Qualitative focus group study investigating experiences of accessing and engaging with social care services: Perspectives of carers from diverse ethnic groups caring for stroke survivors

BMJ Open

Volumn 6, Issue 1, 2016, Pages

  Greenwood, Nan ^a   Holley, Jess ^a   Ellmers, Theresa ^a   Mein, Gill ^a   Cloud, Geoffrey ^b  

^a ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

^b ST GEORGE'S UNIVERSITY HOSPITALS NHS FOUNDATION TRUST   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; AFRICAN CARIBBEAN; AGED; ARTICLE; ASIAN INDIAN; ASIAN PAKISTANI; BLACK AFRICAN; CARE AND CARING; CAREGIVER; CEREBROVASCULAR ACCIDENT; CLINICAL ARTICLE; CULTURAL FACTOR; ETHNIC GROUP; ETHNICITY; EXPERIENCE; FEMALE; HEALTH CARE ACCESS; HEALTH CARE NEED; HEALTH CARE QUALITY; HOME; HOSPITAL DISCHARGE; HUMAN; INTERPERSONAL COMMUNICATION; LANGUAGE; MALE; ORGANIZATION; PATIENT ADVOCACY; PATIENT CARE; QUALITATIVE RESEARCH; RELIGION; SOCIAL CARE; SOCIAL WORK; SURVIVOR; UNITED KINGDOM; WHITE BRITISH; ASIAN CONTINENTAL ANCESTRY GROUP; BLACK PERSON; CAUCASIAN; COMPLICATION; CULTURAL ANTHROPOLOGY; DISABLED PERSON; ENGLAND; FAMILY; INFORMATION PROCESSING; LONG TERM CARE; MIDDLE AGED; MINORITY GROUP; NURSING; SOCIAL SUPPORT;

AFRICAN CONTINENTAL ANCESTRY GROUP; AGED; ASIAN CONTINENTAL ANCESTRY GROUP; CAREGIVERS; CULTURE; DISABLED PERSONS; ETHNIC GROUPS; EUROPEAN CONTINENTAL ANCESTRY GROUP; FAMILY; FEMALE; FOCUS GROUPS; HUMANS; LANGUAGE; LONDON; LONG-TERM CARE; MALE; MIDDLE AGED; MINORITY GROUPS; PATIENT DISCHARGE; QUALITATIVE RESEARCH; SOCIAL SUPPORT; SOCIAL WORK; STROKE; SURVIVORS;

EID: 84960400939     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2015-009498     Document Type: Article

References (38)

1. Mackay J, Mensah G. The atlas of heart disease and stroke. Geneva: World Health Organisation, 2004. http://www.who.int/cardiovascular-diseases/resources/atlas/en/(accessed Jul 2015).
2. National Audit Office. Progress in improving stroke care. London: Stationery Office, 2010.
3. Stroke Association. Stroke statistics 2013. https://www.stroke.org. uk/sites/default/files/stroke-statistics-2015.pdf (accessed 13 Oct 2015).
4. Markus HS, Khan U, Birns J, et al. Differences in stroke subtypes between black and white patients with stroke: the South London Ethnicity and Stroke Study. Circulation 2007;116:2157-64.
5. Department of Health: Caring for our future. Reforming care and support. London: HM Government, 2012.
6. Greenwood N, Mackenzie A, Cloud GC, et al. Informal carers of stroke survivors-factors influencing carers: a systematic review of quantitative studies. Disabil Rehabil 2008;30:1329-49.
7. Greenwood N, Mackenzie A, Cloud GC, et al. Informal primary carers of stroke survivors living at home-challenges, satisfactions and coping: a systematic review of qualitative studies. Disabil Rehabil 2009;31:337-51.
8. Quinn K, Murray C, Malone C. Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research. Disabil Rehabil 2014;36:185-98.
9. Perry L, Middleton S. An investigation of family carers' needs following stroke survivors' discharge from acute hospital care in Australia. Disabil Rehabil 2011;33:1890-900.
10. Mackenzie A, Perry L, Lockhart E, et al. Family carers of stroke survivors: needs, knowledge, satisfaction and competence in caring. Disabil Rehabil 2007;29:111-21.
11. McGurk R, Kneebone I. The problems faced by informal carers to people with aphasia after stroke: a literature review. Aphasiology 2013;27:765-83.
12. Greenwood N, Mackenzie A. Informal caring for stroke survivors: meta-ethnographic review of qualitative literature. Maturitas 2010;66:268-76.
13. Green TL, King KM. Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: a descriptive qualitative study. Int J Nurs Stud 2009;46:1194-200.
14. Berg A, Palomaki H, Lonnquist J, et al. Depression among caregivers of stroke survivors. Stroke 2005;36:639-43.
15. Toseland RW, McCallion P, Gerber T, et al. Predictors of health and human services use by persons with dementia and their family caregivers. Soc Sci Med 2002;55:1255-66.
16. Brodaty H, Thomson C, Thompson C, et al. Why caregivers of people with dementia and memory loss don't use services. Int J Geriatr Psych 2005;20:537-46.
17. Stockwell-Smith G, Kellett U, Moyle W. Why carers of frail older people are not using available respite services: an Australian study. J Clin Nurs 2010;19:2057-64.
18. Gaugler JE, Kane RL, Kane RA, et al. Community based service utilization and its effects on dementia caregiving. Gerontologist 2005;45:177-85.
19. Winslow BW. Effects of formal supports on stress outcomes in family caregivers of Alzheimer's patients. Res Nurs Health 1997;20:27-37.
20. Lievesley N. The future ageing of the ethnic minority population of England and Wales. London: Centre for Policy on Ageing and the Runnymede Trust, 2010.
21. Carers UK. Half a million voices: improving support for BAME carers. London: Carers UK, 2011.
22. Dunlop D, Manheim L, Song J, et al. Gender and ethnic/racial disparities in health care utilization among older adults. J Gerontol B Soc Sci 2002;57:S221-33.
23. Giunta N, Chow J, Scharlach AE, et al. Racial and ethnic differences in family caregiving in California. J Human Beh Soc Environ 2004;9:85-109.
24. Scharlach AE, Kellman R, Ong N, et al. Cultural attitudes and caregiver service use: lessons from focus groups with racially and ethnically diverse family caregivers. J Gerontol Soc Work 2006;47:133-56.
25. Greenwood N, Habibi R, Smith R, et al. Barriers to access and minority ethnic carers' satisfaction with social care services in the community: a systematic review of qualitative and quantitative literature. Health Soc Care Community 2015;23:64-78.
26. Greenwood N, Ellmers T, Holley J. An exploration of the influence of ethnic group composition on focus group discussions. BMC Res Methodol 2014;14:107.
27. Hammersley M, Atkinson P. In: Ethnography: Principles in practice. 2nd edn. London: Routledge, 1995.
28. Pope C, Ziebland S, Mays N. Analysing qualitative data. In: Pope C, Mays N, eds. Qualitative research in health care. 2nd edn. London: BMJ Books, 1999:75-88.
29. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006;3:77-101.
30. McPherson KM, Kayes NK, Moloczij N, et al. Improving the interface between informal carers and formal health and social services: a qualitative study. Int J Nurs Stud 2014;51:418-29.
31. Tyson S, Turner G. Discharge and follow-up for people with stroke: what happens and why. Clin Rehab 2000;4:381-92.
32. Merrell J, Kinsella F, Murphy F, et al. Support needs of carers of dependent adults from a Bangladeshi community. J Adv Nurs 2005;51:549-57.
33. Fazil Q, Bywaters P, Ali Z, et al. Disadvantage and discrimination compounded: the experience of Pakistani and Bangladeshi parents of disabled children in the UK. Disabil Society 2002;3:237-53.
34. Hensel E, Krishnan M, Saunders K, et al. Impact of policy shifts on South Asian carers in the United Kingdom. J Policy Pract Intellect Disabil 2005;2:10-17.
35. Williams C, Johnson MRD. Race and ethnicity in a welfare society. Maidenhead, UK: Open University Press, 2010.
36. Lawrence V, Murray J, Kritika Samsi K, et al. Attitudes and support needs of black Caribbean, south Asian and white British carers of people with dementia in the UK. B J Psychiat 2008;193:240-6.
37. Mackenzie A, Greenwood N. Positive experiences of caregiving in stroke: a systematic review. Disabil Rehab 2012;34:1413-22.
38. Department of Health. National stroke strategy. London: DH, 2007. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH-081062 (accessed 13 Oct 2015).