Personhood and solidarity: What kind of personalized medicine do we want?

Personalized Medicine

Volumn 11, Issue 7, 2014, Pages 651-657

  Prainsack, Barbara ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

patient centered medicine; personalized medicine; personhood; relational autonomy

Indexed keywords

DECISION MAKING; HIGH RISK BEHAVIOR; HUMAN; PERSONALITY; PERSONALIZED MEDICINE; PERSONHOOD; REVIEW; SOLIDARITY; THINKING;

EID: 84909982704     PISSN: 17410541     EISSN: 1744828X     Source Type: Journal    
DOI: 10.2217/pme.14.49     Document Type: Review

References (34)

1. Salari K, Watkins H, Ashley EA. Personalized medicine: hope or hype? Eur. Heart J. 33 (13), 1564-1570 (2012).
2. Doz F, Marvanne P, Fagot-Largeault A. The person in personalised medicine. Eur. J. Cancer 49 (5), 1159-1160 (2013).
3. Dickenson D. Me Medicine vs. We Medicine: Reclaiming Biotechnology for the Common Good. Columbia University Press, NY, USA (2013).
4. European Science Foundation (ESF). Personalised medicine for the European citizen-towards more precise medicine for the diagnosis, treatment and prevention of disease (2012). www.esf.org/coordinating-research/forward-looks/biomedical-sciences-med/current-forward-looks-in-biomedical-sciences/personalised-medicine-for-the-european-citizen.html.
5. Hunter KM. Doctors Stories: The Narrative Structure of Medical Knowledge. Princeton University Press, NJ, USA (1991).
6. Pokorska-Bocci A, Stewart A, Sagoo GS Personalised medicine: what's in a name? Pers. Med. 11 (2), 197-220 (2014).
7. Reardon J. The person and genomics of personal genomics. Pers. Med. 8 (1), 95-197 (2011).
8. Battersby C. The Sublime, Terror and Human Difference. Routledge, UK (2007).
9. Taylor C. Hegel. Cambridge University Press, UK (1975).
10. MacPherson CB. The Political Theory of Possessive Individualism: Hobbes to Locke. Oxford University Press, UK (1962).
11. Smith A. Book I, Chapter 2: Of the causes of improvement in the productive powers of labour. In: An Inquiry into the Nature and Causes of the Wealth of Nations. Cannan E (Ed.). W. Strahan, UK (1776).
12. Mauss M. The Gift. Routledge and Kegan Paul, UK (1925).
13. Titmuss R. The Gift Relationship: From Human Blood to Social Policy. Allen and Unwin, UK (1970).
14. Mackenzie C, Stoljar N. Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self. Oxford University Press, Oxford, UK. (2000).
15. Baylis F, Kenny NP, Sherwin S. A relational account of public health care ethics. Public Health Ethics 1 (3), 196-209 (2008).
16. Powers M, Faden R. Social Justice: The Moral Foundations of Public Health and Health Policy. Oxford University Press, NY, USA (2006).
17. Nedelsky J. Law, boundaries and the bounded self. Representations 30, 162-189 (1990).
18. Nedelsky J. Law's Relations: A Relational Theory of Self, Autonomy, and Law. Oxford University Press, NY, USA (2011).
19. Koenig BA, Gates-Williams J. Understanding cultural difference in caring for dying patients. West. J. Med. 163, 244-249 (1995).
20. Hacking I. Making up people. LRB 28 (6), 23-26 (2006).
21. Ohnsorge K, Gudat Keller HR, Widdershoven GAM, Rehmann-Sutter C. Ambivalence at the end of life: how to understand patients wishes ethically. Nurs. Ethics 19 (5), 629-641 (2012).
22. Widdows H. The Connected Self: The Ethics and Governance of the Genetic Individual. Cambridge University Press, Cambridge, UK. (2013).
23. Greenhalgh T, Howick J, Maskrey N. Evidence based medicine: a movement in crisis? BMJ 348, g3725 (2014).
24. Chan D, Howard M, Dolovich L, Bartlett G, Price D. Revolutionizing patient control of health information. Can. Fam. Physician 59 (8), 823-824 (2013).
25. National Academy of Sciences. Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease. National Academy of Sciences, WA, USA (2011).
26. Weber GM, Mandl KD, Kohane IS. Finding the missing link for big biomedical data. JAMA 311 (24), 2479-2480 (2014).
27. Prainsack B, Buyx A. Solidarity. Reflections on an emerging concept in bioethics (2011). http://nuffieldbioethics.org/project/solidarity/.
28. Prainsack B, Buyx A. Solidarity in contemporary bioethics. Bioethics 26 (7), 343-350 (2012).
29. Prainsack B. The powers of participatory medicine. PLoS Biol. 12 (4), e1001837 (2014).
30. Berwick DM. What patient-centered should mean: confessions of an extremist. Health Affairs 28 (4), 555-565 (2009).
31. Neff G. Why big data won't cure us. Big Data 1 (3), 117-123 (2013).
32. Robert Wood Johnson Foundation. RWJF awards $1.9 million grant to PatientsLikeMe to create world's first open research platform to develop patient-centered health outcome measures (2013). www.rwjf.org/en/about-rwjf/newsroom/newsroom-content/2013/02/rwjf-awards-grant-to-patientslikeme.html.
33. Choosing Wisely initiative. www.choosingwisely.org.
34. Cook SDN. Chapter 8: That which governs best: ethics, leadership and human systems. In: The Quest for Moral Leaders: Essays in Leadership Ethics. Ciulla JB, Price TL, Murphy SE (Eds). Edward Elgar Publishing, MA, USA (2005).