Ready, set, stop: Mismatch between self-care beliefs, transition readiness skills, and transition planning among adolescents, young adults, and parents

Clinical Pediatrics

Volumn 53, Issue 11, 2014, Pages 1062-1068

  Sawicki, Gregory S ^a,b   Kelemen, Skyler ^a   Weitzman, Elissa R ^a,b  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

Author keywords

Adolescent; Health care transition

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CYSTIC FIBROSIS; DIABETES MELLITUS; HEALTH CARE PLANNING; HUMAN; MAJOR CLINICAL STUDY; PARENT; QUESTIONNAIRE; RATING SCALE; SELF CARE; SKILL; SPINAL DYSRAPHISM; TRANSITION READINESS ASSESSMENT QUESTIONNAIRE; TRANSITION TO ADULT CARE; YOUNG ADULT; ATTITUDE TO HEALTH; CHRONIC DISEASE; FEMALE; MALE; MASSACHUSETTS; NEEDS ASSESSMENT; PROCEDURES; STATISTICS AND NUMERICAL DATA;

ADOLESCENT; ADULT; BOSTON; CHRONIC DISEASE; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; NEEDS ASSESSMENT; PARENTS; SELF CARE; SURVEYS AND QUESTIONNAIRES; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84928038154     PISSN: 00099228     EISSN: 19382707     Source Type: Journal    
DOI: 10.1177/0009922814541169     Document Type: Article

References (22)

1. Perrin JM, Bloom SR, Gortmaker SL. The increase of childhood chronic conditions in the United States. JAMA. 2007;297:2755-2759.
2. Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health. 2003;33:309-311.
3. American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians- American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6 pt 2):1304-1306.
4. Blum RW. Transition to adult health care: Setting the stage. J Adolesc Health. 1995;17:3-5.
5. Cooley WC, Sagerman PJ. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128:182-200.
6. Sawicki GS, Whitworth R, Gunn L, Butterfield R, Lukens-Bull K, Wood D. Receipt of health care transition counseling in the National Survey of Adult Transition and Health. Pediatrics. 2011;128:e521-e529.
7. McManus MA, Pollack LR, Cooley WC, et al. Current status of transition preparation among youth with special needs in the United States. Pediatrics. 2013;131: 1090-1097.
8. Reiss J, Gibson R. Health care transition: destinations unknown. Pediatrics. 2002;110(6 pt 2):1307-1314.
9. Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family, and provider perspectives. Pediatrics. 2005;115:112-120.
10. Scal P, Ireland M. Addressing transition to adult health care for adolescents with special health care needs. Pediatrics. 2005;115:1607-1612.
11. Knapp C, Huang IC, Hinojosa M, Baker K, Sloyer P. Assessing the congruence of transition preparedness as reported by parents and their adolescents with special health care needs. Matern Child Health J. 2013;17: 352-358.
12. van Staa A, van der Stege HA, Jedeloo S, Moll HA, Hilberink SR. Readiness to transfer to adult care of adolescents with chronic conditions: exploration of associated factors. J Adolesc Health. 2011;48:295-302.
13. Sawicki GS, Lukens-Bull K, Yin X, et al. Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ-Transition Readiness Assessment Questionnaire. J Pediatr Psychol. 2011;36:160-171.
14. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R. Access to care for youth with special health care needs in the transition to adulthood. J Adolesc Health. 2008;43: 23-29.
15. Lotstein DS, McPherson M, Strickland B, Newacheck PW. Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs. Pediatrics. 2005;115: 1562-1568.
16. Bloom SR, Kuhlthau K, Van Cleave J, Knapp AA, Newacheck P, Perrin JM. Health care transition for youth with special health care needs. J Adolesc Health. 2012;51:213-219.
17. Lemly DC, Weitzman ER, O'Hare K. Advancing health care transitions in the medical home: Tools for providers, families and adolescents with special health care needs. Curr Opin Pediatr. 2013;25:439-446.
18. Weitzman ER, Kaci L, Quinn M, Mandl KD. Helping highrisk youth move through high-risk periods: personally controlled health records for improving social and health care transitions. J Diabetes Sci Technol. 2011;5:47-54.
19. Woodward JF, Swigonski NL, Ciccarelli MR. Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program. J Adolesc Health. 2012;51:272-278.
20. Tuchman LK, Schwartz LA, Sawicki GS, Britto MT. Cystic fibrosis and transition to adult medical care. Pediatrics. 2010;125:566-573.
21. Garvey KC, Wolpert HA, Rhodes ET, et al. Health care transition in patients with type 1 diabetes: young adult experiences and relationship to glycemic control. Diabetes Care. 2012;35:1716-1722.
22. de Beaufort C, Jarosz-Chobot P, Frank M, de Bart J, Deja G. Transition from pediatric to adult diabetes care: Smooth or slippery? Pediatr Diabetes. 2010;11:24-27.