Transitioning Wisely: Improving the Connection from Pediatric to Adult Health Care

Arthritis and Rheumatology

Volumn 68, Issue 4, 2016, Pages 789-794

  White, Patience H ^a   Ardoin, Stacy ^b  

^a GEORGE WASHINGTON UNIVERSITY SCHOOL OF MEDICINE AND HEALTH SCIENCES   (United States)

^b OHIO STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CHRONIC DISEASE; HEALTH CARE COST; HEALTH CARE NEED; HEALTH STATUS; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; PEDIATRICS; PRIORITY JOURNAL; RHEUMATIC DISEASE; SELF CARE; TRANSITION TO ADULT CARE; TRANSITIONAL CARE; ADOLESCENT; ADULT; ARTHRITIS, JUVENILE; EVIDENCE BASED MEDICINE; HEALTH SERVICE; LUPUS ERYTHEMATOSUS, SYSTEMIC; NEEDS ASSESSMENT; RHEUMATIC DISEASES; RHEUMATOLOGY; YOUNG ADULT;

ADOLESCENT; ADULT; ARTHRITIS, JUVENILE; EVIDENCE-BASED MEDICINE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; LUPUS ERYTHEMATOSUS, SYSTEMIC; NEEDS ASSESSMENT; RHEUMATIC DISEASES; RHEUMATOLOGY; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84962054096     PISSN: 23265191     EISSN: 23265205     Source Type: Journal    
DOI: 10.1002/art.39554     Document Type: Article

References (43)

1. Bonnie RJ, Stroud C, Breiner H., Investing in health and well being of young adults. 1st ed. Washington, DC: National Academies Press; 2014.
2. Neinstein LS, Irwin CE Jr., Young adults remain worse off than adolescents. J Adolesc Health 2013; 53: 559-61.
3. McManus MA, Pollack LR, Cooley WC, McAllister JW, Lotstein D, Strickland B, et al., Current status of transition preparation among youth with special needs in the United States. Pediatrics 2013; 131: 1090-7.
4. Prior M, McManus M, White P, Davidson L., Measuring the "triple aim" in transition care: a systematic review. Pediatrics 2014; 134: e1648-61.
5. Lotstein DS, Inkelas M, Hays RD, Halfon N, Brook R., Access to care for youth with special health care needs in the transition to adulthood. J Adolesc Health 2008; 43: 23-9.
6. Chira P, Sandborg C., Adolescent rheumatology transitional care: steps to bringing health policy into practice. Rheumatology (Oxford) 2004; 43: 687-9.
7. Peter NG, Forke CM, Ginsburg KR, Schwarz DF., Transition from pediatric to adult care: internists' perspectives. Pediatrics 2009; 123: 417-23.
8. Hersh A, von Scheven E, Yelin E., Adult outcomes of childhood-onset rheumatic diseases. Nat Rev Rheumatol 2011; 7: 290-5.
9. Minden K., Adult outcomes of patients with juvenile idiopathic arthritis. Horm Res 2009; 72 Suppl 1: 20-5.
10. Vidqvist KL, Malin M, Varjolahti-Lehtinen T, Korpela MM., Disease activity of idiopathic juvenile arthritis continues through adolescence despite the use of biologic therapies. Rheumatology (Oxford) 2013; 52: 1999-2003.
11. Tucker LB, Uribe AG, Fernandez M, Vila LM, McGwin G, Apte M, et al., Adolescent onset of lupus results in more aggressive disease and worse outcomes: results of a nested matched case-control study within LUMINA, a multiethnic US cohort (LUMINA LVII). Lupus 2008; 17: 314-22.
12. Hersh AO, Pang S, Curran ML, Milojevic DS, von Scheven E., The challenges of transferring chronic illness patients to adult care: reflections from pediatric and adult rheumatology at a US academic center. Pediatr Rheumatol Online J 2009; 7: 13.
13. McDonagh JE, Shaw KL., Adolescent rheumatology transition care in the UK. Pediatr Ann 2012; 41: e8-15.
14. McDonagh JE, Southwood TR, Shaw KL, Bristish Paediatric Rheumatology Group. Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care. Rheumatology (Oxford) 2004; 43: 737-43.
15. Shaw KL, Southwood TR, McDonagh JE, British Paediatric Rheumatology Group. User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 2004; 43: 770-8.
16. Shaw KL, Southwood TR, McDonagh JE., Growing up and moving on in rheumatology: parents as proxies of adolescents with juvenile idiopathic arthritis. Arthritis Rheum 2006; 55: 189-98.
17. Robertson LP, McDonagh JE, Southwood TR, Shaw KL, British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on: a multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from paediatric to adult centred care. Ann Rheum Dis 2006; 65: 74-80.
18. Rettig P, Athreya BH., Adolescents with chronic disease: transition to adult health care. Arthritis Care Res 1991; 4: 174-80.
19. Prestidge C, Romann A, Djurdjev O, Matsuda-Abedini M., Utility and cost of a renal transplant transition clinic. Pediatr Nephrol 2012; 27: 295-302.
20. Harden PN, Walsh G, Bandler N, Bradley S, Lonsdale D, Taylor J, et al., Bridging the gap: an integrated paediatric to adult clinical service for young adults with kidney failure. BMJ 2012; 344: e3718.
21. Cadario F, Prodam F, Bellone S, Trada M, Binotti M, Trada M, et al., Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach. Clin Endocrinol (Oxf) 2009; 71: 346-50.
22. Hazel E, Zhang X, Duffy CM, Campillo S., High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis. Pediatr Rheumatol Online J 2010; 8: 2.
23. Chanchlani N, McGee M, McDonagh JE., Informational continuity is integral for successful transition of adolescents to adult care. J Rheumatol 2015; 42: 901-2.
24. Suris JC, Akre C., Key elements for, and indicators of, a successful transition: an international Delphi study. J Adolesc Health 2015; 56: 612-8.
25. Sonneveld HM, Strating MM, van Staa AL, Nieboer AP., Gaps in transitional care: what are the perceptions of adolescents, parents and providers? Child Care Health Dev 2013; 39: 69-80.
26. Wells CK, McMorris BJ, Horvath KJ, Garwick AW, Scal PB., Youth report of healthcare transition counseling and autonomy support from their rheumatologist. Pediatr Rheumatol Online J 2012; 10: 36.
27. Greene J, Hibbard J, Sacks R, Overton V, Parretta C,. When patient activation levels change, health outcomes and costs change, too. Health Affairs 2015; 34: 431-7.
28. Borus JS, Laffel L., Adherence challenges in the management of type 1 diabetes in adolescents: prevention and intervention. Curr Opin Pediatr 2010; 22: 405-11.
29. Chira P, Ronis T, Ardoin S, White P., Transitioning youth with rheumatic conditions: perspectives of pediatric rheumatology providers in the United States and Canada. J Rheumatol 2014; 41: 768-79.
30. Hilderson D, Moons P, Westhovens R, Wouters C., Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare. Rheumatol Int 2012; 32: 3887-96.
31. Zisman D, White P, Chira P, Ardoin SP, Lawson EF, von Scheven E, et al., US adult rheumatologists perspective on the transition process for young adults with rheumatic conditions [abstract]. Arthritis Rheumatol 2015; 67 Suppl 10. URL: http://acrabstracts.org/abstract/us-adult-rheumatologists-perspective-on-the-transition-process-for-young-adults-with-rheumatic-conditions/.
32. Crowley R, Wolfe I, Lock K, McKee M., Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 2011; 96: 548-53.
33. Evidence-based practice center technical brief protocol: transitions of care for children with special health care needs. Rockville, MD: Agency for Healthcare Research and Quality; 2013.
34. Stinson J, Kohut SA, Spiegel L, White M, Gill N, Colbourne G, et al., A systematic review of transition readiness and transfer satisfaction measures for adolescents with chronic illness. Int J Adolesc Med Health 2014; 26: 159-74.
35. Spiegel LR., Pediatric to adult care transition challenging for patients with JIA. The Rheumatologist 2015; 9. URL: http://www.the-rheumatologist.org/article/pediatric-to-adult-care-transition-challenging-for-patients-with-jia/.
36. Sawicki GS, Lukens-Bull K, Yin X, Demars N, Huang IC, Livingood W, et al., Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ-Transition Readiness Assessment Questionnaire. J Pediatr Psychol 2011; 36: 160-71.
37. Ferris ME, Harward DH, Bickford K, Layton JB, Ferris MT, Hogan SL, et al., A clinical tool to measure the components of health-care transition from pediatric care to adult care: the UNC TR(x)ANSITION scale. Ren Fail 2012; 34: 744-53.
38. Moynihan M, Saewyc E, Whitehouse S, Paone M, McPherson G., Assessing readiness for transition from paediatric to adult health care: revision and psychometric evaluation of the Am I ON TRAC for Adult Care questionnaire. J Adv Nurs 2015: 71: 1324-35.
39. Miller WR, Rollnick S. Motivational interviewing: preparing people for change. New York: Guilford Press; 2002.
40. Shaw KL, Southwood TR, McDonagh JE, British Society of Paediatric and Adolescent Rheumatology. Development and preliminary validation of the 'Mind the Gap' scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis. Child Care Health Dev 2007; 33: 380-8.
41. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring Group, Cooley WC, Sagerman PJ., Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011; 128: 182-200.
42. McManus M, White P, Barbour A, Downing B, Hawkins K, Quion N, et al., Pediatric to adult transition: a quality improvement model for primary care. J Adolesc Health 2015; 56: 73-8.
43. The Six Core Elements of Health Care Transition. URL: http://gottransition.org/providers/index.cfm.