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Volumn 16, Issue 1, 2016, Pages

A household perspective on access to health care in the context of HIV and disability: A qualitative case study from Malawi

Author keywords

Care; Disability; HIV; Household; Malawi

Indexed keywords

ANTIRETROVIRUS AGENT;

EID: 84977559987     PISSN: None     EISSN: 1472698X     Source Type: Journal    
DOI: 10.1186/s12914-016-0087-x     Document Type: Article
Times cited : (16)

References (71)
  • 1
    • 0003578535 scopus 로고
    • United Nations United Nations General Assembly Geneva
    • United Nations. The universal declaration of human rights. Geneva: United Nations General Assembly; 1948.
    • (1948) The Universal Declaration of Human Rights
  • 4
    • 84930623511 scopus 로고    scopus 로고
    • Issues of equity are also issues of rights: Lessons from experiences in South Africa
    • London L. Issues of equity are also issues of rights: Lessons from experiences in South Africa. BMC Public Health. 2007;14:1-10.
    • (2007) BMC Public Health , vol.14 , pp. 1-10
    • London, L.1
  • 8
    • 70749096308 scopus 로고    scopus 로고
    • Emotional interactions and an ethics of care: Caring relations in families affected by HIV and AIDS
    • Evans R, Thomas F. Emotional interactions and an ethics of care: Caring relations in families affected by HIV and AIDS. Emot Space Soc. 2009;2(2):111-9.
    • (2009) Emot Space Soc , vol.2 , Issue.2 , pp. 111-119
    • Evans, R.1    Thomas, F.2
  • 9
    • 35048879608 scopus 로고    scopus 로고
    • Experience of mental disorder in the context of basic service reforms: The impact on caregiving environments in South Africa
    • 17924261
    • Breen A, Swartz L, Flisher AJ, Joska JA, Corrigall J, Plaatjies L, McDonald DA. Experience of mental disorder in the context of basic service reforms: The impact on caregiving environments in South Africa. Int J Environ Health Res. 2007;17(5):327-34.
    • (2007) Int J Environ Health Res , vol.17 , Issue.5 , pp. 327-334
    • Breen, A.1    Swartz, L.2    Flisher, A.J.3    Joska, J.A.4    Corrigall, J.5    Plaatjies, L.6    McDonald, D.A.7
  • 10
    • 33750047870 scopus 로고    scopus 로고
    • 'I am what i am because of who we all are': International perspectives on rehabilitation: South Africa
    • 17050406
    • Levin K. 'I am what I am because of who we all are': International perspectives on rehabilitation: South Africa. Pediatr Rehabil. 2006;9(3):285-92.
    • (2006) Pediatr Rehabil , vol.9 , Issue.3 , pp. 285-292
    • Levin, K.1
  • 11
    • 84882632618 scopus 로고    scopus 로고
    • Support needs of caregivers: Case studies in South Africa
    • 1:STN:280:DC%2BC3sbhsFWqsw%3D%3D 23961796
    • Sandy PT, Kgole JC, Mavundla TR. Support needs of caregivers: Case studies in South Africa. Int Nurs Rev. 2013;60(3):344-50.
    • (2013) Int Nurs Rev , vol.60 , Issue.3 , pp. 344-350
    • Sandy, P.T.1    Kgole, J.C.2    Mavundla, T.R.3
  • 12
  • 13
    • 79251583782 scopus 로고    scopus 로고
    • Access to health care of persons with disabilities as an indicator of equity in health systems
    • 22046213 3205810
    • Maclachlan M, Mannan H, McAuliffe E. Access to health care of persons with disabilities as an indicator of equity in health systems. Open Med. 2011;5(1):e10-2.
    • (2011) Open Med , vol.5 , Issue.1 , pp. e10-e12
    • Maclachlan, M.1    Mannan, H.2    McAuliffe, E.3
  • 14
    • 79959977158 scopus 로고    scopus 로고
    • World Health Organization and The World Bank WHO and The World Bank Geneva
    • World Health Organization and The World Bank. World report on disability. Geneva: WHO and The World Bank; 2011.
    • (2011) World Report on Disability
  • 16
    • 71649083535 scopus 로고    scopus 로고
    • Millennium development goals and people with disabilities
    • 19944848
    • Groce N, Trani JF. Millennium development goals and people with disabilities. Lancet. 2009;374(9704):1800-1.
    • (2009) Lancet , vol.374 , Issue.9704 , pp. 1800-1801
    • Groce, N.1    Trani, J.F.2
  • 18
    • 84883182746 scopus 로고    scopus 로고
    • Understanding the local context for the application of global mental health: A rural South African experience
    • 24029844
    • Braathen SH, Vergunst R, Mji G, Mannan H, Swartz L. Understanding the local context for the application of global mental health: A rural South African experience. Int Health. 2013;5(1):38-42.
    • (2013) Int Health , vol.5 , Issue.1 , pp. 38-42
    • Braathen, S.H.1    Vergunst, R.2    Mji, G.3    Mannan, H.4    Swartz, L.5
  • 19
    • 84881377147 scopus 로고    scopus 로고
    • A lay carer's story about epilepsy in an urban South African context: They call it an illness of falling or an illness of fitting because a person shakes and eventually falls
    • 23838162
    • Keikelame MJ, Swartz L. A lay carer's story about epilepsy in an urban South African context: They call it an illness of falling or an illness of fitting because a person shakes and eventually falls. Epilepsy Behav. 2013;28(3):512-8.
    • (2013) Epilepsy Behav , vol.28 , Issue.3 , pp. 512-518
    • Keikelame, M.J.1    Swartz, L.2
  • 20
    • 33846306384 scopus 로고    scopus 로고
    • Feminist disability studies
    • Garland-Thomson R. Feminist disability studies. Signs. 2005;30(2):1557-87.
    • (2005) Signs , vol.30 , Issue.2 , pp. 1557-1587
    • Garland-Thomson, R.1
  • 21
    • 0028144588 scopus 로고
    • In the subjunctive mode: Epilepsy narratives in Turkey
    • 1:STN:280:DyaK2c3ktVGrsg%3D%3D 8184334
    • Good BJ, Good MDV. In the subjunctive mode: Epilepsy narratives in Turkey. Soc Sci Med. 1994;38(6):835-42.
    • (1994) Soc Sci Med , vol.38 , Issue.6 , pp. 835-842
    • Good, B.J.1    Good, M.D.V.2
  • 25
    • 71549165162 scopus 로고    scopus 로고
    • Disability: Beyond the medical model
    • (9704):1793
    • Disability: Beyond the medical model. Lancet. 2009;374(9704):1793.
    • (2009) Lancet , vol.374
  • 26
    • 73349094715 scopus 로고    scopus 로고
    • Disability and the training of health professionals
    • 19957403
    • Shakespeare T, Iezzoni LI, Groce NE. Disability and the training of health professionals. Lancet. 2009;374(9704):1815-6.
    • (2009) Lancet , vol.374 , Issue.9704 , pp. 1815-1816
    • Shakespeare, T.1    Iezzoni, L.I.2    Groce, N.E.3
  • 27
    • 84855584968 scopus 로고    scopus 로고
    • The evil circle of poverty: A qualitative study of malaria and disability
    • 22236358 3295708
    • Ingstad B, Munthali AC, Braathen SH, Grut L. The evil circle of poverty: A qualitative study of malaria and disability. Malar J. 2012;11(1):15.
    • (2012) Malar J , vol.11 , Issue.1 , pp. 15
    • Ingstad, B.1    Munthali, A.C.2    Braathen, S.H.3    Grut, L.4
  • 28
    • 71549133391 scopus 로고    scopus 로고
    • Key concepts in disability
    • 19944845
    • Officer A, Groce NE. Key concepts in disability. Lancet. 2009;374(9704):1795-6.
    • (2009) Lancet , vol.374 , Issue.9704 , pp. 1795-1796
    • Officer, A.1    Groce, N.E.2
  • 29
    • 84929959900 scopus 로고    scopus 로고
    • Accessing community health services: Challenges faced by poor people with disabilities in a rural community in South Africa
    • Grut L, Mji G, Braathen SH, Ingstad B. Accessing community health services: Challenges faced by poor people with disabilities in a rural community in South Africa. AJOD. 2012;1(1):7.
    • (2012) AJOD , vol.1 , Issue.1 , pp. 7
    • Grut, L.1    Mji, G.2    Braathen, S.H.3    Ingstad, B.4
  • 30
    • 65149091182 scopus 로고    scopus 로고
    • Access and coordination of health care service for people with disabilities
    • Hwang K, Johnston M, Tulsky D, Wood K, Dyson-Hudson T, Komaroff E. Access and coordination of health care service for people with disabilities. JDPS. 2009;20(1):28-34.
    • (2009) JDPS , vol.20 , Issue.1 , pp. 28-34
    • Hwang, K.1    Johnston, M.2    Tulsky, D.3    Wood, K.4    Dyson-Hudson, T.5    Komaroff, E.6
  • 31
    • 71649112383 scopus 로고    scopus 로고
    • Health care and the un Disability Rights Convention
    • 19944846
    • Stein MA, Stein PJ, Weiss D, Lang R. Health care and the UN Disability Rights Convention. Lancet. 2009;374(9704):1796-8.
    • (2009) Lancet , vol.374 , Issue.9704 , pp. 1796-1798
    • Stein, M.A.1    Stein, P.J.2    Weiss, D.3    Lang, R.4
  • 32
    • 84926430304 scopus 로고    scopus 로고
    • Access to tuberculosis services for individuals with disability in rural Malawi, a qualitative study
    • 25830950 4382312
    • Grut L, Sanudi L, Braathen SH, Jürgens T, Eide AH. Access to tuberculosis services for individuals with disability in rural Malawi, a qualitative study. PLoS One. 2015;10(4):e0122748.
    • (2015) PLoS One , vol.10 , Issue.4 , pp. e0122748
    • Grut, L.1    Sanudi, L.2    Braathen, S.H.3    Jürgens, T.4    Eide, A.H.5
  • 35
    • 80052931008 scopus 로고    scopus 로고
    • Care, disability and HIV in Africa: Diverging or interconnected concepts and practices?
    • Evans R, Atim A. Care, disability and HIV in Africa: diverging or interconnected concepts and practices? TWQ. 2011;32(8):1437-54.
    • (2011) TWQ , vol.32 , Issue.8 , pp. 1437-1454
    • Evans, R.1    Atim, A.2
  • 36
    • 84920692774 scopus 로고    scopus 로고
    • Young carers in South Africa: Tasks undertaken by children in households affected by HIV infection and other illness
    • Lane T, Cluver L, Operario D. Young carers in South Africa: Tasks undertaken by children in households affected by HIV infection and other illness. Vulnerable Child Youth Stud. 2015;10(1):55-66.
    • (2015) Vulnerable Child Youth Stud , vol.10 , Issue.1 , pp. 55-66
    • Lane, T.1    Cluver, L.2    Operario, D.3
  • 37
    • 84939150943 scopus 로고    scopus 로고
    • Health seeking behaviour and the related household out-of-pocket expenditure for chronic non-communicable diseases in rural Malawi
    • Wang Q, Brenner S, Leppert G, Banda TH, Kalmus O, De Allegri M. Health seeking behaviour and the related household out-of-pocket expenditure for chronic non-communicable diseases in rural Malawi. Health Policy Plann. 2015;30(2):242-52.
    • (2015) Health Policy Plann , vol.30 , Issue.2 , pp. 242-252
    • Wang, Q.1    Brenner, S.2    Leppert, G.3    Banda, T.H.4    Kalmus, O.5    De Allegri, M.6
  • 38
    • 84947475234 scopus 로고    scopus 로고
    • The 2001-03 famine and the dynamics of HIV in Malawi: A natural experiment
    • 26332405 4558031
    • Loevinsohn M. The 2001-03 famine and the dynamics of HIV in Malawi: A natural experiment. PLoS One. 2015;10(9):e0135108.
    • (2015) PLoS One , vol.10 , Issue.9 , pp. e0135108
    • Loevinsohn, M.1
  • 40
    • 0037467503 scopus 로고    scopus 로고
    • HIV/AIDS and people with disability
    • 12727388
    • Groce NE. HIV/AIDS and people with disability. Lancet. 2003;361(9367):1401-2.
    • (2003) Lancet , vol.361 , Issue.9367 , pp. 1401-1402
    • Groce, N.E.1
  • 41
    • 30444456224 scopus 로고    scopus 로고
    • HIV/AIDS and individuals with disability
    • 17136910
    • Groce NE. HIV/AIDS and individuals with disability. Health Hum Rights. 2005;8(2):215-24.
    • (2005) Health Hum Rights , vol.8 , Issue.2 , pp. 215-224
    • Groce, N.E.1
  • 43
    • 59849119916 scopus 로고    scopus 로고
    • HIV/AIDS and disability in Southern Africa: A review of relevant literature
    • 19194810
    • Rohleder P, Braathen SH, Swartz L, Eide AH. HIV/AIDS and disability in Southern Africa: a review of relevant literature. Disabil Rehabil. 2009;31(1):51-9.
    • (2009) Disabil Rehabil , vol.31 , Issue.1 , pp. 51-59
    • Rohleder, P.1    Braathen, S.H.2    Swartz, L.3    Eide, A.H.4
  • 44
    • 84888397372 scopus 로고    scopus 로고
    • Disability, sexuality and sexual health
    • Aggleton Boyce H.L. Moore R. Parker (eds) Routledge London
    • Rohleder P, Swartz L. Disability, sexuality and sexual health. In: Aggleton P, Boyce P, Moore HL, Parker R, editors. Understanding global sexualities: New frontiers. London: Routledge; 2012. p. 138-52.
    • (2012) Understanding Global Sexualities: New Frontiers , pp. 138-152
    • Rohleder, P.1    Swartz, L.2
  • 45
    • 85032150891 scopus 로고    scopus 로고
    • Disability and HIV/AIDS - A systematic review of literature on Africa
    • Hanass-Hancock J. Disability and HIV/AIDS - a systematic review of literature on Africa. J Int AIDS Soc. 2009;2(1):9.
    • (2009) J Int AIDS Soc , vol.2 , Issue.1 , pp. 9
    • Hanass-Hancock, J.1
  • 46
    • 85006685005 scopus 로고    scopus 로고
    • The fields of HIV and disability: Past, present and future
    • Hanass-Hancock J, Nixon SA. The fields of HIV and disability: past, present and future. J Int AIDS Soc. 2009;2(1):3.
    • (2009) J Int AIDS Soc , vol.2 , Issue.1 , pp. 3
    • Hanass-Hancock, J.1    Nixon, S.A.2
  • 47
    • 84948804900 scopus 로고    scopus 로고
    • Accessed 14 March 2014
    • Sander-Staudt M. Care ethics. 2014. http://www.iep.utm.edu/care-eth/#SSH1cv. Accessed 14 March 2014.
    • (2014) Care Ethics
    • Sander-Staudt, M.1
  • 49
    • 0003014730 scopus 로고
    • Toward a feminist theory of caring
    • E. Abel M. Nelson (eds) SUNY Press Albany, NY
    • Fisher B, Tronto J. Toward a feminist theory of caring. In: Abel E, Nelson M, editors. Circles of care. Albany, NY: SUNY Press; 1990. p. 36-54.
    • (1990) Circles of Care , pp. 36-54
    • Fisher, B.1    Tronto, J.2
  • 50
    • 85044813269 scopus 로고    scopus 로고
    • Rethinking care theory: The practice of caring and the obligation to care
    • Engster D. Rethinking care theory: The practice of caring and the obligation to care. Hypatia. 2005;20(3):50-74.
    • (2005) Hypatia , vol.20 , Issue.3 , pp. 50-74
    • Engster, D.1
  • 51
    • 29144483516 scopus 로고    scopus 로고
    • Dependency, difference and the global ethic of longterm care
    • Kittay EF, Jennings B, Wasunna AA. Dependency, difference and the global ethic of longterm care. J Polit Philos. 2005;13(4):443-69.
    • (2005) J Polit Philos , vol.13 , Issue.4 , pp. 443-469
    • Kittay, E.F.1    Jennings, B.2    Wasunna, A.A.3
  • 52
    • 79952306673 scopus 로고    scopus 로고
    • An ethic of care
    • M.B. Holstein P.B. Mitzen (eds) Springer Publishing Company New York
    • Tronto J. An ethic of care. In: Holstein MB, Mitzen PB, editors. Ethics in community-based elder care. New York: Springer Publishing Company; 2001. p. 60-8.
    • (2001) Ethics in Community-based Elder Care , pp. 60-68
    • Tronto, J.1
  • 54
    • 84881007455 scopus 로고    scopus 로고
    • Family burden related to mental and physical disorders in the world: Results from the WHO World Mental Health (WMH) surveys
    • 23904015
    • Viana MC, Gruber MJ, Shahly V, Alhamzawi A, Alonso J, Andrade LH, et al. Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys. Rev Bras Psiquiatr. 2013;35(2):115-25.
    • (2013) Rev Bras Psiquiatr , vol.35 , Issue.2 , pp. 115-125
    • Viana, M.C.1    Gruber, M.J.2    Shahly, V.3    Alhamzawi, A.4    Alonso, J.5    Andrade, L.H.6
  • 55
    • 84876743118 scopus 로고    scopus 로고
    • Understanding careseeking for child illness in sub-Saharan Africa: A systematic review and conceptual framework based on qualitative research of household recognition and response to child diarrhoea, pneumonia and malaria
    • 23608095
    • Colvin CJ, Smith HJ, Swartz A, Ahs JW, de Heer J, Opiyo N, et al. Understanding careseeking for child illness in sub-Saharan Africa: a systematic review and conceptual framework based on qualitative research of household recognition and response to child diarrhoea, pneumonia and malaria. Soc Sci Med. 2013;86:66-78.
    • (2013) Soc Sci Med , vol.86 , pp. 66-78
    • Colvin, C.J.1    Smith, H.J.2    Swartz, A.3    Ahs, J.W.4    De Heer, J.5    Opiyo, N.6
  • 56
    • 67649365942 scopus 로고    scopus 로고
    • Affordability, availability and acceptability barriers to health care for the chronically ill: Longitudinal case studies from South Africa
    • 19426533 2694171
    • Goudge J, Gilson L, Russell S, Gumede T, Mills A. Affordability, availability and acceptability barriers to health care for the chronically ill: longitudinal case studies from South Africa. BMC Health Serv Res. 2009;9:75.
    • (2009) BMC Health Serv Res , vol.9 , pp. 75
    • Goudge, J.1    Gilson, L.2    Russell, S.3    Gumede, T.4    Mills, A.5
  • 57
    • 62449116135 scopus 로고    scopus 로고
    • The household costs of health care in rural South Africa with free public primary care and hospital exemptions for the poor
    • 19254274
    • Goudge J, Gilson L, Russell S, Gumede T, Mills A. The household costs of health care in rural South Africa with free public primary care and hospital exemptions for the poor. Trop Med Int Health. 2009;14(4):458-67.
    • (2009) Trop Med Int Health , vol.14 , Issue.4 , pp. 458-467
    • Goudge, J.1    Gilson, L.2    Russell, S.3    Gumede, T.4    Mills, A.5
  • 58
    • 62449220965 scopus 로고    scopus 로고
    • Illness-related impoverishment in rural South Africa: Why does social protection work for some households but not others?
    • Goudge J, Russel S, Gilson L, Gujmede T, Tollman S, Mills A. Illness-related impoverishment in rural South Africa: Why does social protection work for some households but not others? J Int Dev. 2009;21(2):231-51.
    • (2009) J Int Dev , vol.21 , Issue.2 , pp. 231-251
    • Goudge, J.1    Russel, S.2    Gilson, L.3    Gujmede, T.4    Tollman, S.5    Mills, A.6
  • 59
    • 67649359972 scopus 로고    scopus 로고
    • Household experiences of ill-health and risk protection mechanisms
    • Goudge J, Russell S, Gilson L, Molyneux C, Hanson K. Household experiences of ill-health and risk protection mechanisms. J Int Dev. 2009;21(2):159-68.
    • (2009) J Int Dev , vol.21 , Issue.2 , pp. 159-168
    • Goudge, J.1    Russell, S.2    Gilson, L.3    Molyneux, C.4    Hanson, K.5
  • 60
    • 30744448654 scopus 로고    scopus 로고
    • The impact of HIV/AIDS morbidity and mortality on households - A review of household studies
    • Naidu V, Harris G. The impact of HIV/AIDS morbidity and mortality on households - A review of household studies. S Afr J Econ. 2005;73:533-44.
    • (2005) S Afr J Econ , vol.73 , pp. 533-544
    • Naidu, V.1    Harris, G.2
  • 61
    • 0036776274 scopus 로고    scopus 로고
    • Children with Hydrocephalus and Spina Bifida in East Africa: Can family and community resources improve the odds?
    • Miles M. Children with Hydrocephalus and Spina Bifida in East Africa: Can family and community resources improve the odds? Disabil Soc. 2002;17(6):643-58.
    • (2002) Disabil Soc , vol.17 , Issue.6 , pp. 643-658
    • Miles, M.1
  • 65
    • 79951591838 scopus 로고    scopus 로고
    • The involvement of users and carers in health and social research: The realities of inclusion and engagement
    • 21172921
    • Read S, Maslin-Prothero S. The involvement of users and carers in health and social research: the realities of inclusion and engagement. Qual Health Res. 2011;21(5):704-13.
    • (2011) Qual Health Res , vol.21 , Issue.5 , pp. 704-713
    • Read, S.1    Maslin-Prothero, S.2
  • 66
    • 85041087490 scopus 로고    scopus 로고
    • On the unethicality of disablism: Excluding intellectually impaired individuals from participating in research can be unethical
    • Capri C, Coetzee O. On the unethicality of disablism: Excluding intellectually impaired individuals from participating in research can be unethical. AJOD. 2012;1(1):4.
    • (2012) AJOD , vol.1 , Issue.1 , pp. 4
    • Capri, C.1    Coetzee, O.2
  • 67
    • 84858308990 scopus 로고    scopus 로고
    • What is right? Ethics in intellectual disabilities research
    • McDonald KE, Kidney CA. What is right? Ethics in intellectual disabilities research. JPPID. 2012;9(1):27-39.
    • (2012) JPPID , vol.9 , Issue.1 , pp. 27-39
    • McDonald, K.E.1    Kidney, C.A.2
  • 68
    • 84873245581 scopus 로고    scopus 로고
    • 'You need to let your voice be heard': Research participants' views on research
    • 1:STN:280:DC%2BC38vhs1Cgug%3D%3D 22292970
    • McDonald KE, Kidney CA, Patka M. 'You need to let your voice be heard': research participants' views on research. J Intellect Disabil Res. 2013;57(3):216-25.
    • (2013) J Intellect Disabil Res , vol.57 , Issue.3 , pp. 216-225
    • McDonald, K.E.1    Kidney, C.A.2    Patka, M.3
  • 69
    • 84882576753 scopus 로고    scopus 로고
    • Malawi Ministry of Health Malawi Ministry of Health Lilongwe
    • Malawi Ministry of Health. Malawi health sector strategic plan 2011-2016. Lilongwe: Malawi Ministry of Health; 2011.
    • (2011) Malawi Health Sector Strategic Plan 2011-2016
  • 71
    • 84894060757 scopus 로고    scopus 로고
    • I just answer 'yes' to everything they say": Access to health care for deaf people in Worcester, South Africa and the politics of exclusion
    • 24388666
    • Kritzinger J, Schneider M, Swartz L, Braathen SH. "I just answer 'yes' to everything they say": access to health care for deaf people in Worcester, South Africa and the politics of exclusion. Patient Educ Couns. 2014;94(3):379-83.
    • (2014) Patient Educ Couns , vol.94 , Issue.3 , pp. 379-383
    • Kritzinger, J.1    Schneider, M.2    Swartz, L.3    Braathen, S.H.4


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