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Volumn 39, Issue 6, 2014, Pages 588-601

Measures of readiness to transition to adult health care for youth with chronic physical health conditions: A systematic review and recommendations for measurement testing and development

Author keywords

adolescents; assessment; chronic illness; systematic review

Indexed keywords

ADOLESCENT; ADULT; CHRONIC DISEASE; HUMAN; MALE; PROCEDURES; PSYCHOLOGY; PSYCHOMETRY; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84903167766     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jsu028     Document Type: Review
Times cited : (100)

References (54)
  • 1
    • 79959924109 scopus 로고    scopus 로고
    • Clinical Report-Supporting the health care transition from adolescence to adulthood in the medical home
    • American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians.
    • American Academy of Pediatrics, American Academy of Family Physicians, & American College of Physicians. (2011). Clinical Report-Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics, 128, 182-200.
    • (2011) Pediatrics , vol.128 , pp. 182-200
  • 2
    • 34547438181 scopus 로고    scopus 로고
    • Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services
    • Annunziato, R. A., Emre, S., Shneider, B., Barton, C., Dugan, C. A., & Shemesh, E. (2007). Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services. Pediatric Transplantation, 11, 608-614.
    • (2007) Pediatric Transplantation , vol.11 , pp. 608-614
    • Annunziato, R.A.1    Emre, S.2    Shneider, B.3    Barton, C.4    Dugan, C.A.5    Shemesh, E.6
  • 3
    • 34547437703 scopus 로고    scopus 로고
    • Adolescent development from an agentic perspective
    • F. Pajares, & T. C. Urdan (Eds.), Charlotte, NC: Information Age Publishing
    • Bandura, A. (2005). Adolescent development from an agentic perspective. In F. Pajares, & T. C. Urdan (Eds.), Self-efficacy beliefs of adolescents (Vol. 46, pp. 1-43). Charlotte, NC: Information Age Publishing.
    • (2005) Self-efficacy Beliefs of Adolescents ( , vol.46 , pp. 1-43
    • Bandura, A.1
  • 5
    • 0032035308 scopus 로고    scopus 로고
    • Facilitating the transition of adolescents with chronic conditions from pediatric to adult health care and community settings
    • Betz, C. L. (1998). Facilitating the transition of adolescents with chronic conditions from pediatric to adult health care and community settings. Issues Comprehensive Pediatric Nursing, 21, 97-115.
    • (1998) Issues Comprehensive Pediatric Nursing , vol.21 , pp. 97-115
    • Betz, C.L.1
  • 6
    • 0034308851 scopus 로고    scopus 로고
    • California Healthy and Ready to Work Transition Health Care Guide: Developmental guidelines for teaching health care self-care skills to children
    • Betz, C. L. (2000). California Healthy and Ready to Work Transition Health Care Guide: Developmental guidelines for teaching health care self-care skills to children. Issues Comprehensive Pediatric Nursing, 23, 203-244.
    • (2000) Issues Comprehensive Pediatric Nursing , vol.23 , pp. 203-244
    • Betz, C.L.1
  • 7
    • 0242543258 scopus 로고    scopus 로고
    • Self-reported health care self-care needs of transition-age youth: A pilot study
    • Betz, C. L., Redcay, G., & Tan, S. (2003). Self-reported health care self-care needs of transition-age youth: A pilot study. Issues in Comprehensive Pediatric Nursing, 26, 159-181.
    • (2003) Issues in Comprehensive Pediatric Nursing , vol.26 , pp. 159-181
    • Betz, C.L.1    Redcay, G.2    Tan, S.3
  • 9
    • 0027504256 scopus 로고
    • Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine
    • Blum, R., Garell, D., Hodgman, C, Jorissen, T., Okinow, N., Orr, D., & Slap, G. (1993). Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. Journal of Adolescent Health, 14, 570-576.
    • (1993) Journal of Adolescent Health , vol.14 , pp. 570-576
    • Blum, R.1    Garell, D.2    Hodgman, C.3    Jorissen, T.4    Okinow, N.5    Orr, D.6    Slap, G.7
  • 10
    • 0024723377 scopus 로고
    • Assessment of readiness to transfer to adult care for adolescents with cystic fibrosis
    • Cappelli, M., MacDonald, N. E., & McGrath, P.J. (1989). Assessment of readiness to transfer to adult care for adolescents with cystic fibrosis. Child Health Care, 18, 218-224.
    • (1989) Child Health Care , vol.18 , pp. 218-224
    • Cappelli, M.1    Macdonald, N.E.2    McGrath, P.J.3
  • 12
    • 84880335833 scopus 로고    scopus 로고
    • Study protocol: Longitudinal study of the transition of young people with complex health needs from child to adult health services
    • on behalf of the Transition Collaborative Group.
    • Colver, A. F., Merrick, H., Deverill, Le Couteur, A., Parr, J., Pearce, M. S.,.. McConachie, H. on behalf of the Transition Collaborative Group. (2013). Study protocol: Longitudinal study of the transition of young people with complex health needs from child to adult health services. Biomedical Central Public Health, 13, 1-11
    • (2013) Biomedical Central Public Health , vol.13 , pp. 1-11
    • Colver, A.F.1    Merrick, H.2    Deverill Le Couteur, A.3    Parr, J.4    Pearce, S.5    Mcconachie, M.H.6
  • 13
    • 0004134359 scopus 로고    scopus 로고
    • Committee on Developments in the Science of Learning., Washington, DC: National Academies Press
    • Committee on Developments in the Science of Learning. (2000). How people learn: Brain, mind, experience, and school. Washington, DC: National Academies Press.
    • (2000) How People Learn: Brain, Mind, Experience, and School
  • 14
    • 84870949048 scopus 로고    scopus 로고
    • Development of a transition readiness scale for young adults with cystic fibrosis: Face and content validity
    • Dudman, L., Rapley, P., & Wilson, S. (2011). Development of a transition readiness scale for young adults with cystic fibrosis: Face and content validity. Neonatal, Paediatric, and Child Health Nursing, 14, 9-13.
    • (2011) Neonatal, Paediatric, and Child Health Nursing , vol.14 , pp. 9-13
    • Dudman, L.1    Rapley, P.2    Wilson, S.3
  • 16
    • 84862215587 scopus 로고    scopus 로고
    • A clinical tool to measure the components of health-care transition from pediatric care to adult care: The UNC TRxANSITION Scale
    • Ferris, M., Harward, D., Bickford, K, Layton, J., Ferris, M., Hogan, S.,.. Hooper, S. (2012). A clinical tool to measure the components of health-care transition from pediatric care to adult care: The UNC TRxANSITION Scale. Renal Failure, 34, 744-753.
    • (2012) Renal Failure , vol.34 , pp. 744-753
    • Ferris, M.1    Harward, D.2    Bickford, K.3    Layton, J.4    Ferris, M.5    Hogan, S.6    Hooper, S.7
  • 18
    • 84863323425 scopus 로고    scopus 로고
    • Commentary: The Patient-Reported Outcome Measurement Information System (PROMIS®) for children and youth: Application to pediatric psychology
    • doi:10.1093/jpepsy/jss038
    • Forrest, C, Bevans, K, Tucker, C, Riley, A., Ravens-Sieberer, U., Gardner, W., & Pajer, K. (2012). Commentary: The Patient-Reported Outcome Measurement Information System (PROMIS®) for children and youth: application to pediatric psychology. Pediatr Psychol, 37, 614-621. doi:10.1093/jpepsy/ jss038
    • (2012) Pediatr Psychol , vol.37 , pp. 614-621
    • Forrest, C.1    Bevans, K.2    Tucker, C.3    Riley, A.4    Ravens-Sieberer, U.5    Gardner, W.6    Pajer, K.7
  • 19
    • 84856440397 scopus 로고    scopus 로고
    • Getting ready to leave: Transition readiness in adolescent kidney transplant recipients
    • Gilleland, J., Amaral, S., Mee, L., & Blount, R. (2012). Getting ready to leave: Transition readiness in adolescent kidney transplant recipients. Journal of Pediatric Psychology, 37, 85-96.
    • (2012) Journal of Pediatric Psychology , vol.37 , pp. 85-96
    • Gilleland, J.1    Amaral, S.2    Mee, L.3    Blount, R.4
  • 21
    • 33847072175 scopus 로고    scopus 로고
    • Changes in hospitalization patterns among patients with congenital heart disease during the transition from adolescence to adulthood
    • Gurvitz, M., Inkelas, M., Lee, M., Stout, K., Escarce, J., & Chang, R. (2007). Changes in hospitalization patterns among patients with congenital heart disease during the transition from adolescence to adulthood. Journal of The American College of Cardiology, 49, 875-882.
    • (2007) Journal of the American College of Cardiology , vol.49 , pp. 875-882
    • Gurvitz, M.1    Inkelas, M.2    Lee, M.3    Stout, K.4    Escarce, J.5    Chang, R.6
  • 22
    • 80054727324 scopus 로고    scopus 로고
    • Systems thinking perspectives applied to healthcare transition for youth with disabilities: A paradigm shift for practice, policy, and research
    • Hamdani, Y., Jetha, A., & Norman, C. (2011). Systems thinking perspectives applied to healthcare transition for youth with disabilities: A paradigm shift for practice, policy, and research. Child: Care, Health and Development, 37, 806-814.
    • (2011) Child: Care, Health and Development , vol.37 , pp. 806-814
    • Hamdani, Y.1    Jetha, A.2    Norman, C.3
  • 25
    • 34347326242 scopus 로고    scopus 로고
    • A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15-25
    • Holmes-Walker, D. J., Llewellyn, A. C., & Farrell, K. (2007). A transition care programme which improves diabetes control and reduces hospital admission rates in young adults with Type 1 diabetes aged 15-25. Diabetic Medicine, 24, 764-769.
    • (2007) Diabetic Medicine , vol.24 , pp. 764-769
    • Holmes-Walker, D.J.1    Llewellyn, A.C.2    Farrell, K.3
  • 27
    • 69149107165 scopus 로고    scopus 로고
    • Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement
    • Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Annals of Internal Medicine, 151, 264-269.
    • (2009) Annals of Internal Medicine , vol.151 , pp. 264-269
    • Moher, D.1    Liberati, A.2    Tetzlaff, J.3    Altman, D.G.4
  • 31
    • 0002591676 scopus 로고
    • Toward a comprehensive, transtheoretical model of change: Stages of change and addictive behaviors
    • W. Miller, & N. Heather (Eds.), New York, NY: Plenum Press
    • Prochaska, J., & DeClemente, C. (1986). Toward a comprehensive, transtheoretical model of change: Stages of change and addictive behaviors. In W. Miller, & N. Heather (Eds.), Treating addictive behaviors: Processes of change (pp. 3-28). New York, NY: Plenum Press.
    • (1986) Treating Addictive Behaviors: Processes of Change , pp. 3-28
    • Prochaska, J.1    Declemente, C.2
  • 32
    • 1642403234 scopus 로고    scopus 로고
    • Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects
    • Reid, G., Irvine, M., McCrindle, B., Sananes, R., Ritvo, P., Siu, S., & Webb, G. D. (2004). Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics, 113(3 Pt 1), e197-e205.
    • (2004) Pediatrics , vol.113 , Issue.3 PART 1
    • Reid, G.1    Irvine, M.2    McCrindle, B.3    Sananes, R.4    Ritvo, P.5    Siu, S.6    Webb, G.D.7
  • 33
    • 1542603726 scopus 로고    scopus 로고
    • Transition to adult health care for adolescents and young adults with chronic conditions: Position paper of the Society for Adolescent Medicine
    • Rosen, D. S., Blum, R. W., Britto, M., Sawyer, S. M., & Siegel, D. M. (2003). Transition to adult health care for adolescents and young adults with chronic conditions: Position paper of the Society for Adolescent Medicine. Journal of Adolescent Health, 33, 309-311.
    • (2003) Journal of Adolescent Health , vol.33 , pp. 309-311
    • Rosen, D.S.1    Blum, R.W.2    Britto, M.3    Sawyer, S.M.4    Siegel, D.M.5
  • 34
    • 85043751872 scopus 로고    scopus 로고
    • Testing a self-determiniation theory and the facilitation of intrinsic motivation, social development, and well-being
    • Ryan, R., & Deci, E. (2000). Testing a self-determiniation theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55, 68-78.
    • (2000) American Psychologist , vol.55 , pp. 68-78
    • Ryan, R.1    Deci, E.2
  • 35
    • 79952291944 scopus 로고    scopus 로고
    • Measuring the transition readiness of youth with special healthcare needs: Validation of the TRAQ-Transition Readiness Assessment Questionnaire
    • Sawicki, G. S., Lukens-Bull, K., Yin, X., Demars, N., Huang, I., Livingood, W.,.. Wood, D. (2011). Measuring the transition readiness of youth with special healthcare needs: Validation of the TRAQ-Transition Readiness Assessment Questionnaire. Journal of Pediatric Psychology, 36, 160-171.
    • (2011) Journal of Pediatric Psychology , vol.36 , pp. 160-171
    • Sawicki, G.S.1    Lukens-Bull, K.2    Yin, X.3    Demars, N.4    Huang, I.5    Livingood, W.6    Wood, D.7
  • 38
    • 80054768374 scopus 로고    scopus 로고
    • A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions
    • Schwartz, L. A., Tuchman, L. K., Hobbie, W., & Ginsberg, J. (2011). A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions. Child: Care, Health and Development, 37, 883-895.
    • (2011) Child: Care, Health and Development , vol.37 , pp. 883-895
    • Schwartz, L.A.1    Tuchman, L.K.2    Hobbie, W.3    Ginsberg, J.4
  • 39
    • 79959819530 scopus 로고    scopus 로고
    • Growing up with sickle cell disease: A pilot study of a transition program for adolescents with sickle cell disease
    • Smith, G. M., Lewis, V. R., Whitworth, E., Gold, D. T., & Thornburg, C. D. (2011). Growing up with sickle cell disease: A pilot study of a transition program for adolescents with sickle cell disease. Clinical and Laboratory Observations, 33, 379-382.
    • (2011) Clinical and Laboratory Observations , vol.33 , pp. 379-382
    • Smith, G.M.1    Lewis, V.R.2    Whitworth, E.3    Gold, D.T.4    Thornburg, C.D.5
  • 40
    • 34447561880 scopus 로고    scopus 로고
    • Evidence-based practice in clinical psychology: What it is, why it matters; What you need to know
    • Spring, B. (2007). Evidence-based practice in clinical psychology: What it is, why it matters; what you need to know. Journal of Clinical Psychology, 63, 611-631.
    • (2007) Journal of Clinical Psychology , vol.63 , pp. 611-631
    • Spring, B.1
  • 43
    • 84868624911 scopus 로고    scopus 로고
    • Transition and Sickle cell disease
    • Telfair, J., & DeBaun, M. (2012). Transition and Sickle cell disease. Pediatrics, 130, 926-935.
    • (2012) Pediatrics , vol.130 , pp. 926-935
    • Telfair, J.1    Debaun, M.2
  • 44
    • 0028051603 scopus 로고
    • Transfer as a component of the transition of adolescents with Sickle cell disease to adult care: Adolescent, adult and parent perspectives
    • Telfair, J., Myers, J., & Drezner, S. (1994). Transfer as a component of the transition of adolescents with Sickle cell disease to adult care: Adolescent, adult and parent perspectives. Journal of Adolescent Health, 15, 558-565.
    • (1994) Journal of Adolescent Health , vol.15 , pp. 558-565
    • Telfair, J.1    Myers, J.2    Drezner, S.3
  • 45
    • 49349112888 scopus 로고    scopus 로고
    • Transition to adult care: Experiences and expectations of adolescents with a chronic illness
    • Tuchman, L., Slap, G., & Britto, M. (2008). Transition to adult care: Experiences and expectations of adolescents with a chronic illness. Child: Care, Health and Development, 34, 557-563.
    • (2008) Child: Care, Health and Development , vol.34 , pp. 557-563
    • Tuchman, L.1    Slap, G.2    Britto, M.3
  • 46
    • 80054771716 scopus 로고    scopus 로고
    • Crossing the transition chasm: Experiences and recommendations for improving transitional care of young adults, parents, and providers
    • Van Staa, A., Jedeloo, S., van Meeteren, J., & Latour, J. M. (2011). Crossing the transition chasm: Experiences and recommendations for improving transitional care of young adults, parents, and providers. Child: Care, Health and Development, 37, 821-832.
    • (2011) Child: Care, Health and Development , vol.37 , pp. 821-832
    • Van Staa, A.1    Jedeloo, S.2    Van Meeteren, J.3    Latour, J.M.4
  • 47
    • 0032826355 scopus 로고    scopus 로고
    • Transition from paediatric to adult care for persons with cystic fibrosis: Patient and parent perspectives
    • Westwood, A. T. R., Henly, L. D., & Willcox, P. (1999). Transition from paediatric to adult care for persons with cystic fibrosis: Patient and parent perspectives. Journal of Paediatric Child Health, 35, 442-445.
    • (1999) Journal of Paediatric Child Health , vol.35 , pp. 442-445
    • Westwood, A.T.R.1    Henly, L.D.2    Willcox, P.3
  • 48
    • 0036900078 scopus 로고    scopus 로고
    • Access to health care: Health insurance considerations for young adults with special health care needs/disabilities
    • White, P. H. (2002). Access to health care: Health insurance considerations for young adults with special health care needs/disabilities. Pediatrics, 110, 1328-1335.
    • (2002) Pediatrics , vol.110 , pp. 1328-1335
    • White, P.H.1
  • 49
    • 36448962726 scopus 로고    scopus 로고
    • Transition from a pediatric HIV intramural clinical research program to adolescent and adult community-based care services: Assessing transition readiness
    • Wiener, L. S., Zobel, M., Battles, H., & Ryder, C. (2007). Transition from a pediatric HIV intramural clinical research program to adolescent and adult community-based care services: Assessing transition readiness. Social Work in Health Care, 46, 1-19.
    • (2007) Social Work in Health Care , vol.46 , pp. 1-19
    • Wiener, L.S.1    Zobel, M.2    Battles, H.3    Ryder, C.4
  • 50
    • 62549140568 scopus 로고    scopus 로고
    • Fumbling the handoff: Managing the transition to adult care for adolescents with chronic conditions
    • Williams, R. G. (2009). Fumbling the handoff: Managing the transition to adult care for adolescents with chronic conditions. Journal of Adolescent Health, 44, 307-308.
    • (2009) Journal of Adolescent Health , vol.44 , pp. 307-308
    • Williams, R.G.1
  • 53
    • 84892143764 scopus 로고    scopus 로고
    • A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease
    • Zhang, L., Ho, J., & Kennedy, S. (2014). A systematic review of the psychometric properties of transition readiness assessment tools in adolescents with chronic disease. BMC Pediatrics, 14, 4.
    • (2014) BMC Pediatrics , vol.14 , pp. 4
    • Zhang, L.1    Ho, J.2    Kennedy, S.3
  • 54
    • 0034161839 scopus 로고    scopus 로고
    • A "stages of change" approach to helping patients change behavior
    • Zimmerman, G. L., Olsen, C. G., & Bosworth, M. F. (2000). A "stages of change" approach to helping patients change behavior. American Family Physician, 61, 1409-1416.
    • (2000) American Family Physician , vol.61 , pp. 1409-1416
    • Zimmerman, G.L.1    Olsen, C.G.2    Bosworth, M.F.3


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