Determinants of the Rigor of State Protection Policies for Persons With Dementia in Assisted Living

Journal of Aging and Social Policy

Volumn 29, Issue 2, 2017, Pages 123-142

  Nattinger, Matthew C ^a   Kaskie, Brian ^b  

^a US Government Accountability Office   (United States)

^b UNIVERSITY OF IOWA   (United States)

Author keywords

Assisted living; dementia; patient protection; policy rigor

Indexed keywords

ADVOCACY; INSTITUTIONAL FRAMEWORK; MENTAL HEALTH; POLICY MAKING; QUALITY OF LIFE; SAFETY;

ADMINISTRATIVE PERSONNEL; ASSISTED LIVING FACILITY; DEMENTIA; EDUCATION; GOVERNMENT; HUMAN; LEGISLATION AND JURISPRUDENCE; PATIENT SAFETY; POLITICS; PUBLIC POLICY; QUALITY OF LIFE; STANDARDS;

ADMINISTRATIVE PERSONNEL; ASSISTED LIVING FACILITIES; DEMENTIA; HUMANS; PATIENT SAFETY; POLITICS; PUBLIC POLICY; QUALITY OF LIFE; STATE GOVERNMENT;

EID: 84991030092     PISSN: 08959420     EISSN: 15450821     Source Type: Journal    
DOI: 10.1080/08959420.2016.1236324     Document Type: Article

References (63)

1. Administration for Community Living. (2015). National ombudsman reporting system (NORS) 2000-2013. Aging Integrated Database (AGID). Retrieved from http://www.agid.acl.gov/CustomTables/NORS/Year/
2. Barrilleaux, C. J., & Miller, M. E., (1988). The political economy of state Medicaid policy. The American Political Science Review, 82(4), 1089–1107. doi:10.2307/1961751
3. Berry, F. S., & Berry, W. D., (1990). State lottery adoptions as policy innovations:An event history analysis. The American Political Science Review, 84(2), 395–415. doi:10.2307/1963526
4. Boehmke, F. J., (2008). The subversion of administrative oversight:Campaign contributions and nursing home inspections. Chicago, IL:Department of Political Science, University of Chicago. Retrieved from http://works.bepress.com/frederick_boehmke/22/
5. Bynum, J. P., (2014). The long reach of Alzheimer’s disease:Patients, practice, and policy. Health Affairs (Project Hope), 33, 534–540. doi:10.1377/hlthaff.2013.1247
6. Castle, N. G., Wagner, L. M., Sonon, K., & Ferguson-Rome, J. C., (2012). Measuring administrators’ and direct care workers’ perceptions of the safety culture in assisted living facilities. Journal on Quality and Patient Safety, 38, 375–382.
7. Centers for Medicare and Medicaid Services. (2015). Application for a 1915(c) Home and Community-Based Waiver:Instructions, technical guide and review criteria. Retrieved from http://www.medicaid.gov/medicaid-chip-program-information/by-topics/waivers/downloads/technical-guidance.pdf
8. Centers for Medicare and Medicaid Services. Department of Health and Human Services. (2014). Partnership to improve dementia care in nursing homes:Antipsychotic drug use in nursing homes trend update. Retrieved from http://www.cms.gov/Outreach-and-Education/Outreach/NPC/Downloads/2014-10-27-Trends.pdf
9. Council of State Governments. (1991–2014). The book of the states (Vols 23-46). Lexington, KY:Council of State Governments. Retrieved from http://knowledgecenter.csg.org/kc/category/content-type/content-type/book-states
10. Dale, S., Brown, R., Phillips, B., Schore, J., & Carlson, B. L., (2003). The effects of cash and counseling on personal care services and Medicaid costs in Arkansas. Health Affairs. W3.
11. Dong, X., (2014). Elder abuse:Research, practice, and health policy. The 2012 GSA Maxwell Pollack award lecture. The Gerontologist, 54, 153–162. doi:10.1093/geront/gnt139
12. Estes, C. L., & Linkins, K. W., (1997). Devolution and aging policy:Racing to the bottom in long-term care. International Journal of Health Service s, 27(3), 427–442. doi:10.2190/EPYW-5C8C-F53Y-C1JL
13. Estes, C. L., Zulman, D. M., Goldberg, S. C., & Ogawa, D. D., (2004). State long term care ombudsman programs:Factors associated with perceived effectiveness. The Gerontologist, 44(1), 104–115. doi:10.1093/geront/44.1.104
14. Gostin, L. O., & Wiley, L. F., (2016). Public health law:Power, duty, restraint (3rd ed.). Berkeley:University of California Press.
15. Grabowski, D. C., (2001). Does an increase in the Medicaid reimbursement rate improve nursing home quality? The Journals of Gerontology Series B:Psychological Sciences and Social Sciences, 56(2), S84–S93. doi:10.1093/geronb/56.2.S84
16. Gray, V., (1973). Innovation in the states:A diffusion study. American Political Science Review, 67(04), 1174–1185. doi:10.2307/1956539
17. Harrington, C., Mullan, J. T., & Carrillo, H., (2004). State nursing home enforcement systems. Journal of Health Politics, Policy and Law, 29(1), 43–74. doi:10.1215/03616878-29-1-43
18. Hays, S. P., Esler, M., & Hays, C. E., (1996). Environmental commitment among the states:Integrating alternative approaches to state environmental policy. Publius:The Journal of Federalism, 26(2), 41–58. doi:10.1093/oxfordjournals.pubjof.a029854
19. Hays, S. P., & Glick, H. R., (1997). The Role of Agenda Setting in Policy Innovation An Event History Analysis of Living-Will Laws. American Politics Quarterly, 25(4), 497–516. doi:10.1177/1532673X9702500405
20. Hrebenar, R., & Thomas, C., (1998–2007). Most effective interest groups/organized interests in the fifty states. Unpublished data. Salt Lake City:University of Utah.
21. Imhof, S. L., & Kaskie, B., (2008). Promoting a “Good death”:Determinants of pain-management policies in the united states. Journal of Health Politics, Policy and Law, 33(5), 907–941. doi:10.1215/03616878-2008-024
22. Kaskie, B., Knight, B. G., & Liebig, P. S., (2001). Dementia policy revisited:An analysis of the state laws targeted towards individuals with Alzheimer’s disease and other forms of dementia. Journal of Aging & Social Policy, 12(4), 27–45. doi:10.1300/J031v12n04_02
23. Kaskie, B. P., Nattinger, M., & Potter, A., (2015). Policies to protect persons with dementia in assisted living:Déjà vu all over again? The Gerontologist, 55(2), 199–209. doi:10.1093/geront/gnu179
24. Kelly, C. M., Liebig, P. S., & Edwards, L. J., (2008). Nursing home deficiencies:An exploratory study of interstate variations in regulatory activity. Journal of Aging & Social Policy, 20(4), 398–413. doi:10.1080/08959420802131817
25. Kitchener, M., Carrillo, H., & Harrington, C., (2003). Medicaid community-based programs:A longitudinal analysis of state variation in expenditures and utilization. INQUIRY:The Journal of Health Care Organization, Provision, and Financing, 40(4), 375–389.
26. Kousser, T., (2002). The politics of discretionary Medicaid spending, 1980–1993. Journal of Health Politics, Policy and Law, 27(4), 639–672. doi:10.1215/03616878-27-4-639
27. Kronebusch, K., (1997). Medicaid and the politics of groups:Recipients, providers, and policy making. Journal of Health Politics, Policy and Law, 22(3), 839–878. doi:10.1215/03616878-22-3-839
28. Leroi, I., Samus, Q. M., Rosenblatt, A., Onyike, C. U., Brandt, J., Baker, A. S., … Lyketsos, C., (2007). A comparison of small and large assisted living facilities for the diagnosis and care of dementia:The Maryland Assisted Living Study. International Journal of Geriatric Psychiatry, 22(3), 224–232. doi:10.1002/(ISSN)1099-1166
29. Levinson, D., Department of Health and Human Services, Office of Inspector General. (2006). Nursing home complaint investigations (OEI-01-04-00340). Retrieved from https://oig.hhs.gov/oei/reports/oei-01-04-00340.pdf
30. Lindblom, C. E., (1959). The science of “muddling through.” Public Administration Review, 19, 79–88. doi:10.2307/973677
31. Matisoff, D. C., (2008). The adoption of state climate change policies and renewable portfolio standards:Regional diffusion or internal determinants? Review of Policy Research, 25(6), 527–546. doi:10.1111/ropr.2008.25.issue-6
32. Miller, E. A., (2005). State health policy making determinants, theory, and methods:A synthesis. Social Science & Medicine, 61(12), 2639–2657. doi:10.1016/j.socscimed.2005.05.006
33. Miller, E. A., (2006a). Bureaucratic policy making on trial:Medicaid nursing facility reimbursement, 1988-1998. Medical Care Research and Review, 63(2), 189–216. doi:10.1177/1077558705285297
34. Miller, E. A., (2006b). Explaining incremental and non-incremental change:Medicaid nursing facility reimbursement policy, 1980–98. State Politics & Policy Quarterly, 6(2), 117–150. doi:10.1177/153244000600600201
35. Miller, E. A., & Mor, V., (2008). Balancing regulatory controls and incentives:Toward smarter and more transparent oversight in long-term care. Journal of Health Politics, Policy, and Law, 33(2), 249–279.
36. Miller, E. A., & Wang, L., (2009). Maximizing federal Medicaid dollars:Nursing home provider tax adoption, 2000–2004. Journal of Health Politics, Policy, and Law, 34(6), 899–930.
37. Mintrom, M., (1997). Policy entrepreneurs and the diffusion of innovation. American Journal of Political Science, 41, 738–770. doi:10.2307/2111674
38. Mollica, R. L., (2009). State Medicaid reimbursement policies and practices in assisted living. Prepared for National Center for Assisted Living, American Health Care Association. Retrieved from https://www.ahcancal.org/ncal/resources/documents/medicaidassistedlivingreport.pdf
39. Mollica, R. L., Johnson-Lamarche, H., & O’Keeffe, J., (2005). State residential care and assisted living policy:2004. Washington, DC:Government Printing Office.
40. Mor, V., Miller, E. A., & Clark, M., (2010). The taste for regulation in long-term care. Medical Care Research and Review, 67(4 suppl), 38S–64S. doi:10.1177/1077558710367655
41. Murray, C. J., Vos, T., Lozano, R., Naghavi, M., Flaxman, A. D., Michaud, C., & Aboyans, V., (2013). Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990–2010. The Lancet, 380(9859), 2197–2223. doi:10.1016/S0140-6736(12)61689-4
42. National Center for Assisted Living. (2014). Resident profile. Retrieved from http://www.ahcancal.org/ncal/resources/Pages/ResidentProfile.aspx.
43. Nelson, H. W., Huber, R., & Walter, K. L., (1995). The relationship between volunteer long-term care ombudsmen and regulatory nursing home actions. The Gerontologist, 35(4), 509–514. doi:10.1093/geront/35.4.509
44. Nicholson-Crotty, S., (2009). The politics of diffusion:Public policy in the American states. The Journal of Politics, 71(1), 192–205. doi:10.1017/S0022381608090129
45. Pacula, R. L., & Sevigny, E. L., (2014). Marijuana liberalization policies:Why we can’t learn much from policy still in motion. Journal of Policy Analysis and Management, 33(1), 212–221. doi:10.1002/pam.21726
46. Park-Lee, E., Caffrey, C., Sengupta, M., Moss, A. J., Rosenoff, E., & Harris-Kojetin, L. D., (2011). Residential care facilities:A key sector in the spectrum of long-term care providers in the united states. NCHS Data Brief, (78), 1–8.
47. Rempfer, M., (1997). Mental disability and the ADA:Public policy in the courtroom. Lawrence, KS:Research and Training Center on Independent Living, University of Kansas. Retrieved from http://www.rtcil.org/~rtcil/products/RTCIL publications/Public Policy/Mental Disability and ADA.pdf
48. Shipan, C. R., & Volden, C., (2008). The mechanisms of policy diffusion. American Journal of Political Science, 52(4), 840–857. doi:10.1111/ajps.2008.52.issue-4
49. Shipan, C. R., & Volden, C., (2012). Policy diffusion:Seven lessons for scholars and practitioners. Public Administration Review, 72(6), 788–796.
50. Tope, D., & Hickman, L. N., (2012). The politics of children’s health insurance policy. Sociological Perspectives, 55(1), 43–66. doi:10.1525/sop.2012.55.1.43
51. Tueth, M. J., (2000). Exposing financial exploitation of impaired elderly persons. The American Journal of Geriatric Psychiatry, 8(2), 104–111. doi:10.1097/00019442-200005000-00004
52. U.S. Bureau of Economic Analysis. (2015). Personal income, population, and per capita personal income. Retrieved from http://www.bea.gov/itable/iTable.cfm?ReqID=70&step=1
53. U.S. Census Bureau. (2015). Postcensal estimates. State Tables. Retrieved from https://www.census.gov/popest/data/historical/1990s/state.html
54. U.S. Department of Justice, Civil Rights Division. (2014). ADA checklist for new lodging facilities. Retrieved January 21, 2015, from http://www.ada.gov/odgesur.htm
55. U.S. Securities and Exchange Commission (2006). Assisted Living Concepts, Inc. (Commission file number:001-13498). Retrieved January 21, 2015, from http://www. sec.gov/Archives/edgar/data/929994/000095013707004617/c13618e10vk.htm
56. Urick, B. Y., Kaskie, B. P., & Carnahan, R. M., (2015). Improving antipsychotic prescribing practices in nursing facilities. Research in Social and Administrative Pharmacy, 12, 91–103.
57. Volden, C., (2006). States as policy laboratories:Emulating success in the children’s health insurance program. American Journal of Political Science, 50(2), 294–312. doi:10.1111/ajps.2006.50.issue-2
58. Walker, J. L., (1969). The diffusion of innovations among the American states. American Political Science Review, 63(03), 880–899. doi:10.2307/1954434
59. Walshe, K., & Harrington, C., (2002). Regulation of nursing facilities in the United States:An analysis of resources and performance of state survey agencies. The Gerontologist, 42(4), 475–487. doi:10.1093/geront/42.4.475
60. Wilson, K. B., (2007). Historical evolution of assisted living in the United States, 1979 to the present. The Gerontologist, 47(suppl 1), 8–22. doi:10.1093/geront/47.Supplement_1.8
61. Woods, N. D., (2005). Interest group influence on state administrative rule making:The impact of rule review. The American Review of Public Administration, 35(4), 402–413. doi:10.1177/0275074005277993
62. Zimmerman, S., & Sloane, P. D., (2007). Definition and classification of assisted living. The Gerontologist, 47(Suppl 1), 33–39. doi:10.1093/geront/47.Supplement_1.33
63. Zimmerman, S., Sloane, P. D., & Reed, D., (2014, April). Dementia prevalence and care in assisted living. Health Affairs, 33(4), 658–666. doi:10.1377/hlthaff.2013.1255