메뉴 건너뛰기




Volumn 13, Issue 6, 2016, Pages 563-574

The googlization of health research: from disruptive innovation to disruptive ethics

Author keywords

23andMe; Baseline study; Big data; Data intensive medicine; Ethical issues; Google genomics; Health apps; Privacy; Researchkit

Indexed keywords

ANONYMIZATION; DATA COLLECTION METHOD; HUMAN; INFORMED CONSENT; INTERNET; MEDICAL ETHICS; MEDICAL INFORMATICS; MEDICAL RESEARCH; MOBILE APPLICATION; ONLINE SYSTEM; PRIORITY JOURNAL; PRIVACY; QUALITY CONTROL; REVIEW; RISK BENEFIT ANALYSIS; SOCIAL MEDIA;

EID: 84994559161     PISSN: 17410541     EISSN: 1744828X     Source Type: Journal    
DOI: 10.2217/pme-2016-0057     Document Type: Review
Times cited : (118)

References (88)
  • 1
    • 84889836729 scopus 로고    scopus 로고
    • Can mobile health technologies transform health care?
    • Steinhubl SR, Muse ED, Topol EJ. Can mobile health technologies transform health care? JAMA 310(22), 2395-2396 (2013).
    • (2013) JAMA , vol.310 , Issue.22 , pp. 2395-2396
    • Steinhubl, S.R.1    Muse, E.D.2    Topol, E.J.3
  • 3
    • 84991768872 scopus 로고    scopus 로고
    • The quantified self: Fundamental disruption in big data science and biological discovery
    • Swan M. The quantified self: fundamental disruption in big data science and biological discovery. Big Data 1(2), 85-98 (2013).
    • (2013) Big Data , vol.1 , Issue.2 , pp. 85-98
    • Swan, M.1
  • 4
    • 84994672898 scopus 로고    scopus 로고
    • Wearables in clinical trials: An active interest?
    • Byrom B. Wearables in clinical trials: An active interest? Applied Clinical Trials. www.appliedclinicaltrialsonline.com.
    • Applied Clinical Trials
    • Byrom, B.1
  • 5
    • 84994662490 scopus 로고    scopus 로고
    • Wearables: Where is clinical development headed next?
    • Wolfram T. Wearables: Where is clinical development headed next? Applied Clinical Trials. www.appliedclinicaltrialsonline.com/print.
    • Applied Clinical Trials
    • Wolfram, T.1
  • 6
    • 85032291861 scopus 로고    scopus 로고
    • NIH's 1-million-volunteer precision medicine study announces first pilot projects
    • Kaiser J. NIH's 1-million-volunteer precision medicine study announces first pilot projects. Science. www.sciencemag.org/news/2016.
    • Science
    • Kaiser, J.1
  • 7
    • 84911448670 scopus 로고    scopus 로고
    • Population and personalized medicine in the modern era
    • Mega JL, Sabatine MS, Antman EM. Population and personalized medicine in the modern era. JAMA 312, 1969-1970 (2014).
    • (2014) JAMA , vol.312 , pp. 1969-1970
    • Mega, J.L.1    Sabatine, M.S.2    Antman, E.M.3
  • 8
    • 84946230924 scopus 로고    scopus 로고
    • Mobile data: Made to measure
    • Savage N. Mobile data: made to measure. Nature 527(7576), S12-S13 (2015).
    • (2015) Nature , vol.527 , Issue.7576 , pp. S12-S13
    • Savage, N.1
  • 11
    • 84971500469 scopus 로고    scopus 로고
    • Emerging ethical issues regarding digital health data: On the World Medical Association draft declaration on ethical considerations regarding health databases and biobanks
    • Aicardi C, Del Savio, L, Dove ES, Lucivero F, Tempini N, Prainsack B. Emerging ethical issues regarding digital health data: on the World Medical Association draft declaration on ethical considerations regarding health databases and biobanks. Croat. Med. J. 57(2), 207-213 (2016).
    • (2016) Croat. Med. J. , vol.57 , Issue.2 , pp. 207-213
    • Aicardi, C.1    Dove, E.S.2    Lucivero, F.3    Tempini, N.4    Prainsack, B.5    Del Savio, L.6
  • 13
    • 84869456683 scopus 로고    scopus 로고
    • Health research with novel uses of online data
    • Vayena E, Mastroianni A, Kahn J. Health research with novel uses of online data. Am. J. Public Health 102(12), 2225-2230 (2012).
    • (2012) Am. J. Public Health , vol.102 , Issue.12 , pp. 2225-2230
    • Vayena, E.1    Mastroianni, A.2    Kahn, J.3
  • 15
    • 84994604322 scopus 로고    scopus 로고
    • Apple taps 23andMe to bring genetic data into ResearchKit
    • Comstock J. Apple taps 23andMe to bring genetic data into ResearchKit. MobiHealthNews. www.mobihealthnews.com/content.
    • MobiHealthNews
    • Comstock, J.1
  • 16
    • 84994562082 scopus 로고    scopus 로고
    • Power of one million
    • Power of one million. The 23andMe Blog. http://blog.23andme.com/news/one-in-A-million/.
    • The 23andMe Blog
  • 17
    • 84929202578 scopus 로고    scopus 로고
    • Google's new moonshot project: The human body
    • Barr A. Google's new moonshot project: The human body. The Wall Street Journal. www.wsj.com/articles.
    • The Wall Street Journal
    • Barr, A.1
  • 18
    • 84994667457 scopus 로고    scopus 로고
    • Google wants to store your genome
    • Regalado A. Google wants to store your genome. MIT Technology Review. www.technologyreview.com/news.
    • MIT Technology Review
    • Regalado, A.1
  • 19
    • 84994562086 scopus 로고    scopus 로고
    • Google Cloud Platform
    • Google Cloud Platform. Pricing. https://cloud.google.com/genomics/pricing.
    • Pricing
  • 20
    • 84994601417 scopus 로고    scopus 로고
    • National Cancer Institute
    • National Cancer Institute. NCI Cancer Genomics Cloud pilots. https://cbiit.nci.nih.gov/ncip.
    • NCI Cancer Genomics Cloud Pilots
  • 21
    • 84955356975 scopus 로고    scopus 로고
    • Thanks to Apple, 11, 000 people signed up for a heart disease study in one day
    • Bort J. Thanks to Apple, 11, 000 people signed up for a heart disease study in one day. Business Insider. http://uk.businessinsider.com.
    • Business Insider
    • Bort, J.1
  • 22
  • 25
    • 84994646703 scopus 로고    scopus 로고
    • Google Genomics and Broad Institute team up to tackle genomic data
    • Google
    • Google. Google Genomics and Broad Institute team up to tackle genomic data. Google Cloud Platform Blog. https://cloudplatform.googleblog.com/2015.
    • Google Cloud Platform Blog
  • 27
    • 84928171959 scopus 로고    scopus 로고
    • The big medical data miss: Challenges in establishing an open medical resource
    • Topol EJ. The big medical data miss: challenges in establishing an open medical resource. Nat. Rev. Genet. 16(5), 253-254 (2015).
    • (2015) Nat. Rev. Genet. , vol.16 , Issue.5 , pp. 253-254
    • Topol, E.J.1
  • 28
    • 84929645967 scopus 로고    scopus 로고
    • The ethics of big data: Current and foreseeable issues in biomedical contexts
    • Mittelstadt BD, Floridi L. The ethics of big data: current and foreseeable issues in biomedical contexts. Sci. Eng. Ethics 22(2), 303-341 (2015).
    • (2015) Sci. Eng. Ethics , vol.22 , Issue.2 , pp. 303-341
    • Mittelstadt, B.D.1    Floridi, L.2
  • 29
    • 84979578312 scopus 로고    scopus 로고
    • Stop the privatization of health data
    • Wilbanks JT, Topol EJ. Stop the privatization of health data. Nature 535(7612), 345-348 (2016).
    • (2016) Nature , vol.535 , Issue.7612 , pp. 345-348
    • Wilbanks, J.T.1    Topol, E.J.2
  • 30
    • 84994667521 scopus 로고    scopus 로고
    • New project to create mHealth ethics for clinical trials
    • Wicklund E. New project to create mHealth ethics for clinical trials. mHealth Intelligence. http://mhealthintelligence.com/news.
    • MHealth Intelligence
    • Wicklund, E.1
  • 32
    • 84984920956 scopus 로고    scopus 로고
    • Accuracy of wearable devices for estimating total energy expenditure: Comparison with metabolic chamber and doubly labeled water method
    • Murakami H, Kawakami R, Nakae S et al. Accuracy of wearable devices for estimating total energy expenditure: comparison with metabolic chamber and doubly labeled water method. JAMA Intern. Med. 176(5), 702-703 (2016).
    • (2016) JAMA Intern. Med. , vol.176 , Issue.5 , pp. 702-703
    • Murakami, H.1    Kawakami, R.2    Nakae, S.3
  • 33
    • 84994661473 scopus 로고    scopus 로고
    • The struggle for accurate measurements on your wrist
    • Metz R. The struggle for accurate measurements on your wrist. MIT Technology Review. www.technologyreview.com/review.
    • MIT Technology Review
    • Metz, R.1
  • 34
    • 84994605224 scopus 로고    scopus 로고
    • Apple's new researchkit: "Ethics quagmire" or medical research aid?
    • Duhaime-Ross A. Apple's new ResearchKit: "Ethics quagmire" or medical research aid? The Verge. www.theverge.com/2015.
    • The Verge
    • Duhaime-Ross, A.1
  • 35
    • 84938931778 scopus 로고    scopus 로고
    • Apple's ResearchKit: Smart data collection for the smartphone era?
    • Jardine J, Fisher J, Carrick B. Apple's ResearchKit: smart data collection for the smartphone era? J. R. Soc. Med. 108(8), 294-296 (2015).
    • (2015) J. R. Soc. Med. , vol.108 , Issue.8 , pp. 294-296
    • Jardine, J.1    Fisher, J.2    Carrick, B.3
  • 37
    • 84994621577 scopus 로고    scopus 로고
    • Are medical researchers passing the buck on porting ResearchKit to Android?
    • Pai A. Are medical researchers passing the buck on porting ResearchKit to Android? MobiHealthNew. http://mobihealthnews.com/47657.
    • MobiHealthNew
    • Pai, A.1
  • 39
    • 84994646792 scopus 로고    scopus 로고
    • Characteristics of an online consumer genetic research cohort
    • Tung JY, Eriksson N, Kiefer AK et al. Characteristics of an online consumer genetic research cohort. 23andme. http://blog.23andme.com/wp-content.
    • 23andme
    • Tung, J.Y.1    Eriksson, N.2    Kiefer, A.K.3
  • 41
    • 84856644365 scopus 로고    scopus 로고
    • Introduction: Making sense of data-driven research in the biological and biomedical sciences
    • Leonelli S. Introduction: making sense of data-driven research in the biological and biomedical sciences. Stud Hist Philos. Biol. Biomed. Sci. 43(1), 1-3 (2012).
    • (2012) Stud Hist Philos. Biol. Biomed. Sci. , vol.43 , Issue.1 , pp. 1-3
    • Leonelli, S.1
  • 42
    • 84892154560 scopus 로고    scopus 로고
    • The hidden biases in big data
    • Crawford K. The hidden biases in big data. Harvard Business Review. https://hbr.org/2013/04/the-hidden-biases-in-big-data.
    • Harvard Business Review
    • Crawford, K.1
  • 43
    • 84921495826 scopus 로고    scopus 로고
    • Big data and its exclusions
    • Lerman J. Big data and its exclusions. Stan. L. Review Online 66(55), 55-63 (2013).
    • (2013) Stan. L. Review Online , vol.66 , Issue.55 , pp. 55-63
    • Lerman, J.1
  • 44
    • 85011585116 scopus 로고    scopus 로고
    • Critiquing big data: Politics, ethics, epistemology
    • Crawford K, Miltner K, Gray ML. Critiquing big data: politics, ethics, epistemology. Int. J. Commun. 8, 1663-1672 (2014).
    • (2014) Int. J. Commun. , vol.8 , pp. 1663-1672
    • Crawford, K.1    Miltner, K.2    Gray, M.L.3
  • 45
    • 84872459720 scopus 로고    scopus 로고
    • Identifying personal genomes by surname inference
    • Gymrek M, McGuire AL, Golan D et al. Identifying personal genomes by surname inference. Science 339(6117), 321-324 (2013).
    • (2013) Science , vol.339 , Issue.6117 , pp. 321-324
    • Gymrek, M.1    McGuire, A.L.2    Golan, D.3
  • 46
    • 84908432382 scopus 로고    scopus 로고
    • Computing ethics big data's end run around procedural privacy protections
    • Barocas S, Nissenbaum H. Computing ethics big data's end run around procedural privacy protections. Commun. AMC 57(11), 31-33 (2014).
    • (2014) Commun. AMC , vol.57 , Issue.11 , pp. 31-33
    • Barocas, S.1    Nissenbaum, H.2
  • 47
    • 84939980834 scopus 로고    scopus 로고
    • The lifestylisation of healthcare? "Consumer genomics" and mobile health as technologies for healthy lifestyle
    • Lucivero F, Prainsack B. The lifestylisation of healthcare? "Consumer genomics" and mobile health as technologies for healthy lifestyle. Appl. Transl. Genomics 4, 44-49 (2015).
    • (2015) Appl. Transl. Genomics , vol.4 , pp. 44-49
    • Lucivero, F.1    Prainsack, B.2
  • 49
    • 85000935200 scopus 로고    scopus 로고
    • Who knows what about me? a survey of behind the scenes personal data sharing to third parties by mobile apps
    • Zang J, Dummit K, Graves J, Lisker P, Sweeney L. Who knows what about me? a survey of behind the scenes personal data sharing to third parties by mobile apps. Technology Science. http://techscience.org/a/2015103001/.
    • Technology Science
    • Zang, J.1    Dummit, K.2    Graves, J.3    Lisker, P.4    Sweeney, L.5
  • 51
    • 85007073756 scopus 로고    scopus 로고
    • For google fit, your health data could be lucrative
    • Olson P. For Google Fit, your health data could be lucrative. Forbes. www.forbes.com/sites/parmyolson/2014/06.
    • Forbes
    • Olson, P.1
  • 53
    • 80053267657 scopus 로고    scopus 로고
    • A contextual approach to privacy online
    • Nissenbaum H. A contextual approach to privacy online. Daedalus 140, 32-48 (2011).
    • (2011) Daedalus , vol.140 , pp. 32-48
    • Nissenbaum, H.1
  • 54
    • 84963544832 scopus 로고    scopus 로고
    • First, design for data sharing
    • Wilbanks J, Friend SH. First, design for data sharing. Nat. Biotechnol. 34(4), 377-379 (2016).
    • (2016) Nat. Biotechnol , vol.34 , Issue.4 , pp. 377-379
    • Wilbanks, J.1    Friend, S.H.2
  • 55
    • 84994667544 scopus 로고    scopus 로고
    • Did Google's NHS patient data deal need ethical approval?
    • Hodson H. Did Google's NHS patient data deal need ethical approval? New Scientist. www.newscientist.com/article.
    • New Scientist
    • Hodson, H.1
  • 56
    • 84994604094 scopus 로고    scopus 로고
    • UK healthcare products regulator in talks with Google/deepmind over its streams app
    • Lomas N. UK healthcare products regulator in talks with Google/DeepMind over its Streams app. TechCrunch. https://techcrunch.com/2016/05/18.
    • TechCrunch
    • Lomas, N.1
  • 57
    • 79551606008 scopus 로고    scopus 로고
    • Reconsidering the value of consent in biobank research
    • Allen J, McNamara B. Reconsidering the value of consent in biobank research. Bioethics 25(3), 155-166 (2011).
    • (2011) Bioethics , vol.25 , Issue.3 , pp. 155-166
    • Allen, J.1    McNamara, B.2
  • 58
    • 84876069345 scopus 로고    scopus 로고
    • Bringing patient data into the open
    • Kotz J. Bringing patient data into the open. SciBX 5(25). www.nature.com/scibx/journal/v5/n25.
    • SciBX , vol.5 , Issue.25
    • Kotz, J.1
  • 61
    • 85046571787 scopus 로고    scopus 로고
    • Digital health consumer adoption: 2015
    • Gandhi M. Wang T. Digital Health Consumer Adoption: 2015. Rock Health. https://rockhealth.com/reports.
    • Rock Health
    • Gandhi, M.W.T.1
  • 62
    • 84994638231 scopus 로고    scopus 로고
    • Tech companies are not trusted with health data
    • Regalado A. Tech companies are not trusted with health data. MIT Technology Review. www.technologyreview.com/news/543536.
    • MIT Technology Review
    • Regalado, A.1
  • 63
    • 84900423114 scopus 로고    scopus 로고
    • The powers of participatory medicine
    • Prainsack B. The powers of participatory medicine. PLoS Biol. 12(4), e1001837 (2014).
    • (2014) PLoS Biol. , vol.12 , Issue.4 , pp. e1001837
    • Prainsack, B.1
  • 64
    • 84874549420 scopus 로고    scopus 로고
    • The gift of spit (and the obligation to return it): How consumers of online genetic testing services participate in research
    • Harris A, Wyatt S, Kelly SE. The gift of spit (and the obligation to return it): how consumers of online genetic testing services participate in research. Inf. Commun. Soc. 16(2), 236-257 (2013).
    • (2013) Inf. Commun. Soc. , vol.16 , Issue.2 , pp. 236-257
    • Harris, A.1    Wyatt, S.2    Kelly, S.E.3
  • 65
    • 84994661683 scopus 로고    scopus 로고
    • IBM strikes digital health deal with Apple, Medtronic and J&J
    • Crow D. IBM strikes digital health deal with Apple, Medtronic and J&J. Financial Times. www.ft.com/cms/s/0.
    • Financial Times
    • Crow, D.1
  • 66
    • 84892563195 scopus 로고    scopus 로고
    • The Royal Society
    • Science as an Open Enterprise. The Royal Society. https://royalsociety.org//media/policy.
    • Science as An Open Enterprise
  • 67
    • 84994667549 scopus 로고    scopus 로고
    • Science International
    • Open Data in a Big Data World. Science International. www.icsu.org/science-international/accord.
    • Open Data in a Big Data World
  • 68
    • 84994646820 scopus 로고    scopus 로고
    • Europe is wrong to take a sledgehammer to big Google
    • Morozov E. Europe is wrong to take a sledgehammer to big Google. Financial Times. www.ft.com/cms/s/0.
    • Financial Times
    • Morozov, E.1
  • 69
    • 84994661485 scopus 로고    scopus 로고
    • Google's biotech venture hit by ethical concerns over deal with luxury clinic
    • Piller C. Google's biotech venture hit by ethical concerns over deal with luxury clinic. STAT. www.statnews.com/2016/04/07.
    • STAT
    • Piller, C.1
  • 70
    • 84955730133 scopus 로고    scopus 로고
    • Surprise! With $60 million Genentech deal, 23andMe has a business plan
    • Herper M. Surprise! With $60 million Genentech deal, 23andMe has a business plan. Forbes. www.forbes.com/sites/matthewherper/2015.
    • Forbes
    • Herper, M.1
  • 72
    • 84994621660 scopus 로고    scopus 로고
    • 23andMe lands $1.4 million grant from NIH to detect genetic roots for disease
    • Farr C. 23andMe lands $1.4 million grant from NIH to detect genetic roots for disease. Reuters. www.reuters.com/article/us-healthcare.
    • Reuters
    • Farr, C.1
  • 73
    • 84857097124 scopus 로고    scopus 로고
    • Sociology of science: Big data deserve a bigger audience
    • Huberman BA. Sociology of science: big data deserve a bigger audience. Nature 482(7385), 308 (2012).
    • (2012) Nature , vol.482 , Issue.7385 , pp. 308
    • Huberman, B.A.1
  • 74
    • 84947329518 scopus 로고    scopus 로고
    • Why biomedical superstars are signing on with Google
    • Check Hayden E. Why biomedical superstars are signing on with Google. Nature 526(7574), 484-485 (2015).
    • (2015) Nature , vol.526 , Issue.7574 , pp. 484-485
    • Check, H.E.1
  • 75
    • 85018198078 scopus 로고    scopus 로고
    • Why America's top mental health researcher joined Alphabet
    • Regalado A. Why America's top mental health researcher joined Alphabet. MIT Technology Review. www.technologyreview.com/news/541446.
    • MIT Technology Review
    • Regalado, A.1
  • 76
    • 84994580269 scopus 로고    scopus 로고
    • Apple is on the hunt for medical tech talent
    • Lee SM. Apple is on the hunt for medical tech talent. BuzzFeed. www.buzzfeed.com/stephaniemlee.
    • BuzzFeed
    • Lee, S.M.1
  • 78
    • 84938879242 scopus 로고    scopus 로고
    • Google X sets out to define healthy human
    • Kaiser J. Google X sets out to define healthy human. Science. www.sciencemag.org/news/2014/07.
    • Science
    • Kaiser, J.1
  • 81
    • 85081912556 scopus 로고    scopus 로고
    • Big data has not revolutionised medicine - we need big theory alongside it
    • Coveney P, Dougherty E. Big data has not revolutionised medicine - we need big theory alongside it. The Conversation. http://theconversation.com/big-data-has-not-revolutionised.
    • The Conversation
    • Coveney, P.1    Dougherty, E.2
  • 82
    • 85011587075 scopus 로고    scopus 로고
    • The theory/data thing
    • Bowker GC. The theory/data thing. Int. J. Commun. 8(2043), 1795-1799 (2014).
    • (2014) Int. J. Commun. , vol.8 , Issue.2043 , pp. 1795-1799
    • Bowker, G.C.1
  • 83
    • 85073682542 scopus 로고    scopus 로고
    • Big data, new epistemologies and paradigm shifts
    • Kitchin R. Big data, new epistemologies and paradigm shifts. Big Data Soc. 1(1), 1-12 (2014).
    • (2014) Big Data Soc , vol.1 , Issue.1 , pp. 1-12
    • Kitchin, R.1
  • 88
    • 84994622815 scopus 로고    scopus 로고
    • Why Google DeepMind wants your medical records
    • Why Google DeepMind wants your medical records. BBC News. www.bbc.com/news/technology-36783521.
    • BBC News


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.