An investigation of family carers' needs following stroke survivors' discharge from acute hospital care in Australia

Disability and Rehabilitation

Volumn 33, Issue 19-20, 2011, Pages 1890-1900

  Perry, Lin ^a,b   Middleton, Sandy ^c  

^a UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

^b Prince of Wales Public and Private Hospitals   (Australia)

^c AUSTRALIAN CATHOLIC UNIVERSITY   (Australia)

Author keywords

care giving; discharge; Stroke

Indexed keywords

AGED; ARTICLE; ATTITUDE TO HEALTH; AUSTRALIA; CAREGIVER; COHORT ANALYSIS; CONSUMER; FAMILY; FEMALE; HOSPITAL DISCHARGE; HUMAN; HUMAN RELATION; INTERVIEW; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NURSING; PSYCHOLOGICAL ASPECT; STROKE; TELEPHONE;

AGED; AGED, 80 AND OVER; AUSTRALIA; CAREGIVERS; COHORT STUDIES; CONSUMER SATISFACTION; FAMILY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PATIENT DISCHARGE; PROFESSIONAL-FAMILY RELATIONS; STROKE; TELEPHONE;

EID: 80052058362     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2011.553702     Document Type: Article

References (31)

1. Senes S. 2006. How we manage stroke in Australia. Australian Institute of Health and Welfare cat. no. CVD 31. Canberra: AIHW.
2. Intercollegiate Stroke Working Party 2008. The National Sentinel Audit of Stroke 2008. National and Local Results for the Process of Stroke Care Audit 2008. London: Royal College of Physicians.
3. Australian Institute of Health and Welfare. 2006. Electronic Citation. Australia's Health 2006. AIHW cat. no. AUS 73. Canberra: AIHW. http://www.aihw.gov.au/publications/aus/ah06/ah06.pdf. Last accessed January 2011.
4. Low JTS, Payne S, Roderick P. The impact of stroke on informal carers: a literature review. Soc Sci Med 1999;49: 6:711-725. (Pubitemid 29333584)
5. Tooth L, McKenna K, Barnett A, Prescott C, Murphy S. Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Inj 2005 19;12:963-974. (Pubitemid 41701018)
6. Anderson CS, Linto J, Stewart-Wynne EG. A populationbased assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke 1995;26:843-849.
7. Han B, Haley WE. Family caregiving for patients with stroke: review and Analysis. Stroke 1999;30:7:1478-1485. (Pubitemid 29296080)
8. Greenwood N, Mackenzie A, Cloud GC, Wilson N. Informal primary carers of stroke survivors living at home-challenges, satisfactions and coping: a systematic review of qualitative studies. Disabil Rehabil 2009;315:337-351.
9. Greenwood N, Mackenzie A, Cloud GC, Wilson N. Informal carers of stroke survivors-factors influencing carers: a systematic review of quantitative studies. Disabil Rehabil 2008;3018:1329-1349.
10. Rigby H, Gubitz G, Phillips S. A systematic review of caregiver burden following stroke. Int J Stroke 2009;4:285-292.
11. Cumming TB, Cadilhac DA, Rubin G, Crafti N, Pearce DC. Psychological distress and social support in informal caregivers of stroke survivors. Brain Impairment 2008;9:2:152-160.
12. Smith J, Forster A, House A, Knapp P, Wright J, Young J. Information provision for stroke patients and their caregivers. Cochr Database Systemat Rev 2008;16(2):CD001919.
13. Brereton L, Carroll C, Barnston S. Interventions for adult family carers of people who have had a stroke: a systematic review. Clin Rehabil 2007;21:867-884. (Pubitemid 350065460)
14. Katbamna S, Bhakta P, Ahmad W, Baker R, Parker G. Supporting South Asian carers and those they care for: the role of the primary health care team. Br J Gen Pract 2002; 52:300-305. (Pubitemid 35021405)
15. Katbamna S, Bhakta P, Ahmad W, Baker R, Parker G. Do they look after their own? Informal support for South Asian carers. Health Soc Care Commun 2004;5:398-406. (Pubitemid 39202950)
16. O'Connell B, Baker L, Prosser A. The educational needs of caregivers of stroke survivors in acute and community settings. J Neurosci Nurs 2003;35:1:21-28.
17. Kalra L, Evans A, Perez I, Melbourn A, Patel A, Knapp M, Donaldson N. Training carers of stroke patients: randomised controlled trial. Br Med J 2004;328:1099-1101. (Pubitemid 38608437)
18. Mackenzie A, Perry L, Lockhart E, Cottee M, Cloud G, Mann H. Family carers of stroke: needs, knowledge, satisfaction and competence in caring. Disabil Rehabil 2007;29: 2:111-121. (Pubitemid 46431579)
19. Mackenzie AE, Holroyd EE, Lui MH. Community nurses' assessment of the needs of Hong Kong family caregivers who are looking after stroke patients. Int J Nurs Stud 1998;35:132-140. (Pubitemid 128424414)
20. Mak AKM, Mackenzie A, Lui MHL. Changing needs of Chinese family caregivers of stroke survivors. J Clin Nurs 2007:16:971-979.
21. Collin C, Wade DT, Davies S, Horne V. The Barthel ADL Index: a reliability study. Int Disabil Stud 1988;10:2:61-63.
22. Scholte OP, Reimer WJM, de Haan RJ, Pijnenborg JMA, Limburg M, van den Bos GAM. Assessment of burden in partners of stroke patients with the Sense of Competence questionnaire. Stroke 1998;29:373-379. (Pubitemid 28086679)
23. Scholte OP, Reimer WJM, de Haan RJ, Limburg M, van den Bos GAM. The burden of caregiving in partners of long-term stroke survivors. Stroke 1998;29:8:1605-1611. (Pubitemid 28365582)
24. Pound P, Gompertz P, Ebrahim S. Development and results of a questionnaire to measure carer satisfaction after stroke. J Epidemiol Commun Health 1993;347:500-505. (Pubitemid 24016874)
25. Altman DG. Practical statistics for medical research. Chapman and Hall: New York; 1991. pp 340-344.
26. Burnard P. A method of analysing interview transcript. Nurse Educ Today 1991;11:461-466.
27. Carers (Recognition & Services) Act. Internet. 1995. Electronic Citation. http://www.opsi.gov.uk/ACTS/acts1995/ukpga-19950012-en-1. Last accessed January 2011.
28. NSW Health Carers Action Plan. Internet. 2007-2012. http://www.health. nsw.gov.au/policies/pd/2007/pdf/PD2007-018.pdf. Last accessed January 2011.
29. Rodgers H, Francis HH, Brittain K, Robinson AL. Who cares?-caring for the carers of stroke patients. Disabil Rehabil 2007;29:425-427. (Pubitemid 47161317)
30. van Exel NJA, Brouwer WBF, van den Berg B, Koopmanschap MA, van den Bos GAM. What really matters: an inquiry into the relative importance of dimensions of informal caregiver burden. Clin Rehabil 2004;18:683-693.
31. Ski C, O'Connell B. Stroke: the increasing complexity of carer needs. J Neurosci Nurs 2007;39:3:172-179.