREMATURE; NEEDS ASSESSMENT; PARENTING; PARENTS; PATIENT DISCHARGE; PATIENT TRANSFER; SOCIAL SUPPORT;

EID: 84995578351     PISSN: 08932190     EISSN: 15505073     Source Type: Journal    
DOI: 10.1097/JPN.0000000000000211     Document Type: Article

References (146)

1. Meleis AI, ed. Transitions Theory: Middle-Range and Situation Specific Theories in Nursing Research and Practice. New York, NY: Springer Publishing Company; 2010.
2. Meleis AI, Sawyer LM, Im EO, Messias DKH, Schumacher K. Experiencing transitions: An emerging middle-range theory. Adv Nurs Sci. 2000;23(1):12-28.
3. Naylor MD, Feldman PH, Keating S, et al. Translating research into practice: Transitional care for older adults. J Eval Clin Pract. 2009;15(6):1164-1170.
4. Reynolds W, Lauder W, Sharkey S, Maciver S, Veitch T, Cameron D. The effects of a transitional discharge model for psychiatric patients. J Psychiatr Mental Health Nurs. 2004;11(1):82-88.
5. Anderson LS, Riesch SK, Pridham KA, Lutz KF, Becker PT. Furthering the understanding of parent-child relationships: A nursing scholarship review series. Part 4: parent-child relationships at risk. J Spec Pediatr Nurs. 2010;15(2):111-134.
6. Holditch-Davis D, Miles MS, Burchinal MR, Goldman BD. Maternal role attainment with medically fragile infants. Part 2: relationship to the quality of parenting. Res Nurs Health. 2011;34(1):35-48.
7. Lutz KF, Anderson LS, Riesch SK, Pridham KA, Becker PT. Furthering the understanding of parent-child relationships: A nursing scholarship review series. Part 2: grasping the early parenting experience-The insider view. J Spec Pediatr Nurs. 2009;14(4):262-283.
8. Lagatta JM, Clark RH, Brousseau DC, Hoffmann RG, Spitzer AR. Varying patterns of home oxygen use in infants at 23-43 weeks gestation discharged from United States neonatal intensive care units. J Pediatr. 2013;163(4):976-982.
9. Lorch SA, Wade KC, Bakewell-Sachs S, Medoff-Cooper B, Silber JH, Escobar GJ. Antibiotic use in premature infants after discharge from the neonatal intensive care unit. Clin Pediatr. 2010;49(3):249-257.
10. Wade KC, Lorch SA, Bakewell-Sachs S, Medoff-Cooper B, Silber JH, Escobar GJ. Pediatric care for preterm infants after NICU discharge: high number of office visits and prescription medications. J Perinatol. 2008;28:696-701.
11. Escobar GJ, Clark RH, Greene JD. Short-Term outcomes of infants born at 35 and 36 weeks gestation: we need to ask more questions. Semin Perinatol. 2006;30(1):28-33.
12. Hudson SM. Hospital readmissions and repeat emergency department visits among children with medical complexity: An integrative review. J Pediatr Nurs. 2013;28(4):316-339.
13. Ralser E, Mueller W, Haberland C, et al. Rehospitalization in the first 2 years of life in children born preterm. Acta Paediatr. 2012;101(1):e1-e5.
14. Ray KN, Escobar GJ, Lorch SA. Premature infants born to adolescent mothers: health care utilization after initial discharge. Acad Pediatr. 2010;10(5):302-308.
15. Spicer A, Pinelli J, Saigal S, Wu YW, Cunningham C, Di-Censo A. Health status and health service utilization of infants and mothers during the first year after neonatal intensive care. Adv Neonat Care. 2008;8(1):33-41.
16. Kuzniewicz MW, Parker S-J, Schnake-Mahl A, Escobar GJ. Hospital readmissions and emergency department visits in moderate preterm, late preterm, and early term infants. Clin Perinatol. 2013;40(4):753-775.
17. Ballantyne M, Stevens B, Guttmann A, Willan AR, Rosenbaum P. Transition to neonatal follow-up programs: is attendance a problem? J Perinat Neonatal Nurs. 2012;26(1):90-98.
18. Ballantyne M, Benzies K, Rosenbaum P, Lodha A. Mothers and health care providers perspectives of the barriers and facilitators to attendance at Canadian neonatal follow-up programs. Child Care Health Dev. 2014;41(5): 722-733.
19. Barfield WD, Clements KM, Lee KG, Kotelchuck M, Wilber N, Wise PH. Using linked data to assess patterns of early intervention (EI) referral among very low-birth-weight infants. Matern Child Health J. 2008;12(1):24-33.
20. Roberts G, Howard K, Spittle AJ, Brown NC, Anderson PJ, Doyle LW. Rates of early intervention services in very preterm children with developmental disabilities at age 2 years. J Paediatr Child Health. 2008;44(5):276-280.
21. Hintz SR, Gould JB, Bennett MV, et al. Referral of very low-birth-weight infants to high-risk follow-up at neonatal intensive care unit discharge varies widely across California. J Pediatr. 2015;166(2):289-295.
22. DAgostino JA, Passarella M, Saynisch P, Martin AE, Macheras M, Lorch SA. Preterm infant attendance at health supervision visits. Pediatrics. 2015;136(4):e794-e802.
23. Beal JA, Tiani TB, Saia TA, Rothstein EE. The role of the neonatal nurse practitioner in post NICU follow-up. J Perinat Neonatal Nurs. 1999;13(1):78-89.
24. Browne JV, Talmi A. Developmental supports for newborns and young infants with special health and developmental needs and their families: The BABIES model. Newborn Infant Nurs Rev. 2012;12(4):239-247.
25. Chambers PL, Mahabee-Gittens EM, Leonard AC. Vulnerable child syndrome, parental perception of child vulnerability, and emergency department usage. Pediatr Emerg Care. 2011;27(11):1009-1013.
26. Whittemore R, Knafl K. The integrative review: updated methodology. J Adv Nurs. 2005;52(5):546-553.
27. Able-Boone H, Stevens E. After the intensive care nursery experience: families perceptions of their well being. Child Health Care. 1994;23(2):99-114.
28. Griffin JB, Pickler RH. Hospital to home transition of mothers of preterm infants. MCN Am J Matern Child Nurs. 2011;36(4):252-257.
29. Hutchinson SW, Spillett MA, Cronin M. Parents experiences during their infants transition from neonatal intensive care unit to home: A qualitative study. Qual Rep. 2012;17(Article 23):1-20.
30. Flacking R, Ewald U, Starrin B. "I wanted to do a good job": experiences of "becoming a mother" and breast-feeding in mothers of very preterm infants after discharge from a neonatal unit. Soc Sci Med. 2007;64(12):2405-2416.
31. McCluskey-Fawcett K, OBrien M, Robinson P, Asay JH. Early transitions for the parents of premature infants: implications for intervention. Infant Mental Health J. 1992;13(2):147-156.
32. Zabielski MT. Recognition of maternal identity in preterm and full-Term mothers. Matern Child Nurs J. 1994;22(1):2-36.
33. Brandon DH, Tully KP, Silva SG, et al. Emotional responses of mothers of late preterm and term infants. J Obstet Gynecol Neonatal Nurs. 2011;40(6):719-731.
34. Phillips-Pula L, Pickler R, McGrath JM, Brown LF, Dusing SC. Caring for a preterm infant at home: A mothers perspective. J Perinatal Neonat Nurs. 2013;27(4):335-344.
35. Miles MS, Holditch-Davis D. Compensatory parenting: how mothers describe parenting their 3 year old, prematurely born children. J Pediatr Nurs. 1995;10(4):243-253.
36. Brachfeld S, Goldberg S, Sloman J. Parent-infant interaction in free play at 8 and 12 months: effects of prematurity and immaturity. Infant Behav Dev. 1980;3(4):289-305.
37. Coppola G, Cassibba R, Costantini A. What can make the difference? Premature birth and maternal sensitivity at 3 months of age: The role of attachment organization, traumatic reaction and babys medical risk. Infant Behav Dev. 2007;30(4):679-684.
38. Davis L, Edwards H, Mohay H. Mother-infant interaction in premature infants at three months after nursery discharge. Int J Nurs Pract. 2003;9:374-381.
39. Harrison MJ, Magill-Evans J. Mother and father interactions over the first year with term and preterm infants. Res Nurs Health. 1996;19(6):451-459.
40. Turner M, Winefield H, Chur-Hansen A. The emotional experiences and supports for parents with babies in a neonatal nursery. Adv Neonat Care. 2013;13(6):438-446.
41. Kenner C, Flandermeyer A, Spangler L, Thornburg P, Spiering D, Kotagal U. Transition from hospital to home for mothers and babies. Neonatal Netw. 1993;12(3):73-77.
42. May KM. Searching for normalcy: mothers caregiving for low birth weight infants. Pediatr Nurs. 1997;23(1):17-20.
43. Voegtline KM, Stifter CA. Late preterm birth, maternal symptomatology, and infant negativity. Infant Behav Dev. 2010;33(4):545-554.
44. Garel M, Dardennes M, Blondel B. Mothers psychological distress 1 year after very preterm childbirth: results of the EPIPAGE qualitative study. Child Care Health Dev. 2007;33(2):137-143.
45. Brooten D, Gennaro S, Brown LP, et al. Anxiety, depression, and hostility in mothers of preterm infants. Nurs Res. 1988;37(4):213-216.
46. Gennaro S. Postpartal anxiety and depression in mothers of term and preterm infants. Nurs Res. 1988;37(2):82-85.
47. Korja R, Savonlahti E, Haataja L, et al. Attachment representations in mothers of preterm infants. Infant Behav Dev. 2009;32(3):305-311.
48. OBrien M, Asay JH, McCluskey-Fawcett K. Family functioning and maternal depression following premature birth. J Reprod Infant Psychol. 1999;17(2):175-188.
49. Olshtain-Mann O, Auslander GK. Parents of preterm infants two months after discharge from the hospital: Are they still at (parental) risk? Health Soc Work. 2008;33(4):299-308.
50. Veddovi M, Gibson A, Kenny DT, Bowen J, Starte D. Preterm behavior, maternal adjustment, and competencies in the newborn period: what influence do they have at 12 months postnatal age? Infant Mental Health J. 2004;25(6):580-599.
51. Padovani FHP, Carvalho AEV, Duarte G, Martinez FEM, Linhares MBM. Anxiety, dysphoria, and depression symptoms in mothers of preterm infants. Psychol Rep. 2009;104(2):667-679.
52. Garfield CF, Lee Y, Kim HN. Paternal and maternal concerns for their very low-birth-weight infants transitioning from the NICU to home. J Perinat Neonatal Nurs. 2014;28(4): 305-312.
53. Mew AM, Holditch-Davis D, Belyea M, Miles MS, Fishel A. Correlates of depressive symptoms in mothers of preterm infants. Neonatal Netw. 2003;22(5):51-60.
54. Boykova M. Follow up care of premature babies in Russia: evaluating parental experiences and associated services. Infant. 2008;4(4):101-105.
55. Hill PD, Aldag JC. Maternal perceived quality of life following childbirth. J Obstet Gynecol Neonatal Nurs. 2007;36(4):328-334.
56. Lee I, Norr KF, Oh K. Emotional adjustment and concerns of Korean mothers of premature infants. Int J Nurs Stud. 2005;42(1):21-29.
57. Cupoli JM, Gagan RJ, Watkins AH, Bell SF. The shapes of grief . . . parents of a premature infant. J Perinatol. 1986;6(2):123-126.
58. Forcada-Guex M, Borghini A, Pierrehumbert B, Ansermet F, Muller-Nix C. Prematurity, maternal posttraumatic stress and consequences on the mother-infant relationship. Early Hum Dev. 2011;87(1):21-26.
59. Kersting A, Dorsch M, Wesselmann U, et al. Maternal posttraumatic stress response after the birth of a very low-birthweight infant. J Psychosom Res. 2004;57(5):473-476.
60. Mowery BD. Posttraumatic stress disorder (PTSD) in parents: is this a significant problem? Pediatr Nurs. 2011; 37(2):89-92.
61. Shaw RJ, Bernard RS, Deblois T, Ikuta LM, Ginzburg K, Koopman C. The relationship between acute stress disorder and posttraumatic stress disorder in the neonatal intensive care unit. Psychosomatics. 2009;50(2):131-137.
62. Minde K, Perrotta M, Marton P. Maternal caretaking and play with full-Term and premature infants. J Child Psychol Psychiat. 1985;26(2):231-244.
63. Murdoch MR, Franck LS. Gaining confidence and perspective: A phenomenological study of mothers lived experiences caring for infants at home after neonatal unit discharge. J Adv Nurs. 2011;68(9):2008-2020.
64. Feeley N, Gottlieb L, Zelkowitz P. Infant, mother, and contextual predictors of mother very low-birth-weight infant interaction at 9 months of age. J Dev Behav Pediatr. 2005;26(1):24-33.
65. Vasquez E. Creating paths: living with a very lowbirth-weight infant. J Obstet Gynecol Neonatal Nurs. 1995;24(7):619-624.
66. May KM, Hu J. Caregiving and help seeking by mothers of low-birth-weight infants and mothers of normal birth-weight infants. Public Health Nurs. 2000;17(4):273-279.
67. Williams PD, Williams AR. Transition from hospital to home by mothers of preterm infants: path analysis results over three time periods. Fam Syst Health. 1997;15(4):429-446.
68. Wakely LT, Rae K, Cooper R. Stoic survival: The journey of parenting a premature infant in the bush. Rural Remote Health. 2010;10(3):1-10.
69. Weiss SJ, Chen JL. Factors influencing maternal mental health and family functioning during the low-birth-weight infants first year of life. J Pediatr Nurs. 2002;17(2):114-125.
70. Gennaro S. Preterm low-birth-weight infants: health and family outcomes. Fam Commun Health. 1995;17(4):12-21.
71. Affleck G, Tennen H, Rowe J, Roscher B, Walker L. Effects of formal support on mothers adaptation to the hospital to home transition of high-risk infants: The benefits and costs of helping. Child Dev. 1989;60(2):488-501.
72. Affleck G, Tennen H, Allen D, Gershman K. Perceived social support and maternal adaptation during transition from hospital to home care of high-risk infants. Infant Mental Health J. 1986;7(1):6-18.
73. Crnic KA, Greenberg MT, Ragozin AS, Robinson NM, Basham RB. Effects of stress and social support on mothers and premature and full-Term infants. Child Dev. 1983;54(1):209-217.
74. Zahr L. Correlates of mother-infant interaction in premature infants from low socioeconomic backgrounds. Pediatr Nurs. 1991;17(3):259-264.
75. Odom SL, Chandler L. Transition to parenthood for parents of technology-Assisted infants. Top Early Child Spec Educ. 1990;9(4):43-54.
76. Pearl LF, Brown W, Myers M. Transition from neonatal intensive care unit: putting it all together in the community. Infants Young Child. 1990;3(1):41-50.
77. Bruder MB, Cole M. Critical elements of transition from NICU to home and follow-up. Child Health Care. 1991;20(1):40-49.
78. Boonmee J, Pickler RH. Transition of preterm infants from hospital to home. Neonatal Intensive Care. 2005;18(8): 22-25.
79. Boykova M, Kenner C. Transition from hospital to home for parents of preterm infants. J Perinatal Neonatal Nurs. 2012;26(1):81-87.
80. Bruder MB, Walker L. Discharge planning: hospital to home transitions for infants. Top Early Child Spec Educ. 1990;9(4):26-42.
81. Griffin T, Abraham M. Transition to home from the newborn intensive care unit: Applying the principles of familycentered care to the discharge process. J Perinat Neonat Nurs. 2006;20(3):243-249.
82. Howard-Glenn L. Transition to home: discharge planning for the oxygen-dependent infant with bronchopulmonary dysplasia. J Perinat Neonat Nurs. 1992;6(2):85-94.
83. Kenner C, Lott JW. Parent transition after discharge from the NICU. Neonatal Netw. 1990;9(2):31-37.
84. Marcellus L. Foster families who care for infants with prenatal drug exposure: support during the transition from NICU to home. Neonatal Netw. 2004;23(6):33-41.
85. McKim E, Kenner C, Flandermeyer A, Spangler L, Darling-Thornburg P, Spiering K. The transition to home for mothers of healthy and initially ill newborn babies. Midwifery. 1995;11(4):184-194.
86. Miles MS, Holditch-Davis D. Parenting the prematurely born child: pathways of influence. Semin Perinatol. 1997;21(3):254-266.
87. Lopez GL, Anderson KH, Feutchinger J. Transition of premature infants from hospital to home life. Neonatal Netw. 2012;31(4):207-214.
88. Schappin R, Wijnroks L, Uniken Venema MM, Jongmans MJ. Rethinking stress in parents of preterm infants: A metaanalysis. PLoS One. 2013;8(2):e54992.
89. Thomas KA, Renaud MT, Depaul D. Use of the Parenting Stress Index in mothers of preterm infants. Adv Neonat Care. 2004;4(1):33-41.
90. Enlow E, Herbert SL, Jovel IJ, Lorch SA, Anderson C, Chamberlain LJ. Neonatal intensive care unit to home: The transition from parent and pediatrician perspectives, a prospective cohort study. J Perinatol. 2014;34(10):761-766.
91. Miles MS, Funk SG, Kasper MA. The stress response of mothers and fathers of preterm infants. Res Nurs Health. 1992;15(4):261-269.
92. Gross D, Rocissano L, Roncoli M. Maternal confidence during toddlerhood: comparing preterm and full-Term groups. Res Nurs Health. 1989;12(1):1-9.
93. Maguire CM, Bruil J, Wit JM, Walther FJ. Reading preterm infants behavioral cues: An intervention study with parents of premature infants born Reading preterm infants behavioral cues: An intervention study with parents of premature infants born < 32 weeks, Early Hum Dev, 2007, 83, 7, 419-424
94. Olafsen KS, RØNning JA, Bredrup Dahl L, Ulvund SE, HandegA° Rd BH, Kaaresen PI. Infant responsiveness and maternal confidence in the neonatal period. Scand J Psychol. 2007;48(6):499-509.
95. Borghini A, Pierrehumbert B, Miljkovitch R, Muller-Nix C, Forcada-Guex M, Ansermet F. Mothers attachment representations of their premature infant at 6 and 18 months after birth. Infant Mental Health J. 2006;27(5):494-508.
96. Muller-Nix C, Forcada-Guex M, Pierrehumbert B, Jaunin L, Borghini A, Ansermet F. Prematurity, maternal stress and mother-child interactions. Early Hum Dev. 2004;79(2):145-158.
97. Vigod SN, Villegas L, Dennis CL, Ross LE. Prevalence and risk factors for postpartum depression among women with preterm and low-birth-weight infants: A systematic review. BJOG. 2010;117(5):540-550.
98. Beck CT. The effects of postpartum depression on maternalinfant interaction: A meta-Analysis. Nurs Res. 1995;44(5): 298-304.
99. Holditch-Davis D, Bartlett TR, Blickman AL, Miles MS. Posttraumatic stress symptoms in mothers of premature infants. J Obstet Gynecol Neonatal Nurs. 2003;32(2):161-171.
100. Zelkowitz P, Bardin C, Papageorgiou A. Anxiety affects the relationship between parents and their very lowbirth-weight infants. Infant Mental Health J. 2007;28(3): 296-313.
101. Zelkowitz P, Papageorgiou A, Bardin C, Wang T. Persistent maternal anxiety affects the interaction between mothers and their very low-birth-weight children at 24 months. Early Hum Dev. 2009;85(1):51-58.
102. Miles MS, Holditch-Davis D, Schwartz TA, Scher M. Depressive symptoms in mothers of prematurely born infants. J Dev Behav Pediatr. 2007;28(1):36-44.
103. Poehlmann J, Schwichtenberg AJ, Bolt D, Dilworth-Bart J. Predictors of depressive symptom trajectories in mothers of preterm or low-birth-weight infants. J Fam Psychol. 2009;23(5):690-704.
104. Pritchard MA, Colditz PB, Cartwright D, Gray PH, Tudehope D, Beller E. Six-week postnatal depression predicts parenting stress profiles in mothers of preterm children. J Reprod Infant Psychol. 2012;30(3):303-311.
105. Allen EC, Manuel JC, Legault C, Naughton MJ, Pivor C, OShea TM. Perception of child vulnerability among mothers of former premature infants. Pediatrics. 2004;113(2):267-273.
106. Stern M, Karraker K, McIntosh B, Moritzen S, Olexa M. Prematurity stereotyping and mothers interactions with their premature and full-Term infants during the first year. J Pediatr Psychol. 2006;31(6):597-607.
107. De Ocampo AC, Macias MM, Saylor CF, Katikaneni LD. Caretaker perception of child vulnerability predicts behavior problems in NICU graduates. Child Psychiatr Hum Dev. 2003;34(2):83-96.
108. Feeley CA, Turner-Henson A, Christian BJ, et al. Sleep quality, stress, caregiver burden, and quality of life in maternal caregivers of young children with bronchopulmonary dysplasia. J Pediatr Nurs. 2014;29(1):29-38.
109. McManus B, Poehlmann J. Maternal depression and perceived social support as predictors of cognitive function trajectories during the first 3 years of life for preterm infants in Wisconsin. Child Care Health Dev. 2011;38(3):425-434.
110. Hummel P, Eastman DL. Do parents of preterm infants suffer chronic sorrow? Neonatal Netw. 1991;10(4):59-65.
111. Golish TD, Powell KA. "Ambiguous loss": managing the dialectics of grief associated with premature birth. J Soc Pers Relationsh. 2003;20(3):309-334.
112. Shah PE, Clements M, Poehlmann J. Maternal resolution of grief after preterm birth: implications for infant attachment security. Pediatrics. 2011;127(2):284-292.
113. Whittingham K, Boyd R, Sanders M, Colditz P. Parenting and prematurity: Understanding parent experience and preferences for support. J Child Fam Stud. 2014;23(6): 1050-1061.
114. Fraley AM. Chronic sorrow in parents of premature children. Child Health Care. 1986;15(2):114-118.
115. Hynan MT, Mounts KO, Vanderbilt DL. Screening parents of high-risk infants for emotional distress: rationale and recommendations. J Perinatol. 2013;33(10):748-753.
116. Beck CT, Gable RK, Sakala C, Declercq ER. Postpartum depressive symptomatology: results from a two-stage US national survey. J Midwifery Womens Health. 2011;56(5): 427-435.
117. Stock A, Chin L, Babl FE, Bevan CA, Donath S, Jordan B. Postnatal depression in mothers bringing infants to the emergency department. Arch Dis Child. 2012.
118. Tien C-L, Peterson CA, Shelley MC. Postdischarge service use by families of neonatal intensive care unit graduates. J Early Intervent. 2002;25(1):42-57.
119. Crnic KA, Greenberg MT, Slough NM. Early stress and social support influences on mothers and high-risk infants functioning in late infancy. Infant Mental Health J. 1986;7(1): 19-33.
120. Leonard BJ, Scott SA, Sootsman J. A home-monitoring program for parents of premature infants: A comparative study of the psychological effects. J Dev Behav Pediatr. 1989;10(2):92-97.
121. Pal S, Alpay L, Steenbrugge G, Detmar S. An exploration of parents experiences and empowerment in the care for preterm born children. J Child Fam Stud. 2014;23(6):1081-1089.
122. Peacock JJ. Discharge summary for medically complex infants transitioning to primary care. Neonatal Netw. 2014;33(4):204-207.
123. Smith VC, Dukhovny D, Zupancic JA, Gates HB, Pursley DM. Neonatal intensive care unit discharge preparedness: primary care implications. Clin Pediatr. 2012, 25: 1-8.
124. Barton LR, Roman LA, Fitzgerald HE, McKinney MH. Informal social support characteristics and utilization of parenting support services among low-income African American mothers of premature infants. Infant Mental Health J. 2002;23(3):278-292.
125. Meck NE, Fowler SA, Claflin K, Rasmussen LB. Mothers perceptions of their NICU experience 1 and 7 months after discharge. J Early Intervent. 1995;19(4):288-301.
126. Goodman JR, Sauve RS. High-risk infant: concerns of the mother after discharge. Birth. 1985;12(4):235-242.
127. Spiegler J, Schlaud M, König IR, et al. Very low-birth-weight infants after discharge: what do parents describe? EarlyHum Dev. 2013;89(5):343-347.
128. Gennaro S, Zukowsky K, Brooten D, Lowell L, Visco A. Concerns of mothers of low-birth-weight infants. Pediatr Nurs. 1990;16(5):459-462.
129. Mello DF, Rocha SM, Scochi CG, Lima RA. Brazilian mothers experiences of home care for their low-birth-weight infants. Neonatal Netw. 2002;21(1):30-34.
130. Callen J, Pinelli J, Atkinson S, Saigal S. Qualitative analysis of barriers to breast-feeding in very low-birth-weight infants in the hospital and postdischarge. Adv Neonat Care. 2005;5(2):93-103.
131. Kavanaugh K, Mead L, Meier P, Mangurten HH. Getting enough: mothers concerns about breast-feeding a preterm infant after discharge. J Obstet Gynecol Neonatal Nurs. 1995;24(1):23-32.
132. Pridham K, Saxe R, Limbo R. Feeding issues for mothers of very low-birth-weight, premature infants through the first year. J Perinat Neonatal Nurs. 2004;18(2):161-169.
133. Wheeler BJ. Human-milk feeding after NICU discharge. Neonatal Netw. 2009;28(6):381-389.
134. Wooldridge J, Hall WA. Posthospitalization breast-feeding patterns of moderately preterm infants. J Perinat Neonatal Nurs. 2003;17(1):50-64.
135. Jones L, Rowe J, Becker T. Appraisal, coping, and social support as predictors of psychological distress and parenting efficacy in parents of premature infants. Child Health Care. 2009;38(4):245-262.
136. Pridham K, Lin CY, Brown R. Mothers evaluation of their caregiving for premature and full-Term infants through the first year: contributing factors. Res Nurs Health. 2001; 24(3):157-169.
137. Ruttenberg WB, Finello KM, Cordeiro AK. Interactions between depressed and nondepressed Latina mothers and their premature infants. Infant Mental Health J. 1997; 18(4):364-377.
138. Gray PH, Edwards DM, OCallaghan MJ, Cuskelly M. Parenting stress in mothers of preterm infants during early infancy. Early Hum Dev. 2012;88(1):45-49.
139. Samra HA, McGrath JM, Wey H. Are former late preterm children at risk for child vulnerability and overprotection? Early Hum Dev. 2010;86(9):557-562.
140. Amankwaa LC, Pickler RH, Boonmee J. Maternal responsiveness in mothers of preterm infants. Newborn Infant Nurs Rev. 2007;7(1):25-30.
141. McKim E. The information and support needs of mothers of premature infants. J Pediatr Nurs. 1993;8(4):233-244.
142. Zarling CL, Hirsch BJ, Landry S. Maternal social networks and mother-infant interactions in full-Term and very low-birth-weight, preterm infants. Child Dev. 1988;59(1): 178-185.
143. Callahan JL, Borja SE, Hynan MT. Modification of the Perinatal PTSD Questionnaire to enhance clinical utility. J Perinatol. 2006;26(9):533-539.
144. Watt J, Strongman KT. Mother-infant interactions at 2 and 3 months in preterm, small-for-gestational-Age, and full-Term infants; their relationship with cognitive development at 4 months. Early Hum Dev. 1985;11(3-4):231-246.
145. Miles MS, Holditch-Davis D, Burchinal MR, Brunssen S. Maternal role attainment with medically fragile infants: part 1. Measurement and correlates during the first year of life. Res Nurs Health. 2011;34(1):20-34.
146. Boukidis Z. The NET-HELP: A Measure of Social Support. Women and Infants. Providence, RI: University of Rhode Island; 1983.