-
1
-
-
70449622970
-
Between the individual and the community: the impact of genetics on ethical models
-
Widdows H. Between the individual and the community: the impact of genetics on ethical models. New Genet Soc 2009:28:173-88.
-
(2009)
New Genet Soc
, vol.28
, pp. 173-188
-
-
Widdows, H.1
-
2
-
-
21044456586
-
Genetic professionals' reports of nondisclosure of genetic risk information within families
-
Clarke A, Richards M, Kerzin-Storrar L, et al. Genetic professionals' reports of nondisclosure of genetic risk information within families. Eur J Hum Genet 2005;13:556-62.
-
(2005)
Eur J Hum Genet
, vol.13
, pp. 556-562
-
-
Clarke, A.1
Richards, M.2
Kerzin-Storrar, L.3
-
3
-
-
84919770904
-
Scaling ethics up and down: moral craft in clinical genetics and in global health research
-
Parker M. Scaling ethics up and down: moral craft in clinical genetics and in global health research. J Med Ethics 2015;41:134-7.
-
(2015)
J Med Ethics
, vol.41
, pp. 134-137
-
-
Parker, M.1
-
4
-
-
0004269439
-
-
London: General Medical Council
-
GMC. Confidentiality. London: General Medical Council, 2009;67-9.
-
(2009)
Confidentiality
, pp. 67-69
-
-
-
6
-
-
0031991614
-
Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure
-
ASHG statement
-
ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure. Am J Hum Genet 1998;62:474-83.
-
(1998)
Am J Hum Genet
, vol.62
, pp. 474-483
-
-
-
7
-
-
34447508170
-
Communicating genetic information in the family: the familial relationship as the forgotten factor
-
Gilbar R. Communicating genetic information in the family: the familial relationship as the forgotten factor. J Med Ethics 2007;33:390-3.
-
(2007)
J Med Ethics
, vol.33
, pp. 390-393
-
-
Gilbar, R.1
-
8
-
-
3242732814
-
Genetic information: a joint account?
-
Parker M, Lucassen AM. Genetic information: a joint account? BMJ 2004;329:165-7.
-
(2004)
BMJ
, vol.329
, pp. 165-167
-
-
Parker, M.1
Lucassen, A.M.2
-
9
-
-
84857030570
-
-
London, Royal College of Physicians and Royal College of Pathologists
-
British Society for Genetic Medicine/Joint Committee on Medical Genetics. Consent and confidentiality in genetic practice. London, Royal College of Physicians and Royal College of Pathologists, 2011.
-
(2011)
Consent and confidentiality in genetic practice
-
-
-
10
-
-
0035383268
-
The family covenant and genetic testing
-
Doukas DJ, Berg JW. The family covenant and genetic testing. Am J Bioeth 2001;1:3-10.
-
(2001)
Am J Bioeth
, vol.1
, pp. 3-10
-
-
Doukas, D.J.1
Berg, J.W.2
-
11
-
-
0006694335
-
Privacy control of genetic information
-
In: Annas GJ, Elias R, eds, New York: Oxford University Press
-
Macklin (1992) Privacy control of genetic information. In: Annas GJ, Elias R, eds. Gene mapping: using law and ethics as guides. New York: Oxford University Press:157-72.
-
(1992)
Gene mapping: using law and ethics as guides
, pp. 157-172
-
-
Macklin1
-
12
-
-
84929503642
-
Testing the limits of the 'joint account' model of genetic information: a legal thought experiment
-
Foster C, Herring J, Boyd M. Testing the limits of the 'joint account' model of genetic information: a legal thought experiment. J Med Ethics 2015;41:379-82.
-
(2015)
J Med Ethics
, vol.41
, pp. 379-382
-
-
Foster, C.1
Herring, J.2
Boyd, M.3
-
13
-
-
84860469422
-
Challenges of genetic testing in adolescents with cardiac arrhythmia syndromes
-
Cohen LL, Stolerman M, Walsh C, et al. Challenges of genetic testing in adolescents with cardiac arrhythmia syndromes. J Med Ethics 2012;38:163-7.
-
(2012)
J Med Ethics
, vol.38
, pp. 163-167
-
-
Cohen, L.L.1
Stolerman, M.2
Walsh, C.3
-
14
-
-
41049092374
-
Should physicians warn patients' relatives of genetic risks?
-
Lacroix M, Nycum G, Godard B, et al. Should physicians warn patients' relatives of genetic risks? CMAJ 2008;178:593-5.
-
(2008)
CMAJ
, vol.178
, pp. 593-595
-
-
Lacroix, M.1
Nycum, G.2
Godard, B.3
-
15
-
-
0030698207
-
Patients' attitudes about autonomy and confidentiality in genetic testing for breast-ovarian cancer susceptibility
-
Benkendorf JL, Reutenauer JE, Hughes CA, et al. Patients' attitudes about autonomy and confidentiality in genetic testing for breast-ovarian cancer susceptibility. Am J Med Genet 1997;73:296-303.
-
(1997)
Am J Med Genet
, vol.73
, pp. 296-303
-
-
Benkendorf, J.L.1
Reutenauer, J.E.2
Hughes, C.A.3
-
16
-
-
0041818194
-
Disclosure, confidentiality, and families: experiences and attitudes of those with genetic versus nongenetic medical conditions
-
Plantinga L, Natowicz MR, Kass NE, et al. Disclosure, confidentiality, and families: experiences and attitudes of those with genetic versus nongenetic medical conditions. Am J Med Genet 2003;119C:51-9.
-
(2003)
Am J Med Genet
, vol.119C
, pp. 51-59
-
-
Plantinga, L.1
Natowicz, M.R.2
Kass, N.E.3
-
17
-
-
84901288502
-
Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey
-
Akpinar A, Ersoy N. Attitudes of physicians and patients towards disclosure of genetic information to spouse and first-degree relatives: a case study from Turkey. BMC Med Ethics 2014;15:39.
-
(2014)
BMC Med Ethics
, vol.15
, pp. 39
-
-
Akpinar, A.1
Ersoy, N.2
-
18
-
-
34250750776
-
Should healthcare providers have a duty to warn family members of individuals with an HNPCC-causing mutation? A survey of patients from the Ontario Familial Colon Cancer Registry
-
Kohut K, Manno M, Gallinger S, et al. Should healthcare providers have a duty to warn family members of individuals with an HNPCC-causing mutation? A survey of patients from the Ontario Familial Colon Cancer Registry. J Med Genet 2007;44:404-7.
-
(2007)
J Med Genet
, vol.44
, pp. 404-407
-
-
Kohut, K.1
Manno, M.2
Gallinger, S.3
-
19
-
-
27144478922
-
Hereditary nonpolyposis colorectal cancer family members' perceptions about the duty to inform and health professionals' role in disseminating genetic information
-
Pentz RD, Peterson SK, Watts B, et al. Hereditary nonpolyposis colorectal cancer family members' perceptions about the duty to inform and health professionals' role in disseminating genetic information. Genet Test 2005;9:261-8.
-
(2005)
Genet Test
, vol.9
, pp. 261-268
-
-
Pentz, R.D.1
Peterson, S.K.2
Watts, B.3
-
20
-
-
84924992117
-
Defining and managing incidental findings in genetic and genomic practice
-
Shkedi-Rafid S, Dheensa S, Crawford G, et al. Defining and managing incidental findings in genetic and genomic practice. J Med Genet 2014;51:715-23.
-
(2014)
J Med Genet
, vol.51
, pp. 715-723
-
-
Shkedi-Rafid, S.1
Dheensa, S.2
Crawford, G.3
-
21
-
-
0029008609
-
Rigour and qualitative research
-
Mays N, Pope C. Rigour and qualitative research. Bmj 1995;311:109-12.
-
(1995)
Bmj
, vol.311
, pp. 109-112
-
-
Mays, N.1
Pope, C.2
-
22
-
-
84908179426
-
What can "thematic analysis" offer health and wellbeing researchers?
-
Braun V, Clarke V. What can "thematic analysis" offer health and wellbeing researchers? Int J Qual Stud Health Well-being 2014;9:26152.
-
(2014)
Int J Qual Stud Health Well-being
, vol.9
, pp. 26152
-
-
Braun, V.1
Clarke, V.2
-
23
-
-
0035382861
-
Genetics and confidentiality
-
Brock DW. Genetics and confidentiality. Am J Bioeths 2001;1:34-5.
-
(2001)
Am J Bioeths
, vol.1
, pp. 34-35
-
-
Brock, D.W.1
-
24
-
-
84959882222
-
-
Retrieved 9/3/2015
-
Australian Law Reform Commission. Confidentiality and Admissibility. Retrieved 9/3/2015 http://www.alrc.gov.au/publications/22.%20Confidentiality%20and%20Admissibility/fdr-and-family-counselling-confidentiality
-
Confidentiality and Admissibility
-
-
-
25
-
-
77958084581
-
Informing family members about a hereditary predisposition to cancer: attitudes and practices among clinical geneticists
-
Stol YH, Menko FH, Westerman MJ, et al. Informing family members about a hereditary predisposition to cancer: attitudes and practices among clinical geneticists. J Med Ethics 2010;36:391-5.
-
(2010)
J Med Ethics
, vol.36
, pp. 391-395
-
-
Stol, Y.H.1
Menko, F.H.2
Westerman, M.J.3
-
26
-
-
84890130586
-
-
Oxford: Oxford University Press
-
Klitzman R. Am I my genes? Oxford: Oxford University Press, 2012.
-
(2012)
Am I my genes?
-
-
Klitzman, R.1
-
27
-
-
84940726015
-
Parental reasoning about growth attenuation therapy: report of a single-case study
-
Kerruish N, McMillan JR. Parental reasoning about growth attenuation therapy: report of a single-case study. J Med Ethics 2015;41:745-9.
-
(2015)
J Med Ethics
, vol.41
, pp. 745-749
-
-
Kerruish, N.1
McMillan, J.R.2
-
28
-
-
84961214811
-
Patients' attitudes towards disclosure of genetic test results to family members: the impact of patients' sociodemographic background and counseling experience
-
Gilbar R, Shalev S, Spiegel R, et al. Patients' attitudes towards disclosure of genetic test results to family members: the impact of patients' sociodemographic background and counseling experience. J Genet Counsel 2015; doi:10.1007/s10897-015-9873-1
-
(2015)
J Genet Counsel
-
-
Gilbar, R.1
Shalev, S.2
Spiegel, R.3
|