-
1
-
-
37349096323
-
Prevalence of and annual ambulatory health care visits for pediatric arthritis and other rheumatologic conditions in the united states in 2001-2004
-
Sacks JJ, Helmick CG, Luo YH, Ilowite NT, Bowyer S. Prevalence of and annual ambulatory health care visits for pediatric arthritis and other rheumatologic conditions in the United States in 2001-2004. Arthritis Rheum 2007;57:1439-45.
-
(2007)
Arthritis Rheum
, vol.57
, pp. 1439-1445
-
-
Sacks, J.J.1
Helmick, C.G.2
Luo, Y.H.3
Ilowite, N.T.4
Bowyer, S.5
-
2
-
-
13444311561
-
What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of canadians
-
Adam V, St-Pierre Y, Fautrel B, Clarke AE, Duffy CM, Penrod Jr. What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of Canadians. J Rheumatol 2005;32:354-61.
-
(2005)
J Rheumatol
, vol.32
, pp. 354-361
-
-
Adam, V.1
St-Pierre, Y.2
Fautrel, B.3
Clarke, A.E.4
Duffy, C.M.5
Penrod, J.R.6
-
3
-
-
75749146277
-
Mortality outcomes in pediatric rheumatology in the us
-
Hashkes PJ, Wright BM, Lauer MS, Worley SE, Tang AS, Roettcher PA, et al. Mortality outcomes in pediatric rheumatology in the US. Arthritis Rheum 2010;62:599-608.
-
(2010)
Arthritis Rheum
, vol.62
, pp. 599-608
-
-
Hashkes, P.J.1
Wright, B.M.2
Lauer, M.S.3
Worley, S.E.4
Tang, A.S.5
Roettcher, P.A.6
-
4
-
-
0031804649
-
A new definition of children with special health care needs
-
McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, et al. A new definition of children with special health care needs. Pediatrics 1998;1 Part 1:137-40.
-
(1998)
Pediatrics
, vol.1
, Issue.PART 1
, pp. 137-140
-
-
McPherson, M.1
Arango, P.2
Fox, H.3
Lauver, C.4
McManus, M.5
Newacheck, P.W.6
-
5
-
-
37749042534
-
What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys
-
Bethell CD, Read D, Blumberg SJ, Newacheck PW. What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys. Matern Child Health J 2008;12:1-14.
-
(2008)
Matern Child Health J
, vol.12
, pp. 1-14
-
-
Bethell, C.D.1
Read, D.2
Blumberg, S.J.3
Newacheck, P.W.4
-
6
-
-
59449095511
-
Planning for health care transitions: Results from the 2005-2006 national survey of children with special health care needs
-
Lotstein DS, Ghandour R, Cash A, McGuire E, Strickland B, Newacheck P. Planning for health care transitions: results from the 2005-2006 National Survey of Children With Special Health Care Needs. Pediatrics 2009;123:e145-e52.
-
(2009)
Pediatrics
, vol.123
-
-
Lotstein, D.S.1
Ghandour, R.2
Cash, A.3
McGuire, E.4
Strickland, B.5
Newacheck, P.6
-
7
-
-
0027504256
-
Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the society for adolescent medicine
-
Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 1993;14:570-6.
-
(1993)
J Adolesc Health
, vol.14
, pp. 570-576
-
-
Blum, R.W.1
Garell, D.2
Hodgman, C.H.3
Jorissen, T.W.4
Okinow, N.A.5
Orr, D.P.6
-
8
-
-
0036897603
-
A consensus statement on health care transitions for young adults with special health care needs
-
American Academy Of Pediatrics; American Academy Of Family Physicians; American College of Physicians-American Society of Internal Medicine
-
American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 2002;6 Part 2:1304-6.
-
(2002)
Pediatrics
, vol.6
, Issue.PART 2
, pp. 1304-1306
-
-
-
9
-
-
1542603726
-
Transition to adult health care for adolescents and young adults with chronic conditions. Position paper of the society for adolescent medicine
-
Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM. Transition to adult health care for adolescents and young adults with chronic conditions. Position paper of the Society for Adolescent Medicine. J Adolesc Health 2003;33:309-11.
-
(2003)
J Adolesc Health
, vol.33
, pp. 309-311
-
-
Rosen, D.S.1
Blum, R.W.2
Britto, M.3
Sawyer, S.M.4
Siegel, D.M.5
-
10
-
-
84897462243
-
-
Washington DC National Alliance to Advance Adolescent Health
-
Fox HB, McManus M, O'Connor KG, Klein JD, Diaz A, Wibbelsman CJ. Fact sheet no. 7: Pediatricians' interest in expanding services and making practice changes to improve the care of adolescents. Washington, D.C.: National Alliance to Advance Adolescent Health; 2009.
-
(2009)
Fact Sheet No 7 Pediatricians' Interest In Expanding Services And Making Practice Changes To Improve The Care Of Adolescents
-
-
Fox, H.B.1
McManus, M.2
O'Connor, K.G.3
Klein, J.D.4
Diaz, A.5
Wibbelsman, C.J.6
-
11
-
-
78650214083
-
-
Washington DC National Alliance to Advance Adolescent Health
-
McManus M, Fox H, O'Connor K, Chapman T, MacKinnon J. Fact sheet no. 6: Pediatric perspective and practices on transitioning adolescents with special needs to adult health care. Washington, DC: National Alliance to Advance Adolescent Health; 2008.
-
(2008)
Fact Sheet No 6 Pediatric Perspective And Practices On Transitioning Adolescents With Special Needs To Adult Health Care
-
-
McManus, M.1
Fox, H.2
O'Connor, K.3
Chapman, T.4
MacKinnon, J.5
-
12
-
-
0033913233
-
Audit of rheumatology services for adolescents and young adults in the uk
-
British Paediatric Rheumatology Group
-
McDonagh JE, Foster HE, Hall MA, Chamberlain MA. Audit of rheumatology services for adolescents and young adults in the UK. British Paediatric Rheumatology Group. Rheumatology 2000;39:596-602.
-
(2000)
Rheumatology
, vol.39
, pp. 596-602
-
-
McDonagh, J.E.1
Foster, H.E.2
Hall, M.A.3
Chamberlain, M.A.4
-
13
-
-
3042551137
-
Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care
-
British Paediatric Rheumatology Group
-
McDonagh JE, Southwood TR, Shaw KL; British Paediatric Rheumatology Group. Unmet education and training needs of rheumatology health professionals in adolescent health and transitional care. Rheumatology 2004;43:737-43.
-
(2004)
Rheumatology
, vol.43
, pp. 737-743
-
-
McDonagh, J.E.1
Southwood, T.R.2
Shaw, K.L.3
-
14
-
-
0032580377
-
Interval estimation for the difference between independent proportions: Comparison of eleven methods
-
Newcombe RG. Interval estimation for the difference between independent proportions: comparison of eleven methods. Stat Med 1998;17:873-90.
-
(1998)
Stat Med
, vol.17
, pp. 873-890
-
-
Newcombe, R.G.1
-
15
-
-
84946650481
-
Probable inference, the law of succession, and statistical inference
-
Wilson EB. Probable inference, the law of succession, and statistical inference. J Am Statistic Assoc 1927;22:209-12.
-
(1927)
J Am Statistic Assoc
, vol.22
, pp. 209-212
-
-
Wilson, E.B.1
-
17
-
-
33644774192
-
Growing up and moving on in rheumatology: Development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis
-
McDonagh JE, Shaw KL, Southwood TR. Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis. J Child Health Care 2006; 10:22-42.
-
(2006)
J Child Health Care
, vol.10
, pp. 22-42
-
-
McDonagh, J.E.1
Shaw, K.L.2
Southwood, T.R.3
-
18
-
-
16244366147
-
Transition of the adolescent patient with rheumatic disease: Issues to consider
-
viii
-
Tucker LB, Cabral DA. Transition of the adolescent patient with rheumatic disease: issues to consider. Pediatr Clin North Am 2005;52:641-52, viii.
-
(2005)
Pediatr Clin North Am
, vol.52
, pp. 641-652
-
-
Tucker, L.B.1
Cabral, D.A.2
-
19
-
-
70449514743
-
Growing up and getting old(er) with childhood-onset chronic diseases: Paving the way to better chronic illness care worldwide
-
Okumura MJ. Growing up and getting old(er) with childhood-onset chronic diseases: paving the way to better chronic illness care worldwide. J Adolesc Health 2009;45:541-2.
-
(2009)
J Adolesc Health
, vol.45
, pp. 541-542
-
-
Okumura, M.J.1
-
20
-
-
16844366227
-
Health care transition: Youth, family, and provider perspectives
-
Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family, and provider perspectives. Pediatrics 2005;115:112-20.
-
(2005)
Pediatrics
, vol.115
, pp. 112-120
-
-
Reiss, J.G.1
Gibson, R.W.2
Walker, L.R.3
-
21
-
-
0034927388
-
Transition from pediatric to adult-oriented health care: A challenge for patients with chronic disease
-
Callahan ST, Winitzer RF, Keenan P. Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Curr Opin Pediatr 2001;13:310-6.
-
(2001)
Curr Opin Pediatr
, vol.13
, pp. 310-316
-
-
Callahan, S.T.1
Winitzer, R.F.2
Keenan, P.3
-
22
-
-
56849121875
-
Medical home and transition planning for children and youth with special health care needs
-
vii
-
Burdo-Hartman WA, Patel DR. Medical home and transition planning for children and youth with special health care needs. Pediatr Clin North Am 2008;55:1287-97, vii.
-
(2008)
Pediatr Clin North Am
, vol.55
, pp. 1287-1297
-
-
Burdo-Hartman, W.A.1
Patel, D.R.2
-
23
-
-
61549096872
-
Transition from pediatric to adult care: Internists' perspectives
-
Peter NG, Forke CM, Ginsburg KR, Schwarz DF. Transition from pediatric to adult care: internists' perspectives. Pediatrics 2009;123:417-23.
-
(2009)
Pediatrics
, vol.123
, pp. 417-423
-
-
Peter, N.G.1
Forke, C.M.2
Ginsburg, K.R.3
Schwarz, D.F.4
-
24
-
-
84872269467
-
Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare
-
Hilderson D, Moons P, Westhovens R, Wouters C. Attitudes of rheumatology practitioners toward transition and transfer from pediatric to adult healthcare. Rheumatol Int 2012;32:3887-96.
-
(2012)
Rheumatol Int
, vol.32
, pp. 3887-3896
-
-
Hilderson, D.1
Moons, P.2
Westhovens, R.3
Wouters, C.4
-
25
-
-
70449469316
-
How adult specialists deal with the principles of a successful transition
-
Suris J-C, Akré C, Rutishauser C. How adult specialists deal with the principles of a successful transition. J Adolesc Health 2009;45:551-5.
-
(2009)
J Adolesc Health
, vol.45
, pp. 551-555
-
-
Suris, J.-C.1
Akré, C.2
Rutishauser, C.3
-
26
-
-
58349111346
-
Preparing for adulthood: Health care transition counseling for youth with arthritis
-
Scal P, Horvath K, Garwick A. Preparing for adulthood: health care transition counseling for youth with arthritis. Arthritis Rheum 2009;61:52-7.
-
(2009)
Arthritis Rheum
, vol.61
, pp. 52-57
-
-
Scal, P.1
Horvath, K.2
Garwick, A.3
-
27
-
-
84878728011
-
Transfer from paediatric rheumatology to the adult rheumatology setting: Experiences and expectations of young adults with juvenile idiopathic arthritis
-
Hilderson D, Eyckmans L, Van der Elst K, Westhovens R, Wouters C, Moons P. Transfer from paediatric rheumatology to the adult rheumatology setting: experiences and expectations of young adults with juvenile idiopathic arthritis. Clin Rheumatol 2013;32:575-83.
-
(2013)
Clin Rheumatol
, vol.32
, pp. 575-583
-
-
Hilderson, D.1
Eyckmans, L.2
Van Der Elst, K.3
Westhovens, R.4
Wouters, C.5
Moons, P.6
-
28
-
-
80052736707
-
Transitioning the adolescent inflammatory bowel disease patient: Guidelines for the adult and pediatric gastroenterologist
-
Leung Y, Heyman MB, Mahadevan U. Transitioning the adolescent inflammatory bowel disease patient: guidelines for the adult and pediatric gastroenterologist. Inflamm Bowel Dis 2011;17:2169-73.
-
(2011)
Inflamm Bowel Dis
, vol.17
, pp. 2169-2173
-
-
Leung, Y.1
Heyman, M.B.2
Mahadevan, U.3
-
29
-
-
79959924109
-
Supporting the health care transition from adolescence to adulthood in the medical home
-
American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians; Transitions Clinical Report Authoring Group, Cooley WC, Sagerman PJ
-
American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians; Transitions Clinical Report Authoring Group, Cooley WC, Sagerman PJ. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011;128:182-200.
-
(2011)
Pediatrics
, vol.128
, pp. 182-200
-
-
-
31
-
-
84897374377
-
-
PCORI. Washington DC: Patient-Centered Outcomes Research Institute; c2012-2013. [Internet. Accessed Jan 2, 2014.] Available from
-
PCORI. Washington, DC: Patient-Centered Outcomes Research Institute; c2012-2013. [Internet. Accessed Jan 2, 2014.] Available from: www.pcori.org/
-
-
-
-
32
-
-
84897437067
-
-
Patient Reported Outcomes Measurement Information System (PROMIS). Silver Spring Maryland: PROMIS Network Center; 2011-2013. [Internet. Accessed Jan 2, 2014.] Available from
-
Patient Reported Outcomes Measurement Information System (PROMIS). Silver Spring, Maryland: PROMIS Network Center; 2011-2013. [Internet. Accessed Jan 2, 2014.] Available from: www.nihpromis.org/
-
-
-
-
33
-
-
84897388719
-
-
CARRA Registry Raleigh North Carolina: Duke Clinical Research Institute; 2010-2013 [Internet. Accessed Jan 2, 2014.] Available from
-
CARRA Registry. Raleigh, North Carolina: Duke Clinical Research Institute; 2010-2013 [Internet. Accessed Jan 2, 2014.] Available from: https://carranetwork.org/
-
-
-
|