You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities

Disability and Health Journal

Volumn 9, Issue 2, 2016, Pages 201-207

  McDonald, Katherine E ^a   Stack, Erin ^b  

^a SYRACUSE UNIVERSITY   (United States)

^b RMC RESEARCH CORPORATION   (United States)

Author keywords

Community based participatory research; Developmental disability; Health research

Indexed keywords

ARTICLE; DECISION MAKING; DEVELOPMENTAL DISORDER; EMPIRICISM; HEALTH EQUITY; HUMAN; HUMAN RIGHTS; INFORMATION PROCESSING; PARTICIPATORY RESEARCH; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SCIENTIST; SOCIAL JUSTICE; THEMATIC ANALYSIS; COOPERATION; DEMOGRAPHY; DISABLED PERSON; PROSPECTIVE STUDY;

COMMUNITY-BASED PARTICIPATORY RESEARCH; COOPERATIVE BEHAVIOR; DEVELOPMENTAL DISABILITIES; DISABLED PERSONS; FOCUS GROUPS; HUMANS; PROSPECTIVE STUDIES; QUALITATIVE RESEARCH; RESIDENCE CHARACTERISTICS;

EID: 84961839610     PISSN: 19366574     EISSN: 18767583     Source Type: Journal    
DOI: 10.1016/j.dhjo.2015.12.006     Document Type: Article

References (23)

1. B.A. Israel, A.J. Schulz, E.A. Parker, A.B. Becker, A.J. Allen III, and J.R. Guzman Critical issues in developing and following community-based participatory research principles M. Minkler, N. Wallerstein, Community-based Participatory Research for Health 2003 Jossey-Bass San Francisco, CA 53 76
2. M. Minkler, and N. Wallerstein Community-based Participatory Research for Health 2003 John Wille & Sons, Inc San Francisco, CA 53 54
3. M. Viswanathan, A. Ammerman, E. Eng, and et al. Community-based Participatory Research: Assessing the Evidence 2004 Rockville, MD
4. Y. Salimi, K. Shahandeh, H. Malekafzali, and et al. Is community-based participatory research (CBPR) useful? A systematic review on papers in a decade Int J Prev Med 3 6 2012 386
5. E. Stack, and K. McDonald Nothing about us without us: does action research in developmental disabilities research measure up? J Policy Pract Intell Disabil 11 2 2014 83 91
6. J. Jivraj, L.-A. Sacrey, A. Newton, D. Nicholas, and L. Zwaigenbaum Assessing the influence of researcher-partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: a scoping review Autism 18 7 2014 782 793
7. K.E. McDonald, and D.M. Raymaker Paradigm shifts in disability and health: towards more ethical public health research Am J Public Health 103 2013 2165 2173
8. G. Dybwad, and H. Bersani New Voices: Self-advocacy by People with Disabilities 1996 Brookline Books Cambridge, MA
9. D. Ferguson Learning disability research: a discussion paper Learn Disabil Pract 7 6 2004 17 19
10. C. Nicolaidis, D. Raymaker, K. McDonald, and et al. Collaboration strategies in non-traditional community-based participatory research partnerships: lessons from an academic-community partnership with autistic self-advocates Prog Community Health Partnersh 5 2 2011 143 150
11. J. Dias, M. Eardley, E. Harkness, L. Townson, C. Brownlee-Chapman, and R. Chapman Keeping wartime memory alive: an oral history project about the wartime memories of people with learning difficulties in Cumbria Disabil Soc 21 1 2012 31 49
12. L. Platt, L. Powers, S. Leotti, and et al. The role of gender in violence experienced by adults with developmental disabilities J Interpers Violence 2015 10.1177/0886260515585534
13. C. Nicolaidis, D.M. Raymaker, M. Katz, and et al. Participatory research to adapt measures of health and interpersonal violence for use by people with developmental disabilities Prog Community Health Partnersh 9 2 2015 157 170
14. M. Oschwald, S. Leotti, D.M. Raymaker, and et al. Development of an audio-computer assisted self-interview to investigate violence and health in the lives of adults with developmental disabilities Disabil Health J 7 3 2014 292 301
15. Y. Lincoln, and E. Guba Naturalistic Inquiry 1985 Sage Publications Newbury Park, CA
16. M.B. Miles, and A.M. Huberman Qualitative Data Analysis 1994 Sage Thousand Oaks, CA
17. V. Braun, and V. Clarke Using thematic analysis in psychology Qual Res Psychol 3 2 2006 77 101
18. N. Wallerstein, J. Oetzel, B. Duran, G. Tafoya, L. Belone, and R. Rae What Predicts Outcomes in CBPR. Community-based Participatory Research for Health: From Processes to Outcomes 2nd ed 2008 Jossey-Bass San Francisco 371388
19. M. Muhammad, N. Wallerstein, A.L. Sussman, M. Avila, L. Belone, and B. Duran Reflections on researcher identity and power: the impact of positionality on Community Based Participatory Research (CBPR) processes and outcomes Crit Sociol 2015
20. J. Jagosh, P.L. Bush, J. Salsberg, and et al. A realist evaluation of community-based participatory research: partnership synergy, trust building and related ripple effects BMC Public Health 15 1 2015 725
21. T. Gilbert Involving people with learning disabilities in research: Issues and possibilities Health Soc Care Community 12 4 2004 298 308
22. D. Stokols, K.L. Hall, B.K. Taylor, and R.P. Moser The science of team science: overview of the field and introduction to the supplement Am J Prev Med 35 2 2008 S77 S89
23. Y.A. Joosten, T.L. Israel, N.A. Williams, and et al. Community engagement studios: a structured approach to obtaining meaningful input from stakeholders to inform research Acad Med 90 12 2015 1646 1650