Altruistic reasoning in adolescent-parent dyads considering participation in a hypothetical sexual health clinical trial for adolescents

Research Ethics

Volumn 12, Issue 2, 2016, Pages 68-79

  Chávez, Noé Rubén ^a   Williams, Camille Y ^a   Ipp, Lisa S ^b   Catallozzi, Marina ^a   Rosenthal, Susan L ^a   Breitkopf, Carmen Radecki ^c  

^a NewYork Presbyterian Hospital   (United States)

^b WEILL CORNELL MEDICAL COLLEGE   (United States)

^c MAYO CLINIC   (United States)

Author keywords

Adolescents; Altruism; Decision making; Parental consent; Research participation; STI clinical trials

Indexed keywords

EID: 84964033744     PISSN: 17470161     EISSN: 20476094     Source Type: Journal    
DOI: 10.1177/1747016115587963     Document Type: Article

References (18)

1. Agarwal SK, Estrada S, Foster WG, et al. (2007) What motivates women to take part in clinical and basic science endometriosis research? Bioethics 21(5): 263–269.
2. Balfour L, Corace K, Tasca GA, et al. (2010) Altruism motivates participation in a therapeutic HIV vaccine trial (CTN 173). AIDS Care 22(11): 1403–1409.
3. Brody JL, Annett RD, Scherer DG, et al. (2005) Comparisons of adolescent and parent willingness to participate in minimal and above-minimal risk pediatric asthma research protocols. Journal of Adolescent Health 37(3): 229–235.
4. Brody JL, Annett RD, Scherer DG, et al. (2009) Enrolling adolescents in asthma research: Adolescent, parent, and physician influence in the decision-making process. Journal of Asthma 46(5): 492–497.
5. Eisenberg N, Cumberland A, Guthrie IK, et al. (2005) Age changes in prosocial responding and moral reasoning in adolescence and early adulthood. Journal of Research on Adolescence 15(3): 235–260.
6. Freund AM and Blanchard-Fields F (2014) Age-related differences in altruism across adulthood: Making personal financial gain versus contributing to the public good. Developmental Psychology 50(4): 1125–1136.
7. Hsieh HF and Shannon SE (2005) Three approaches to qualitative content analysis. Qualitative Health Research 15(9): 1277–1288.
8. Hunter J, Corcoran K, Leeder S, et al. (2012) Appealing to altruism is not enough: Motivators for participating in health services research. Journal of Empirical Research on Human Research Ethics 7(3): 84–90.
9. Jansen LA (2009) The ethics of altruism in clinical research. Hastings Center Report, 39(4): 26–36.
10. Jenkins V, Farewell V, Farewell D, et al. (2013) Drivers and barriers to patient participation in RCTs. British Journal of Cancer 108(7): 1402–1407.
11. Mays RM, Sturm LA and Zimet GD (2004) Parental perspectives on vaccinating children against sexually transmitted infections. Social Science & Medicine 58: 1405–1413.
12. McCann SK, Campbell MK and Entwistle VA (2010) Reasons for participating in randomised controlled trials: Conditional altruism and considerations for self. Trials 11: 31.
13. Nelson RM, Lewis LL, Struble K and Wood SF (2010) Ethical and regulatory considerations for the inclusion of adolescents in HIV biomedical prevention research. Journal of Acquired Immune Deficiency Syndrome 54(Suppl 1): S18–S24.
14. Ocampo-Martínez J (2005) Reflexiones bioéticas: necesidad de promover actitudes altruistas hacia la investigación médica en seres humanos. Revista de Investigación Clínica 57(5): 725–734.
15. Rich M and Ginsburg KR (1999) The reason and rhyme of qualitative research: Why, when, and how to use qualitative methods in the study of adolescent health. Journal of Adolescent Health 25(6): 371–378.
16. Stanford PD, Monte DA, Briggs FM, et al. (2003) Recruitment and retention of adolescent participants in HIV research: Findings from the REACH (Reaching for Excellence in Adolescent Care and Health) Project. Journal of Adolescent Health 32(3): 192–203.
17. Wendler D, Abdoler E, Wiener L, et al. (2012) Views of adolescents and parents on pediatric research without the potential for clinical benefit. Pediatrics 130(4): 692–699.
18. Williams B, Entwistle V, Haddow G, et al. (2008) Promoting research participation: Why not advertise altruism? Social Science & Medicine 66(7): 1451–1456.