Attitudes about the use of internet support groups and the impact among parents of children with Cornelia de Lange syndrome

American Journal of Medical Genetics, Part C: Seminars in Medical Genetics

Volumn 172, Issue 2, 2016, Pages 229-236

  Cacioppo, Cara N ^a   Conway, Laura J ^a   Mehta, Devanshi ^a   Krantz, Ian D ^a   Noon, Sarah E ^a  

^a NONE

Author keywords

Cornelia de Lange syndrome; internet support groups; rare disease support

Indexed keywords

ARTICLE; CHILD; CHILD CARE; CONTROLLED STUDY; DE LANGE SYNDROME; DIET; FEMALE; HEALTH CARE PERSONNEL; HUMAN; INTERNET; INTERNET SUPPORT GROUP; MALE; OPEN ENDED QUESTIONNAIRE; PARENTAL ATTITUDE; PRIORITY JOURNAL; PSYCHOSOCIAL CARE; SOCIAL NETWORK; STRUCTURED QUESTIONNAIRE; SUPPORT GROUP; ATTITUDE; PARENT; PSYCHOLOGY; QUESTIONNAIRE; SELF HELP;

ATTITUDE; CHILD; DE LANGE SYNDROME; HUMANS; INTERNET; PARENTS; SELF-HELP GROUPS; SURVEYS AND QUESTIONNAIRES;

EID: 84966546688     PISSN: 15524868     EISSN: 15524876     Source Type: Journal    
DOI: 10.1002/ajmg.c.31504     Document Type: Article

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