메뉴 건너뛰기




Volumn 161, Issue 5, 2013, Pages 951-957

The Role of Social Networking Sites in Medical Genetics Research

Author keywords

Human subjects; Medical genetics; Social network

Indexed keywords

ADVERTIZING; ARTICLE; ATTITUDE TO HEALTH; COST EFFECTIVENESS ANALYSIS; DECISION MAKING; FACEBOOK; GENETIC SCREENING; HUMAN; INFORMATION DISSEMINATION; INFORMATION SEEKING; INTERNET; MEDICAL GENETICS; MEDICAL INFORMATION; MEDICAL RESEARCH; ONLINE SYSTEM; PRENATAL SCREENING; PRIORITY JOURNAL; SOCIAL NETWORK; WEB BROWSER;

EID: 84876810003     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.35903     Document Type: Article
Times cited : (23)

References (38)
  • 1
    • 84876791105 scopus 로고    scopus 로고
    • 23andMe. 23andWeResearch (Accessed 2 April 2012).
    • 23andMe. 2012. 23andWeResearch. https://www.23andme.com/research (Accessed 2 April 2012).
    • (2012)
  • 2
    • 33645460941 scopus 로고    scopus 로고
    • At-home fetal DNA gender testing: Caveat emptor
    • Bianchi DW. 2006. At-home fetal DNA gender testing: Caveat emptor. Obstet Gynecol 107:216-218.
    • (2006) Obstet Gynecol , vol.107 , pp. 216-218
    • Bianchi, D.W.1
  • 3
    • 37249053884 scopus 로고    scopus 로고
    • Social network sites: Definition, history, and scholarship
    • Article 11
    • Boyd DM, Ellison NB. 2007. Social network sites: Definition, history, and scholarship. J Comput Mediat Commun 13:Article 11.
    • (2007) J Comput Mediat Commun , vol.13
    • Boyd, D.M.1    Ellison, N.B.2
  • 4
    • 84876799747 scopus 로고    scopus 로고
    • Eunice Kennedy Shriver National Institute of Child Health and Human Development Scientific Vision Workshop on pregnancy and pregnancy outcomes: Workshop white paper. Eunice Kennedy Shriver National Institute of Child Health and Human Development. (Accessed 26 September 2011).
    • Catalano PM, Williams MA, Wise PH, Bianchi DW, Saade GR. 2011. Eunice Kennedy Shriver National Institute of Child Health and Human Development Scientific Vision Workshop on pregnancy and pregnancy outcomes: Workshop white paper. Eunice Kennedy Shriver National Institute of Child Health and Human Development. http://www.nichd.nih.gov/vision/comments/whitepapers/Vision_Pregnancy_WP_042811.pdf (Accessed 26 September 2011).
    • (2011)
    • Catalano, P.M.1    Williams, M.A.2    Wise, P.H.3    Bianchi, D.W.4    Saade, G.R.5
  • 5
    • 84876808434 scopus 로고    scopus 로고
    • World map of social networks June 2012. VincosBlog (Accessed 13 July 2012).
    • Cosenza V. 2012. World map of social networks June 2012. VincosBlog. http://vincos.it/world-map-of-social-networks/ (Accessed 13 July 2012).
    • (2012)
    • Cosenza, V.1
  • 6
    • 84876805140 scopus 로고    scopus 로고
    • Cri du chat/5p-syndrome. Facebook (Accessed 2 April 2012).
    • Cri du chat/5p-syndrome. 2012. Facebook. http://www.facebook.com/cdc.5pminus (Accessed 2 April 2012).
    • (2012)
  • 7
    • 84876797720 scopus 로고    scopus 로고
    • Tables of direct-to-consumer genetic testing companies and conditions tested-August 2011. Genetics and Public Policy Center. (Accessed 20 February 2012).
    • Dvoskin R, Kaufman D. 2011. Tables of direct-to-consumer genetic testing companies and conditions tested-August 2011. Genetics and Public Policy Center. http://www.dnapolicy.org/resources/DTCTableAug2011Alphabydisease.pdf (Accessed 20 February 2012).
    • (2011)
    • Dvoskin, R.1    Kaufman, D.2
  • 8
    • 84876799130 scopus 로고    scopus 로고
    • Facebook Help Center. How are Pages different from Groups? Which one should I create? Facebook (Accessed 15 July 2012).
    • Facebook Help Center. 2012a. How are Pages different from Groups? Which one should I create? Facebook. https://www.facebook.com/help/groups/basics (Accessed 15 July 2012).
    • (2012)
  • 9
    • 84876794194 scopus 로고    scopus 로고
    • Facebook Help Center. What does it mean to like a page or content off of Facebook? Facebook (Accessed 13 July 2012).
    • Facebook Help Center. 2012b. What does it mean to like a page or content off of Facebook? Facebook. https://www.facebook.com/help/like (Accessed 13 July 2012).
    • (2012)
  • 10
    • 84876795914 scopus 로고    scopus 로고
    • Facebook Help Center. What is a Facebook page? Facebook. (Accessed 13 July 2012).
    • Facebook Help Center. 2012c. What is a Facebook page? Facebook. https://www.facebook.com/help/?faq=174987089221178 (Accessed 13 July 2012).
    • (2012)
  • 12
    • 84876814767 scopus 로고    scopus 로고
    • Health topics. Pew Research Center's Internet & American Life Project. (Accessed 5 December 2011).
    • Fox S. 2011. Health topics. Pew Research Center's Internet & American Life Project. http://www.pewinternet.org/∼/media//Files/Reports/2011/PIP_Health_Topics.pdf (Accessed 5 December 2011).
    • (2011)
    • Fox, S.1
  • 13
    • 52949089274 scopus 로고    scopus 로고
    • The current landscape for direct-to-consumer genetic testing: Legal, ethical, and policy issues
    • Hogarth S, Javitt G, Melzer D. 2008. The current landscape for direct-to-consumer genetic testing: Legal, ethical, and policy issues. Annu Rev Genomics Hum Genet 9:161-182.
    • (2008) Annu Rev Genomics Hum Genet , vol.9 , pp. 161-182
    • Hogarth, S.1    Javitt, G.2    Melzer, D.3
  • 14
    • 84876796069 scopus 로고    scopus 로고
    • Which countries have over 1 million Facebook users? GreyReview. (Accessed 14 July 2012).
    • Hui LY. 2011. Which countries have over 1 million Facebook users? GreyReview. http://www.greyreview.com/2011/02/27/which-countries-have-over-1-million-facebook-users/ (Accessed 14 July 2012).
    • (2011)
    • Hui, L.Y.1
  • 16
    • 84864502192 scopus 로고    scopus 로고
    • The experience of families with children with Trisomy 13 and 18 in social networks
    • Janvier A, Farlow B, Wilfond BS. 2012. The experience of families with children with Trisomy 13 and 18 in social networks. Pediatrics 130:293-298.
    • (2012) Pediatrics , vol.130 , pp. 293-298
    • Janvier, A.1    Farlow, B.2    Wilfond, B.S.3
  • 17
    • 84856231425 scopus 로고    scopus 로고
    • Recruiting adolescent girls into a follow-up study: Benefits of using a social networking website
    • Jones L, Saksvig BI, Grieser M, Young DR. 2012. Recruiting adolescent girls into a follow-up study: Benefits of using a social networking website. Contemp Clin Trials 33:268-272.
    • (2012) Contemp Clin Trials , vol.33 , pp. 268-272
    • Jones, L.1    Saksvig, B.I.2    Grieser, M.3    Young, D.R.4
  • 18
    • 70449723093 scopus 로고    scopus 로고
    • Research 2.0: Social networking and direct-to-consumer (DTC) genomics
    • Lee SS, Crawley L. 2009. Research 2.0: Social networking and direct-to-consumer (DTC) genomics. Am J Bioeth 9:35-44.
    • (2009) Am J Bioeth , vol.9 , pp. 35-44
    • Lee, S.S.1    Crawley, L.2
  • 19
    • 80855131468 scopus 로고    scopus 로고
    • The general public's understanding and perception of direct-to-consumer genetic test results
    • Leighton JW, Valverde K, Bernhardt BA. 2012. The general public's understanding and perception of direct-to-consumer genetic test results. Public Health Genomics 15:11-21.
    • (2012) Public Health Genomics , vol.15 , pp. 11-21
    • Leighton, J.W.1    Valverde, K.2    Bernhardt, B.A.3
  • 20
    • 84876791539 scopus 로고    scopus 로고
    • 65% of online adults use social networking sites. Pew Research Center's Internet & American Life Project (Accessed 5 December 2011).
    • Madden M, Zickuhr K. 2011. 65% of online adults use social networking sites. Pew Research Center's Internet & American Life Project. http://pewinternet.org/∼/media//Files/Reports/2011/PIP-SNS-Update-2011.pdf (Accessed 5 December 2011).
    • (2011)
    • Madden, M.1    Zickuhr, K.2
  • 21
    • 84876790348 scopus 로고    scopus 로고
    • About EFM & online market research company. (Accessed 29 March 2012).
    • MarketTools I. 2012. About EFM & online market research company. http://www.markettools.com/company (Accessed 29 March 2012).
    • (2012)
    • MarketTools, I.1
  • 22
    • 70449719034 scopus 로고    scopus 로고
    • Social networkers' attitudes toward direct-to-consumer personal genome testing
    • McGuire AL, Diaz CM, Wang T, Hilsenbeck SG. 2009. Social networkers' attitudes toward direct-to-consumer personal genome testing. Am J Bioeth 9:3-10.
    • (2009) Am J Bioeth , vol.9 , pp. 3-10
    • McGuire, A.L.1    Diaz, C.M.2    Wang, T.3    Hilsenbeck, S.G.4
  • 23
    • 84856713768 scopus 로고    scopus 로고
    • Associations between displayed alcohol references on facebook and problem drinking among college students
    • Moreno MA, Christakis DA, Egan KG, Brockman LN, Becker T. 2012. Associations between displayed alcohol references on facebook and problem drinking among college students. Arch Pediatr Adolesc Med 166:157-163.
    • (2012) Arch Pediatr Adolesc Med , vol.166 , pp. 157-163
    • Moreno, M.A.1    Christakis, D.A.2    Egan, K.G.3    Brockman, L.N.4    Becker, T.5
  • 24
    • 84864754589 scopus 로고    scopus 로고
    • Facebook: An effective tool for participant retention in longitudinal research
    • Mychasiuk R, Benzies K. 2012. Facebook: An effective tool for participant retention in longitudinal research. Child Care Health Dev 38:753-756.
    • (2012) Child Care Health Dev , vol.38 , pp. 753-756
    • Mychasiuk, R.1    Benzies, K.2
  • 25
    • 84876814501 scopus 로고    scopus 로고
    • Myotonic Dystrophy Foundation. Facebook (Accessed 11 November 2012).
    • Myotonic Dystrophy Foundation. 2012. Facebook. https://www.facebook.com/Myotonic?fref=ts (Accessed 11 November 2012).
    • (2012)
  • 26
    • 84876812985 scopus 로고    scopus 로고
    • National Down Syndrome Society. Facebook. (Accessed 2 April 2012).
    • National Down Syndrome Society. 2012. Facebook. http://www.facebook.com/NationalDownSyndromeSociety (Accessed 2 April 2012).
    • (2012)
  • 27
    • 84876789150 scopus 로고    scopus 로고
    • Pew Research Center. Web 2.0. Pew Research Center's Internet & American Life Project (Accessed 13 July 2012).
    • Pew Research Center. 2012a. Web 2.0. Pew Research Center's Internet & American Life Project. http://pewinternet.org/topics/Web-20.aspx (Accessed 13 July 2012).
    • (2012)
  • 28
    • 84876796789 scopus 로고    scopus 로고
    • Pew Research Center. What internet users do online. Pew Research Center's Internet & American Life Project (Accessed 13 July 2012).
    • Pew Research Center. 2012b. What internet users do online. Pew Research Center's Internet & American Life Project. http://pewinternet.org/Trend-Data-%28Adults%29/Online-Activites-Total.aspx (Accessed 13 July 2012).
    • (2012)
  • 29
    • 84876791695 scopus 로고    scopus 로고
    • Pew Research Center. Who's online: Internet user demographics. Pew Research Center's Internet & American Life Project (Accessed 13 July 2012).
    • Pew Research Center. 2012c. Who's online: Internet user demographics. Pew Research Center's Internet & American Life Project. http://pewinternet.org/Trend-Data-%28Adults%29/Whos-Online.aspx (Accessed 13 July 2012).
    • (2012)
  • 30
    • 84860598601 scopus 로고    scopus 로고
    • Broad reach and targeted recruitment using facebook for an online survey of young adult substance use
    • Ramo DE, Prochaska JJ. 2012. Broad reach and targeted recruitment using facebook for an online survey of young adult substance use. J Med Internet Res 14:e28.
    • (2012) J Med Internet Res , vol.14
    • Ramo, D.E.1    Prochaska, J.J.2
  • 31
    • 77955245526 scopus 로고    scopus 로고
    • Reaching young adult smokers through the internet: Comparison of three recruitment mechanisms
    • Ramo DE, Hall SM, Prochaska JJ. 2010. Reaching young adult smokers through the internet: Comparison of three recruitment mechanisms. Nicotine Tob Res 12:768-775.
    • (2010) Nicotine Tob Res , vol.12 , pp. 768-775
    • Ramo, D.E.1    Hall, S.M.2    Prochaska, J.J.3
  • 32
    • 83655183637 scopus 로고    scopus 로고
    • Recruiting study participants through Facebook
    • Richiardi L, Pivetta E, Merletti F. 2012. Recruiting study participants through Facebook. Epidemiology 23:175.
    • (2012) Epidemiology , vol.23 , pp. 175
    • Richiardi, L.1    Pivetta, E.2    Merletti, F.3
  • 33
    • 73349132403 scopus 로고    scopus 로고
    • Internet versus face-to-face therapy: Emotional self-disclosure issues for young adults
    • Rogers VL, Griffin MQ, Wykle ML, Fitzpatrick JJ. 2009. Internet versus face-to-face therapy: Emotional self-disclosure issues for young adults. Issues Ment Health Nurs 30:596-602.
    • (2009) Issues Ment Health Nurs , vol.30 , pp. 596-602
    • Rogers, V.L.1    Griffin, M.Q.2    Wykle, M.L.3    Fitzpatrick, J.J.4
  • 34
    • 77955782187 scopus 로고    scopus 로고
    • Recruitment of hard-to-reach population subgroups via adaptations of the snowball sampling strategy
    • Sadler GR, Lee HC, Lim RS, Fullerton J. 2010. Recruitment of hard-to-reach population subgroups via adaptations of the snowball sampling strategy. Nurs Health Sci 12:369-374.
    • (2010) Nurs Health Sci , vol.12 , pp. 369-374
    • Sadler, G.R.1    Lee, H.C.2    Lim, R.S.3    Fullerton, J.4
  • 35
    • 84876802615 scopus 로고    scopus 로고
    • Sequenom Center for Molecular Medicine. About the test (Accessed 13 July 2012).
    • Sequenom Center for Molecular Medicine. 2012. About the test. http://www.sequenomcmm.com/home/health-care-professionals/trisomy-21/about-the-test/ (Accessed 13 July 2012).
    • (2012)
  • 36
  • 37
    • 84876815098 scopus 로고    scopus 로고
    • Trisomy 18 Foundation. Facebook (Accessed 2 April 2012).
    • Trisomy 18 Foundation. 2012. Facebook. http://www.facebook.com/Trisomy18 (Accessed 2 April 2012).
    • (2012)
  • 38
    • 84859006156 scopus 로고    scopus 로고
    • Mostly heterosexual and mostly gay/lesbian: Evidence for new sexual orientation identities
    • Vrangalova Z, Savin-Williams RC. 2012. Mostly heterosexual and mostly gay/lesbian: Evidence for new sexual orientation identities. Arch Sex Behav 41:85-101.
    • (2012) Arch Sex Behav , vol.41 , pp. 85-101
    • Vrangalova, Z.1    Savin-Williams, R.C.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.