Positive experiences of caregiving in stroke: A systematic review

Disability and Rehabilitation

Volumn 34, Issue 17, 2012, Pages 1413-1422

  MacKenzie, Ann ^a   Greenwood, Nan ^a  

^a ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

Author keywords

Caregiving; Carer; Positives; Stroke

Indexed keywords

ADAPTIVE BEHAVIOR; CAREGIVER; HUMAN; NURSING; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REVIEW; SELF CONCEPT; STROKE; SURVIVOR;

ADAPTATION, PSYCHOLOGICAL; CAREGIVERS; HUMANS; QUALITY OF LIFE; SELF CONCEPT; STROKE; SURVIVORS;

EID: 84862258149     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2011.650307     Document Type: Review

References (49)

1. Greenwood N, Mackenzie A, Cloud GC, Wilson N. Informal primary carers of stroke survivors living at home-challenges, satisfactions and coping: A systematic review of qualitative studies. Disabil Rehabil 2009;31:337-351.
2. Greenwood N, Mackenzie A, Cloud GC, Wilson N. Informal carers of stroke survivors-factors influencing carers: A systematic review of quantitative studies. Disabil Rehabil 2008;30:1329-1349.
3. Visser-Meily JM, Post MW, Riphagen II, LinDeman E. Measures used to assess burDen among caregivers of stroke patients: A review. Clin Rehabil 04;18:601-623.
4. Lazarus RS, Folkman S. Stress, Appraisal and Coping. 1984; New York; Springer. 5. Miller B, Lawton PM. Positive aspects of caregiving. Introduction: Finding balance in caregiver research. Gerontologist 1997;37: 216-217.
5. Kramer BJ. Gain in the caregiving experience: where are we? What next? Gerontologist 1997;37:218-232.
6. Habermann B, Davis LL. Caring for family with Alzheimer's disease and Parkinson's disease: needs, challenges and satisfaction. J Gerontol Nurs 2005;31:49-54.
7. Tarlow BJ, Stephen RW, Rubert M, Ory MG, Gallagher-Thompson D. Positive Aspects of Caregiving. Res Aging 2004;26:429-453.
8. Cohen CA, Colantonio A, Vernich L. Positive aspects of caregiving: Rounding out the caregiver experience. nt J Geriatr Psychiatry 2002;17:184-188.
9. Kane RA, Reinhardy J, Penrod JD, Huck S. After the Hospitalisation is Over: A Different Perspective on Family Care of OlDer People. J Gerontol Soc Work 1999;31:119-141.
10. Grant G, Ramcharan P, McGrath M, Nolan M, Keady J. Rewards and gratifications among family caregivers: towards a refined moDel of caring and coping. J Intellect Disabil Res 1998;42 (Pt 1):58-71.
11. Talkington-Boyer S, SnyDer D. Assessing Impact on Family Caregivers to Alzheimer's Disease Patients. Am J of Fam Ther 1994;22: 57-66.
12. Noonan AE, Tennstedt SL, Rebelsky F. Making The Best Of It: Themes of Meaning among Informal Caregivers to the ElDerly. J Aging Stud 1996;10:313-327.
13. Lundh U. Family carers. 2: Sources of satisfaction among Swedish carers. Br J Nurs 1999;8:647-652.
14. Mackenzie AE, Holroyd EE. An exploration of the carers' perceptions of caregiving and caring responsibilities in Chinese families. Int J Nurs Stud 1996;33:1-12.
15. Ekwall AK, Hallberg IR. The association between caregiving satisfaction, difficulties and coping among olDer family caregivers. J Clin Nurs 2007;16:832-844.
16. Johnson PD. Rural Stroke Caregivers: A Qualitative Study of the Positive and Negative Response to the Caregiver Role. Top Stroke Rehabil 1996;5:51-68.
17. Biegel DE, Sales E, Schulz R. Family Caregiving in Chronic Illness. Newbury Park: Sage Publications, 1991.
18. Evans RL, Connis RT, Bishop DS, Hendricks RD, Haselkorn JK. Stroke: A family dilemma. Disabil Rehabil 994;16:110-118.
19. Centre for Reviews and Dissemination. UnDertaking systematic reviews of research on effectiveness: CRD's guidance for those carrying out or commissioning reviews.CRD Report 4. second edition. York: York University, 01.
20. Mays N, Pope C. Qualitative research in health care. Assessing quality in qualitative research. BMJ 2000;320:50-52.
21. Bhui K, Stansfeld S, Hull S, Priebe S, Mole F, FeDer G. Ethnic variations in pathways to and use of specialist mental health services in the UK. Systematic review. Br J Psychiatry 2003;182:105-116.
22. Brereton L, Carroll C, Barnston S. Interventions for adult family carers of people who have had a stroke: A systematic review. Clin Rehabil 2007;21:867-884.
23. Burman ME. Family caregiver expectations and management of the stroke trajectory. Rehabil Nurs 2001;26:94-99.
24. Haley WE, Allen JY, Grant JS, Clay OJ, Perkins M, Roth DL. Problems and benefits reported by stroke family caregivers: Results from a prospective epiDemiological study. Stroke 2009;40:2129-2133.
25. Secrest J. Transformation of the Relationship: The Experience of Primary Support Persons of Stroke Survivors. Rehabil Nursing 2000;25:93-99.
26. Smith LN, Norrie J, Kerr SM, Lawrence IM, Langhorne P, Lees KR. Impact and influences on caregiver outcomes at one year post-stroke. Cerebrovasc Dis 2004;18:145-153.
27. White CL, Korner-Bitensky N, Rodrigue N, Rosmus C, Sourial R, Lambert S, Wood-Dauphinee S. Barriers and facilitators to caring for individuals with stroke in the community: the family's experience. Can J Neurosci Nurs 07;29:5-12.
28. Bacon E, Milne DL, Sheikh AI, Freeston MH. Positive experiences in caregivers: An exploratory case series. Behav Cogn Psychother 2009;37:95-114.
29. Greenwood N, Mackenzie A, Wilson N, Cloud G. Managing uncertainty in life after stroke: A qualitative study of the experiences of established and new informal carers in the first 3 months after discharge. Int J Nurs Stud 2009;46:1122-1133.
30. Pierce LL, Steiner V, Govoni A, Thompson TC, FrieDemann ML. Two siDes to the caregiving story. Top Stroke Rehabil 2007;14:13-20.
31. Subgranon R, Lund DA. Maintaining caregiving at home: A culturally sensitive grounDed theory of providing care in Thailand. J Transcult Nurs 2000;11:166-173.
32. Nolan M, Keady J, Grant G. Assessing the needs of family carers: A GuiDe for Practitioners. London: Pavilion 1998.
33. Schulz R, Newsom JT, Mittlemark M, Burton L, Hirsch C, Jackson S. Health Effects of Caregiving: The Caregiver Health Effects Study. Ann Behav Med 1997;12:110-116.
34. FrieDemann ML. The Framework of Systematic Organisation: A Conceptual Approach to Pactice and research with Families and Family Members. Thousand Oaks, CA: Sage 1995.
35. Hilgeman MM, Allen RS, DeCoster J, Burgio LD. Positive aspects of caregiving as a moDerator of treatment outcome over 12 months. Psychol Aging 07;22:361-371.
36. Stansbury JP, Jia H, Williams LS, Vogel WB, Duncan PW. Ethnic disparities in stroke: epiDemiology, acute care, and postacute outcomes. Stroke 2005;36:374-386.
37. Segal ME, Schall RR. Life Satisfaction and Caregiving Stress for Individuals with Stroke and Their rimary Caregivers. Rehabil Psychol 1996:41:303-321.
38. RieDel SE, Fredman L, Langenberg P. Associations Among Caregiving Difficulties, BurDen, and Rewards in Caregivers to OlDer post-Rehabilitation Patients. Jnl Geront Psychol Sciences 1998;53B:3165-174.
39. Greenwood N, Mackenzie A. Informal caring for stroke survivors: meta-ethnographic review of qualitative literature. Maturitas 2010;66:268-276.
40. Ayres L. Narratives of family caregiving: the process of making meaning. Res Nurs Health 2000;23:424-434.
41. Pound P, Gompertz P, Ebrahim S. Illness in the context of olDer age: the case of stroke. Sociol Health Illn 1998;20:489-506.
42. Faircloth CA, Boylstein C, Rittman M, Young ME, Gubrium J. SudDen illness and biographical flow in narratives of stroke recovery. Sociol Health Illn 2004;26:242-261. 44. SanDers C, Donovan J, Dieppe P. The significance and consequences of having painful and disabled joints in olDer age: Co-existing accounts of normal and disrupted biographies. Sociol Health Illn 2002;24:227-253.
43. SanDers C, Donovan J, Dieppe P. The significance and consequences of having painful and disabled joints in olDer age: Co-existing accounts of normal and disrupted biographies. Sociol Health Illn 2002;24
44. Taylor R, Ford G, Dunbar M. The effects of caring on health: A community-based longitudinal study. Soc Sci Med 1995;40:1407-1415.
45. O'Reilly D, Connolly S, Rosato M, Patterson C. Is caring associated with an increased risk of mortality? A longitudinal study. Soc Sci Med 2008;67:1282-1290.
46. Folkman S, Moskowitz JT. Positive affect and the other siDe of coping. Am Psychol 2000;55:647-654.
47. Bury M. Chronic illness as biographical disruption. Sociol Health Ill 1982;4:167-182.
48. Beach SR, Schulz R, Yee JL, Jackson S. Negative and positive health effects of caring for a disabled spouse: longitudinal findings from the caregiver health effects study. Psychol Aging 2000;15: 259-271.
49. World Health Organisation. International Classification of Functioning, Disability and Health. ICF Geneva. Switzerland: WHO, 2001.