Managing Cancer Care: a psycho-educational intervention to improve knowledge of care options and breast cancer self-management

Psycho-Oncology

Volumn 26, Issue 2, 2017, Pages 173-181

  Schulman Green, Dena ^a   Jeon, Sangchoon ^a  

^a YALE UNIVERSITY SCHOOL OF NURSING   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ANXIETY DISORDER; ARTICLE; BREAST CANCER; COMMUNICATION SKILL; CONTROLLED STUDY; DEPRESSION; DISEASE ASSOCIATION; FEASIBILITY STUDY; FEMALE; HUMAN; INTERVENTION STUDY; MAJOR CLINICAL STUDY; PATIENT CARE; PILOT STUDY; PRETEST POSTTEST DESIGN; PSYCHOEDUCATION; QUALITATIVE ANALYSIS; RANDOMIZED CONTROLLED TRIAL; SELF CONCEPT; UNCERTAINTY; ANXIETY; ATTITUDE TO HEALTH; BREAST TUMOR; INTERPERSONAL COMMUNICATION; MIDDLE AGED; MOTIVATION; NURSING; PREVENTION AND CONTROL; PROCEDURES; PSYCHOLOGY; SELF CARE; SOCIAL SUPPORT;

ADULT; ANXIETY; BREAST NEOPLASMS; COMMUNICATION; DEPRESSION; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MIDDLE AGED; MOTIVATION; SELF CARE; SELF EFFICACY; SELF-MANAGEMENT; SOCIAL SUPPORT;

EID: 84965175481     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.4013     Document Type: Article

References (39)

1. McCorkle R, Ercolano E, Schilling L, Schulman-Green D, Lorig K, Wagner EH. Self-management: enabling and empowering patients living with cancer as a chronic illness. CA: A Cancer Journal for Clinicians 2011: 61, 50–62. doi: 10.3322/caac.20093
2. Corbin JM, Strauss A. Unending Work and Care: Managing Chronic Illness at Home, Jossey-Bass: San Francisco, CA, 1988.
3. Schulman-Green D, Jaser S, Martin F et al. Processes of self-management in chronic illness. J Nurs Schol 2012;44:136–144. DOI:10.1111/j.1547-5069.2012.01444.x.
4. Morrison RS, Meier DE. American's Care of Serious Illness: A State-by-State Report Card on Access to Care in Our Nation's Hospitals: Center to Advance Palliative Care, 2011.
5. Temel JS, Greer JA, Muzikansky A, Gallagher et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med 2010;19:733–742. DOI:10.1056/NEJMoa1000678.
6. Emanuel EJ, Ash A, Yu W et al. Managed care, hospice use, site of death, and medical expenditures in the last year of life. Arch Intern Med 2002;162:1722–1728. DOI:10.1001/archinte.162.15.1722.
7. Bakitas M, Lyons KD, Hegel MT et al. Effects of palliative intervention on clinical outcomes in patients with advanced cancer. JAMA 2009;302:741–749. DOI:10.1001/jama.2009.1198.
8. Public Opinion Research on Palliative Care: A Report Based on Research by Public Opinion Strategies 2011. Public Opinion Strategies. 2011.
9. Pauwels EE, Charlier C, De Bourdeaudhuij I, Lechner L, Van Hoof E. Care needs after primary breast cancer treatment. Patients' associated sociodemographic and medical characteristics. Psycho-Oncology 2013;22:125–132. DOI:10.1002/pon.2069.
10. National Institutes of Health. State-of-the-Science Conference Statement on symptom management in cancer: pain, depression, and fatigue. J Nat Canc Inst Mon Weather Rev 2004;32:9–16. DOI:10.1093/jnci/djh201.
11. Vivar CG, McQueen A. Informational and emotional needs of long-term patients of breast cancer. J Adv Nurs 2005;51:520–528. DOI:10.1111/j.1365-2648.2005.03524.x.
12. van Vliet L, Francke A, Tomson S, Plum N, van der Wall E, Bensing J. When cure is no option: how explicit and hopeful can information be given? A qualitative study in breast cancer. Pat Educ Couns 2013;90:315–322. DOI:10.1016/j.pec.2011.03.021.
13. Singh JA, Sloan JA, Atherton PJ et al. Preferred roles in treatment decision making among patients with cancer: a pooled analysis of studies using the control preferences scale. Am J Manag Care 2010;16:688–696.
14. Schumacher KL, Meleis AI. Transitions: a central concept in nursing. Image J Nurs Sch 1994;26:119–127.
15. Lennes IT, Temel JS, Hoedt C, Meilleur A, Lamont EB. Predictors of newly diagnosed cancer patients' understanding of the goals of their care at initiation of chemotherapy. Cancer 2013;119:691–699. DOI:10.1002/cncr.27787.
16. Butow P, Dowsett S, Hagerty R, Tattersall M. Communicating prognosis to patients with metastatic disease: what do they really want to know? Support Care Cancer 2002;10:161–168. DOI:10.1007/s005200100290.
17. Hoerger M, Epstein RM, Winters PC et al. Values and options in cancer care (VOICE): study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers. BMC Cancer 2013;13:188. DOI:10.1186/1471-2407-13-188.
18. Bakitas M, Lyons KD, Hegel MT. Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial. JAMA 2009;302:741–749. DOI:10.1001/jama.2009.119.
19. Grey M, Schulman-Green D, Knafl K, Reynolds N. A revised self- and family management framework. Nurs Outlook 2015;63:162–170. DOI:10.1016/j.outlook.2014.10.003.
20. Schulman-Green D, Jeon S. Printed guide improves knowledge of curative, pallative, and hospice care among women with metastatic breast cancer. Support Care Cancer 2013;21:2651–2653.
21. Schulman-Green D, Bradley EH, Knobf MT, Prigerson H, DiGiovanna MP, McCorkle R. Self-management and care transitions in women with advanced breast cancer. J Pain Symptom Manage 2011;42:517–525.
22. Schulman-Green D, Bradley EH, Nicholson NR, George E, Indeck A, McCorkle R. Managing “One step at a time”: Self-management and transitions among women with ovarian cancer. Oncol Nurs Forum 2012;39:354–360.
23. Jerant AF, von Friederichs-Fitzwater MM, Moore M. Patients' perceived barriers to active self-management of chronic conditions. Patient Educ Couns 2005;57:300–307.
24. Schulman-Green D, Ercolano E, Jeon S, Dixon J. Validation of the Knowledge of Care Options instrument to measure knowledge of curative, palliative and hospice care. J Palliat Med 2012;15(10):1091–1099.
25. Degner LF, Sloan JA, Venkatesh P. The control preferences scale. Can J Nurs Res 1997;29:21–43.
26. Cegala DJ, Coleman MT, Turner JW. The development and partial assessment of the medical communication competence scale. Health Commun 1998;10:261–288. DOI:10.1207/s15327027hc1003-5.
27. Zigmond AS, Snaith PR. The hospital anxiety and depression scale. Acta Psychiatrica Scandanavia 1983;67:361–370.
28. Mishel M. Reconceptualization of the uncertainty in illness theory. J Nurs Schol 1990;22:256–262.
29. Lorig K, Stewart A, Ritter P, González V, Laurent D, Lynch J. Outcome Measures for Health Education and Other Health Care Interventions, Sage: California, 1996.
30. Brem S, Kumar NB. Management of treatment-related symptoms in patients with breast cancer. Clin J Oncol Nurs 2011;15:63–71. DOI:10.1188/11.CJON.63-71.
31. Glickman ME, Rao SR, Schultz MR. False discovery rate control is a recommended alternative to Bonferroni-type adjustments in health studies. J Clin Epidemiol 2014;67:850–857. DOI:10.1016/j.jclinepi.2014.03.012.
32. Mack JW, Weeks JC, Wright AA, Block SD, Prigerson HG. End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences. J Clin Oncol 2010;28:1203–1208. DOI:10.1200/JCO.2009.25.4672.
33. Maciejewski PK, Prigerson HG. Emotional numbness modifies the effect of end-of-life discussions on end-of-life care. J Pain Symptom Manage 2013;45:841–847. DOI:10.1016/j.jpainsymman.2012.04.003.
34. Loh SY, Packer T, Chinna K, Quek KF. Effectiveness of a patient self-management programme for breast cancer as a chronic illness: a non-randomised controlled clinical trial. J Cancer Surviv 2013;7:331–342. DOI:10.1007/s11764-013-0274-x.
35. Cimprich B, Janz NK, Northouse L, Wren PA, Given B, Given CW. Taking charge: a self-management program for women following breast cancer treatment. Psycho-Oncology 2005;14:704–717.
36. Stanton AL, Ganz PA, Kwan L et al. Outcomes from the Moving Beyond Cancer psychoeducational, randomized, controlled trial with breast cancer patients. J Clin Oncol 2005;23:6009–6018.
37. van den Berg SW, Gielissen MF, Ottevanger PB, Prins JB. Rationale of the BREAst cancer e-healTH [BREATH] multicentre randomised controlled trial: an internet-based self-management intervention to foster adjustment after curative breast cancer by decreasing distress and increasing empowerment. BMC Cancer 2012;12:394. DOI:10.1186/1471-2407-12-394.
38. Schulman-Green D, Wagner E, McCorkle R. Self-Management Support in Holland J, Breitbart W, Jacobsen P, Lederberg M, Loscalzo M, McCorkle R (Eds). Psycho-Oncology, (3rd Ed). New York: Oxford Press
39. Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 2003;26:1–7.