Policies to protect persons with dementia in assisted living: Déjà vu all over again?

Gerontologist

Volumn 55, Issue 2, 2015, Pages 199-209

  Kaskie, Brian P ^a   Nattinger, Matthew ^a   Potter, Andrew ^a  

^a UNIVERSITY OF IOWA   (United States)

Author keywords

Federalism; Health policy; Nursing home reform act; Residential care

Indexed keywords

AGED; ASSISTED LIVING FACILITY; DEJA VU; DEMENTIA; HEALTH CARE POLICY; HEALTH CARE QUALITY; HOME FOR THE AGED; HUMAN; LEGISLATION AND JURISPRUDENCE; NURSING HOME; PSYCHOLOGY; QUALITY OF LIFE; STANDARDS; VERY ELDERLY;

AGED; AGED, 80 AND OVER; ASSISTED LIVING FACILITIES; DEJA VU; DEMENTIA; HEALTH CARE REFORM; HEALTH POLICY; HOMES FOR THE AGED; HUMANS; NURSING HOMES; QUALITY OF HEALTH CARE; QUALITY OF LIFE;

EID: 84954513171     PISSN: 00169013     EISSN: 17585341     Source Type: Journal    
DOI: 10.1093/geront/gnu179     Document Type: Article

References (52)

1. Administration on Aging. (2006). Long-term care ombudsman report: FY 1998 with comparisons of national data FY 1996-98. 9-9-2004. Washington, DC: U.S. Department of Health and Human Services, Administration on Aging.
2. Alzheimer's Association. (2009). Dementia care practices: Recommendations for assisted living residences and nursing homes. Washington, DC: Alzheimer's Association. Alzheimer's Association. (2014). Public policy agenda. Retrieved January 21, 2015, from http://www.alz.org/advocacy/takeaction. asp
3. Assisted Living Workgroup. (2003). Assuring quality in assisted living: Guidelines for federal and state policy, state regulation, and operations. Washington, DC: U.S. Senate Special Committee on Aging.
4. Boehmke, F. J. (2008). Subverting administrative oversight: Campaign contributions and nursing home inspections. Annual Conference of the Midwest Political Science Association, Chicago, IL.
5. Briesacher, B. A., Tjia, J., Field, T., Peterson, D., & Gurwitz, J. H. (2013). Antipsychotic use among nursing home residents. Journal of the American Medical Association, 309, 440-442.
6. Bruce, P. A. (2006). Ascendancy of assisted living: The case for federal regulation. The Elder Law Journal, 14, 61.
7. Bynum, J. P. (2014). The long reach of Alzheimer's disease: Patients, practice, and policy. Health affairs (Project Hope), 33, 534-540.
8. Castle, N. (2013). An examination of resident abuse in assisted living facilities. National Criminal Reference Services, National Institute of Justice, U.S. Department of Justice.
9. Castle, N. G., Handler, S. M., & Wagner, L. M. (2014). Potential prescription drug misuse in assisted living. Research in Gerontological Nursing, 7, 25-32.
10. Castle, N. G., & Sonon, K. E. (2006). A culture of patient safety in nursing homes. Quality & Safety in Health Care, 15, 405-408.
11. Castle, N. G., Wagner, L. M., Sonon, K., & Ferguson-Rome, J. C. (2012). Measuring administrators' and direct care workers' perceptions of the safety culture in assisted living facilities. Joint Commission Journal on Quality and Patient Safety/Joint Commission Resources, 38, 375-382.
12. Chen, L. K., Peng, L. N., Lin, M. H., Lai, H. Y., Hwang, S. J., & Lan, C. F. (2010). Predicting mortality of older residents in long-term care facilities: Comorbidity or care problems? Journal of the American Medical Directors Association, 11, 567-571.
13. Cooper, C., Selwood, A., Blanchard, M., Walker, Z., Blizard, R., & Livingston, G. (2009). Abuse of people with dementia by family carers: Representative cross sectional survey. BMJ (Clinical Research ed.), 338, b155.
14. Cox, C. C., Eldridge-Houser, J., Hasken, J., & Temme, M. (2011). Relationship of facility characteristics and presence of an ombudsman to Missouri Long-Term Care Facility State Inspection Report Results. Journal of Elder Abuse & Neglect, 23, 273-288.
15. Dong, X. (2014). Elder abuse: Research, practice, and health policy. The 2012 GSA Maxwell Pollack award lecture. The Gerontologist, 54, 153-162.
16. Dong, X., Chen, R., & Simon, M. A. (2014). Elder abuse and dementia: A review of the research and health policy. Health Affairs (Project Hope), 33, 642-649.
17. Dyer, C. B., Connolly, M. T., & McFeeley, P. (2002). The medical forensics of elder abuse and neglect. In R. J. Bonnie & R. B. Wallace (Eds.), Elder mistreatment: Abuse, neglect, and exploitation in an aging America (pp. 339-381). Washington, DC: The National Academies Press.
18. Emeritus Corporation. (2013). Form 10-K, Annual Report to the Securities and Exchange Commission. Retrieved from January 21, 2015, http://www.sec.gov/Archives/edgar/data/1001604/00010016041 3000016/0001001604-13-000016-index.htm
19. Estes, C. L., Zulman, D. M., Goldberg, S. C., & Ogawa, D. D. (2001). Effectiveness of the state long term care ombudsman programs. San Francisco: University of California.
20. Florida Committee on Health Regulation. The Florida Senate, Committee on Health Regulation. (2011). Review regulatory oversight of assisted living of assisted living facilities in Florida (Interim Report 2012-128). Retrieved from http://www.flsenate.gov/PublishedContent/Session/2012/InterimReports/2012-128hr.pdf
21. Gurnik, M., & Hollis-Sawyer, L. (2003). Empowering assisted living front-line care staffs to better care for Alzheimer's and dementia residents. Ageing International, 28, 82-97.
22. Harrington, C., Mullan, J. T., & Carrillo, H. (2004). State nursing home enforcement systems. Journal of Health Politics, Policy and Law, 29, 43-73.
23. Hughes, C. M., & Lapane, K. L. (2005). Administrative initiatives for reducing inappropriate prescribing of psychotropic drugs in nursing homes: How successful have they been? Drugs & Aging, 22, 339-351.
24. Hyde, J., Perez, R., & Forester, B. (2007). Dementia and assisted living. The Gerontologist, 47(Suppl. 1), 51-67.
25. Imhof, S. L., & Kaskie, B. (2008). Promoting a "Good death": Determinants of pain-management policies in the United States. Journal of Health Politics, Policy and Law, 33, 907-941.
26. Institute of Medicine (IOM). (1986). Improving the quality of care in nursing homes. Washington, DC: National Academy Press.
27. Kaskie, B., & Kingsley, K. (2009). State enforcement actions pertaining to persons with dementia residing in assisted living facilities. Washington, DC: Alzheimer's Association National Public Policy Office.
28. Kaskie, B., Knight, B. G., & Liebig, P. S. (2001). Dementia policy revisited: An analysis of the state laws targeted towards individuals with Alzheimer's disease and other forms of dementia. Journal of Aging & Social Policy, 12, 27-45.
29. Leroi, I., Samus, Q. M., Rosenblatt, A., Onyike, C. U., Brandt, J., Baker, A. S., Lyketsos, C. (2007). A comparison of small and large assisted living facilities for the diagnosis and care of dementia: The Maryland Assisted Living Study. International Journal of Geriatric Psychiatry, 22, 224-232.
30. Levinson, D; Department of Health and Human Services, Office of Inspector General. (2012). Home and community-based services in assisted living facilities (OEI-09-08-00360). Retrieved from http://oig.hhs.gov/oei/reports/oei-09-08-00360.pdf
31. Lin, M., & Kramer, A. (2013). The Quality Indicator Survey: Background, implementation, and widespread change. Journal of Aging & Social Policy, 25, 10-29.
32. McDonald, J. (2013). Assisted living centers allegedly paid out bribes. Retrieved June 15, 2014, from http://www.utsandiego.com/news/2013/sep/08/bribes-alleged-assistedliving-centers-san-diego/
33. Medicare Payment Advisory Commission. (2013). Report to the Congress: Medicare payment policy. Washington, DC: MedPAC.
34. Mollica, R. L., Sims-Kastelein, K., & O'Keefe, J. (2007). Residential care and assisted living compendium: 2007 United States. Washington, DC: Department of Health and Human Services, Office of Disability, Aging and Long-Term Care Policy, Office of the Assistant Secretary for Planning and Evaluation.
35. Moore, D. H., Algase, D. L., Powell-Cope, G., Applegarth, S., & Beattie, E. R. (2009). A framework for managing wandering and preventing elopement. American Journal of Alzheimer's Disease and Other Dementias, 24, 208-219.
36. National Center for Assisted Living. (2014). Resident profile. Retrieved January 21, 2015, from http://www.ahcancal.org/ncal/resources/Pages/ResidentProfile.aspx
37. National Senior Citizens Law Center. (2005). Critical issues in assisted living: Who's in, who's out, and who's providing the care. Retrieved January 21, 2015, from http://www.nsclc.org/wp-content/uploads/2011/07/Critical-Issues-in-Assisted-Living. pdf
38. NBC10.com Staff. (2014). Elderly man found dead outside assisted living facility. Retrieved January 21, 2015, from http://www.nbcphiladelphia.com/news/local/Dementia-Patient-Found-Dead-in-Assisted-Living-Parking-Lot-248935401.html
39. OBRA. (1987). Omnibus Budget Reconciliation Act (1987). Public Law 100-203.
40. Park-Lee, E., Caffrey, C., Sengupta, M., Moss, A. J., Rosenoff, E., & Harris-Kojetin, L. D. (2011). Residential care facilities: A key sector in the spectrum of long-term care providers in the United States. NCHS Data Brief, 78, 1-8.
41. Rempfer, M. (1997). Mental disability and the ADA: Public policy in the courtroom. Lawrence, KS: Research and Training Center on Independent Living, University of Kansas. Retrieved from http://www.rtcil.org/~rtcil/products/RTCIL publications/Public Policy/Mental Disability and ADA.pdf.
42. Thompson, A., & Jones, J. (2013). Life and death in assisted living. Retrieved January 21, 2015, from Frontline: Http://www.pbs.org/wgbh/pages/frontline/social-issues/life-and-death-in-assisted-living/the-deaths-and-disappearance-that-haunt-assisted-living/
43. U.S. Department of Justice, Civil Rights Division. (2009). A guide to disability rights laws. Retrieved January 21, 2015, from http://www.ada.gov/cguide.htm
44. U.S. Department of Justice, Civil Rights Division. (2014). ADA checklist for new lodging facilities. Retrieved January 21, 2015, from http://www.ada.gov/odgesur.htm
45. U.S. Government Accountability Office (GAO). (2012). Report to the congressional requesters. Consumer protection requirements affecting dual-eligible beneficiaries vary across programs, payment systems, and states. (GAO-13-100). Retrieved from http://www.gao.gov/assets/660/650558.pdf
46. U.S. Securities and Exchange Commission (SEC). (2006).Transition report: Assisted Living Concepts, Inc. (Commission file number: 001-13498). Retrieved January 21, 2015, from http://www.sec.gov/Archives/edgar/data/929994/000095013707004617/c13618e10vk.htm
47. Wiglesworth, A., Mosqueda, L., Mulnard, R., Liao, S., Gibbs, L., & Fitzgerald, W. (2010). Screening for abuse and neglect of people with dementia. Journal of the American Geriatrics Society, 58, 493-500.
48. Wilson, K. B. (2007). Historical evolution of assisted living in the United States, 1979 to the present. The Gerontologist, 47(Suppl. 1), 8-22.
49. Woodruff, S. I., Pichon, L. C., Hoerster, K. D., Forster, J. L., Gilmer, T., & Mayer, J. A. (2007). Measuring the stringency of states' indoor tanning regulations: Instrument development and outcomes. Journal of the American Academy of Dermatology, 56, 774-780.
50. Zimmerman, S., & Sloane, P. D. (2007). Definition and classification of assisted living. The Gerontologist, 47, 33-39.
51. Zimmerman, S., Sloane, P. D., & Reed, D. (2014). Dementia prevalence and care in assisted living. Health Affairs (Project Hope), 33, 658-666.
52. Zimmerman, S., Sloane, P. D., Williams, C. S., Reed, P. S., Preisser, J. S., Eckert, J. K., Dobbs, D. (2005). Dementia care and quality of life in assisted living and nursing homes. The Gerontologist, 45, 133-146.