Self-efficacy and readiness for transition from pediatric to adult care in sickle cell disease

International Journal of Adolescent Medicine and Health

Volumn 2015, Issue , 2015, Pages 381-388

  Treadwell, Marsha ^a   Johnson, Shirley ^b   Sisler, India ^b   Bitsko, Matthew ^b   Gildengorin, Ginny ^c   Medina, Rogelio ^a   Barreda, Fernando ^d   Major, Kimberly ^a   Telfair, Joseph ^e   Smith, Wally R ^a  

^a CHILDREN S HOSPITAL OAKLAND   (United States)

^b VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

^c CHILDREN S HOSPITAL OAKLAND RESEARCH INSTITUTE   (United States)

^d KAISER PERMANENTE   (United States)

^e GEORGIA SOUTHERN UNIVERSITY   (United States)

Author keywords

Adolescents; Chronic conditions; Self efficacy; Sickle cell disease; Transition

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ASSESSMENT OF HUMANS; CLINICAL ASSESSMENT; FEMALE; HEALTH INSURANCE; HUMAN; INDEPENDENT LIVING; MAJOR CLINICAL STUDY; MALE; SELF CARE; SELF CONCEPT; SELF ESTEEM; SICKLE CELL ANEMIA; SICKLE CELL SELF EFFICACY SCALE; SICKLE CELL STRESS ADOLESCENT SCALE; SOCIAL SUPPORT; STRESS; TRANSITION INTERVENTION PROGRAM READINESS FOR TRANSITION; TRANSITION TO ADULT CARE; ANEMIA, SICKLE CELL; COPING BEHAVIOR; ORGANIZATION AND MANAGEMENT; PROCEDURES; PSYCHOLOGY; SOCIOECONOMICS; UNITED STATES;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; ANEMIA, SICKLE CELL; FEMALE; HUMANS; MALE; SELF CARE; SELF EFFICACY; SOCIOECONOMIC FACTORS; TRANSITION TO ADULT CARE; UNITED STATES;

EID: 84989282834     PISSN: 03340139     EISSN: 21910278     Source Type: Journal    
DOI: 10.1515/ijamh-2015-0014     Document Type: Article

References (38)

1. Sharma N, O'Hare K, Antonelli RC, Sawicki GS. Transition care: future directions in education, health policy, and outcomes research. Acad Pediatr 2014; 14:120-7.
2. Schwartz LA, Brumley LD, Tuchman LK, Barakat LP, Hobbie WL, et al. Stakeholder validation of a model of readiness for transition to adult care. JAMA Pediatr 2013; 167:939-46.
3. Betz CL, Lobo ML, Nehring WM, Bui K. Voices not heard: a systematic review of adolescents' and emerging adults' perspectives of health care transition. Nurs Outlook 2013; 61:311-36.
4. Sawicki GS, Lukens-Bull K, Yin X, Demars N, Huang IC, et al. Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ - Transition Readiness Assessment Questionnaire. J Pediatr Psychol 2011; 36:160-71.
5. Sawicki GS, Kelemen S, Weitzman ER. Ready, set, stop: mismatch between self-care beliefs, transition readiness skills, and transition planning among adolescents, young adults, and parents. Clin Pediatr (Phila) 2014; 53:1062-8.
6. Wang G, McGrath BB, Watts C. Health care transitions among youth with disabilities or special health care needs: an ecological approach. J Pediatr Nurs 2010; 25:505-50.
7. Rehm RS, Fuentes-Afflick E, Fisher LT, Chesla CA. Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability. ANS Adv Nurs Sci 2012; 35:E57-72.
8. Jenerette C, Valrie C. The influence of maternal behaviors during childhood on self-efficacy in individuals with sickle cell disease. J Fam Nurs 2010; 16:422-34.
9. Jenerette CM, Murdaugh C. Testing the theory of self-care management for sickle cell disease. Res Nurs Health 2008; 31:355-69.
10. Luszczynska A, Schwarzer R. Social cognitive theory, 2nd ed. Maidenhead: Open University Press, 2005.
11. Molter BL, Abrahamson K. Self-Efficacy, transition, and patient outcomes in the sickle cell disease population. Pain Manag Nurs 2014.
12. Clay OJ, Telfair J. Evaluation of a disease-specific self-efficacy instrument in adolescents with sickle cell disease and its relationship to adjustment. Child Neuropsychol 2007; 13:188-203.
13. Edwards R, Telfair J, Cecil H, Lenoci J. Reliability and validity of a self-efficacy instrument specific to sickle cell disease. Behav Res Ther 2000; 38:951-63.
14. Adegbola M. Spirituality, self-efficacy, and quality of life among adults with sickle cell disease. South Online J Nurs Res 2011; 11:5.
15. Wojciechowski EA, Hurtig A, Dorn L. A natural history study of adolescents and young adults with sickle cell disease as they transfer to adult care: a need for case management services. J Pediatr Nurs 2002; 17:18-27.
16. Stinson J, Kohut SA, Spiegel L, White M, Gill N, et al. A systematic review of transition readiness and transfer satisfaction measures for adolescents with chronic illness. Int J Adolesc Med Health 2014; 26:159-74.
17. Treadwell M, Johnson S, Sisler I, Bitsko M, Gildengorin G, et al. Development of a sickle cell disease readiness for transition assessment. Manuscript submitted for publication, 2015.
18. Cooley WC, Sagerman PJ. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011; 128:182-200.
19. Smith WR, Godder K, Sisler I, Smith V, Casper R, et al. Readiness for transition from pediatric sickle cell care: exploratory analyses of domains of readiness and total scores. Blood 2010; 116:1066.
20. Smith WR, McClish DK, Dahman DA, Levenson JL, Aisiku IP, et al. Daily home opioid use in adults with sickle cell disease: The PiSCES project. J Opioid Manag Manuscript accepted for publication, 2015.
21. StataCorp. Stata Statistical Software: Release 13. College Station, TX: StataCorp LP, 2013.
22. Anie KA, Telfair J. Multi-site study of transition in adolescents with sickle cell disease in the United Kingdom and the United States. Int J Adolesc Med Health 2005; 17:169-78.
23. Edwards R, Telfair J, Cecil H, Lenoci J. Self-efficacy as a predictor of adult adjustment to sickle cell disease: one-year outcomes. Psychosom Med 2001; 63:850-8.
24. Monaghan M, Hilliard M, Sweenie R, Riekert K. Transition readiness in adolescents and emerging adults with diabetes: the role of patient-provider communication. Curr Diab Rep 2013; 13:900-8.
25. Sobota A, Akinlonu A, Champigny M, Eldridge M, McMahon L, et al. Self-reported transition readiness among young adults with sickle cell disease. J Pediatr Hematol Oncol 2014; 36:389-94.
26. Gil KM, Carson JW, Porter LS, Ready J, Valrie C, et al. Daily stress and mood and their association with pain, health-care use, and school activity in adolescents with sickle cell disease. J Pediatr Psychol 2003; 28:363-73.
27. Debaun MR, Telfair J. Transition and sickle cell disease. Pediatrics 2012; 130:926-35.
28. Hogan AM, Pit-ten Cate IM, Vargha-Khadem F, Prengler M, Kirkham FJ. Physiological correlates of intellectual function in children with sickle cell disease: hypoxaemia, hyperaemia and brain infarction. Dev Sci 2006; 9:379-87.
29. Wills KE, Nelson SC, Hennessy J, Nwaneri MO, Miskowiec J, et al. Transition planning for youth with sickle cell disease: embedding neuropsychological assessment into comprehensive care. Pediatrics 2010; 126(Suppl 3):S151-9.
30. Schwartz LA, Daniel LC, Brumley LD, Barakat LP, Wesley KM, et al. Measures of readiness to transition to adult health care for youth with chronic physical health conditions: a systematic review and recommendations for measurement testing and development. J Pediatr Psychol 2014; 39:588-601.
31. Derlega VJ, Janda LH, Miranda J, Chen IA, Goodman BM, 3rd, et al. How patients' self-disclosure about sickle cell pain episodes to significant others relates to living with sickle cell disease. Pain Med 2014; 15:1496-507.
32. Taylor LE, Stotts NA, Humphreys J, Treadwell MJ, Miaskowski C. A biopsychosocial-spiritual model of chronic pain in adults with sickle cell disease. Pain Manag Nurs 2013; 14:287-301.
33. Blinder M, Vekeman F, Sasane M, Trahey A, Paley C, et al. Age-related emergency department reliance and healthcare resource utilization in patients with sickle cell disease. 54th ASH Annual Meeting and Exposition; Atlanta, GA, 2012.
34. Lorig KR, Sobel DS, Ritter PL, Laurent D, Hobbs M. Effect of a self-management program on patients with chronic disease. Eff Clin Pract 2001; 4:256-62.
35. Lorig KR, Ritter P, Stewart AL, Sobel DS, Brown BW, Jr., et al. Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care 2001; 39:1217-23.
36. Bensen R, Steidtmann D, Vaks Y. A triple aim approach to transition from pediatric to adult health care for youth with special health care needs. Lucille Packard Foundation for Children's Health Issue Brief 2014. Accessed 2015 Apr 02. Available at: www.lpfch-cshcn.org.
37. Morton M, Montgomery P. Youth empowerment programs for improving self-efficacy and self-esteem of adolescents. Campbell Systematic Reviews 2011; 7. Accessed 2015 Apr 02. Available at: www.campbellcollaboration.org.
38. Cohen LL, La Greca AM, Blount RL, Kazak AE, Holmbeck GN, et al. Introduction to special issue: evidence-based assessment in pediatric psychology. J Pediatr Psychol 2008; 33:911-5.