Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditions

American Journal of Medical Genetics - Seminars in Medical Genetics

Volumn 119 C, Issue 1, 2003, Pages 51-59

  Plantinga, Laura ^a   Natowicz, Marvin R ^b   Kass, Nancy E ^c,f   Hull, Sara Chandros ^d   Gostin, Lawrence O ^c,e   Faden, Ruth R ^c  

^a DEPARTMENT OF PATHOLOGY   (United States)

^b LERNER RESEARCH INSTITUTE   (United States)

^c JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^d NATIONAL HUMAN GENOME RESEARCH INSTITUTE   (United States)

^e GEORGETOWN UNIVERSITY   (United States)

^f JOHNS HOPKINS UNIVERSITY   (United States)

Author keywords

Confidentiality; Cross sectional survey; Disclosure; Family members; Hereditary disease

Indexed keywords

ADULT; AMBIVALENCE; ATTITUDE; CONFERENCE PAPER; CONFIDENTIALITY; CONTROLLED STUDY; FAMILY; GENETIC DISORDER; HEREDITY; HUMAN; INFORMED CONSENT; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MEDICAL INFORMATION; PHYSICIAN; POLICY; PREVALENCE; PRIORITY JOURNAL; PRIVACY; RISK;

EID: 0041818194     PISSN: 15524825     EISSN: None     Source Type: Journal    
DOI: 10.1002/ajmg.c.10006     Document Type: Conference Paper

References (9)

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