Agreeing the content of a patient-reported outcome measure for primary care: a Delphi consensus study

Health Expectations

Volumn 20, Issue 2, 2017, Pages 335-348

  Murphy, Mairead ^a   Hollinghurst, Sandra ^a   Salisbury, Chris ^a  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

Author keywords

consensus study; Delphi; primary care; PROM; questionnaire

Indexed keywords

CONSENSUS; DELPHI STUDY; FEMALE; HEALTH STATUS; HUMAN; MALE; PATIENT-REPORTED OUTCOME; PRIMARY HEALTH CARE; QUESTIONNAIRE;

CONSENSUS; DELPHI TECHNIQUE; FEMALE; HEALTH STATUS; HUMANS; MALE; PATIENT REPORTED OUTCOME MEASURES; PRIMARY HEALTH CARE; SURVEYS AND QUESTIONNAIRES;

EID: 84964689627     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/hex.12462     Document Type: Article

References (55)

1. Davis K, Abrams M, Stremikis K. How the Affordable Care Act will strengthen the nation's primary care foundation. Journal of General Internal Medicine, 2011; 26: 1201–1203.
2. Salisbury C, Goodall S, Montgomery AA et al. Does Advanced Access improve access to primary health care? Questionnaire survey of patients. The British Journal of General Practice, 2007; 57: 615–621.
3. O'Cathain A, Coster J, Salisbury C, Pearson T, Maheswaran R, Nicholl J. Do walk-in centres for commuters work? A mixed methods evaluation. British Journal of General Practice, 2009; 59: e383–e389.
4. Campbell JL, Fletcher E, Britten N et al. Telephone triage for management of same-day consultation requests in general practice (the ESTEEM trial): a cluster-randomised controlled trial and cost-consequence analysis. Lancet, 2014; 384: 1859–1868.
5. Man M-S. The 3D Study: Improving Whole Person Care 2014. Available at: http://www.bristol.ac.uk/social-community-medicine/projects/3d-study/, accessed 11 November 2014.
6. Kennedy A, Bower P, Reeves D et al. Implementation of self management support for long term conditions in routine primary care settings: cluster randomised controlled trial. BMJ, 2013; 346: f2882.
7. Thomas CL, Man MS, O'Cathain A et al. Effectiveness and cost-effectiveness of a telehealth intervention to support the management of long-term conditions: study protocol for two linked randomized controlled trials. Trials, 2014; 15: 36.
8. Henderson C, Knapp M, Fernandez JL et al. Cost effectiveness of telehealth for patients with long term conditions (Whole Systems Demonstrator telehealth questionnaire study): nested economic evaluation in a pragmatic, cluster randomised controlled trial. BMJ, 2013; 346: f1035.
9. Barnett K, Mercer SW, Norbury M, Watt G, Wyke S, Guthrie B. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet, 2012; 380: 37–43.
10. Salisbury C, Johnson L, Purdy S, Valderas JM, Montgomery AA. Epidemiology and impact of multimorbidity in primary care: a retrospective cohort study. The British Journal of General Practice, 2011; 61: e12–e21.
11. Donabedian A. The quality of care. How can it be assessed? JAMA, 1988; 260: 1743–1748.
12. Fitzpatrick R. Patient-reported outcomes and performance measurement. In: Smith P, Mossialos M, Leatherman S, Papanicolas I, editors. Performance Measurement for Health System Improvement: Experiences, Challenges and Prospect. Cambridge: Cambridge University Press. 2009: 63–86.
13. Black N. Patient reported outcome measures could help transform healthcare. BMJ, 2013; 346: f167.
14. Heath I, Rubinstein A, Stange KC, van Driel ML. Quality in primary health care: a multidimensional approach to complexity. BMJ, 2009; 338: b1242.
15. Fitzpatrick R, Davey C, Buxton MJ, Jones DR. Evaluating patient-based outcome measures for use in clinical trials. Health Technology Assessment, 1998; 2: i–iv, 1-74.
16. Bowling A. Measuring Health: A Review of Quality of Life Measurement Scales, 3rd edn. Berkshire: Open University Press, 2004.
17. Brooks R. EuroQol: the current state of play. Health Policy, 1996; 37: 53–72.
18. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care, 1992; 30: 473–483.
19. Venning P, Durie A, Roland M, Roberts C, Leese B. Randomised controlled trial comparing cost effectiveness of general practitioners and nurse practitioners in primary care. BMJ, 2000; 320: 1048–1053.
20. McKinley RK, Cragg DK, Hastings AM et al. Comparison of out of hours care provided by patients’ own general practitioners and commercial deputising services: a randomised controlled trial. II: the outcome of care. BMJ, 1997; 314: 190–193.
21. Paterson C. Measuring outcomes in primary care: a patient generated measure, MYMOP, compared with the SF-36 health survey. BMJ, 1996; 312: 1016–1020.
22. Salisbury C, Procter S, Stewart K et al. The content of general practice consultations: cross-sectional study based on video recordings. British Journal of General Practice, 2013; 63: 751–759.
23. Fortin M, Bravo G, Hudon C, Vanasse A, Lapointe L. Prevalence of multimorbidity among adults seen in family practice. Annals of Family Medicine, 2005; 3: 223–228.
24. Peters M, Crocker H, Dummett S et al. Pilot Study of Patient Reported Outcome Measures (PROMs) in Primary Care: Report to the Department of Health. Oxford: University of Oxford, Department of Public Health, 2013.
25. Paterson C. University of Bristol website, PHC section, MYMOP: University of Bristol; 2012. Available at: http://www.bristol.ac.uk/primaryhealthcare/resources/mymop/strengthsandweaknesses/, accessed 25 April 2014.
26. Howie JG, Heaney DJ, Maxwell M, Walker JJ. A comparison of a Patient Enablement Instrument (PEI) against two established satisfaction scales as an outcome measure of primary care consultations. Family Practice, 1998; 15: 165–171.
27. Howie JG, Heaney DJ, Maxwell M, Walker JJ, Freeman GK, Rai H. Quality at general practice consultations: cross sectional survey. BMJ, 1999; 319: 738–743.
28. Streiner DL, Norman GR. Health Measurement Scales: A Practical Guide to Their Development and Use. UK: Oxford University Press, 2008.
29. Forder JE, Caiels J. Measuring the outcomes of long-term care. Social Science & Medicine, 2011; 73: 1766–1774.
30. University of Kent Personal Social Services Research Unit. ASCOT: Adult Social Care Outcomes Toolkit. Available at: http://www.pssru.ac.uk/ascot/2015, accessed 09 October 2015.
31. Murphy M, Salisbury C, Hollinghurst S. Can the outcome of primary care be measured by a Patient Reported Outcome Measure? The British Journal of General Practice, 2014; 64: 647–648.
32. DeVellis RF. Scale Development: Theory and Applications. New York: Oxford University Press Inc, 2003.
33. Patrick DL, Burke LB, Gwaltney CJ et al. Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 1—Eliciting Concepts for a New PRO Instrument. Value Health, 2011; 14: 967–977.
34. Murphy M, Hollinghurst S, Turner K, Salisbury C. Patient and practitioners’ views on the most important outcomes arising from primary care consultations: a qualitative study. BMC Family Practice, 2015; 16: 108.
35. Constitution of the World Health Organization. New York, NY: World Health Organisation, 2006.
36. Hsu C-C, Sandford BA. The delphi technique: making sense of consensus. Practical Assessment Research and Evaluation, 2007; 12: 1–8.
37. Rayens MK, Hahn EJ. Building consensus using the policy delphi method. Policy, Politics, & Nursing Practice, 2000; 1: 308–315.
38. Powell C. The delphi technique: myths and realities. Journal of Advanced Nursing, 2003; 41: 376–382.
39. Marshall MN, Shekelle PG, McGlynn EA, Campbell S, Brook RH, Roland MO. Can health care quality indicators be transferred between countries? Quality & Safety in Health Care, 2003; 12: 8–12.
40. Agency for Healthcare Research and Quality. Chapter 4: Adopting a More Quantitative and Transparent Measure Select Process: The IOM 2001 Recommendations for Measure Selection Criteria for the NHQR and NHDR 2010 [cited 2014 14/02/2014]. Available from: http://www.ahrq.gov/research/findings/final-reports/iomqrdrreport/futureqrdr4c.html#IOM.
41. Campbell S, Roland M, Quayle J, Buetow SA, Shekelle PG. Quality indicators for general practice: which ones can general practitioners and health authority managers agree are important and how useful are they? Journal of Public Health Medicine, 1998; 20: 414–421.
42. Ahmed R, McCaffery KJ, Aslani P. Development and validation of a question prompt list for parents of children with attention-deficit/hyperactivity disorder: a Delphi study. Health Expectations, 2015; 19: 234–252.
43. Owens C, Ley A, Aitken P. Do different stakeholder groups share mental health research priorities? A four-arm Delphi study. Health Expectations, 2008; 11: 418–431.
44. Campbell SM. How do stakeholder groups vary in a Delphi technique about primary mental health care and what factors influence their ratings? Quality and Safety in Health Care, 2004; 13: 428–434.
45. Mooney G. The emperor's quality clothes: for goodness’ sake, let's take the strain off the word quality!. Australian and New Zealand Journal of Public Health, 2000; 24: 102.
46. Chin MH, Muramatsu N. What is the quality of quality of medical care measures? Rashomon-like relativism and real-world applications Perspectives in Biology & Medicine, 2003; 46: 5–20; discussion 1-3.
47. Parkerson GR Jr, Broadhead WE, Tse CK. The Duke Health Profile. A 17-item measure of health and dysfunction. Medical Care, 1990; 28: 1056–1072.
48. Al-Janabi H, Flynn TN, Coast J. Development of a self-report measure of capability wellbeing for adults: the ICECAP-A. Quality of Life Research, 2012; 21: 167–176.
49. Small N, Bower P, Chew-Graham CA, Whalley D, Protheroe J. Patient empowerment in long-term conditions: development and preliminary testing of a new measure. BMC Health Services Research, 2013; 13: 263.
50. Hibbard JH, Mahoney ER, Stockard J, Tusler M. Development and testing of a short form of the patient activation measure. Health Services Research, 2005; 40(6 Pt 1): 1918–1930.
51. McDonald EM, Frattaroli S, Edsall Kromm E, Ma X, Pike M, Holtgrave D. Improvements in health behaviors and health status among newly insured members of an innovative health access plan. Journal of Community Health, 2013; 38: 301–309.
52. Deen D, Lu WH, Rothstein D, Santana L, Gold MR. Asking questions: the effect of a brief intervention in community health centers on patient activation. Patient Education and Counseling, 2011; 84: 257–260.
53. Engels Y, Campbell S, Dautzenberg M et al. Developing a framework of, and quality indicators for, general practice management in Europe. Family Practice, 2005; 22: 215–222.
54. Dalkey NC. The Delphi Method: An Experimental study of Group Opinion. Santa Monica, California: 1969 June 1969. Report No.
55. Blazeby JM, Macefield R, Blencowe NS et al. Core information set for oesophageal cancer surgery. The British Journal of Surgery, 2015; 102: 936–943.