Longitudinal predictors of outcomes for adults with autism spectrum disorder: Systematic review

OTJR Occupation, Participation and Health

Volumn 36, Issue 2, 2016, Pages 55-64

  Kirby, Anne V ^a,b   Baranek, Grace T ^a   Fox, Leslie ^a  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b UNIVERSITY OF UTAH   (United States)

Author keywords

Autism; Functional outcomes; Systematic review

Indexed keywords

ADULTHOOD; AGE; AUTISM; COGNITION; DISEASE SEVERITY; EDUCATIONAL STATUS; EMPLOYMENT; EVIDENCE BASED MEDICINE; FAMILY; GENDER; HEALTH STATUS; HOUSEHOLD; HUMAN; INCOME; INDEPENDENCE; INDEPENDENT LIVING; INTELLIGENCE QUOTIENT; INTERPERSONAL COMMUNICATION; PEER PRESSURE; PSYCHOSOCIAL CARE; RACE; REVIEW; SCHOOL HEALTH SERVICE; SOCIAL INTERACTION; SOCIAL PARTICIPATION; SOCIAL STATUS; SYSTEMATIC REVIEW; VOCATIONAL GUIDANCE; ADULT; HUMAN RELATION; PEER GROUP; SOCIAL WORK;

ADULT; AUTISM SPECTRUM DISORDER; CHILD DEVELOPMENT DISORDERS, PERVASIVE; EMPLOYMENT; FAMILY; HEALTH STATUS; HUMANS; INDEPENDENT LIVING; INTERPERSONAL RELATIONS; PEER GROUP; SOCIAL WORK;

EID: 84978906058     PISSN: 15394492     EISSN: 19382383     Source Type: Journal    
DOI: 10.1177/1539449216650182     Document Type: Review

References (37)

1. Altman, D. G. (2001). Systematic reviews of evaluations of prognostic variables. British Medical Journal, 323, 224-228. doi:10.1136/bmj.323.7306.224
2. American Psychological Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: Author.
3. Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35, 351-360. doi:10.1007/s10803-005-3302-5
4. Cederlund, M., Hagberg, B., Billstedt, E., Gillberg, I. C., & Gillberg, C. (2008). Asperger syndrome and autism: A comparative longitudinal follow-up study more than 5 years after original diagnosis. Journal of Autism and Developmental Disorders, 38, 72-85. doi:10.1007/s10803-007-0364-6
5. Chiang, H.-M., Cheung, Y. K., Li, H., & Tsai, L. Y. (2013). Factors associated with participation in employment for high school leavers with autism. Journal of Autism and Developmental Disorders, 43, 1832-1842. doi:10.1007/s10803-012-1734-2
6. Dunn, L. M., Dunn, L. M., Bulheller, S., & Häcker, H. (1965). Peabody Picture Vocabulary Test. Circle Pines, MN: American Guidance Service.
7. Eaves, L. C., & Ho, H. H. (2008). Young adult outcome of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 739-749. doi:10.1007/s10803-007-0441-x
8. Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., ⋯ Coon, H. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research, 2, 109-118. doi:10.1002/aur.69
9. Fountain, C., King, M. D., & Bearman, P. S. (2011). Age of diagnosis for autism: Individual and community factors across 10 birth cohorts. Journal of Epidemiology & Community Health, 65, 503-510. doi:10.1136/jech.2009.104588
10. Gillespie-Lynch, K., Sepeta, L., Wang, Y., Marshall, S., Gomez, L., Sigman, M., & Hutman, T. (2012). Early childhood predictors of the social competence of adults with autism. Journal of Autism and Developmental Disorders, 42, 161-174. doi:10.1007/s10803-011-1222-0
11. Hagberg, B. S., Nydén, A., Cederlund, M., & Gillberg, C. (2013). Asperger syndrome and "non-verbal learning problems" in a longitudinal perspective: Neuropsychological and social adaptive outcome in early adult life. Psychiatry Research, 210, 553-558. doi:10.1016/j.psychres.2013.06.006
12. Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24, 77-88. doi:10.1177/1088357608329827
13. Henninger, N. A., & Taylor, J. L. (2013). Outcomes in adults with autism spectrum disorders: A historical perspective. Autism, 17, 103-116. doi:10.1177/1362361312441266
14. Holwerda, A., van der Klink, J. J. L., Groothoff, J. W., & Brouwer, S. (2012). Predictors for work participation in individuals with an autism spectrum disorder: A systematic review. Journal of Occupational Rehabilitation, 22, 333-352. doi:10.1007/s10926-011-9347-8
15. Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45, 212-229. doi:10.1111/j.1469-7610.2004.00215.x
16. Howlin, P., Mawhood, L., & Rutter, M. (2000). Autism and developmental receptive language disorder-A follow-up comparison in early adult life. II: Social, behavioural, and psychiatric outcomes. Journal of Child Psychology & Psychiatry, 41, 561-578. doi:10.1111/1469-7610.00643
17. Howlin, P., & Moss, P. (2012). Adults with autism spectrum disorders. Canadian Journal of Psychiatry, 57, 275-283.
18. Howlin, P., Moss, P., Savage, S., & Rutter, M. (2013). Social outcomes in mid- to later adulthood among individuals diagnosed with autism and average nonverbal IQ as children. Journal of the American Academy of Child & Adolescent Psychiatry, 52, 572-581. doi:10.1016/j.jaac.2013.02.017
19. Institute of Education Sciences. (n.d.). Welcome to NLTS2. Available from www.nlts2.org
20. Institute of Medicine of the National Academies. (2011). Finding what works in health care: Standards for systematic reviews. Retrieved from http://www.nationalacademies.org/hmd/Reports/2011/Finding-What-Works-in-Health-Care-Standards-for-Systematic-Reviews/Standards.aspx
21. Interagency Autism Coordinating Committee. (2011). IACC strategic plan for autism spectrum disorder research. Retrieved from https://iacc.hhs.gov/publications/strategic-plan/2011/
22. Le Couteur, A., Rutter, M., Lord, C., Rios, P., Roberston, S., Holdgrafer, M., & McLennan, J. (1989). Autism diagnostic interview: A standardized investigator-based instrument. Journal of Autism and Developmental Disorders, 19, 363-387. doi:10.1007/BF02212936
23. Levy, A., & Perry, A. (2011). Outcomes in adolescents and adults with autism: A review of the literature. Research in Autism Spectrum Disorders, 5, 1271-1282. doi:10.1016/j. rasd.2011.01.023
24. Lindstrom, L., Doren, B., Metheny, J., Johnson, P., & Zane, C. (2007). Transition to employment: Role of the family in career development. Exceptional Children, 73, 348-366.
25. Liptak, G. S., Kennedy, J. A., & Dosa, N. P. (2011). Social participation in a nationally representative sample of older youth and young adults with autism. Journal of Developmental & Behavioral Pediatrics, 32, 277-283. doi:10.1097/DBP.0b013e31820b49fc
26. Magiati, I., Tay, X. W., & Howlin, P. (2014). Cognitive, language, social, and behavioral outcomes in adults with autism spectrum disorders: A systematic review of longitudinal follow-up studies in adulthood. Clinical Psychology Review, 34, 73-86. doi:10.1016/j.cpr.2013.11.002
27. Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G., & The PRISMA Group. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLoS Medicine, 6, e1000097.
28. Newman, L., Wagner, M., Knokey, A.-M., Marder, C., Nagle, K., & Shaver, D., ⋯ SRI International. (2011). The post-high school outcomes of young adults with disabilities up to 8 years after high school: A report from the National Longitudinal Transition Study-2 (NLTS2) (NCSER 2011-3005). Menlo Park, CA: SRI International.
29. Repetti, R., Flook, L., & Sperling, J. (2011). Family influences on development across the lifespan. In K. L. Fingerman, C. A. Berg, J. Smith, & T. C. Antonucci (Eds.), Handbook of lifespan development (pp. 745-775). New York, NY: Springer.
30. Reyna, V. F., Chapman, S. B., Dougherty, M. R., & Confrey, J. (2012). Introduction to the adolescent brain: Learning, reasoning, and decision making. In Authors (Eds.), The adolescent brain: Learning, reasoning, and decision making (pp. 3-11). Washington, DC: American Psychological Association.
31. Schopler, E., Reichler, R. J., & Renner, B. R. (1988). The Childhood Autism Rating Scale. Los Angeles, CA: Western Psychological Services.
32. Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10, 234-247. doi:10.1002/mrdd.20038
33. Shea, B. J., Grimshaw, J. M., Wells, G. A., Boers, M., Andersson, N., Hamel, C., ⋯ Bouter, L. M. (2007). Development of AMSTAR: A measurement tool to assess the methodological quality of systematic reviews. BioMed Central Medical Research Methodology, 7, 10. doi:10.1186/1471-2288-7-10
34. Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (1984). Vineland Adaptive Behavior Scales. Circle Pines, MN: AGS.
35. Taylor, J. L., & Seltzer, M. M. (2011). Employment and postsecondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566-574. doi:10.1007/s10803-010-1070-3
36. Test, D. W., Smith, L. E., & Carter, E. W. (2014). Equipping youth with autism spectrum disorders for adulthood: Promoting rigor, relevance, and relationships. Remedial and Special Education, 35, 80-90. doi:10.1177/0741932513514857
37. Young, S. S., & Karr, A. (2011, September). Deming, data and observational studies: A process out of control and needing fixing. Significance, 8, 116-120.