The challenges of transferring chronic illness patients to adult care: Reflections from pediatric and adult rheumatology at a US academic center

Pediatric Rheumatology

Volumn 7, Issue , 2009, Pages

  Hersh, Aimee O ^a   Pang, Shirley ^a   Curran, Megan L ^a   Milojevic, Diana S ^a   von Scheven, Emily ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AZATHIOPRINE; CYCLOPHOSPHAMIDE; CYCLOSPORIN; HYDROXYCHLOROQUINE; METHOTREXATE; METHYLPREDNISOLONE; MYCOPHENOLIC ACID 2 MORPHOLINOETHYL ESTER; PREDNISONE; TUMOR NECROSIS FACTOR ALPHA INHIBITOR;

ABORTION; ADOLESCENT; ADULT; ANTIPHOSPHOLIPID SYNDROME; ARTICLE; CHILD HEALTH CARE; CHRONIC DISEASE; CLINICAL ARTICLE; COMPARATIVE STUDY; CONTROLLED STUDY; DEATH; DISEASE ACTIVITY; DISEASE COURSE; DISEASE EXACERBATION; FEMALE; HEALTH BEHAVIOR; HEALTH CARE UTILIZATION; HEALTH PROGRAM; HOSPITALIZATION; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; MALE; MIXED CONNECTIVE TISSUE DISEASE; PATIENT CARE; PREGNANCY; PRIORITY JOURNAL; PRIVATE HEALTH INSURANCE; PUBLIC HEALTH INSURANCE; RETROSPECTIVE STUDY; RHEUMATIC DISEASE; SYSTEMIC LUPUS ERYTHEMATOSUS; TEACHING HOSPITAL; TREATMENT OUTCOME; UNITED STATES; VASCULITIS;

EID: 67649651665     PISSN: None     EISSN: 15460096     Source Type: Journal    
DOI: 10.1186/1546-0096-7-13     Document Type: Article

References (34)

1. Freed GL Hudson EJ Transitioning children with chronic diseases to adult care: Current knowledge, practices, and directions J Pediatr 2006, 148:824-827. 10.1016/j.jpeds.2006.02.010 16769396
2. Wise PH The future pediatrician: The challenge of chronic illness J Pediatr 2007, 151:S6-10. 10.1016/j.jpeds.2007.08.013 17950322
3. Ravelli A Martini A Juvenile idiopathic arthritis Lancet 2007, 369:767-778. 10.1016/S0140-6736(07)60363-8 17336654
4. Cassidy J Petty R Textbook of Pediatric Rheumatology Philadelphia: WB Saunders 2005.
5. Fantini F Gerloni V Gattinara M Cimaz R Arnoldi C Lupi E Remission in juvenile chronic arthritis: A cohort study of 683 consecutive cases with a mean 10 year followup J Rheumatol 2003, 30:579-584. 12610820
6. Koivuniemi R Leirisalo-Repo M Juvenile chronic arthritis in adult life: a study of long-term outcome in patients with juvenile chronic arthritis or adult rheumatoid arthritis Clin Rheumatol 1999, 18:220-226. 10.1007/ s100670050088 11206347
7. Zak M Pedersen FK Juvenile chronic arthritis into adulthood: A long-term follow-up study Rheumatology (Oxford) 2000, 39:198-204. 10.1093/ rheumatology/39.2.198 10725073
8. Oen K Malleson PN Cabral DA Rosenberg AM Petty RE Cheang M Disease course and outcome of juvenile rheumatoid arthritis in a multicenter cohort J Rheumatol 2002, 29:1989-1999. 12233897
9. Packham JC Hall MA Long-term follow-up of 246 adults with juvenile idiopathic arthritis: Social function, relationships and sexual activity Rheumatology (Oxford) 2002, 41:1440-1443. 10.1093/rheumatology/ 41.12.1440 12468827
10. Packham JC Hall MA Long-term follow-up of 246 adults with juvenile idiopathic arthritis: Education and employment Rheumatology (Oxford) 2002, 41:1436-1439. 10.1093/rheumatology/41.12.1436 12468826
11. Urowitz MB Feletar M Bruce IN Ibanez D Gladman DD Prolonged remission in systemic lupus erythematosus J Rheumatol 2005, 32:1467-1472. 16078321
12. Moorthy LN Robbins L Harrison MJ Peterson MG Cox N Onel KB Lehman TJ Quality of life in paediatric lupus Lupus 2004, 13:234-240. 10.1191/ 0961203304lu1003oa 15176658
13. Ruperto N Buratti S Duarte-Salazar C Pistorio A Reiff A Bernstein B Maldonado-Velazquez MR Beristain-Manterola R Maeno N Takei S Health-related quality of life in juvenile-onset systemic lupus erythematosus and its relationship to disease activity and damage Arthritis Rheum 2004, 51:458-464. 10.1002/art.20412 15188334
14. Miettunen PM Ortiz-Alvarez O Petty RE Cimaz R Malleson PN Cabral DA Ensworth S Tucker LB Gender and ethnic origin have no effect on longterm outcome of childhood-onset systemic lupus erythematosus J Rheumatol 2004, 31:1650-1654. 15290748
15. Tucker LB Caring for the adolescent with systemic lupus erythematosus Adolesc Med 1998, 9:59-67. 10961252
16. Scal P Horvath K Garwick A Preparing for adulthood: Health care transition counseling for youth with arthritis Arthritis Rheum 2009, 61:52-57. 10.1002/art.24088 19116976
17. Reid GJ Irvine MJ McCrindle BW Sananes R Ritvo PG Siu SC Webb GD Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects Pediatrics 2004, 113:e197-205. 10.1542/peds.113.3.e197 14993577
18. Callahan ST Winitzer RF Keenan P Transition from pediatric to adult-oriented health care: A challenge for patients with chronic disease Curr Opin Pediatr 2001, 13:310-316. 10.1097/ 00008480-200108000-00004 11717554
19. Geenen SJ Powers LE Sells W Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs J Adolesc Health 2003, 32:225-233. 10.1016/ S1054-139X(02)00396-8 12606116
20. Reiss JG Gibson RW Walker LR Health care transition: Youth, family, and provider perspectives Pediatrics 2005, 115:112-120. 10.1542/ peds.2005-0448 15629990
21. Robertson LP McDonagh JE Southwood TR Shaw KL Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from paediatric to adult centred care Ann Rheum Dis 2006, 65:74-80. 1797966 15994281 10.1136/ard.2004.032292
22. McDonagh JE Transition of care from paediatric to adult rheumatology Arch Dis Child 2007, 92:802-807. 10.1136/adc.2006.103796 17715444
23. Kipps S Bahu T Ong K Ackland FM Brown RS Fox CT Griffin NK Knight AH Mann NP Neil HA et al Current methods of transfer of young people with Type 1 diabetes to adult services Diabet Med 2002, 19:649-654. 10.1046/ j.1464-5491.2002.00757.x 12147145
24. Vanelli M Caronna S Adinolfi B Chiari G Gugliotta M Arsenio L Effectiveness of an uninterrupted procedure to transfer adolescents with Type 1 diabetes from the Paediatric to the Adult Clinic held in the same hospital: Eight-year experience with the Parma protocol Diabetes Nutr Metab 2004, 17:304-308. 16295053
25. Falcini F Nacci F Systemic lupus erythematosus in the young: The importance of a transition clinic Lupus 2007, 16:613-617. 10.1177/ 0961203307078973 17711897
26. McDonagh JE Shaw KL Southwood TR Growing up and moving on in rheumatology: Development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis J Child Health Care 2006, 10:22-42. 10.1177/ 1367493506060203 16464931
27. McDonagh JE Southwood TR Shaw KL The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis Rheumatology (Oxford) 2007, 46:161-168. 10.1093/rheumatology/ kel198 16790451
28. Rettig P Athreya BH Adolescents with chronic disease. Transition to adult health care Arthritis Care Res 1991, 4:174-180. 10.1002/ art.1790040407 11188605
29. Tucker LB Cabral DA Transition of the adolescent patient with rheumatic disease: Issues to consider Rheum Dis Clin North Am 2007, 33:661-672. 10.1016/j.rdc.2007.07.005 17936180
30. White PH On the road to adulthood for youth with rheumatic diseases: what health care professionals can do Arthritis Rheum 2008, 59:1054-1057. 10.1002/art.23932 18668612
31. Shaw KL Southwood TR McDonagh JE Growing up and moving on in rheumatology: A multicentre cohort of adolescents with juvenile idiopathic arthritis Rheumatology (Oxford) 2005, 44:806-812. 10.1093/ rheumatology/keh603 15769786
32. Bell LE Bartosh SM Davis CL Dobbels F Al-Uzri A Lotstein D Reiss J Dharnidharka VR Adolescent Transition to Adult Care in Solid Organ Transplantation: A consensus conference report Am J Transplant 2008, 8:2230-2242. 10.1111/j.1600-6143.2008.02415.x 18822088
33. Lotstein DS Inkelas M Hays RD Halfon N Brook R Access to care for youth with special health care needs in the transition to adulthood J Adolesc Health 2008, 43:23-29. 10.1016/j.jadohealth.2007.12.013 18565434
34. Dugueperoux I Tamalet A Sermet-Gaudelus I Le Bourgeois M Gerardin M Desmazes-Dufeu N Hubert D Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care J Adolesc Health 2008, 43:459-465. 10.1016/j.jadohealth.2008.03.005 18848674