-
1
-
-
0034737962
-
What makes clinical research ethical?
-
Medline:10819955
-
Emanuel EJ, Wendler D, Grady C. What makes clinical research ethical? JAMA. 2000;283:2701-11. Medline:10819955 doi:10.1001/ jama.283.20.2701
-
(2000)
JAMA.
, vol.283
, pp. 2701-2711
-
-
Emanuel, E.J.1
Wendler, D.2
Grady, C.3
-
3
-
-
84908511016
-
-
Brussels:European Commission, April 10. (Cited 2016 Jan 15), Available from, Accessed: March 21, 2016
-
European Commission. A Green Paper on Mobile Health. Brussels:European Commission, 2014 April 10. (Cited 2016 Jan 15). Available from: https://ec.europa.eu/digital-agenda/en/news/green-papermobile-health-mhealth. Accessed: March 21, 2016.
-
(2014)
A Green Paper on Mobile Health
-
-
Commission, E.1
-
4
-
-
84923312450
-
Patient data as medical facts: social media practices as a foundation for medical knowledge creation
-
Kallinikos J, Tempini N. Patient data as medical facts: social media practices as a foundation for medical knowledge creation. Inf Syst Res. 2014;25:817-33. doi:10.1287/isre.2014.0544
-
(2014)
Inf Syst Res
, vol.25
, pp. 817-833
-
-
Kallinikos, J.1
Tempini, N.2
-
5
-
-
84973326781
-
-
London: The Nuffield Council on Bioethics, Available from, Accessed: March 21, 2016
-
Nuffield Council on Bioethics. The collection, linking and use of data in biomedical research and health care: ethical issues. London: The Nuffield Council on Bioethics, 2015. Available from:http://nuffieldbioethics.org/wp-content/uploads/Biological_and_health_data_web.pdf. Accessed: March 21, 2016.
-
(2015)
The collection, linking and use of data in biomedical research and health care: ethical issues
-
-
-
6
-
-
85049314877
-
-
Available from, Accessed: March 21, 2016
-
European Commission. Reform of the EU data protection rules. Available from: http://ec.europa.eu/justice/data-protection/reform/index_en.htm. Accessed: March 21, 2016.
-
Reform of the EU data protection rules
-
-
Commission, E.1
-
7
-
-
84895795015
-
Distortion, confusion, and impasses: could a public dialogue within Knowledge Landscapes contribute to better communication and understanding of innovative knowledge?
-
Medline:24577828
-
Svalastog AL, Allgaier J, Martinelli L, Gajovic S. Distortion, confusion, and impasses: could a public dialogue within Knowledge Landscapes contribute to better communication and understanding of innovative knowledge? Croat Med J. 2014;55:54-60. Medline:24577828 doi:10.3325/cmj.2014.55.54
-
(2014)
Croat Med J.
, vol.55
, pp. 54-60
-
-
Svalastog, A.L.1
Allgaier, J.2
Martinelli, L.3
Gajovic, S.4
-
9
-
-
84929212571
-
-
Cambridge, MA: Harvard University Press
-
Pasquale F. The black box society. Cambridge, MA: Harvard University Press; 2015.
-
(2015)
The black box society
-
-
Pasquale, F.1
-
12
-
-
84909982704
-
Personhood and solidarity: what kind of personalized medicine do we want?
-
Prainsack B. Personhood and solidarity: what kind of personalized medicine do we want? Personalized Medicine. 2014;11:651-7. doi:10.2217/pme.14.49
-
(2014)
Personalized Medicine.
, vol.11
, pp. 651-657
-
-
Prainsack, B.1
-
13
-
-
85027431469
-
Consent and anonymisation: beware binary constructions
-
Medline:25794882
-
Dove ES, Laurie GT. Consent and anonymisation: beware binary constructions. BMJ. 2015;350:h1139. Medline:25794882
-
(2015)
BMJ
, vol.350
, pp. h1139
-
-
Dove, E.S.1
Laurie, G.T.2
-
14
-
-
67651251141
-
Tiered consent and the tyranny of choice
-
Ram N. Tiered consent and the tyranny of choice. Jurimetrics. 2008;•••:253-84.
-
(2008)
Jurimetrics
, pp. 253-284
-
-
Ram, N.1
-
16
-
-
84971514689
-
Foresight Report on Future Medicine
-
Jun 26, Available from, Accessed: March 29, 2016
-
Rose N, Aicardi C, Reinsborough M. Foresight Report on Future Medicine. Deliverable of the Human Brain Project to the European Commission. 2015 Jun 26. Available from: https://www.humanbrainproject.eu/documents/10180/1055011/SP12_D12.1.1_FINAL.pdf/38d69e13-e410-4ffa-8371-88eb447b9082. Accessed: March 29, 2016.
-
(2015)
Deliverable of the Human Brain Project to the European Commission
-
-
Rose, N.1
Aicardi, C.2
Reinsborough, M.3
-
17
-
-
84931306328
-
-
Cambridge, UK: Cambridge University Press
-
Taylor M. Genetic data and the law. Cambridge, UK: Cambridge University Press; 2012.
-
(2012)
Genetic data and the law
-
-
Taylor, M.1
-
18
-
-
84882449721
-
Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?
-
Medline:23299918
-
Steinsbekk KS, Myskja BK, Solberg B. Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem? Eur J Hum Genet. 2013;21:897-902. Medline:23299918 doi:10.1038/ejhg.2012.282
-
(2013)
Eur J Hum Genet.
, vol.21
, pp. 897-902
-
-
Steinsbekk, K.S.1
Myskja, B.K.2
Solberg, B.3
-
19
-
-
84889048941
-
Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent
-
Medline:24283583
-
Stein DT, Terry SF. Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent. Genet Test Mol Biomarkers. 2013;17:855-6. Medline:24283583 doi:10.1089/gtmb.2013.1550
-
(2013)
Genet Test Mol Biomarkers
, vol.17
, pp. 855-856
-
-
Stein, D.T.1
Terry, S.F.2
-
20
-
-
84930617033
-
Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research
-
Medline:25952952
-
Ploug T, Holm S. Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research. BMJ. 2015;350:h2146. Medline:25952952 doi:10.1136/bmj.h2146
-
(2015)
BMJ
, vol.350
, pp. h2146
-
-
Ploug, T.1
Holm, S.2
-
21
-
-
80655141798
-
Broad consent is informed consent
-
Kaye J, Whitley EA, Kanellopoulou N, Creese S, Lund D, Hughes K. Broad consent is informed consent. BMJ. 2011;343:d6900. doi:10.1136/bmj.d6900
-
(2011)
BMJ
, vol.343
, pp. d6900
-
-
Kaye, J.1
Whitley, E.A.2
Kanellopoulou, N.3
Creese, S.4
Lund, D.5
Hughes, K.6
-
24
-
-
84971526001
-
23andMe lands $1.4 million grant from NIH to detect genetic roots for disease
-
Jul 29, EDT, Available from, Accessed: March 21, 2016
-
Farr C, Craft D. 23andMe lands $1.4 million grant from NIH to detect genetic roots for disease. Reuters Technology. Jul 29, 2014 EDT. Available from: http://www.reuters.com/article/2014/07/29/us-healthcare-23andme-idUSKBN0FY2IM20140729#O3I1uRbrlDP2LMh3.99. Accessed: March 21, 2016.
-
(2014)
Reuters Technology.
-
-
Farr, C.1
Craft, D.2
-
25
-
-
85050439351
-
Could DTC genome testing exacerbate research inequities?
-
Jan 20, Available from, Accessed: March 29, 2016
-
Aicardi A, Damjanovicova M, Del Savio L, Lucivero F, Mormina M, Niezen M, et al. Could DTC genome testing exacerbate research inequities? Bioethics Forum of The Hastings Center. 2016 Jan 20. Available from: http://www.thehastingscenter.org/Bioethicsforum/Post.aspx?id=7711&blogid=140. Accessed: March 29, 2016.
-
(2016)
Bioethics Forum of The Hastings Center
-
-
Aicardi, A.1
Damjanovicova, M.2
Del Savio, L.3
Lucivero, F.4
Mormina, M.5
Niezen, M.6
|